Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 melissasokulski@... wrote: > Hello, > Someone here had a question about carnitine possibly increasing > seizures...I'm sorry I did not save the email, but I wanted to > comment... > That was me > I was just reading about carnitine yesterday, and thinking about > possibly > supplementing it in Molly's diet...the neuro mentioned her bloodwork > was a > little low in it, and she wants to watch it and may add " carnitore " . > I was reading " The Encyclopedia of Natural Medicine " by > Murray, ND, > about it...he mentioned there is L-carnitine, D-carnitine, and > D,L-carnitine > available, and the D and D,L can make symptoms of carnitine deficiency > WORSE. > Did you happen to notice which form you were giving? > Actually we were using the prescription form which is L-carnitine, I know they say to stay away from the kinds you can get over the counter. > Also, I'll be interested to hear people's replies about supplementing > carnitine, did it increase seizures for anyone else's child? Did it > decrease > anyone's? Did it help other things? The majority of people find it helpful on the diet. In theory it should be because it helps metabolize fat. I have been on the list four years and am only aware of two other parents who felt it might have been harmful. But thought I would ask, never know when someone new might have something new " _ , 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 We've always used L-carnitine with Depakote. 750/day, minimum. Once, I ran out for a few days and saw an immediate difference. Much more spacey, lethargic, less engaged. Never let that happen again! I do not see that it affects seizures at all. I give my son 250 twice a day, and a 330 Carnitor before bed with his three Depakote capsules. For him, it makes a huge difference in keeping him alert and present. Without it, the ammonia level in his liver rises much too high. Jane -----Original Message----- List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Carnitor caused AWFUL diarrhea for Katera. She was never tested.... they just prescribed it thinking all Keto kids probably need it. After two months of that I said NO.... unless they wanted to test her levels, which they never did. Patti Re: carnitine -- I know of at least one child on this list (Sevi -- if you're reading, Nan!) whose seizures got worse on carnitine. I remember Nan saying she'd actually seen this listed as a possibility on the Sigma Tau carnitine website. If she's low on it, though -- you may want to try it. I think there's also another child (Leah, maybe?) who didn't get control until the carnitine was added because she needed it to metabolize the fat.--D __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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