Newbie Here

[Guest guest]

Hello Everyone. My name is Sheila. Like Aleah I am new to this group. And BTW Aleah my daughter's name is Leah was going to name her Aleah. Back to the subject lol. I found out I had HepC Oct 30 02. My Hep DR is the same as Naomi Judd used, Bruce Bacon. My genotype is 1a and had stage 3 grade 2. My viral load was 18,900,000. I started tx April 03. I have been on peg intron/rebetol for 6 months. Undetectable. Neg. Some of the sides are not so pleasant but not going to complain unless im dying lol. But I do take a lot of medications. I do have other health issues such as chronic Colitis, RA, Copd, Asthma, fribromylagia, depression and anxiety, fatigue ect ect ect. None was from the tx. I had everything before starting tx. Well, tx has made me more drained but was already drained before tx. I have had sides from tx but can somehow manage them and if you can't get help for them because you shouldn't have to suffer anymore than we already are. I just turned 40 this year and have 3 beautiful children and 2 in heaven. My daughters are 21, 19 and my only son that is living is just 8. My identical twin sons I lost one when I was 4 months into the pregnancy and my son that was born I lost him when he was 4 months old. I also have a grandson that is 2 and my daughter and son in law are expecting their 2nd child Nov 9th. So going to be a granny again lol. My youngest son is a great kid, the only one left at home. It has been hard on him watching me go threw all I do with my health. But he wants to help as much as possible. He is a very caring little boy that I love more than the whole wide world and back. That is what we have been telling each other since he was born. Also I have had all my children tested and my ex husband and my son's dad that I have been with for 10 1/2 years. Thank God. My DR said I had contacted this give or take 30 years. So I was really young. So that is my newbie story for the group. Also Aleah have you tried the newer tx? Im sorry your tx didn't work for you the first time and so sorry you have to do it again, but it can be worth it. Keep on keepin on and hold your head high and keep your chin up. All we can do is try.

Bless all of you

Sheila

[Guest guest]

-welcome to the group Sheila and Aleah. I am Rick and have not

started tx yet. well just wanted to say hi and welcome--

Thank You Rick

Sheila

[Guest guest]

Hi Sheila. Thanks for responding back so quickly. No, I haven't

tried the new tx yet. I just 1st heard about the new tx just

resently. Ever since I didn't respond to the combo, I've been in

denial and never even worried about ever doing tx again. The 1st go

round was so tough. It deteriated my bones and I'm still not right

after it. Love your daughters name by the way, hehe.. Would love to

chat with you sometime if you'd like. Also, keep up the good work on

this tx your doing. Wishing you well with all your health problems.

I've got many myself. Take care.. Aleah

> Hello Everyone. My name is Sheila. Like Aleah I am new to this

group. And BTW

> Aleah my daughter's name is Leah was going to name her Aleah. Back

to the

> subject lol. I found out I had HepC Oct 30 02. My Hep DR is the

same as Naomi

> Judd used, Bruce Bacon. My genotype is 1a and had stage 3 grade 2.

My viral load

> was 18,900,000. I started tx April 03. I have been on peg

intron/rebetol for 6

> months. Undetectable. Neg. Some of the sides are not so pleasant

but not

> going to complain unless im dying lol. But I do take a lot of

medications. I do

> have other health issues such as chronic Colitis, RA, Copd,

Asthma,

> fribromylagia, depression and anxiety, fatigue ect ect ect. None

was from the tx. I had

> everything before starting tx. Well, tx has made me more drained

but was already

> drained before tx. I have had sides from tx but can somehow manage

them and

> if you can't get help for them because you shouldn't have to

suffer anymore

> than we already are. I just turned 40 this year and have 3

beautiful children and

> 2 in heaven. My daughters are 21, 19 and my only son that is

living is just

> 8. My identical twin sons I lost one when I was 4 months into the

pregnancy and

> my son that was born I lost him when he was 4 months old. I also

have a

> grandson that is 2 and my daughter and son in law are expecting

their 2nd child Nov

> 9th. So going to be a granny again lol. My youngest son is a great

kid, the

> only one left at home. It has been hard on him watching me go

threw all I do

> with my health. But he wants to help as much as possible. He is a

very caring

> little boy that I love more than the whole wide world and back.

That is what we

> have been telling each other since he was born. Also I have had

all my

> children tested and my ex husband and my son's dad that I have

been with for 10 1/2

> years. Thank God. My DR said I had contacted this give or take 30

years. So I

> was really young. So that is my newbie story for the group. Also

Aleah have you

> tried the newer tx? Im sorry your tx didn't work for you the first

time and

> so sorry you have to do it again, but it can be worth it. Keep on

keepin on and

> hold your head high and keep your chin up. All we can do is try.

> Bless all of you

> Sheila

[Guest guest]

-welcome to the group Sheila and Aleah. I am Rick and have not

started tx yet. well just wanted to say hi and welcome--

In , " Aleah Dawn "

<greeneyed_timberwolfette1_1971@y...> wrote:

> Hi Sheila. Thanks for responding back so quickly. No, I haven't

> tried the new tx yet. I just 1st heard about the new tx just

> resently. Ever since I didn't respond to the combo, I've been in

> denial and never even worried about ever doing tx again. The 1st

go

> round was so tough. It deteriated my bones and I'm still not right

> after it. Love your daughters name by the way, hehe.. Would love

to

> chat with you sometime if you'd like. Also, keep up the good work

on

> this tx your doing. Wishing you well with all your health

problems.

> I've got many myself. Take care.. Aleah

> > Hello Everyone. My name is Sheila. Like Aleah I am new to this

> group. And BTW

> > Aleah my daughter's name is Leah was going to name her Aleah.

Back

> to the

> > subject lol. I found out I had HepC Oct 30 02. My Hep DR is the

> same as Naomi

> > Judd used, Bruce Bacon. My genotype is 1a and had stage 3 grade

2.

> My viral load

> > was 18,900,000. I started tx April 03. I have been on peg

> intron/rebetol for 6

> > months. Undetectable. Neg. Some of the sides are not so pleasant

> but not

> > going to complain unless im dying lol. But I do take a lot of

> medications. I do

> > have other health issues such as chronic Colitis, RA, Copd,

> Asthma,

> > fribromylagia, depression and anxiety, fatigue ect ect ect. None

> was from the tx. I had

> > everything before starting tx. Well, tx has made me more drained

> but was already

> > drained before tx. I have had sides from tx but can somehow

manage

> them and

> > if you can't get help for them because you shouldn't have to

> suffer anymore

> > than we already are. I just turned 40 this year and have 3

> beautiful children and

> > 2 in heaven. My daughters are 21, 19 and my only son that is

> living is just

> > 8. My identical twin sons I lost one when I was 4 months into

the

> pregnancy and

> > my son that was born I lost him when he was 4 months old. I also

> have a

> > grandson that is 2 and my daughter and son in law are expecting

> their 2nd child Nov

> > 9th. So going to be a granny again lol. My youngest son is a

great

> kid, the

> > only one left at home. It has been hard on him watching me go

> threw all I do

> > with my health. But he wants to help as much as possible. He is

a

> very caring

> > little boy that I love more than the whole wide world and back.

> That is what we

> > have been telling each other since he was born. Also I have had

> all my

> > children tested and my ex husband and my son's dad that I have

> been with for 10 1/2

> > years. Thank God. My DR said I had contacted this give or take

30

> years. So I

> > was really young. So that is my newbie story for the group. Also

> Aleah have you

> > tried the newer tx? Im sorry your tx didn't work for you the

first

> time and

> > so sorry you have to do it again, but it can be worth it. Keep

on

> keepin on and

> > hold your head high and keep your chin up. All we can do is try.

> > Bless all of you

> > Sheila

[Guest guest]

Welcome, I can understand your denial. It's something we would all like to pretend does not exist at one time or another. I'm sorry you did not respond to the combo. We're always up for making some new friends around here, we have no given "program" we promote. Some of us have responded to treatment, some have not, some have chosen not to do the treatment or take alternative measures. We support anybody afflicted with hcv, whether themselves or by a loved one infected with this disease. I was lucky enough to be a long term responder to the combo treatment. We are all hoping for some more "patient friendly" treatment to be developed. I look forward to hearing more from you. I'm not sure I've heard the name Aleah before, it's a pretty name, is there a story or meaning behind it? Or maybe it's more common and just reflects the fact that I'm old and out of touch.. -dz-Aleah Dawn

<greeneyed_timberwolfette1_1971@...> wrote:

Hello everyone. My name is Aleah. I thought I would start checking out some groups and get back into swings with this hepatitis c. I'm in the 3rd stage and did combo back in 2000 but didn't respond. I went into total denial after that and haven't even thought about trying treatment again until just resently. I hope to make some friends in this group and hope all is doing well. Take care.. Aleah

[Guest guest]

Good! We've been adding several members... I guess that's a mixed blessing, we all look forward to the day when there is no hcv support group, because there's no hcv! Anyway, welcome. Sheila, I guess you are no stranger to adversity, I'm glad to hear you are responding to the treatment. My wife was dx with RA shortly after I started tx for the hcv, so we made quite a pair. She had her hip replaced and that went wonderfully, but I remember looking at her from my chair to her couch, we're both suffering and I said "Now, who's going to feel sorry for us, we're both ailing?" I have a 13 year old son and he is living with his mother, who unfortunately moved 1500 miles away last year. My wife has a 31 year old son living in Idaho (we live in Wisconsin). I can tell you've got a winners attitude, so join in on some dragon butt-kicking! -dz-poisonpinup@... wrote:

Hello Everyone. My name is Sheila. Like Aleah I am new to this group. And BTW Aleah my daughter's name is Leah was going to name her Aleah. Back to the subject lol. I found out I had HepC Oct 30 02. My Hep DR is the same as Naomi Judd used, Bruce Bacon. My genotype is 1a and had stage 3 grade 2. My viral load was 18,900,000. I started tx April 03. I have been on peg intron/rebetol for 6 months. Undetectable. Neg. Some of the sides are not so pleasant but not going to complain unless im dying lol. But I do take a lot of medications. I do have other health issues such as chronic Colitis, RA, Copd, Asthma, fribromylagia, depression and anxiety, fatigue ect ect ect. None was from the tx. I had everything before starting tx. Well, tx has made me more drained but was already drained before tx. I have

had sides from tx but can somehow manage them and if you can't get help for them because you shouldn't have to suffer anymore than we already are. I just turned 40 this year and have 3 beautiful children and 2 in heaven. My daughters are 21, 19 and my only son that is living is just 8. My identical twin sons I lost one when I was 4 months into the pregnancy and my son that was born I lost him when he was 4 months old. I also have a grandson that is 2 and my daughter and son in law are expecting their 2nd child Nov 9th. So going to be a granny again lol. My youngest son is a great kid, the only one left at home. It has been hard on him watching me go threw all I do with my health. But he wants to help as much as possible. He is a very caring little boy that I love more than the whole wide world and back. That is what we have been telling each other since he was born. Also I have had all my children tested and my ex husband and my son's dad that I have been with for 10 1/2 years.

Thank God. My DR said I had contacted this give or take 30 years. So I was really young. So that is my newbie story for the group. Also Aleah! have yo u tried the newer tx? Im sorry your tx didn't work for you the first time and so sorry you have to do it again, but it can be worth it. Keep on keepin on and hold your head high and keep your chin up. All we can do is try.Bless all of youSheila

[Guest guest]

Hi Aleah,

Are you from the old Timberwolf HepC group from a few years back?

I'm reg.

I use to belong to the group with pondwitch U & Gene & several

others? If not sorry.

Take care.

rc

> Hello everyone. My name is Aleah. I thought I would start checking

> out some groups and get back into swings with this hepatitis c.

I'm

> in the 3rd stage and did combo back in 2000 but didn't respond. I

> went into total denial after that and haven't even thought about

> trying treatment again until just resently. I hope to make some

> friends in this group and hope all is doing well. Take care.. Aleah

[Guest guest]

Welcome Sheila and Aleah.   Sharon

Thank You Sharon for the warm welcome. I do have a question. I have been reading where people has lost weight on tx. I am 5 "0 and before tx I weighed 100-105. After 6 months on tx I now weigh 87 1/2. I keep complaining to my DR because I can't afford to lose anymore weight. I do drink boost and ensure. Does anyone know how to maintain weight to where I don't lose anymore? I sure don't want to be 60lbs when I am done lol. Glad I went and had a boob job the year before I was dx lol or now I would have nothing no where lol. Thanks for any info.

Sheila

Sheila

[Guest guest]

Greetings All

After 13 weeks my sides have abated quite a bit.

I'm not so sick for the 48 hrs after the shot , not near irritable as i was

(I'm still not on any anti-depressants)

and am feeling somewhat stronger generally.

I know we all differ as to our side effects but try to keep a good mind

and remember ... it could always be worse <S>

I think stress is a factor regarding one's immune system and very capable

of helping or hindering our health.

I was infected (most likely) in 1972 and have no liver damage

I have also practiced meditation since the mid 80s

of course your mileage may vary

Be well Hoot

Re: [ ] Re: Newbie here

Don't know if I can handle the sides any better than you, fingers crossed.

C

[Guest guest]

I'm glad to hear things are going well, good to hear from you. Let's hope it continues to get better. -dz-Harold Fink <hootmon@...> wrote:

Greetings All

After 13 weeks my sides have abated quite a bit.

I'm not so sick for the 48 hrs after the shot , not near irritable as i was

(I'm still not on any anti-depressants)

and am feeling somewhat stronger generally.

I know we all differ as to our side effects but try to keep a good mind

and remember ... it could always be worse <S>

I think stress is a factor regarding one's immune system and very capable

of helping or hindering our health.

I was infected (most likely) in 1972 and have no liver damage

I have also practiced meditation since the mid 80s

of course your mileage may vary

Be well Hoot

Re: [ ] Re: Newbie here

Don't know if I can handle the sides any better than you, fingers crossed.

C

[Guest guest]

Hi again Nina, It is not unusual that you first feel ashamed of

having this disease but I tell you this, let it go. I felt the

torment of it at one time and it sure wasn't coming from God, if you

know what I mean. In my opinion it is best to speak about it and come

clean. I will pray for you. Be of good courage.

Peace and blessings,

Barbara

> Hi all,

> Thought to intro myself. 9/22/03 my Dobe , , was dx with a

> tumor sarcoma that is taking her fast. A week later I took a Hep C

> test that showed positive. A week later I was bit by a brown

recluse

> spider. Hi, I'm Nina and I'm very tired and depressed. But, life

> goes on, doesn't it.

> I've had hep c for 20-30 years depending on whether you would think

> I contacted it from IV use (duh) or from 10 years in a medical

> and dental setting in a time that no one thought of using gloves.

> I've been sick off and on that whole time never knowing why.

Doctors

> would suggest the hep test but I always declined thinking I wasn't

> sick enough, wasn't jaundiced and didn't have ins.

> I have always had to take really good care of myself (exercise,

> vitamins)knowing that if I didn't I would get down. It seemed at

> least every 5 years I would get really bad and sometimes once a

year.

> Well, now I know a name for it. My Alt has always been out of range

> so knew I had liver problems and have treated liver with herbs and

> detoxifying supplements. That would help a great deal but I would

> always slack off when I started feeling better.

> Now, I can't slack off since all my liver tests are out of range

and

> my liberal minded DO says I better do something. Sooooo, I'm really

> looking for the best I can find, aren't we all?

> I'm struggling with keeping this news a secret. I am ashamed and

> don't want my kids to know, my relatives or my friends either. I

> suppose that is common though.

> Enough for one post. I'm intro'd, am I not?

> Peace, Nina

[Guest guest]

Hey Nina,

Don't you dare feel ashamed of yourself chick.Alot of us did things

back in the day that " seemed like a good idea at the time " .And if

that's not how you got it(which we'll never REALLY know),it's still

not something for you to dog yourself about.You are a beautiful

person in the eyes of your maker,and never forget that.

It is a personal choice about who to tell.And I have learned that

there are alot of uninformed people out there.And you know what?Some

choose to stay ignorant,so to that I have to say' " Their loss! "

My boys are 9,7,and 3.I don't keep a thing from them,so they'll know

what to expect and not be afraid.But,like I said-It's a personal

choice.Anyway,I'm Tam,43,and I live South of New Orleans.Been alot of

places,seen alot of things,met alot of people.Then I came home.

I wish you the best with all of it.

All that any of us can do,is our best.Peace,Tammie

> Hi all,

> Thought to intro myself. 9/22/03 my Dobe , , was dx with a

> tumor sarcoma that is taking her fast. A week later I took a Hep C

> test that showed positive. A week later I was bit by a brown

recluse

> spider. Hi, I'm Nina and I'm very tired and depressed. But, life

> goes on, doesn't it.

> I've had hep c for 20-30 years depending on whether you would think

> I contacted it from IV use (duh) or from 10 years in a medical

> and dental setting in a time that no one thought of using gloves.

> I've been sick off and on that whole time never knowing why.

Doctors

> would suggest the hep test but I always declined thinking I wasn't

> sick enough, wasn't jaundiced and didn't have ins.

> I have always had to take really good care of myself (exercise,

> vitamins)knowing that if I didn't I would get down. It seemed at

> least every 5 years I would get really bad and sometimes once a

year.

> Well, now I know a name for it. My Alt has always been out of range

> so knew I had liver problems and have treated liver with herbs and

> detoxifying supplements. That would help a great deal but I would

> always slack off when I started feeling better.

> Now, I can't slack off since all my liver tests are out of range

and

> my liberal minded DO says I better do something. Sooooo, I'm really

> looking for the best I can find, aren't we all?

> I'm struggling with keeping this news a secret. I am ashamed and

> don't want my kids to know, my relatives or my friends either. I

> suppose that is common though.

> Enough for one post. I'm intro'd, am I not?

> Peace, Nina

[Guest guest]

Hi Nina, welcome to our group. Rick

> Hi all,

> Thought to intro myself. 9/22/03 my Dobe , , was dx with

a

> tumor sarcoma that is taking her fast. A week later I took a Hep C

> test that showed positive. A week later I was bit by a brown

recluse

> spider. Hi, I'm Nina and I'm very tired and depressed. But, life

> goes on, doesn't it.

> I've had hep c for 20-30 years depending on whether you would

think

> I contacted it from IV use (duh) or from 10 years in a

medical

> and dental setting in a time that no one thought of using gloves.

> I've been sick off and on that whole time never knowing why.

Doctors

> would suggest the hep test but I always declined thinking I wasn't

> sick enough, wasn't jaundiced and didn't have ins.

> I have always had to take really good care of myself (exercise,

> vitamins)knowing that if I didn't I would get down. It seemed at

> least every 5 years I would get really bad and sometimes once a

year.

> Well, now I know a name for it. My Alt has always been out of

range

> so knew I had liver problems and have treated liver with herbs and

> detoxifying supplements. That would help a great deal but I would

> always slack off when I started feeling better.

> Now, I can't slack off since all my liver tests are out of range

and

> my liberal minded DO says I better do something. Sooooo, I'm

really

> looking for the best I can find, aren't we all?

> I'm struggling with keeping this news a secret. I am ashamed and

> don't want my kids to know, my relatives or my friends either. I

> suppose that is common though.

> Enough for one post. I'm intro'd, am I not?

> Peace, Nina

[Guest guest]

Nina-

Let me join everyone else in welcoming you to this Group.

I'm very sorry to hear about your Dobe. I lost my 15 y.o. cat Bast to

bowel cancer a little over five years ago and don't think a day has

gone by that I've not thought about him. Of course he still lives in

my heart and his spirit comes back to visit.

I was diagnosed a little over a year ago as part of a routine

physical's blood test and assume I was infected about 30 years ago

when I used i.v. drugs. Yesterday I was looking at a hep C web site

that had a list of the initial symptoms and thought that if I had any

of those sypmtoms at the time that I didn't notice them, since they

were the way I usually felt after a drug or alcohol binge. LOL!

My viral load is the max, liver biopsy normal and AST & ALT in the

low to mid 60s, which ain't too bad. My gastro said that he didn't

see any reason for me to take treatment at this time, since there may

be drugs in a few years with lesser side effects. I do take milk

thistle on a daily basis as well as vit E and B-complex. Three weeks

ago I started walking to work for the exercise as well as to try to

lose some weight, which will make my PCP happy. It's a little over a

mile but up hill...not a huge hill but I do get a work out. My weight

is 198 and I'd like to get it down to ~185. BTW, I'm 54 and have

marginally high blood pressure, which I take meds for.

As for other's attitudes, maybe it's my age but a few years ago I

gave up worrying what people think about me. I can't change the past

so I'm trying to do the best I can now. I know that that won't atone

for what I did in the past but maybe it will earn me some good karma

points so that my soul will be judged a little less harshly when I

die and face judgement...which I hope won't be for several decades.

LOLOLOL!!!

Well, I guess that the length of this post will make up for my not

posting that often.

Lou [with his cats Bellla and Sammy F.C.]

San Francisco, CA

[Guest guest]

Sharon-

I'm always reminded of the Bob Dylan lyric " Don't ask me nothin'

about nothin'; I just might tell you the truth. " If people can't

handle what I tell them about myself or my past then that's thier

problem not mine. =8-)

Lou

> Hey Lou. I think it IS age that mellows us and I am grateful. I no

longer care what other people think. I also don't get angry like I

used to Life's too short. Good to hear from you.

> Sharon

[Guest guest]

Welcome, Nina. A lot to take on all at once. Don't let it shame you. I know I felt the sting, too, somehow feeling dirty. You tell who you want to tell. That's something you can only decide. I told my family members and a few of my close friends. -dz-ooopalmirageoo <ooopalmirageoo@...> wrote:

Hi all,Thought to intro myself. 9/22/03 my Dobe , , was dx with a tumor sarcoma that is taking her fast. A week later I took a Hep C test that showed positive. A week later I was bit by a brown recluse spider. Hi, I'm Nina and I'm very tired and depressed. But, life goes on, doesn't it.I've had hep c for 20-30 years depending on whether you would think I contacted it from IV use (duh) or from 10 years in a medical and dental setting in a time that no one thought of using gloves. I've been sick off and on that whole time never knowing why. Doctors would suggest the hep test but I always declined thinking I wasn't sick enough, wasn't jaundiced and didn't have ins.I have always had to take really good care of myself (exercise, vitamins)knowing that if I didn't I would get

down. It seemed at least every 5 years I would get really bad and sometimes once a year.Well, now I know a name for it. My Alt has always been out of range so knew I had liver problems and have treated liver with herbs and detoxifying supplements. That would help a great deal but I would always slack off when I started feeling better.Now, I can't slack off since all my liver tests are out of range and my liberal minded DO says I better do something. Sooooo, I'm really looking for the best I can find, aren't we all?I'm struggling with keeping this news a secret. I am ashamed and don't want my kids to know, my relatives or my friends either. I suppose that is common though.Enough for one post. I'm intro'd, am I not?Peace, Nina

[Guest guest]

Another Dylan fan! That was one of his more obscure songs, so you must have a collection of his stuff. I've got a pile of his albums and several CD's. -dz-Wharf_Kitty <Lou.Kurdziel@...> wrote:

Sharon-I'm always reminded of the Bob Dylan lyric "Don't ask me nothin' about nothin'; I just might tell you the truth." If people can't handle what I tell them about myself or my past then that's thier problem not mine. =8-)Lou> Hey Lou. I think it IS age that mellows us and I am grateful. I no longer care what other people think. I also don't get angry like I used to Life's too short. Good to hear from you.> Sharon

[Guest guest]

Dave-

Actually, no, I don't have any Dylan CDs or records. I remember back

in the '70s though when we used to sit around the apartment and play

guitar [mine's sitting in the corner of my room collecting dust these

days] and sing. Dylan was one of our faves. I used to know all the

verses to " Mr. Tambourine Man " by heart. LOL!

These days I listen to New Orleans music and over the past few years

have developed a real liking for music of the 1920s.

Lou [with his cats Bella & Sammy F.C.]

Sharon-

>

> I'm always reminded of the Bob Dylan lyric " Don't ask me nothin'

> about nothin'; I just might tell you the truth. "

[Guest guest]

Hello, Sharon

To be honest, I was laid off so, having the years and age, I retired. I have several more months of full pay coming in plus my pension. It would seem smart to do it while I don't have to work

Best regards from Rochester, NY

Jim

Re: [ ] Newbie here

Welcome Jim.Any reason why your going to get a biopsy now?

SharonJim Hampton <aa2qa@...> wrote:

Hello, all!I'm Jim and I was diagnosed with hep C around 1991. I had one flare up (in '91) and it quieted down. Now, here it is in 2004 and I haven't taken action against it.Darn nervous about a biopsy. I guess I believe in "if it ain't broke, don't fix it". Of course, I know it's broke ....Best regards from Rochester, NYJim

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.705 / Virus Database: 461 - Release Date: 6/12/04

[Guest guest]

Good for you (the retiring part). The

biopsy isn’t that bad, and it will give you a good idea of where your

liver is at. Keep us posted and we’ll hope for good results. –dz-

Re: [ ]

Newbie here

Hello, Sharon

To be honest, I was laid off so,

having the years and age, I retired. I have several more months of full

pay coming in plus my pension. It would seem smart to do it while I don't

have to work

Best regards from Rochester, NY

Jim

[Guest guest]

Shane,

A lot of us have various reactions to the topical preparations. I had

a bad rash from testoderm. Got switched to Androgel, and the rash

went away but I didn't absorb it well. Testoderm wasn't out yet, so I

kept experimenting with Androgel and found it absorbed better on the

legs. My levels are OK now.

A lot of guys try the shots (I don't like needles), but have more ups

and downs with them. The latest thing are the pellets that they

implant under the skin. Most guys like them - no mess and even drug

levels.

I've got thyroid problems too - when it rains, it pours, right? Good

luck and thanks for posting here on the boards.

Regards,

K4

> Hello all,

> My name is Shane and I am glad to see a group like this.. I am on

> Testim , 1 tube a day. Is anyone else on this medicine I would

love

> to talk with anyone that is on it, I was on Androgel but had to

many

> complications with it. I'm having problems with testim in the

> application site shoulders and arms, got a terrible rash and just

> curious to see if anyone else is having the same reactions... I

was

> a member of this group before but I unsubscribed because I was

> getting too many emails a day. I'm back though. I also have

> hypopituitarism and hypothyroidism. Lot of hassle lol... Just

> wanted to say hi and hope to hear from some of you...

[Guest guest]

Hi

the beginning is difficult. My daughter has DS and was diagnosed with

leukemia (AML) when she was 12 months old. She has been in remission since

her first round of chemo and out of chemo for 28 months now. is doing

fine, so hang in there... All the best for you and ,

Simone.

[Guest guest]

Hi, Chris. We have very similar stories. is 4, will be 5 in Dec. He was diagnosed prenatally with DS after a high triple screen blood test and amnio. He was diagnosed with ALL 10-29-03 after several weeks of seeming viruses and then petichea, which sent us to the ER and revealed leukemia through a late night blood test. He is high risk due to a high white count at diagnosis (169,000), but is a rapid early responder, having achieved remission in the first month. He had a very long first year with many delays due to low counts, malnutrition and a feeding tube, and several inpatient stays due to fever and neutropenia, and other things. But now, he's in long term maintenance, back in school, sporting new hair and bigger smiles. He won't be off treatment til spring 07, but things are much better. Hang in there, take one day (or moment) at a time, and lean on your faith if you have that. You'll get through, and so will . You can set up a caringbridge website for free to journal the experience and keep others up to date on what's going on - www.caringbridge.org. Best wishes to you!

Bethmom to , age 4, diagnosed with high-risk preB ALL 10-29-03, on CCG1961-cwww.caringbridge.org/in/kylefacts

[ ] Newbie here

Hi everyone,Wish it was under better circumstances that I was meeting you all.My 5 yr old son , who has DS, was diagnosed with ALL on Oct 11'04. We live in Adelaide, Australia. We are still in the first stage of treament but I'm happy to reportthat his day 15 bone marrow biopsy failed to locate any leukemia cells!I knew before was born that he had DS - increased nucal foldgave it away and an amnio confirmed it. We had thought that that wasour shock. We discovered later that DS kids have am increased risk ofleukemia, when another child in our early intervention group wasdiagnosed with it at 22months old. Everyone in our group sort of feltsafe then - after all, the odds weren't 'that' high.For 3 weeks before DX, was lethargic, refusing to eat,coughing, running nose - basically all the 'flu symptoms. We took himto the DR 5 times, only to be told he just needed rest. The morning of the 11th, developed petechiae, not that I knewwhat that was at that stage. I rushed him off to the hospital, andafter many hours in the emergency waiting room, a blood test wasfinally taken. I'm sure what happened from there is familiar to you all. I'm struggling a little at the moment. I'm so tired it's not funny andit all seems neverending.Thanks for listening,and

[Guest guest]

we share 's story. Our son (3) was diagnosed with AML this past January, completed his protocol in late July and is tearing up the house! Hang Tight!

- RossDuane & Simone Wheeler <windwlkr@...> wrote:

Hi the beginning is difficult. My daughter has DS and was diagnosed with leukemia (AML) when she was 12 months old. She has been in remission since her first round of chemo and out of chemo for 28 months now. is doing fine, so hang in there... All the best for you and ,Simone.

[Guest guest]

Welcome to the list.

Every time we have a new person to the list, I feel gladness that they found us, but a simultaneous to the pit in my stomach. Dealing with cancer has been very difficult, but I feel very fortunate to have each other to reach out to. Yes, tired beyond expression is exactly how we felt going through it. Hopefully you will find this a safe place to lay your triumphs and fears.

Mom to who will be 5 this month and is 2 1/2 years in remission from AML.

sp<cmap@...> wrote:

Hi everyone,Wish it was under better circumstances that I was meeting you all.My 5 yr old son , who has DS, was diagnosed with ALL on Oct 11'04. We live in Adelaide, Australia. We are still in the first stage of treament but I'm happy to reportthat his day 15 bone marrow biopsy failed to locate any leukemia cells!I knew before was born that he had DS - increased nucal foldgave it away and an amnio confirmed it. We had thought that that wasour shock. We discovered later that DS kids have am increased risk ofleukemia, when another child in our early intervention group wasdiagnosed with it at 22months old. Everyone in our group sort of feltsafe then - after all, the odds weren't 'that' high.For 3 weeks before DX, was lethargic, refusing to eat,coughing, running nose - basically all the

'flu symptoms. We took himto the DR 5 times, only to be told he just needed rest. The morning of the 11th, developed petechiae, not that I knewwhat that was at that stage. I rushed him off to the hospital, andafter many hours in the emergency waiting room, a blood test wasfinally taken. I'm sure what happened from there is familiar to you all. I'm struggling a little at the moment. I'm so tired it's not funny andit all seems neverending.Thanks for listening,and