Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 Hi , Welcome to the group. I'm pretty new too. I also have a son with ADHD, but not Asperger's, although my oldest son has Asperger's. I am just starting the enzymes for my ADHD child. He is supposed to be on Focaline, but he had a horrible reaction to it, head banging and language loss, and he is on Clonidine to help him sleep. Maybe he has austism, but he hasn't been diagnosed with it, but so many symptoms that he has are similar to what I am currently learning are autistic symptoms. I can't answer your questions on the enzymes yet because I'm new to enzyme therapy. I just wanted to say hi! and lend my support. My son was also breastfed until two and started to digress after he was switched to regular food. Up until then he was ahead on his development. We were vegetarians at the time, no dairy, but lots of wheat. He didn't have a stroke but went into respiratory distress at 8 weeks due to RSV. I blame some of his problems on the loss of oxygen. This group has been helpful for me because I know I'm not alone and I wanted to say welcome and let you know you have people here that understand what you are going through. Debbie They turn him into > a zombie and once the meds wear off he becomes even more defiant and > hostle. > > My questions: > > 1. Are Peptizyde and HN-Zyme Prime still the more > effective/suggested choices in dealing with autism? > > 2. How slowly do you need to titrate up? > > 3. Any suggestions for starting this program? > > Thanks for any help/suggestions any of you can offer. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hi Lynn,In my opinion, taking LDN for Lyme makes good sense. Boosting the immune system should, theoretically, help the body fight off the infection.If I were you, I would include colloidal silver (CS) in your treatment regimen. Here is a Lyme/CS testimonial:http://tinyurl.com/2l9pbhFor more information about CS, visithttp://tinyurl.com/2fd7xsYou might also read "The Top Ten Lyme Disease Treatments," a book available from Amazon.com through this link:http://tinyurl.com/2y4n3wFinally, you may pick up some good advice for treating Lyme disease athttp://www.webspawner.com/users/ecslymediseasetx/index.htmlWith best wishes,Dudley Delany dudley_delanyFrom: lmichaels02 Sent: Friday, February 15, 2008 8:10 PM low dose naltrexone Subject: [low dose naltrexone] Newbie here Hi All - It seems I'm suffering from chronic Lyme and was wondering how LDN might help me. I'd love to hear your thoughts. Thank you, Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Colloidal silver is useful, however it must be used with caution. Those who take it long term sometimes develop a condition called argyria, which turns your skin blue. > > Hi Lynn, > > In my opinion, taking LDN for Lyme makes good sense. Boosting the immune system should, theoretically, help the body fight off the infection. > > If I were you, I would include colloidal silver (CS) in your treatment regimen. Here is a Lyme/CS testimonial: > > http://tinyurl.com/2l9pbh > > For more information about CS, visit > > http://tinyurl.com/2fd7xs > > You might also read " The Top Ten Lyme Disease Treatments, " a book available from Amazon.com through this link: > > http://tinyurl.com/2y4n3w > > Finally, you may pick up some good advice for treating Lyme disease at > > http://www.webspawner.com/users/ecslymediseasetx/index.html > > With best wishes, > > Dudley Delany > > dudley_delany > > > [low dose naltrexone] Newbie here > > Hi All - > > It seems I'm suffering from chronic Lyme and was wondering how LDN > might help me. > > I'd love to hear your thoughts. > > Thank you, > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hi Marla,Could you site your reference on that? As far as I know, no one has ever reported developing argyria from TRUE colloidal silver (i.e., just distilled water and submicroscopic particles of silver). People HAVE developed argyria from other silver prepartions, such as colloidal silver protein (CSP), silver nitrate, etc. I site as my reference a book entitled, "Colloidal Silver Today," which is available from Amazon.com through this link:http://tinyurl.com/2orjtkAll the best,Dudley Delany dudley_delanyFrom: marlaprendergast Sent: Friday, February 15, 2008 9:46 PM low dose naltrexone Subject: [low dose naltrexone] Re: Newbie here Colloidal silver is useful, however it must be used with caution. Those who take it long term sometimes develop a condition called argyria, which turns your skin blue. > > Hi Lynn, > > In my opinion, taking LDN for Lyme makes good sense. Boosting the immune system should, theoretically, help the body fight off the infection. > > If I were you, I would include colloidal silver (CS) in your treatment regimen. Here is a Lyme/CS testimonial: > > http://tinyurl.com/2l9pbh > > For more information about CS, visit > > http://tinyurl.com/2fd7xs > > You might also read " The Top Ten Lyme Disease Treatments, " a book available from Amazon.com through this link: > > http://tinyurl.com/2y4n3w > > Finally, you may pick up some good advice for treating Lyme disease at > > http://www.webspawner.com/users/ecslymediseasetx/index.html > > With best wishes, > > Dudley Delany > > dudley_delany > > > [low dose naltrexone] Newbie here > > Hi All - > > It seems I'm suffering from chronic Lyme and was wondering how LDN > might help me. > > I'd love to hear your thoughts. > > Thank you, > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hi Lynn,You won't change color. As far as I know, no one has ever reported developing argyria from TRUE colloidal silver (i.e., just distilled water and submicroscopic particles of silver). People HAVE developed argyria from other silver prepartions, such as colloidal silver protein (CSP), silver nitrate, etc. I site as my reference a book entitled, "Colloidal Silver Today," which is available from Amazon.com through this link:http://tinyurl.com/2orjtkAll the best,Dudley Delany dudley_delanyFrom: lmichaels02 Sent: Friday, February 15, 2008 10:01 PM low dose naltrexone Subject: [low dose naltrexone] Re: Newbie here i have enough challenges without changing color! > > Colloidal silver is useful, however it must be used with caution. > Those who take it long term sometimes develop a condition called > argyria, which turns your skin blue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Do a google search entering the terms " colloidal silver argyria " and you will find a host of sites that discuss this phenomenon. > > > > Hi Lynn, > > > > In my opinion, taking LDN for Lyme makes good sense. Boosting the > immune system should, theoretically, help the body fight off the > infection. > > > > If I were you, I would include colloidal silver (CS) in your > treatment regimen. Here is a Lyme/CS testimonial: > > > > http://tinyurl.com/2l9pbh > > > > For more information about CS, visit > > > > http://tinyurl.com/2fd7xs > > > > You might also read " The Top Ten Lyme Disease Treatments, " a book > available from Amazon.com through this link: > > > > http://tinyurl.com/2y4n3w > > > > Finally, you may pick up some good advice for treating Lyme > disease at > > > > http://www.webspawner.com/users/ecslymediseasetx/index.html > > > > With best wishes, > > > > Dudley Delany > > > > dudley_delany > > > > > > [low dose naltrexone] Newbie here > > > > Hi All - > > > > It seems I'm suffering from chronic Lyme and was wondering how LDN > > might help me. > > > > I'd love to hear your thoughts. > > > > Thank you, > > > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 There is a great deal of misinformation and disinformation on the Internet in regard to colloidal silver. I suggest you round out your research by reading, "Colloidal Silver Today." From: marlaprendergast Sent: Friday, February 15, 2008 10:31 PM low dose naltrexone Subject: [low dose naltrexone] Re: Newbie here I have neither the time nor the inclination to get into an argument with you. I have met my burden of proof by telling you how to find the information. If you don't want to do it, fine. I myself use colloidal silver as an antibiotic, but before I began doing so, I did the research. > > > > > > Hi Lynn, > > > > > > In my opinion, taking LDN for Lyme makes good sense. Boosting > the > > immune system should, theoretically, help the body fight off the > > infection. > > > > > > If I were you, I would include colloidal silver (CS) in your > > treatment regimen. Here is a Lyme/CS testimonial: > > > > > > http://tinyurl.com/2l9pbh > > > > > > For more information about CS, visit > > > > > > http://tinyurl.com/2fd7xs > > > > > > You might also read " The Top Ten Lyme Disease Treatments, " a > book > > available from Amazon.com through this link: > > > > > > http://tinyurl.com/2y4n3w > > > > > > Finally, you may pick up some good advice for treating Lyme > > disease at > > > > > > http://www.webspawner.com/users/ecslymediseasetx/index.html > > > > > > With best wishes, > > > > > > Dudley Delany > > > > > > dudley_delany > > > > > > > > > [low dose naltrexone] Newbie here > > > > > > Hi All - > > > > > > It seems I'm suffering from chronic Lyme and was wondering how > LDN > > > might help me. > > > > > > I'd love to hear your thoughts. > > > > > > Thank you, > > > > > > Lynn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 LDN may help Lyme disease when used in conjunction with an effective treatment to rid yourself of Borrellia. While LDN should help the immune system overcome the immune suppressing effects of Lyme, it is likely not enough to overcome the disease. The Marshall Protocol uses an immune boosting drug with antibiotics to treat Lyme disease. So it would stand to reason that LDN could also be used in this way. There are many good Lyme treatments and precious few cures for Chronic Lyme. The other poster on this subject mentioned one good treatment we have used, with positive results. We have not used LDN as of yet, but we may in the future. D Bergy > > Hi All - > > It seems I'm suffering from chronic Lyme and was wondering how LDN > might help me. > > I'd love to hear your thoughts. > > Thank you, > > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 --- Blue skin may not be too bad... Atleast you could get a job in Vegas with the Blue men and make lots of moola.. Just a little humor In low dose naltrexone , " marlaprendergast " <kws11@...> wrote: > > Colloidal silver is useful, however it must be used with caution. > Those who take it long term sometimes develop a condition called > argyria, which turns your skin blue. > > > > > > Hi Lynn, > > > > In my opinion, taking LDN for Lyme makes good sense. Boosting the > immune system should, theoretically, help the body fight off the > infection. > > > > If I were you, I would include colloidal silver (CS) in your > treatment regimen. Here is a Lyme/CS testimonial: > > > > http://tinyurl.com/2l9pbh > > > > For more information about CS, visit > > > > http://tinyurl.com/2fd7xs > > > > You might also read " The Top Ten Lyme Disease Treatments, " a book > available from Amazon.com through this link: > > > > http://tinyurl.com/2y4n3w > > > > Finally, you may pick up some good advice for treating Lyme > disease at > > > > http://www.webspawner.com/users/ecslymediseasetx/index.html > > > > With best wishes, > > > > Dudley Delany > > > > dudley_delany > > > > > > [low dose naltrexone] Newbie here > > > > Hi All - > > > > It seems I'm suffering from chronic Lyme and was wondering how LDN > > might help me. > > > > I'd love to hear your thoughts. > > > > Thank you, > > > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 > She is also VERY healthy, never an ear infection, few colds, etc. This can be a sign of latent virus issues. > She does have verbal/oral stims: giggling, growling, shouting > nonsense, whispering, muttering nonsense, grimacing, saliva play. Try increasing the yeast protocol, yeast overgrowth can cause most of those issues http://www.danasview.net/yeast.htm > She runs back and forth, uses a jumper or jumps up and down. She has > some hand flapping. At the moment she is masturbating (over her > clothes) a lot right now. She also goes what I call " boneless " and > gets giggly. Yeast > I want to try enzymes for opiate issues with food digestion. Can > anyone give me some direction in addressing her issues this way as > well as success stories with enzymes and these issues. This site is good http://www.enzymestuff.com/ I used HNI with much success http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Dana, Thanks so much for getting back to me with your ideas and info! I do have one more question at the moment. You say that my daughter's good health and lack of illnesses can be a sign of latent virus issues... I don't understand that. Could you go a little more into what you meant? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 > Dana, Thanks so much for getting back to me with your ideas and info! I do have one more question at the moment. > You say that my daughter's good health and lack of illnesses can be a sign of latent virus issues... I don't understand that. Could you go a little more into what you meant? In the beginning, my son was ALWAYS sick. After a while, he was NEVER sick. In the beginning, his immune system was overwhelmed, and was always on high alert trying to fight all the viruses he encountered during the day. It was not terribly effective at doing so, so he appeared to be always sick, because his body was not able to effectively fight viruses. After a while, his immune system stopped trying. It never even mounted an attack on the viruses. Viruses just went straight into his brain. I watched a cold virus do this once, not a pleasant experience. I used OLE, Virastop, vitamin C, and lysine to pull viruses out of his brain and correct his immune system. Now his body can fight off viruses and keep them out of his brain. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Welcome. It sure does sound like you are on this and your child is getting some help. If I could recommend anything it would be the Dr. Bock 4 As book as it covers a number of ailments you describe in your family. Hang in there! L > > hi my name is Jaden. i hope im posting this correctly. > > im married and i have 4 children, one of which is being > diagnosed as either Autistic or PDD. We started this whole process in > January 2008 just after her 3 yr birthday. the issues have been there > since she was 15 to 18 months old but the dr and everyone kept saying > give her time and lets wait. when she turned 2 she was put in speech > therapy for 3 months and i was doing more to try and help her at home > and she wasnt making progress so we pulled her out. again the dr said > lets wait till she is 3 to see what happens. > > her bilogical father is bipolar, skitzo, manic depressive, ptsd, > suicidal, self mutilator. he is not involved with her since she was 6 > months old. and even when he was aroung back then he wasnt > really 'there'. even her psychologist has said to keep her away from > him. without him saying that i have already been doing that. > > my daughter has up to now seen the eye dr, the audiologic specialist, > a neurologist, a psychologist, a second speech therapist. all have > the same conclusion autistic/pdd. her problems so far are autism, > sensory, ocd, adhd, speech, comprehension, behavior. > > we are awaiting our evaluation by the school board which will take > place next month on 4/29/08 to get her into the special autism > education program. its clear by all the drs she has seen already from > what they say she wont benefit from normal 30 to 60 minute 2 or 3 > times per week therapy, she needs 20 to 25 hours at least of a full > time program. > > the only problem she had while a baby was being lactose intolerant > and needed lactofree formula until she was 1 yr old then she took > whole milk like a champ. she also didnt babble or blow raspberries as > an infant. but did start to say single words by 1 yr old. she lost a > lot of speech between the age 15 and 18 months old. thats when things > went downhill very fast. she would refuse saucy foods and bread type > foods. she never really like to be held or kissed or hugged. her > sensors clearly are not right. the pointing and the frustration in > her started when she coulnt communicate what she needed or wanted. > things escalated and more and more things have some to light. > > everyday life for her include swaying, repeat spinning, toe > walking/running, hyperactivity (she can run miles through the house > daily if we let her), aggressiveness toward her 2 yr old brother > (smacking hitting pushing biting), self isolation (has periods of > closing her own door and not wanting anything to do with anyone), > jargun talking (we have to try and pick out the words we understand), > little comprehension (doesnt understand questions or consiquences), 2 > or 3 word sentances that are clear once in a while, pointing and > saying " uhh uhh uhh " (when she cant find the words to express what > she needs or wants), looking through people (eyes not looking at us), > acts deaf (we can be talking about one thing and all of the sudden > she will say something totally not relative and run off or doesnt > answer us when we call her or talk to her), lining things up in > precise rows (this started 2 months ago with peas fruit loops dolls), > everything must touch her face or go in her mouth or get smeared on > her body when she handles it (from food to dirt), repeats most of > what we ask or say instead of doing what we say or answering our > questions, fluctuating weight and eating habits, screams alot, throws > herself on the floor in fits, kicks like crazy on her bedroom walls > or door, wont fall asleep before 12am, obsesses over a lot of things > (like her cartoons if a commercial comes on she freaks or if we try > to sway her attention away from something), stares off and 'checks > out', hitting herself (my husband caught her doing this for the first > time a week ago). > > but through all this there are the wonderful lovable times that she > thinks she is a comedian. she can be a funny little girl and so > cuddly which this started about 3 months ago. > > my other childrens ages are 4.5 months old (boy ~ allergies & > possible asthma), 22.3 month old (boy ~ GERD acid reflux disease & > speech therapy & aversion to solids therapy). 13.5 yr old (girl ~ add > & blackouts & siexure episodes) > > ~jaden~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 The wait and see game...I've played that. Aside from the school district eval, she needs to have a full developmental evaluation at a leading hospital in your area. We live near boston, so we got on the waiting list of every hospital's Multi- disciplinary developmental evaluation team (don't let the wait list scare you - and get on their cancellation list where they call you if they get a cancellation). Even a big non-boston hosptial that is a children's hospital had a team that did this. We chose them...their team was better. The school needs to pay for this because this type of eval is clearly out of their league. If you want to pull out her biological father's background as a reason to look beyond " typical " ASD (there is no such thing) - now is the time to do it. She seems to be having some stomach issues - with the deselection of food, behaviors, etc. Does she have other tummy issues - constipation, diarreha? Might be time for a gastroenterologist evaluation. More and more children's hospitals are including spectrum kids in their practice - 3 years ago, they looked at me like I had three heads. You could also look into food elimination - like milk since it was an issue before for her - and see if that improves anything. It is a personal choice. My son's DAN! doctor treats a number of patients not only on the spectrum but with serious bipolar, anxiety, etc. issues. Not everyone can be treated successfully without meds, but even serious medical journals are looking into the role of some supplements (like folinic acid) as an aid in the body's use of SSRIs, etc. Best of luck in the fight for your daughter. > > hi my name is Jaden. i hope im posting this correctly. > > im married and i have 4 children, one of which is being > diagnosed as either Autistic or PDD. We started this whole process in > January 2008 just after her 3 yr birthday. the issues have been there > since she was 15 to 18 months old but the dr and everyone kept saying > give her time and lets wait. when she turned 2 she was put in speech > therapy for 3 months and i was doing more to try and help her at home > and she wasnt making progress so we pulled her out. again the dr said > lets wait till she is 3 to see what happens. > > her bilogical father is bipolar, skitzo, manic depressive, ptsd, > suicidal, self mutilator. he is not involved with her since she was 6 > months old. and even when he was aroung back then he wasnt > really 'there'. even her psychologist has said to keep her away from > him. without him saying that i have already been doing that. > > my daughter has up to now seen the eye dr, the audiologic specialist, > a neurologist, a psychologist, a second speech therapist. all have > the same conclusion autistic/pdd. her problems so far are autism, > sensory, ocd, adhd, speech, comprehension, behavior. > > we are awaiting our evaluation by the school board which will take > place next month on 4/29/08 to get her into the special autism > education program. its clear by all the drs she has seen already from > what they say she wont benefit from normal 30 to 60 minute 2 or 3 > times per week therapy, she needs 20 to 25 hours at least of a full > time program. > > the only problem she had while a baby was being lactose intolerant > and needed lactofree formula until she was 1 yr old then she took > whole milk like a champ. she also didnt babble or blow raspberries as > an infant. but did start to say single words by 1 yr old. she lost a > lot of speech between the age 15 and 18 months old. thats when things > went downhill very fast. she would refuse saucy foods and bread type > foods. she never really like to be held or kissed or hugged. her > sensors clearly are not right. the pointing and the frustration in > her started when she coulnt communicate what she needed or wanted. > things escalated and more and more things have some to light. > > everyday life for her include swaying, repeat spinning, toe > walking/running, hyperactivity (she can run miles through the house > daily if we let her), aggressiveness toward her 2 yr old brother > (smacking hitting pushing biting), self isolation (has periods of > closing her own door and not wanting anything to do with anyone), > jargun talking (we have to try and pick out the words we understand), > little comprehension (doesnt understand questions or consiquences), 2 > or 3 word sentances that are clear once in a while, pointing and > saying " uhh uhh uhh " (when she cant find the words to express what > she needs or wants), looking through people (eyes not looking at us), > acts deaf (we can be talking about one thing and all of the sudden > she will say something totally not relative and run off or doesnt > answer us when we call her or talk to her), lining things up in > precise rows (this started 2 months ago with peas fruit loops dolls), > everything must touch her face or go in her mouth or get smeared on > her body when she handles it (from food to dirt), repeats most of > what we ask or say instead of doing what we say or answering our > questions, fluctuating weight and eating habits, screams alot, throws > herself on the floor in fits, kicks like crazy on her bedroom walls > or door, wont fall asleep before 12am, obsesses over a lot of things > (like her cartoons if a commercial comes on she freaks or if we try > to sway her attention away from something), stares off and 'checks > out', hitting herself (my husband caught her doing this for the first > time a week ago). > > but through all this there are the wonderful lovable times that she > thinks she is a comedian. she can be a funny little girl and so > cuddly which this started about 3 months ago. > > my other childrens ages are 4.5 months old (boy ~ allergies & > possible asthma), 22.3 month old (boy ~ GERD acid reflux disease & > speech therapy & aversion to solids therapy). 13.5 yr old (girl ~ add > & blackouts & siexure episodes) > > ~jaden~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Are all of your children fully vaccinated? > > hi my name is Jaden. i hope im posting this correctly. > > im married and i have 4 children, one of which is being > diagnosed as either Autistic or PDD. We started this whole process in > January 2008 just after her 3 yr birthday. the issues have been there > since she was 15 to 18 months old but the dr and everyone kept saying > give her time and lets wait. when she turned 2 she was put in speech > therapy for 3 months and i was doing more to try and help her at home > and she wasnt making progress so we pulled her out. again the dr said > lets wait till she is 3 to see what happens. > > her bilogical father is bipolar, skitzo, manic depressive, ptsd, > suicidal, self mutilator. he is not involved with her since she was 6 > months old. and even when he was aroung back then he wasnt > really 'there'. even her psychologist has said to keep her away from > him. without him saying that i have already been doing that. > > my daughter has up to now seen the eye dr, the audiologic specialist, > a neurologist, a psychologist, a second speech therapist. all have > the same conclusion autistic/pdd. her problems so far are autism, > sensory, ocd, adhd, speech, comprehension, behavior. > > we are awaiting our evaluation by the school board which will take > place next month on 4/29/08 to get her into the special autism > education program. its clear by all the drs she has seen already from > what they say she wont benefit from normal 30 to 60 minute 2 or 3 > times per week therapy, she needs 20 to 25 hours at least of a full > time program. > > the only problem she had while a baby was being lactose intolerant > and needed lactofree formula until she was 1 yr old then she took > whole milk like a champ. she also didnt babble or blow raspberries as > an infant. but did start to say single words by 1 yr old. she lost a > lot of speech between the age 15 and 18 months old. thats when things > went downhill very fast. she would refuse saucy foods and bread type > foods. she never really like to be held or kissed or hugged. her > sensors clearly are not right. the pointing and the frustration in > her started when she coulnt communicate what she needed or wanted. > things escalated and more and more things have some to light. > > everyday life for her include swaying, repeat spinning, toe > walking/running, hyperactivity (she can run miles through the house > daily if we let her), aggressiveness toward her 2 yr old brother > (smacking hitting pushing biting), self isolation (has periods of > closing her own door and not wanting anything to do with anyone), > jargun talking (we have to try and pick out the words we understand), > little comprehension (doesnt understand questions or consiquences), 2 > or 3 word sentances that are clear once in a while, pointing and > saying " uhh uhh uhh " (when she cant find the words to express what > she needs or wants), looking through people (eyes not looking at us), > acts deaf (we can be talking about one thing and all of the sudden > she will say something totally not relative and run off or doesnt > answer us when we call her or talk to her), lining things up in > precise rows (this started 2 months ago with peas fruit loops dolls), > everything must touch her face or go in her mouth or get smeared on > her body when she handles it (from food to dirt), repeats most of > what we ask or say instead of doing what we say or answering our > questions, fluctuating weight and eating habits, screams alot, throws > herself on the floor in fits, kicks like crazy on her bedroom walls > or door, wont fall asleep before 12am, obsesses over a lot of things > (like her cartoons if a commercial comes on she freaks or if we try > to sway her attention away from something), stares off and 'checks > out', hitting herself (my husband caught her doing this for the first > time a week ago). > > but through all this there are the wonderful lovable times that she > thinks she is a comedian. she can be a funny little girl and so > cuddly which this started about 3 months ago. > > my other childrens ages are 4.5 months old (boy ~ allergies & > possible asthma), 22.3 month old (boy ~ GERD acid reflux disease & > speech therapy & aversion to solids therapy). 13.5 yr old (girl ~ add > & blackouts & siexure episodes) > > ~jaden~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Welcome to our group, Jaden! WOW, do you have your hands full with all those little ones so close in age! Bless you! Feel free to join in our conversations and ask or answer questions as you like. One idea i have for handling the jargon talk or the inability for her to know what to say is to repeat back to her what she should have said. In other words, if she points to the cup and obviously wants a drink but just says, "uhhh uhhh", you can say, " says, 'I want a drink'" So she starts learning to repeat "I want a drink" back if possible. Try to get her to repeat back as best she can but not to the point that she is frustrated enough to give up. Hopefully, she will catch on soon! RoxannaAutism Happens ( ) Newbie here hi my name is Jaden. i hope im posting this correctly.im married and i have 4 children, one of which is beingdiagnosed as either Autistic or PDD. We started this whole process inJanuary 2008 just after her 3 yr birthday. the issues have been theresince she was 15 to 18 months old but the dr and everyone kept sayinggive her time and lets wait. when she turned 2 she was put in speechtherapy for 3 months and i was doing more to try and help her at homeand she wasnt making progress so we pulled her out. again the dr saidlets wait till she is 3 to see what happens.her bilogical father is bipolar, skitzo, manic depressive, ptsd,suicidal, self mutilator. he is not involved with her since she was 6months old. and even when he was aroung back then he wasntreally 'there'. even her psychologist has said to keep her away fromhim. without him saying that i have already been doing that.my daughter has up to now seen the eye dr, the audiologic specialist,a neurologist, a psychologist, a second speech therapist. all havethe same conclusion autistic/pdd. her problems so far are autism,sensory, ocd, adhd, speech, comprehension, behavior.we are awaiting our evaluation by the school board which will takeplace next month on 4/29/08 to get her into the special autismeducation program. its clear by all the drs she has seen already fromwhat they say she wont benefit from normal 30 to 60 minute 2 or 3times per week therapy, she needs 20 to 25 hours at least of a fulltime program.the only problem she had while a baby was being lactose intolerantand needed lactofree formula until she was 1 yr old then she tookwhole milk like a champ. she also didnt babble or blow raspberries asan infant. but did start to say single words by 1 yr old. she lost alot of speech between the age 15 and 18 months old. thats when thingswent downhill very fast. she would refuse saucy foods and bread typefoods. she never really like to be held or kissed or hugged. hersensors clearly are not right. the pointing and the frustration inher started when she coulnt communicate what she needed or wanted.things escalated and more and more things have some to light.everyday life for her include swaying, repeat spinning, toewalking/running, hyperactivity (she can run miles through the housedaily if we let her), aggressiveness toward her 2 yr old brother(smacking hitting pushing biting), self isolation (has periods ofclosing her own door and not wanting anything to do with anyone),jargun talking (we have to try and pick out the words we understand),little comprehension (doesnt understand questions or consiquences), 2or 3 word sentances that are clear once in a while, pointing andsaying "uhh uhh uhh" (when she cant find the words to express whatshe needs or wants), looking through people (eyes not looking at us),acts deaf (we can be talking about one thing and all of the suddenshe will say something totally not relative and run off or doesntanswer us when we call her or talk to her), lining things up inprecise rows (this started 2 months ago with peas fruit loops dolls),everything must touch her face or go in her mouth or get smeared onher body when she handles it (from food to dirt), repeats most ofwhat we ask or say instead of doing what we say or answering ourquestions, fluctuating weight and eating habits, screams alot, throwsherself on the floor in fits, kicks like crazy on her bedroom wallsor door, wont fall asleep before 12am, obsesses over a lot of things(like her cartoons if a commercial comes on she freaks or if we tryto sway her attention away from something), stares off and 'checksout', hitting herself (my husband caught her doing this for the firsttime a week ago).but through all this there are the wonderful lovable times that shethinks she is a comedian. she can be a funny little girl and socuddly which this started about 3 months ago.my other childrens ages are 4.5 months old (boy ~ allergies & possible asthma), 22.3 month old (boy ~ GERD acid reflux disease & speech therapy & aversion to solids therapy). 13.5 yr old (girl ~ add & blackouts & siexure episodes)~jaden~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Hi Darla. I'm Robin. We're in North Fond du Lac, Wi. Welcome. Darla Donley <behealthier4life@...> wrote: Hello everyone,I'm Darla Donley. My son, Dakota, has what the school calls highfunctioning autism. I've known for several years that something iswrong but have a husband in denial. We've been married 10 years andI'm a SAHM who scrapbooks every second I can. It's not worth adivorce but I have really fought hard the last two years. We just relocated from Tennessee to near Hudson, Wisconsin in Jan2008. Not the best time to move but we survived. The school districtwe're in now is, HANDS DOWN, the best we've been in so far.We just had Dakota's IEP meeting and at the end is when they broughtout the paper on how Dakota qualifies. Luckily, I already fore-warnedeveryone about 's denial so they were prepared. got upsetbut didn't raise his voice. The Director of Special Education was socalm and sat next to him explaining about Wisconsin law and how theyhave to put the child under a specific category for services, etc. I'm sitting in my chair having an anxiety attack (inside my body so noone knows) so I didn't hear everything she said. I just know shecalmed him down. At the end of the meeting, asked everyone inthe room if they thought Dakota was autistic. Everyone said yes butthe Speech T. said high. I knew what she meant but asked her highwhat? High functioning. SO, the door is cracked now. It's not fullyopen but it is cracked. My husband isn't happy about the word autismbut said he wants to help Dakota overcome these issues.So, I'm doing research on Aspergers and the difference between HFA andAspergers. It's kind of difficult. I'm doing research so I can do asmuch as I can at home to help.Sorry for the long intro. I hope to learn from this group.Darla You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Hi Darla and welcome to the group! I"m glad that the move worked out well for you. Hopefully, the new school and the sp ed people will be able to help your son and be able to help your dh understand things better. Give him time. Is he willing to read up on the subject? Years ago, anything like this was viewed as taboo by many people. He may have learned something like that and is making him resistant to it now. There is a lot of good reading material out there. Lots of good stuff on the net, but there is some junk, too. My bookmarks are giving me trouble now so I can't access my links, but you can try places like Autism Speaks, ASPEN, even try the CDC or NIH for the info they have on Aspergers. Aspergers fall under the umbrella of Autism Spectrum. Often people equate HFA and Aspergers, although technically I don't know if that is true. Welcome to the group. Everyone here is very supportive and knowledgeable. MimsDarla Donley <behealthier4life@...> wrote: Hello everyone,I'm Darla Donley. My son, Dakota, has what the school calls highfunctioning autism. I've known for several years that something iswrong but have a husband in denial. We've been married 10 years andI'm a SAHM who scrapbooks every second I can. It's not worth adivorce but I have really fought hard the last two years. We just relocated from Tennessee to near Hudson, Wisconsin in Jan2008. Not the best time to move but we survived. The school districtwe're in now is, HANDS DOWN, the best we've been in so far.We just had Dakota's IEP meeting and at the end is when they broughtout the paper on how Dakota qualifies. Luckily, I already fore-warnedeveryone about 's denial so they were prepared. got upsetbut didn't raise his voice. The Director of Special Education was socalm and sat next to him explaining about Wisconsin law and how theyhave to put the child under a specific category for services, etc. I'm sitting in my chair having an anxiety attack (inside my body so noone knows) so I didn't hear everything she said. I just know shecalmed him down. At the end of the meeting, asked everyone inthe room if they thought Dakota was autistic. Everyone said yes butthe Speech T. said high. I knew what she meant but asked her highwhat? High functioning. SO, the door is cracked now. It's not fullyopen but it is cracked. My husband isn't happy about the word autismbut said he wants to help Dakota overcome these issues.So, I'm doing research on Aspergers and the difference between HFA andAspergers. It's kind of difficult. I'm doing research so I can do asmuch as I can at home to help.Sorry for the long intro. I hope to learn from this group.Darla You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 i helped my friend which is copd patient to get ldn.after few weeks he felt much better.he has 40 procents lung volume.he did not need the inhaler first thing in the morning,used the inhaler less and was not purple (sign of shortage of o2).he could also sleep longer.he was a bit dizzy the first days.maybe too many endorphine,but it got better.another thing that happened was that because he used less the inhaler he got inside less cortisone for his adrenal which are weak after so many years.we solved the problem with 3x1 cytozyme ad of biotics.if you have more questions you can mail me and i will try to help. > > I'm a newbie here with a question. Is anyone in the group taking LDN > for COPD, emphysema? > I am at about 20% lung function and refuse to go on prednisone. One lady > from a COPD group > is on LDN and says it has done wonders for her. I have a DR. appt. in a > couple weeks and would like some testimonials to show him. > The only drugs I am on are: Advair 250/50. Spiriva, and Diovan for BP > Any help will be most appreciated. > > cotteni@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 I'm a newbie here with a question. Is anyone in the group taking LDN for COPD, emphysema? I am at about 20% lung function and refuse to go on prednisone. One lady from a COPD groupis on LDN and says it has done wonders for her. I have a DR. appt. in a couple weeks and would like some testimonials to show him. The only drugs I am on are: Advair 250/50. Spiriva, and Diovan for BP Any help will be most appreciated. Hi there, that's me who is on the COPD group, welcome to this one, I hope you get some help and am so glad you made your way here. As I think I told you, I was on 02 and a nebuliser and now all I take is the inhaler, no steroids. I also get a better score on the blow thingy, I only used to get up to about 75 and am now back to 200, this did not happen overnight, give it some time, you will hopefully find a difference. But take all the info with you from this site, as many Doc's have not heard of LDN or don't want to know... It will be up to you to fight your corner - Good luck!! Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Celia, you are the one that got me here and I'm sending a ton of thanks your way. Would like to take 3 or 4 more letters to my Dr. as I wouldn't bet he knows anything about it and very little about COPD. I keep trying to further his education. [g] Re: [low dose naltrexone] newbie here I'm a newbie here with a question. Is anyone in the group taking LDN for COPD, emphysema? Hi there, that's me who is on the COPD group, welcome to this one, I hope you get some help and am so glad you made your way here. As I think I told you, I was on 02 and a nebuliser and now all I take is the inhaler, no steroids. I also get a better score on the blow thingy, I only used to get up to about 75 and am now back to 200, this did not happen overnight, give it some time, you will hopefully find a difference. But take all the info with you from this site, as many Doc's have not heard of LDN or don't want to know... It will be up to you to fight your corner - Good luck!! Celia No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.9/1419 - Release Date: 5/7/2008 7:46 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Celia, you are the one that got me here and I'm sending a ton of thanks your way. Would like to take 3 or 4 more letters to my Dr. as I wouldn't bet he knows anything about it and very little about COPD. I keep trying to further his education. [g] I hope others will come forward with info on COPD to help you in your quest!!:-)) If I had not gotten LDN from my GP, I told him I would get it off the net whether he liked it or not so I guess he thought better monitored than not at all, sometimes, you just have to go there and do it yourself ha!!!! Celia _._,___ I hope Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi Lori, If you haven't yet I would recommend having your son Neuropsycolocal Tested. Check with the Psychiatry/Behavioral Medicine Department of your local Childrens Hospital for testing if your doctor cannot recommend anyone. Once you have test results and/or a diagnosis you shouldn't have any problem getting referred to a Psychiatrist/Psycologist that can treat him. this will also help with school as Neuropsycolocal testing will break down any deficencies that he has. You should be able to get him tested at 6 as that is when my son was tested. Hope this helps. Vickie > > > > > > So I have noticed that there are at least a few of you on this group > that have more than one child with dx of as or other ld. I am > curious, from a purely genetic standpoint, if you have more than one > spec needs child are they biological children? > > I recently was in a meeting with the special ed director of my sons > school. He was asked a question about why dx of autism were on the > rise. He said that there are a lot of theories out there about that > but one that he mentioned caught my attention. > > The theory is basicly that people who have elements of AS or HFA tend > to gravitate toward similar fields or interests (think computer > techies or engineers). They then meet and marry similar > personalities and have kids therefore passing on these traits. > > That theory plus the fact that it seems autism spectrum runs in > families and the fact that my son definitly has some intensified > traits that my husband and I have makes me wonder. > > So just me and my curiosity are wondering if any of you have more > than one bio child that is on the spectrum or in other ways LD? > > Vickie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi again Lori, Just out of curiosity I did a google search for Phoenix. I have a link for you to the department at the Phoenix Childrens Hospital that would be a good place to start. http://www.phoenixchildrens.com/medical- specialties/childrens_neuroscience_institute/programs-and- services.html Good luck, Vickie > > > > > > > > > > > > So I have noticed that there are at least a few of you on this > group > > that have more than one child with dx of as or other ld. I am > > curious, from a purely genetic standpoint, if you have more than > one > > spec needs child are they biological children? > > > > I recently was in a meeting with the special ed director of my sons > > school. He was asked a question about why dx of autism were on the > > rise. He said that there are a lot of theories out there about that > > but one that he mentioned caught my attention. > > > > The theory is basicly that people who have elements of AS or HFA > tend > > to gravitate toward similar fields or interests (think computer > > techies or engineers). They then meet and marry similar > > personalities and have kids therefore passing on these traits. > > > > That theory plus the fact that it seems autism spectrum runs in > > families and the fact that my son definitly has some intensified > > traits that my husband and I have makes me wonder. > > > > So just me and my curiosity are wondering if any of you have more > > than one bio child that is on the spectrum or in other ways LD? > > > > Vickie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Oh it does! Thank you! I will contact Phoenix Children’s Hospital about the Neurospsychological testing. Maybe now I can get somewhere! So your son was 6 when you went through initial testing? How old is he now and how are things? From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: Tuesday, January 20, 2009 12:58 PM Subject: ( ) Re: Newbie here Hi Lori, If you haven't yet I would recommend having your son Neuropsycolocal Tested. Check with the Psychiatry/Behavioral Medicine Department of your local Childrens Hospital for testing if your doctor cannot recommend anyone. Once you have test results and/or a diagnosis you shouldn't have any problem getting referred to a Psychiatrist/Psycologist that can treat him. this will also help with school as Neuropsycolocal testing will break down any deficencies that he has. You should be able to get him tested at 6 as that is when my son was tested. Hope this helps. Vickie > > > > > > So I have noticed that there are at least a few of you on this group > that have more than one child with dx of as or other ld. I am > curious, from a purely genetic standpoint, if you have more than one > spec needs child are they biological children? > > I recently was in a meeting with the special ed director of my sons > school. He was asked a question about why dx of autism were on the > rise. He said that there are a lot of theories out there about that > but one that he mentioned caught my attention. > > The theory is basicly that people who have elements of AS or HFA tend > to gravitate toward similar fields or interests (think computer > techies or engineers). They then meet and marry similar > personalities and have kids therefore passing on these traits. > > That theory plus the fact that it seems autism spectrum runs in > families and the fact that my son definitly has some intensified > traits that my husband and I have makes me wonder. > > So just me and my curiosity are wondering if any of you have more > than one bio child that is on the spectrum or in other ways LD? > > Vickie > Quote Link to comment Share on other sites More sharing options...
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