Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 How wonderful of you! Thanks for doing the leg work for me! I have another child with Cerebral Palsy (due to prematurity) so I’m very familiar with Phoenix Children’s and feel much better about this. I just didn’t realize the department I needed! J From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: Tuesday, January 20, 2009 1:10 PM Subject: ( ) Re: Newbie here Hi again Lori, Just out of curiosity I did a google search for Phoenix. I have a link for you to the department at the Phoenix Childrens Hospital that would be a good place to start. http://www.phoenixchildrens.com/medical- specialties/childrens_neuroscience_institute/programs-and- services.html Good luck, Vickie > > > > > > > > > > > > So I have noticed that there are at least a few of you on this > group > > that have more than one child with dx of as or other ld. I am > > curious, from a purely genetic standpoint, if you have more than > one > > spec needs child are they biological children? > > > > I recently was in a meeting with the special ed director of my sons > > school. He was asked a question about why dx of autism were on the > > rise. He said that there are a lot of theories out there about that > > but one that he mentioned caught my attention. > > > > The theory is basicly that people who have elements of AS or HFA > tend > > to gravitate toward similar fields or interests (think computer > > techies or engineers). They then meet and marry similar > > personalities and have kids therefore passing on these traits. > > > > That theory plus the fact that it seems autism spectrum runs in > > families and the fact that my son definitly has some intensified > > traits that my husband and I have makes me wonder. > > > > So just me and my curiosity are wondering if any of you have more > > than one bio child that is on the spectrum or in other ways LD? > > > > Vickie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 He is 10 now and doing well. We have a really good school so that helps. He is on medication so we have had to make adjustments to the doses over the years as he grows. > > > > > > > > > > > > So I have noticed that there are at least a few of you on this > group > > that have more than one child with dx of as or other ld. I am > > curious, from a purely genetic standpoint, if you have more than > one > > spec needs child are they biological children? > > > > I recently was in a meeting with the special ed director of my sons > > school. He was asked a question about why dx of autism were on the > > rise. He said that there are a lot of theories out there about that > > but one that he mentioned caught my attention. > > > > The theory is basicly that people who have elements of AS or HFA > tend > > to gravitate toward similar fields or interests (think computer > > techies or engineers). They then meet and marry similar > > personalities and have kids therefore passing on these traits. > > > > That theory plus the fact that it seems autism spectrum runs in > > families and the fact that my son definitly has some intensified > > traits that my husband and I have makes me wonder. > > > > So just me and my curiosity are wondering if any of you have more > > than one bio child that is on the spectrum or in other ways LD? > > > > Vickie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 That’s where I am at now. I’ve just gotten an IEP in place; he has a great teacher now. Other than her, no one at the school will think past this moment. My husband and I go back and forth about whether or not we should consider medication. Some days I really feel like a small dose of anxiety med would really take the edge off; some days I really feel that maybe an ADHD med that is short-acting might help enough with school. The pediatrician won’t talk about it. That Developmental Ped was a waste of time. I sure hope the Nueropsych will be the way to go! From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: Wednesday, January 21, 2009 8:29 AM To: Subject: ( ) Re: Newbie here He is 10 now and doing well. We have a really good school so that helps. He is on medication so we have had to make adjustments to the doses over the years as he grows. > > > > > > > > > > > > So I have noticed that there are at least a few of you on this > group > > that have more than one child with dx of as or other ld. I am > > curious, from a purely genetic standpoint, if you have more than > one > > spec needs child are they biological children? > > > > I recently was in a meeting with the special ed director of my sons > > school. He was asked a question about why dx of autism were on the > > rise. He said that there are a lot of theories out there about that > > but one that he mentioned caught my attention. > > > > The theory is basicly that people who have elements of AS or HFA > tend > > to gravitate toward similar fields or interests (think computer > > techies or engineers). They then meet and marry similar > > personalities and have kids therefore passing on these traits. > > > > That theory plus the fact that it seems autism spectrum runs in > > families and the fact that my son definitly has some intensified > > traits that my husband and I have makes me wonder. > > > > So just me and my curiosity are wondering if any of you have more > > than one bio child that is on the spectrum or in other ways LD? > > > > Vickie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Hi Sama: I want to wish you a warm welcome to our wonderful group of caring, loving and supportive members. You have come to the right place. Your dr. should send you to a Rheumy as it sounds like you have RA. It is so hard to suffer like that day in and day out. Can you get to see a Rheumy without his recommendation? Your dr. needs to treat you better. I hope you can def. see a Rheumy as soon as possible. I have had RA for 6 years, and have a great Rheumy. I finally found the right cocktail mix of meds. to help my RA. My flares are shorter, longer in between, and miminal pain. I am grateful for that. I pray you will be pain free soon. I care. Hugs, Barbara > > hi everyone - i'm sama, from the uk. i don't know if i have RA, because my doctor flatly refuses to send me to a rheumatologist, as i did not show rf last time i had a blood test. > > every morning, i am as stiff as a board, it takes me an average of an hour to two to get going, and it is bearable while i am moving. by evening, i am in tears. > > my left hip, ankles, knees, and my elbows and hands are absolute agony. sometimes, i look as if i have sausages for fingers! > > i don't quite know what to do now. i joined here for support, and it looks a very friendly group. > > i have had osteoarthritis for many years, following a rotten car crash, but this stiffness is demoralising me to such an extent that i feel tearful all the time now. my lower spine is twisted, and it gives me constant low back pain, too. > > blessings, > sama > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Welcome Sama, Are you able to change primary doctors over there, you could find a new one who would send you on to a rheymy? Another reason I don't want to see universal health care here. in PA [ ] newbie here hi everyone - i'm sama, from the uk. i don't know if i have RA, because my doctor flatly refuses to send me to a rheumatologist, as i did not show rf last time i had a blood test. every morning, i am as stiff as a board, it takes me an average of an hour to two to get going, and it is bearable while i am moving. by evening, i am in tears. my left hip, ankles, knees, and my elbows and hands are absolute agony. sometimes, i look as if i have sausages for fingers! i don't quite know what to do now. i joined here for support, and it looks a very friendly group. i have had osteoarthritis for many years, following a rotten car crash, but this stiffness is demoralising me to such an extent that i feel tearful all the time now. my lower spine is twisted, and it gives me constant low back pain, too. blessings, sama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Sama, Maybe you could print out some articles on seronegative RA and take them to your doctor. Many people have RA but it doesn't show up in the blood work. Sue On Jun 1, 2009, at 4:16 PM, McNally wrote: > Welcome Sama, > > Are you able to change primary doctors over there, you could find a > new one who would send you on to a rheymy? > > Another reason I don't want to see universal health care here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 thank you, hon. very much indeed. my mother had appalling RA, and my symptoms are pretty much identical. i have a constant battle with my doctor though. nope, can't see a rheumy without him. i guess i will try another doctor, because i am finding each day more and more tiring. i have sjogrens disease too, which i understood to go hand in hand with RA. it developed after the arthritis, so i know it isn't the primary sort. i do get hideously tired, now. i'm 62, and i find the days harder to bear when the pain is bad. nice to be here! sama > > > > hi everyone - i'm sama, from the uk. i don't know if i have RA, > because my doctor flatly refuses to send me to a rheumatologist, as i > did not show rf last time i had a blood test. > > > > every morning, i am as stiff as a board, it takes me an average of an > hour to two to get going, and it is bearable while i am moving. by > evening, i am in tears. > > > > my left hip, ankles, knees, and my elbows and hands are absolute > agony. sometimes, i look as if i have sausages for fingers! > > > > i don't quite know what to do now. i joined here for support, and it > looks a very friendly group. > > > > i have had osteoarthritis for many years, following a rotten car > crash, but this stiffness is demoralising me to such an extent that i > feel tearful all the time now. my lower spine is twisted, and it gives > me constant low back pain, too. > > > > blessings, > > sama > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Why can't you see another doctor with him? Stan Seattle, Cloudy - clearing. [ ] Re: newbie here thank you, hon. Â very much indeed. Â my mother had appalling RA, and my symptoms are pretty much identical. Â i have a constant battle with my doctor though. Â nope, can't see a rheumy without him. Â i guess i will try another doctor, because i am finding each day more and more tiring. i have sjogrens disease too, which i understood to go hand in hand with RA. Â it developed after the arthritis, so i know it isn't the primary sort. i do get hideously tired, now. Â i'm 62, and i find the days harder to bear when the pain is bad. Why nice to be here! sama > > > > hi everyone - i'm sama, from the uk. i don't know if i have RA, > because my doctor flatly refuses to send me to a rheumatologist, as i > did not show rf last time i had a blood test. > > > > every morning, i am as stiff as a board, it takes me an average of an > hour to two to get going, and it is bearable while i am moving. by > evening, i am in tears. > > > > my left hip, ankles, knees, and my elbows and hands are absolute > agony. sometimes, i look as if i have sausages for fingers! > > > > i don't quite know what to do now. i joined here for support, and it > looks a very friendly group. > > > > i have had osteoarthritis for many years, following a rotten car > crash, but this stiffness is demoralising me to such an extent that i > feel tearful all the time now. my lower spine is twisted, and it gives > me constant low back pain, too. > > > > blessings, > > sama > > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Hi : I am glad you found us, and decided to join our group. Everyone here is amazing, and so supportive and so very informative about so much. I am praying you find your " cocktail " of meds. that work well for you. I was also happy to read that you found a good Rheumy you like and can work with. That is so important. Again, a warm welcome from me to you. Hugs, Barbara --- In , " hawkeyemommy93 " <hawkeyemommy93@...> wrote: > > I am so glad to have found this group! The wonderful " Kate F " steered me here. > > I was diagnosed in March, and am happy to have found a rheumy with whom I think I will have a good working relationship. I was on methotrexate for several weeks, but it didn't agree with me. At all. Miserable. > > At this time, I am taking 5 mgs of prednisone a day, and ibuprofen as needed. I have a love/hate thing going on with the prednisone, but look forward to getting off of it in the foreseeable future. I see my rheumatologist again at the end of September, and at my last appointment we discussed starting me on Remicade. > > Hoping to learn lots from the wonderful people on this board who successfully battle the beast every day! -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Welcome , I'm go glad Kate steered you to the right place. You will enjoy it hear, its a very caring and supportive group. I hope you find the RA med that is right for you. Take care, Tawny --- In , " hawkeyemommy93 " <hawkeyemommy93@...> wrote: > > I am so glad to have found this group! The wonderful " Kate F " steered me here. > > I was diagnosed in March, and am happy to have found a rheumy with whom I think I will have a good working relationship. I was on methotrexate for several weeks, but it didn't agree with me. At all. Miserable. > > At this time, I am taking 5 mgs of prednisone a day, and ibuprofen as needed. I have a love/hate thing going on with the prednisone, but look forward to getting off of it in the foreseeable future. I see my rheumatologist again at the end of September, and at my last appointment we discussed starting me on Remicade. > > Hoping to learn lots from the wonderful people on this board who successfully battle the beast every day! -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2010 Report Share Posted February 6, 2010 Welcome ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 I, too, am new here. I was just recently diagnosed with PA, even though my doctor has suspected the possibility for awhile. But a recent flare up in January laid me down flat; knees, back, neck, elbows, fingers, toes, and even eye pain. The flare has subsided finally, but left me with knees feeling really bad, and pain and stiffness in my fingers, and severe lower back pain. X-rays showed degenerative changes in the lumbar spine, and changes starting in my knees. I was referred to a rheumatologist who conducted tests, plus I had pictures of all my joints and psoriasis that I took during the flare up. And, the tips of my index fingers are already beginning to deform. I only had really swollen joints and fingers during this flare up, and in the past I've only had pain and swelling in my back, and maybe one or two joints. But now it's just jumped the gun and gone all over the place. They are going to start me on methotrexate, because it is believed that the PA is beginning to progress pretty rapidly to a destructive stage, and they want to arrest it as quickly as possible before proceeding with anything else. Bummer is that the rheumatologist has told me not to take NSAIDs while I " m on it, except maybe for 325mg aspirin. " indintruk@... " <indintruk@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Did he tell you why not to take any. Most people are on some sort of pain relieve either OTC or prescription. If you need it I would definitely address the issue with him again. Celeste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 I just started the methotrexate too and start Humira today also. Mine was like that too. It kind of " hung out " for a few years, and then After I was treated with radiation for thyroid cancer last year, it Really flared out of control. I am really hoping the Humira helps me A lot. He also started me on Plaquenil, which, I think has made be very dizzy. I am not sure if it is that or the methotrexate, but when I start moving around, I get very dizzy and nauseated. So, I decided to stop the Plaquenil last night to see if that is what it is. If it is not, and it is the methotrexate, Then I am going to see if I can switch to the injections, because they are supposed to have much fewer side effects. kristina adams <mac@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 I had not heard this before so I googled " methotrexate, nsaids " and found the following on the first website that showed up: Medicine.net, which I've always found to be very reliable. " Methotrexate (usually at high dosages) has rarely caused severe (sometimes fatal) bone marrow suppression (decreasing your body's ability to fight infections) and stomach/intestinal disease (e.g., bleeding) when used at the same time as non-steroidal anti-inflammatory drugs (NSAIDs such as indomethacin, ketoprofen). Therefore, NSAIDs should not be used with high-dose methotrexate. " Please note this refers only to high doses of methotrexate. Since your disease seems to be progressing so rapidly, your doc may have started you out at a higher dosage than usual and that's why he told you not to take NSAIDs. In any event, I hope it works for you but it can take a while to get relief. MTX tends to work more slowly than the biologics; but the biologics are expensive and most insurance companies want you to start out with the cheaper drug and see if it works. At some point, though, your doctor may choose to add one of the biologics because It's believed that the two drugs working together have a kind of multiplier effect that really maximizes their effect. FYI: I cannot take NSAIDs either but in my case it's because I also have ulcerative colitis, another auto-immune disease. However, there are pain pills that your doctor can prescribe; so if you really need something, ask!!! Tramadol or ultram is a synthetic narcotic so it's assumed to be less addictive than some of the other stronger narcotic meds; but none are a problem if you use them only when you really need them. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 It's probably because my blood work already shows highs on the liver and kidneys because of other medications I'm on. But he did say that we can discuss those options once I'm on the methotrexate, and my liver readings are okay. eric munson <indintruk@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Hi, my name is Norma Iris, I'm 32 y/o and I have RA. I was diagnosed 9 years ago when i was finishing my second year in dentistry. So I think most of you know what I feld that day. I couldn't walk, close my hands,I had fever everyday for 2 months, lost 29 pound(My weight when I was diagnose was 89 pds) My whole life came cruching to my feet I was 22 and was going to live with pain the rest of my life. All my life I all wanted to be a was a dentist(I know it's weird) and my dream was slipping away. My rheumy put me on MTX and a high dose of pred and three month later I was back in school. I finished my doctorade and I practice dentistry since 2004. I was on remission for almost 5 yrs. When back in tx in 06, then remission late 07. When on plaquenil on 1 yr ago because I wanted to have children, my husband too. But last month has been a nightmare, the flare-up is worst than ever. I cry my self to sleep every single day. The pain is unbeareable, and work is like torture somedays. No one in my family really understand the condition nor the pain that I am feeling. I think they think that I am exagerating and that frustrate me more. I joint the group to see if I can find some comfort and undertanding from people like me. Go figure my 2 sisters are MD's and they don't really know what is RA in its core. Tomorrow I will see my rheumy for the 3rd time in a month to see what are we going to do next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 I agree with Kate. I am also on Enbrel, and it works very well for me. Depending on your insurance, you might have to fail on some of the cheaper meds before they'll approve a biologic. That's the way my insurance was. But your rheumatologist should treat your RA very aggressively and work with you to find the right combination of meds that will help you get your life back. Please keep us posted on your progress. Good luck! Sue On May 16, 2010, at 9:18 PM, Fair wrote: > Welcome Norma. I was symptomatic in grad school also. Now I am on > Enbrel and expecting our third child. My son Tommy was also exposed > to Enbrel through the pregnancy and he has done great. In my > experience it has controlled my symptoms very well and allowed us to > build our family. I work full time, exercise, and am pretty much > normal except for the Enbrel shots. Before Enbrel I had problems > walking very far and I felt very sad and tired all the time. The > Enbrel worked at the end of the first week and reduced my morning > stiffness and gelling down to nothing. I hope you find a > rheumatologist who can be a good partner in managing this disease. > I would encourage you to speak with him/her about whether you are a > candidate for an biologic medicine. For me, it has been life > changing. Kate F > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2010 Report Share Posted May 17, 2010 Hi Norma Iris. Boy, do I know what you are going through right now. The only ones who truly know the RA pain, is people with RA. Drs. who don't have it, can't grasp what we have to endure. RA reared its ugly head to me 6 years ago, and I had never heard of it before.  I am glad you will see your Rheumy soon. Trying to find the right RA meds. is trial and error. I also hope your Rheumy will give you a RX for some pain meds. That really helps with the daily pain. I don't know if you have tried Prednisone yet, but it is my miracle drug. Without it daily, there is no way I could even get out of bed. I was struck very hard, and it took awhile for my Rheumy to find the right " cocktail " of meds. that would work for me. I have been flare free for almost 1 1/2 years, but because of the awful stress I am under, I had a bad flare 3 weeks ago. I was surprised I didn't flare sooner. My Rheumy put me on higher doses of Pred., then I tappered down to 10 mg. a day. My normal daily dose is 5 mg. but I will stay on the 10 mg. for a bit longer. My blood is tested every 2-3 months, and so far, all my blood work is good, and no liver problems at all.  I hope you will be pain free soon. Take care, rest as much as you can, and give your Rheumy a list of all your issues so he/she can see what is going on with you. Welcome to our wonderful group. You will have lots of support here.  Hugs,  Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 ~hugs~ My family is the same way... They don't understand it takes every ounce of energy to cling to the job I don't want to lose and take care of my 7 year old. I don't have energy to go places and do things. They really don't get it. Friends are figuring it out but some have gotten offended and stopped talking to me ~shrugs~ Asking me to go to the zoo or to go shopping to me translates to " on my feet walking for HOURS " A nice game of frisbee golf with my hands/shoulders!? Cant do it. Candace Sent from my iPhone On May 16, 2010, at 7:33 PM, " nid0715 " <nid0715@...> wrote: I cry my self to sleep every single day. The pain is unbeareable, and work is like torture somedays. No one in my family really understand the condition nor the pain that I am feeling. I think they think that I am exagerating and that frustrate me more. I joint the group to see if I can find some comfort and undertanding from people like me. Go figure my 2 sisters are MD's and they don't really know what is RA in its core. Tomorrow I will see my rheumy for the 3rd time in a month to see what are we going to do next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 I'm new here too...but not new to your pain.. I'm so sorry your family doesn't understand what you're going thru..I sure do. the pain is unreal.. predisone helped my pain but i didn't want to be on that for a long time.. then i got on Methotrexate..well that worked but had to keep the dosage low or I'd get an ulcer.. now I take Herbs and 3 weeks ago started on the antibiotic protocol.. I've been off of the Methx for 5 weeks now and I do have some swelling but I'm hanging in there with the AP to let it take hold.. I pray it works.. sounds like so many others are getting help with it. Hang in there... it's tough to when you have pain...but we'll all listen to you and give you hugs thru the computer... > > ~hugs~ > My family is the same way... They don't understand it takes every ounce of energy to cling to the job I don't want to lose and take care of my 7 year old. > I don't have energy to go places and do things. > > They really don't get it. Friends are figuring it out but some have gotten offended and stopped talking to me ~shrugs~ Asking me to go to the zoo or to go shopping to me translates to " on my feet walking for HOURS " A nice game of frisbee golf with my hands/shoulders!? Cant do it. > > Candace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 When I took methotrexate I couldn't get out of bed for 3 days straight. Every time. Slept through alarms, through my son trying to wake me up.... My rheumy said " I don't think it's the medication " and kept upping it and I just got worse and worse. Rheumy said that's because I was depressed. I said " whoa I suddenly get depressed every Thursday when I take that pill!? " and he told me to up it again and I left n never went back. It worries me, though, because I'm noticing that's the drug that seems to have worked for a LOT of people!!! I reaaaally hope I find my magical pill combo soon!!! Candace Sent from my iPhone On May 20, 2010, at 9:15 AM, " arlettelindwurm " <arlettelindwurm@...> wrote: I'm new here too...but not new to your pain.. I'm so sorry your family doesn't understand what you're going thru..I sure do. the pain is unreal.. predisone helped my pain but i didn't want to be on that for a long time.. then i got on Methotrexate.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 You probably could have waited until Monday. It moves fast, but not *that* fast. Ticks only feed (IIRC, someone will correct me if I'm wrong) three times in their lives, once at each developmental stage. So you got to be the lucky provider of one of that tick's only three lifetime blood meals. Having feasted on you, it likely did not move on to chow down on anyone else. On the other hand, where there's one Lyme tick, there are usually many more. Be sure to examine every member of your family thoroughly (even the scalp -- a lot of people get bit there and never notice due to the hair, which ticks love to hide in); and do it once a week for the next few weeks to make sure you don't miss a rash if one should come up. Also be alert to " flu " symptoms during this time. Only 25% of us ever saw the rash, but the other symptoms were the tip-off. Also: it's easy to spot ticks in their adult phase, but very hard to see them in their nymph stage, when they're the size of a poppy seed. You can easily have one attached to you for days at this stage, and not notice it -- especially if it's somewhere you don't usually look at yourself, like your back or side or scalp. It's a safe bet most of us were infected by nymphs. Be sure you get *at least* two months of antibiotics. I know they probably gave you 28 days, but many docs will give you another month if you ask. Ask. You don't want to mess around with " maybes " on this one. You're soooo lucky to have caught it this quick. (It took them 23 years to diagnose my case, by which point I was well and truly wrecked.) May your illness be a short one. Sara On Jun 6, 2010, at 9:26 57AM, elle68 wrote: > Hello: > > I just got diagnosed last night (Saturday) after noticing a rash on my side. I live in NJ and have spent some time in the parks ere, plus recently spent time in my brother's backyard in Long Island, NY, which has tons of bushes and is surrounded by trees. So I don't doubt that I could have come in contact with a tick. However, the rash I have is on my right side in an obvious place where I would think that I would have seen a tick had it been there for 48 hours. Is it common that people don't realize that they have been bit? > > Also, should I be worried about my family having been exposed as well? Since I didn't notice the tick, can I assume it ate its full and went on its merry way and left my family alone or should I be worried it snacked on them too? > > Also, on the practical side, has anyone been the ER to get diagnosed? While I know that it is important to be treated quickly, I am worried that my insurance will refuse to pay because I perhaps could have waited to see a doctor, but my DR wasn't comfortable phoning in a prescription and I didn't want to wait until Monday to be seen. > > Thanks! > > Ellen > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Also from what I've read about the rashes...it is possible to get more than one rash area and it doesn't necessarily have to show up at the site of the bit. There are also a few variations of the rash (i.e., some don't appear like the classic bullseye). But if you saw a rash, take the treatment and count yourself lucky for seeing it! > > Hello: > > I just got diagnosed last night (Saturday) after noticing a rash on my side. I live in NJ and have spent some time in the parks ere, plus recently spent time in my brother's backyard in Long Island, NY, which has tons of bushes and is surrounded by trees. So I don't doubt that I could have come in contact with a tick. However, the rash I have is on my right side in an obvious place where I would think that I would have seen a tick had it been there for 48 hours. Is it common that people don't realize that they have been bit? > > Also, should I be worried about my family having been exposed as well? Since I didn't notice the tick, can I assume it ate its full and went on its merry way and left my family alone or should I be worried it snacked on them too? > > Also, on the practical side, has anyone been the ER to get diagnosed? While I know that it is important to be treated quickly, I am worried that my insurance will refuse to pay because I perhaps could have waited to see a doctor, but my DR wasn't comfortable phoning in a prescription and I didn't want to wait until Monday to be seen. > > Thanks! > > Ellen > Quote Link to comment Share on other sites More sharing options...
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