Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Welcome back . Journalling will help you greatly. NH... Mom to Abby Liz 10/94 Anne 7/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 , Welcome back to the group! I wasn't here when you were a member before, but still it is great to hear of old members returning. I'm a relatively new member of about a month. Exercising is my biggest problem too! --- Decker <kd1049@...> wrote: > Good Morning. My name is . I was a member of > this group awhile back. I see so many girls that I > remembered are still here. Hope you all are doing > okay. I am trying again to lose some weight and just > eat healthier. I think the hardest thing for me is > the exercising. I mean well but just never find the > time to get it in. > I was diagnosed with IBS-D and found out that my > colesterol is too high. I am glad to be back, this > list helped me so much before and lets face it, > everyone needs support once in awhile and my family > doesn't seem to understand what I am going through > and have for a very long time. > I have started my journal, which I have always found > to be a great help, but never stayed with it for > long. You may get tired of hearing from me, but plan > on posting as much as I can. I need all the help I > can get and I know this list is a great place to be. > > Thanks and hope I can help others too. Everyone have > a great day and drink lots of water---another one of > my weak points. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 --Hi : Welcome back!!!- > I was diagnosed with IBS-D <<<<<<<<<<<<<<<<<<< I have IBS - D; would be glad to talk with you privately about some of the issues. <<<<<<<<<<<<<<<<<<<< and lets face it, everyone needs support once in awhile <<<<<<<< Absolutely!! and I think we need support more than once in a while. It's a very big thing we are trying to do! <<<<<<<<<> I have started my journal, which I have always found to be a great help, but never stayed with it for long. The journal is a wonderful tool, I think. <<<<<<<<<<<<<<< You may get tired of hearing from me, but plan on posting as much as I can. I need all the help I can get and I know this list is a great place to be. <<<<<<<<<< Now, why would we get tired of hearing from you? Each woman's experience and perspective helps me a lot!!! Faye, somerville, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 >Good Morning. My name is . I was a member of this group awhile back. Welcome back. >I see so many girls that I remembered are still here. Ann is still here, too, but is away on vacation right now. >I think the hardest thing for me is the exercising. Same here. I'll do fine for a few days, then life interfers with my schedule and it get pushed back to later in the day, until eventually it's not done at all for one, then 2 days, then another week goes by. I'm hoping when winter *finally* leaves and things warm up and melt outside I can get into a nice walking plan again now the the current foot crisis is over. >and my family doesn't seem to understand what I am going through and have for a very long time. I'm married 27 years, and almost every day of those years hubby tells me how beautiful I am and that as long as I'm healthy, why torture myself trying to lose weight. Even the labwork I had done this past December was better than most of his patients, my doc said. I know my food is going fine, but stress & lack of exercise is keeping my blood pressure up a bit higher than the doc wants (I'm around 130/70 but he wants is 110/70 or lower). So I keep plugging away at it, lose and regain the same 5-10 pounds over and over, stress about lack of weight loss so the BP goes even *higher*, and stress about *that*, all while staying on the very low fat vegan, 1200-1400 cal food plan. (sigh) >I have started my journal, which I have always found to be a great help, but never stayed with it for long. I keep one on my computer. It contains more than food diary, and I don't get a chance to write every day, but it's there. I have other paper food journals scattered around this house going back to the 1980's, some as simple as a 2-year pocket calendar with weights and daily calorie totals. >You may get tired of hearing from me Never! > but plan on posting as much as I can. Good! Look forward to seeing more (then less, if ya know what I mean) of you! Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Yes, please send me your email address. kd1049@... Re: returning member --Hi : Welcome back!!!-> I was diagnosed with IBS-D <<<<<<<<<<<<<<<<<<<I have IBS - D; would be glad to talk with you privately about some of the issues.<<<<<<<<<<<<<<<<<<<<and lets face it, everyone needs support once in awhile <<<<<<<<Absolutely!! and I think we need support more than once in a while. It's a very big thing we are trying to do!<<<<<<<<<> I have started my journal, which I have always found to be a great help, but never stayed with it for long.The journal is a wonderful tool, I think.<<<<<<<<<<<<<<<You may get tired of hearing from me, but plan on posting as much as I can. I need all the help I can get and I know this list is a great place to be. <<<<<<<<<<Now, why would we get tired of hearing from you?Each woman's experience and perspective helps me a lot!!!Faye, somerville, MA100-Plus Files page 100-plus/files100-Plus Links page 100-plus/links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Welcome back to the group Yep, I remember you, but as you will see I'm not posting nearly as much. I've been pretty darn busy lately. I'm now working and we are employee numbers keep dropping. When I started there were 9 of us, we are down to 5 and one of them has just given her 2 weeks notice *sigh*. guess I will be working alot more until they get more people hired in. a Decker <kd1049@...> wrote: Good Morning. My name is . __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Decker <kd1049@...> wrote: > Good Morning. My name is . I was a member of this group awhile back. I'm another returning member. I doubt people will remember me. :-) Welcome back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 > I'm another returning member. I doubt people will remember me. :-) I remember seeing your user name before - Ossachicka - but doesn't - the Management section says you've never been a member until this week. Anyway, welcome back! Don't forget to look over the Files and Links sections for some goodies. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hello Bev! Wow, Barrett's. Hope all works out well. Is the treatment plan basically antacids to prevent further progression? Keep the faith, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 Bev, I can post some resource material on Barrett's if you (or others) are interested. Kind Regards, Bessell www.gisurgery.net > Hi everyone! > > I am sixty-eight and two years ago I had my Heller done for > Achalasia. I had it done at Emory in Atlanta. > > A month ago, I had an endoscopy done as well as a colonoscopy. They > did biopsies on both. They removed a small colon polyp(I had the last > test done three years ago without any and never had one before > that).Both biopsies came back negative, thankfully, but I was > diagnosed with Barrett's esophagus for the first time. I was > diagnosed with A only a few years ago, but had reflux bad for over > thirty years. Now I have to have checkups every three years. Cannot > have a lot of acid forming foods like caffeine, chocolate, wine, > citrus, tomatoes and sodas. > > My doctor gave me a prescription to help with spasm pain in the chest > area. This is not a fun disease, but it can be helped and eased with > surgery. Before the surgery, I couldn't get my food down at all. Now > I can at least eat some foods a lot better. > > My best to all my friends. > > Bev.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 Please do from Nj -- Re: returning member Bev,I can post some resource material on Barrett's if you (or others) are interested.Kind Regards, Bessellwww.gisurgery.net> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 Thanks Dr Bessel - that would be great. Even if most of us do not have Barrets, it helps us understand their problem and be able to help others who come along in the future. Regards, Joan Re: returning member > Bev, > > I can post some resource material on Barrett's if you (or others) are > interested. > > Kind Regards, > Bessell > www.gisurgery.net > > >> Hi everyone! >> >> I am sixty-eight and two years ago I had my Heller done for >> Achalasia. I had it done at Emory in Atlanta. >> >> A month ago, I had an endoscopy done as well as a colonoscopy. They >> did biopsies on both. They removed a small colon polyp(I had the last >> test done three years ago without any and never had one before >> that).Both biopsies came back negative, thankfully, but I was >> diagnosed with Barrett's esophagus for the first time. I was >> diagnosed with A only a few years ago, but had reflux bad for over >> thirty years. Now I have to have checkups every three years. Cannot >> have a lot of acid forming foods like caffeine, chocolate, wine, >> citrus, tomatoes and sodas. >> >> My doctor gave me a prescription to help with spasm pain in the chest >> area. This is not a fun disease, but it can be helped and eased with >> surgery. Before the surgery, I couldn't get my food down at all. Now >> I can at least eat some foods a lot better. >> >> My best to all my friends. >> >> Bev.. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 welcome back bev, sue bevsteiner <tedbevboo@...> wrote: Hi everyone!I am sixty-eight and two years ago I had my Heller done for Achalasia. I had it done at Emory in Atlanta.A month ago, I had an endoscopy done as well as a colonoscopy. They did biopsies on both. They removed a small colon polyp(I had the last test done three years ago without any and never had one before that).Both biopsies came back negative, thankfully, but I was diagnosed with Barrett's esophagus for the first time. I was diagnosed with A only a few years ago, but had reflux bad for over thirty years. Now I have to have checkups every three years. Cannot have a lot of acid forming foods like caffeine, chocolate, wine, citrus, tomatoes and sodas. My doctor gave me a prescription to help with spasm pain in the chest area. This is not a fun disease, but it can be helped and eased with surgery. Before the surgery, I couldn't get my food down at all. Now I can at least eat some foods a lot better.My best to all my friends.Bev.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi All, I just uploaded a PDF file on Barrett's oesophagus to the file area. Again it is in 'doctor- speak', so if there are comments that are relevant to you that are unclear I would be happy to rephrase them. Please remember, most patients with achalasia do not have true Gastro- esophageal reflux disease (GERD) - although contact oesophagitis is possible. Of patients with true GERD, most do not have Barrett's. And of patients with Barrett's, most do not have anything to worry about. Only a small proportion have cause for concern. Barrett's screening is still a controversial area, but this article is a synopsis what is generally accepted to be best practice where I work. Hope this helps, Regards, Bessel www.gisurgery.net > >> Hi everyone! > >> > >> I am sixty-eight and two years ago I had my Heller done for > >> Achalasia. I had it done at Emory in Atlanta. > >> > >> A month ago, I had an endoscopy done as well as a colonoscopy. They > >> did biopsies on both. They removed a small colon polyp(I had the last > >> test done three years ago without any and never had one before > >> that).Both biopsies came back negative, thankfully, but I was > >> diagnosed with Barrett's esophagus for the first time. I was > >> diagnosed with A only a few years ago, but had reflux bad for over > >> thirty years. Now I have to have checkups every three years. Cannot > >> have a lot of acid forming foods like caffeine, chocolate, wine, > >> citrus, tomatoes and sodas. > >> > >> My doctor gave me a prescription to help with spasm pain in the chest > >> area. This is not a fun disease, but it can be helped and eased with > >> surgery. Before the surgery, I couldn't get my food down at all. Now > >> I can at least eat some foods a lot better. > >> > >> My best to all my friends. > >> > >> Bev.. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Thank you! I thought Barrett's was much more prevelent, particularly in associate with GERD. That's really good info. Thanx a bunch. -Jess > Hi All, > > I just uploaded a PDF file on Barrett's oesophagus to the file area. Again it is in 'doctor- > speak', so if there are comments that are relevant to you that are unclear I would be happy > to rephrase them. Please remember, most patients with achalasia do not have true Gastro- > esophageal reflux disease (GERD) - although contact oesophagitis is possible. Of patients > with true GERD, most do not have Barrett's. And of patients with Barrett's, most do not > have anything to worry about. Only a small proportion have cause for concern. > > Barrett's screening is still a controversial area, but this article is a synopsis what is > generally accepted to be best practice where I work. > > Hope this helps, > > Regards, > Bessel > www.gisurgery.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Welcome back. I remember you. How are the kitties. I recently adopted a 3rd. With the 2 dogs, it's quite the menagerie. Too bad my husband doesn't care for pets. lol Sharon --- Wharf Kitty <wharf_kitty@...> wrote: > Hi, All- > > I'm returning to this Group from long term no-mail > status. Reset my options to Digest late last week so > I've been bringing myself up to speed. Can't > remember when I went no-mail and then stopped > checking messages from the Group's Archives. > > A little about me. I'm a 56-year old male, single, > currently between jobs, living in San Francisco with > one roommate and two cats. Dx with HCV in 2002 as > part of a routine physical. Probably contracted it > in the early 1970s when I was an i.v. drug user. > Been clean and sober since February of 1979. Had a > liver biopsy in October, 2002. Genotype 1 or 1a, > can't seem to remember. :-) Other than slightly > elevated ALT and AST numbers, my liver looks " damned > near normal " according to my gastro. ALT and AST run > between 65 and 70 and vary. They were down as of the > last blood-work, which was last week as part of my > yearly physical. Last viral load was 6.4-million [!] > but that was in June, 2004. Haven't seen the gastro > since then, didn't see any real reason to go back > every six months to be told I was fine. Never been > on tx, was offered the opportunity, since Dr. H. > [gastro] thought I could clear the virus. But the > mere thought of the sides scare the bejusus out of > me. Dr. H. also didn't see any > reason for me to take tx. I have an appointment > with Dr. H. this Thursday, my PCP Dr. W. thought it > would be a good idea to see him again and I have to > go back to the dr's anyway for more blood-work, > since my b.p. is high and Dr. W. put me on a > diuretic, which means they want to check my Na and K > levels. I'm on Atenolol, 100-mg for the b.p. > > Anyway, I'm looking forward to getting to know y'all > and posting when I can add something to the mix. > > > > CatmanLou =^o-o^= > Bella a.k.a. Bellatrix & > Sammy F.C. > > San Francisco, California > > See Bella and Sammy on the web at: > http://tinyurl.com/blxws > > > " Prowling his own quiet domain, or asleep by the > fire..he is still only a whiskers away from the > wild... " > > - Burden - > > ---ICQ 164861379 > > > > > --------------------------------- > for Good > Click here to donate to the Hurricane Katrina > relief effort. __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Sharon- Thanks. I remember you also, your last name is almost the same as my old camera: Zeiss-Ikon. LOL! ConCATulations on the new addition. My cats are fine. Bella vomited a hair-ball earlier today; Sammy F.C. brought a live rat home last Friday then lost it in the apartment. Found it again on Sunday morning and finally killed it. =8-P Gotta luv 'em! Strained my upper leg muscle last night doing stretching exercises. Took some Arnica Montana for it and put some Arnica gel on it. Hurts when I walk. Maybe I'll take a bus to the doctor's tomorrow. It's only a 15-min. walk though and might be a good idea to walk and keep the muscle from tightening up any further. Oh, well, I guess I'll see how I feel tomorrow morning when it's time to leave. I was doing really good at getting my weight down and exercising regularly. Then in early May I got laid off and stopped walking to work so the weight came up. I stopped the exercising mid-July when I went on a camping trip and just started up again this past Saturday. Lou [with his cats Bella and Sammy F.C. in mild and sunny San Francisco] > > > Hi, All- > > > > I'm returning to this Group from long term no-mail > > status. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2005 Report Share Posted October 9, 2005 Hi Velvet, I am not sure what the diagnosis should be be but I started with similar symptoms where when I put my head back I would get tingling and numbness down both arms. I first noticed it back in February. I have been to several drs (Ortho and Nuero) and they said it was degenerative disc. They explained to me that depending on where the spinal 'issue " is will determine whether the tingling effects your arms or legs. My problems are a bone spur at C2-3 and a spinal impingement to the point of injury at C4-5. I now have tingling in my fingers most of the time not just when I move my head. I am not in real pain but my case is a little different because I have congenitally fused vertebrae and so the 3 cervical disc locations that I have that aren't fused have been carrying the load so to speak for my whole life. I am scheduled for a discectomy and fusion on November 8th. They told me that I will lose some mobility in my neck as far as turning my head but if I don't have the surgery I could do even more damage. I think I would take the MRI and go see a few different docs to see what they think. Peace, Debra Velvet <velvetblade_66@...> wrote: Hi all!! I'm hoping that I can tell my story and get some insight. I'm sure you've probably had your fill of confused folks looking for answers, but I hope you all have room for another..lol. My story starts in April of 2003 when I was experiencing pain just in my upper back to the point that I thought I was having a heart attack and went to the ER. An EKG came back normal so they did a chest XRAY. To make a long story short, there was a spot on my lung requiring a CT scan. Luckily it was only scar tissue, but in the CT the docs were able to see the lower part of my c-spine and saw issues. Off to MRI I went. Here is the MRI report from that time:.. Findings: images demonstrate reversal of cervical lordosis to kyphosis. There is disc desiccation throughtout the cervical spine. A the C2 - 3 c3 -4 levels no significant disc bulges or herniation is noted. At the c 4-5 level mild broad based disc bulge is seen causing mild thecal impression without focal stenosis. At the C 5-6 level marginal osteophyte formation is seen, and a right paracentral disc protrusion is seen in addition to disc bulging. There is moderate thecal and moderate cord impression noted. The cord impression occurs primarily to the right of midline. Axial images demonstrate the remaining AP dimension of the spinal canal of just over 6mm. At the c6-7 level there is a braod based disc bulge, causing thecal sac impression without cord impression noted. No neuroforaminal narrowing is seen. There is mild neuroforaminal narrowing of the right C6 neuroforamen due to the disc bulge, which is accompanied by some uncovertebral joint hypertrophy bilaterally. No definate abnormal T2 brightening seen in the spinal cord. CONCLUSION: SEVERE SPONDYLOSIS AS ABOVE DESCRIBED, WITH DISC PROTRUSION BULGING OSTEOPHYTE FORMATION CAUSING THECAL AND CORD IMPRESSION AT THE C5-6 LEVEL WITH ALSO DISC BULGES AND THECAL IMPRESSION SEEN AT THE C 4-5 AND C6-7 LEVEL. I went to a neurosurgeon who asked what my symptoms were. I was having none, except for the upper back pain. The neuro said that nothing that showed on the MRI would cause the pain I was describing, and he said where I was having no symptoms from the cspine issues, he didn't want to treat. Understandable. So I went on my merry way. I've been fine since that time, with occassional upper back pain, but nothing debilitating. Beginning a week ago, whenever I bend my head forward, my butt and legs have incredible tingling. It's progressed to include my arms, but not to the degree that my legs are. I went to my primary who scheduled another CSPINE and a LUMBAR MRI, figuring it may be something sciatic. I received the films and report from this latest MRI and am hoping someone can help me with the details. FINDINGS: MRI of the cervical spine was performed. The prior study from April 2003 review. The cervicomedullary junction is normal. The discs are diffusely dessiccated within the cervical spine. There is straightening of the normal lordosis of the cervical spine with a gentle kyphosis from C3-C6. This demonstrates a stable appearance compared with the prior study. There is no definate abnormal signal appreciation within the cervical spinal cord. At C2-C3 - no focal disc herniation or neural foraminal compromise. At C3-C4 - no focal disc herniation or neural foraminal compromise. At C4-C5 - there is a posterior disc protrusion more focual paracentral the right and left foraminal. This is flattening the ventral aspect the thecal sac and the right side of the spinal cord appears minimally flattened. There is no neural foraminal stenosis despite the protrusion. AT C5-C6 - there is a prominent disc protrusion more focal paracentral on the right effacing the CSF and flattening the right side of the spinal cord. There are bilateral foraminal protrusions, right greater the left, with narrowing of the neural foramina. At C6-C7 - there is a concentric disc bulge flattening the ventral aspect of the thecal sac. There is no obvious mass effect upon the spinal cord. Disc material narrows the neural foramina bilaterally, right greater than left. AT C7-T1 - no focal disc herniation or neural foraminal compromise. Compared to the prior study, the disc disease at C4-C5 has progressed with relative stable disc disease at C5-C6 and C6-C7. Conclusion: SEVERE SPONDYLOSIS AS DESCRIBED ABOVE, NOT SIGNIFICANTLY CHANGED COMPARED TO PRIOR STUDY WITH EXCEPTION OF C4-C5 WHERE THERE IS NOW MASS EFFECT UPON THE RIGHT SIDE OF THE SPINAL CORD DUE TO INCREASING PROTRUSION. THERE IS STABLE MASS EFFECT UPON THE SPINAL CORD AT C5-C6 AND C6-C7 AS DESCRIBED ABOVE WITHOUT DEFINATE ABNORMAL SIGNAL APPRECIATED WITH THE SPINAL CORD. So..what does this all mean? Is it spinal arthritis and degenerative disc disease? Will it get progressively worse? Is there a way to stop the deterioration and is surgery an option or can it be treated less agressively? Any insight would be most appreciated !!! Dawn As an FYI - the lumbar MRI shows FINDINGS: The tip of the conus is at L1. The vertebral bodies demonstrate normal alignment and there is no spondylolysis. There is diffusely decreased T1 signal likely representing red marrow reconversion. A couple of scattered vertebral body hemangiomas are noted. The disc demonstrate preserved signal and height. At L5-S1 - there is a bulge of the annulus without focal herniation. At L4-L5 - there is a very shallow right foraminal disc protrusion. There is no central spinal stenosis and the L4 nerve roots are not affected. At L3-L4 ther is on focal disc herniation or neural foraminal compromise. at T11-T12 - there is a disc bulge minimally flattening the ventral aspect of the thecal sac without evidence for central spinal stenosis or mass effect upon the conus. Conclusion: Mild degenerative disc disease within the lumbar spine as described above. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Welcome back, . My heart goes out to you in your disappointing quest for a CI. I have heard the alternative for those who do not benefit from CI are given brain stem implants. Perhaps if you did a google search you may come up with info, besides people here providing info. Good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Welcome back , " Ears Hopin " this time things go just as planned and you wake up Bionic ;-)) Best of luck to you wiht the new Doc, and you will be in my thoughts and prayers ;-) Regards, Mike " Ears Hopin " P > > Hi All, until early last month I was a member of this group and am > glad to be back with you all again. > > On July 6th I underwent what I thought would be CI surgery only to > awaken and find out that my surgeon was unable to implant me because > of the proximity of my facial nerve. It feels strange to have the > incision as if I had a CI but knowing it is not there. Last week > would have been my activation. > > At the time I was so devastated that a CI was not to be that in a > moment of haste I unsubscribed from this group. After I came out of > the depression and fog that lasted for several weeks my surgeon asked > if I would be interested in perhaps finding another way to be > implanted. And so next week I have an appointment with a specialized > surgeon to see what the chances are of my being implanted in a > somewhat different location. The risks and complications are of > course a great concern to me. If anyone in this group has been > through a similar ordeal I would appreciate hearing from you. > > Thanks, > - NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Hi, , I'm so glad to see you hear at . I'm delighted you are scheduled to seek further assistance. I'm sure your specialist will be able to find a solution and get you implanted. All the very best and know that prayers continue to go out to you! ) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Welcome back, . Lets hope that your surgeon can find a satisfactory way to implant you successfully. Ted F. > > Hi All, until early last month I was a member of this group and am > glad to be back with you all again. > > On July 6th I underwent what I thought would be CI surgery only to > awaken and find out that my surgeon was unable to implant me because > of the proximity of my facial nerve. It feels strange to have the > incision as if I had a CI but knowing it is not there. Last week > would have been my activation. > > At the time I was so devastated that a CI was not to be that in a > moment of haste I unsubscribed from this group. > Thanks, > - NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Where in New York are you? We are in New York and my son (2 years old) was just implanted last week at NYU. I'd love to talk to you about our surgeon if you'd like. Ethan's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Hi Ethan's Mom and All, Congratulations to you and especially to your little boy on being implanted. I know that NYU has an excellent cochlear implant team. Just this past Thursday I went to Beth Israel/NY Eye and Ear for a consultation with Dr. Parisier and Dr. iades who feel confident that they will be able to implant me. While I don't have a date just yet most likely it will be in either late September or early October. It has been such a relief to me to know a cochlear implant is still possible for me. Best wishes to you and your son. A whole world is about to open up for him with sound. Long Island NY Ethansmomnyc@... wrote: Where in New York are you? We are in New York and my son (2 years old) was just implanted last week at NYU. I'd love to talk to you about our surgeon if you'd like. Ethan's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Congratulations. I know Beth Israel has an excellent team as well. I am just starting to bring Ethan for some additional speech therapy to one of the therapists there and also considered their implant team. New York has so many excellent options. I would also highly recommend Ethan's surgeon Tom Roland @NYU. He has done so many procedures and has a particular expertise working on ears that have abnormalities. That is one of the reasons I went with him. I'm sure you are in great hands at Beth Israel. I know one little boy who was implanted there and is doing quite well. Jane Madell is very impressive. Please let me know how it all goes. Ethan's Mom In a message dated 8/20/2006 12:47:30 P.M. Eastern Standard Time, maryma72@... writes: Hi Ethan's Mom and All, Congratulations to you and especially to your little boy on being implanted. I know that NYU has an excellent cochlear implant team. Just this past Thursday I went to Beth Israel/NY Eye and Ear for a consultation with Dr. Parisier and Dr. iades who feel confident that they will be able to implant me. While I don't have a date just yet most likely it will be in either late September or early October. It has been such a relief to me to know a cochlear implant is still possible for me. Best wishes to you and your son. A whole world is about to open up for him with sound. Long Island NY Quote Link to comment Share on other sites More sharing options...
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