Newbie Here...

[Guest guest]

>

> Hello Everyone!

>

> I'm and I have a wonderful son, Aiden, who is four years old. He

> has PDD-NOS. I haven't tried any biomedical treatments with him yet. I

> am reading DeFelice's book now and have just ordered Pep and

> Zyme. I'm trying not to get my hopes up. We'll see what happens. He

> also has an appointment with a Dr. for nutritional testing (like a

> DAN! doc, but not quite)next month. We'll see what that shows.

>

> Just thought I'd say hello, as you'll be seeing me around here now!

>

Hello , we have just begun our adventure with biomeds. In Oct we

started the Casein diet, In Nov. we began the enzymes. We also started

him on Omega 3. When we started our 4 yr old was getting D's in

conduct in his special ed class. Hitting and pushing and agressive.

After 3 weeks on Casein and after 3 days on Omege 3 he now comes home

with A+ and he has begun to play with his toys like a child. Talking

to them and saying " Hi , whistle " . He told his mother and I " I

know Sam " Thats 4 words. This child was non verbal when we

started. We are doing the Enzymes instead of the gluten free diet, but

when we see our DAN doctor Jan 3 (our first appointment with him) this

may change. Right now his mom is afraid to go gluten free as that is

all he will eat. She is however trying to make gluten free choices

when she can.

[Guest guest]

- HI ,

Welcome to the group. 's book is great! You will learn a lot

here. Hope is what will get you through this process, and when you

start to see results, you will know that what you are doing is your

hope paying off.

> Hello Everyone!

>

> I'm and I have a wonderful son, Aiden, who is four years old. He

> has PDD-NOS. I haven't tried any biomedical treatments with him yet. I

> am reading DeFelice's book now and have just ordered Pep and

> Zyme. I'm trying not to get my hopes up. We'll see what happens. He

> also has an appointment with a Dr. for nutritional testing (like a

> DAN! doc, but not quite)next month. We'll see what that shows.

>

> Just thought I'd say hello, as you'll be seeing me around here now!

>

[Guest guest]

>

Thanks for the responses! I haven't done anything with his diet yet,

besides trying to keep it as minimally processed as possible (though

he does like some very processed things like fruit snacks, etc.). I

want to see what the enzymes will do all on their own. We just started

them yesterday, and then unexpectedly went out to eat tonight, so he

didn't have them tonight. Oh well. We'll start up again tomorrow.

Also, I'm thinking of giving them to my daughter, as well. She's 18

months and has become quite picky and has slowly eliminated all fruits

and veggies from her diet other than fruit strips and fruit snacks.

Maybe something's bothering her?

> - HI ,

>

> Welcome to the group. 's book is great! You will learn a lot

> here. Hope is what will get you through this process, and when you

> start to see results, you will know that what you are doing is your

> hope paying off.

>

>

>

>

> > Hello Everyone!

> >

> > I'm and I have a wonderful son, Aiden, who is four years old. He

> > has PDD-NOS. I haven't tried any biomedical treatments with him yet. I

> > am reading DeFelice's book now and have just ordered Pep and

> > Zyme. I'm trying not to get my hopes up. We'll see what happens. He

> > also has an appointment with a Dr. for nutritional testing (like a

> > DAN! doc, but not quite)next month. We'll see what that shows.

> >

> > Just thought I'd say hello, as you'll be seeing me around here now!

> >

>

[Guest guest]

Hi ,

Sorry to hear you're dealing with this. I can relate! While I have no

official diagnosis of lupus, I was told by one doctor that they

suspected it. Some of the women on the forum also have a diagnosis or

lupus-like symptoms without a diagnosis. In my course of healing have

read several stories of women recovering from lupus through diet changes

(using either a vegan diet or the SCD diet) and fasting.

If you want to recover I definitely suggest getting explanted. It's

hard for the body to recover with foreign objects in it. You can look

in the files for qualified doctors who understand the relationship

between illness and implants.

Good luck and if you have any questions, just ask.

Take care.

PH

>

> Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

>

> I got saline implants w/ a silicone shell in 2004.

>

> In late '04, I started having weird skin issues, rashes, hives etc.

I'd always go to my General Practitioner and get a steroid shot.

Everything would be fine for a few months.

>

> In 2007, I began having migraines and my blood pressure soared. I was

put on meds. I'm not over weight nor do I have a family history of high

BP.

>

> In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps

and cysts. The year before, my Pap was beautiful.

>

> In 2009, I started having achy joints. The pain was intermittent, but

just in the same joints. I thought maybe I was working out too hard. I

eased off, but the aches got worse and spread to other areas.

>

> My skin was still breaking out, and I developed a cough and low grade

fever that stuck around for about 4 months. My children both got H1N1

and I thought I had the flu as well.

>

> Again, I went to the GP. My flu test was negative, so she (Doctor)

asked if she could run some other blood tests.

>

> 2 weeks later, I went to the GP to find out I had 4 positive blood

tests and got a referral to a Rheumatologist.

>

> Long story short- I'm on Plaquenil and have a diagnosis of Systemic

Lupus. My levels are so low compared to most Lupus patients.

> I strongly suspect my implants to be a big contributor to my illness

even though I have saline implants. Am I going crazy, or is there a

connection?

>

[Guest guest]

Sweetie,there is a huge connection.....all implants are

made of silicone that degrades. The inside of implants

are usually silicone or saline which has a shelf life.

One girl got her saline filled implants removed at

9 months post op, and hers were full of fungus and mold.

There are many pics of moldy saline implants in the photo

section of the archives......

Silicone is manufactured useing some 40 neuro-toxic

chemicals to include:

1)Methyl Ethyl Ketone

2)Cyclobexanone

3)Isopropyl Alcohol

4)Denatured Alcohol

5)Acetone

6)Urethane

7)Poly vinyl Chloride

8)Lacquer Thinner

9)Ethyl Acetate

10)Epoxy Resin

11)Epoxy Hardener

12)Amine

13)Printing Ink

14)Toluene

15)Freon

16)Silica

17)Flux

18)Solder

19)Chlorplatinic Acid

20)Metal Cleaning Acid

21)Formaldehyde

22)Talcum Powder

23)Color Pigmentation (Printers Ink)

24)Oakite

25)Cyanoacyrylates

26)Ethylene Oxide

27)Carob Black

28)Xylene

29)Hexone

30)Benzene

31)Hexanone 2

32)Thixon-OSN-2

33)Rubber

34)Acid Stearic

35)Zinc Oxide

36)Naptha

37)Phenol

38)Methylene Chloride

39)Platinum Salt

Now, just imagine that chemical bag sitting inside your chest......

permeating inside of you.......

Your body is made to handle a normal amount of foreign invaders

but depending on hits to your immune system and your hla typing

( genetics ) you dont know what is gonna happen over time.

The good thing...proper removal, eating live, clean foods, drinking

lots of clean water to help filter, staying away from foods that

are processed, its just more your body has to work to break them

down, save your energy for healing, not fighting things you can

avoid. Eating or drinking a probiotic, home made is best.

Meditate, and focus on your healthy and energetic body. Listen

to your bodys messages... get good sleep. at least 8 hours. If you dont, find

a way to train yourself, you heal and regenerate during this time.

Do consious breathing.

Know we are here for you......

Please ask questions....

Hugs N Prayers

Dede

Newbie here...

Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

I got saline implants w/ a silicone shell in 2004.

In late '04, I started having weird skin issues, rashes, hives etc. I'd always go to my General Practitioner and get a steroid shot. Everything would be fine for a few months.

In 2007, I began having migraines and my blood pressure soared. I was put on meds. I'm not over weight nor do I have a family history of high BP.

In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and cysts. The year before, my Pap was beautiful.

In 2009, I started having achy joints. The pain was intermittent, but just in the same joints. I thought maybe I was working out too hard. I eased off, but the aches got worse and spread to other areas.

My skin was still breaking out, and I developed a cough and low grade fever that stuck around for about 4 months. My children both got H1N1 and I thought I had the flu as well.

Again, I went to the GP. My flu test was negative, so she (Doctor) asked if she could run some other blood tests.

2 weeks later, I went to the GP to find out I had 4 positive blood tests and got a referral to a Rheumatologist.

Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus. My levels are so low compared to most Lupus patients.

I strongly suspect my implants to be a big contributor to my illness even though I have saline implants. Am I going crazy, or is there a connection?

[Guest guest]

Hi ,No, you are not going crazy. I read 's story and her symptoms and your symptoms sound exactly like the many others I have read about. Implants are not safe. I believe that implants cause autoimmune diseases and connective tissue disorders. My doctor actually told me that he thinks there is a correlation between implants and autoimmune diseases. Imagine that! He's not a surgeon though, but still, for a doctor to admit that is rare. Please consider removing them and detoxing your body. I understand that Dr. Kolb offers a detox program and some of the gals I read about on this other forum have gone on it and gotten results. Some of the other gals saw improvement after their implants were removed. Practically every plastic surgeon will tell you that implants are safe,

but I don't believe they are safe. Dr. Melmed in Texas doesn't think they are safe and he has been vocal about it.Your children deserve to have a healthy mommy. From: yarbroughshannon <yarbroughshannon@...>Subject: Newbie here... Date: Saturday, May 15, 2010, 2:10 PM

Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

I got saline implants w/ a silicone shell in 2004.

In late '04, I started having weird skin issues, rashes, hives etc. I'd always go to my General Practitioner and get a steroid shot. Everything would be fine for a few months.

In 2007, I began having migraines and my blood pressure soared. I was put on meds. I'm not over weight nor do I have a family history of high BP.

In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and cysts. The year before, my Pap was beautiful.

In 2009, I started having achy joints. The pain was intermittent, but just in the same joints. I thought maybe I was working out too hard. I eased off, but the aches got worse and spread to other areas.

My skin was still breaking out, and I developed a cough and low grade fever that stuck around for about 4 months. My children both got H1N1 and I thought I had the flu as well.

Again, I went to the GP. My flu test was negative, so she (Doctor) asked if she could run some other blood tests.

2 weeks later, I went to the GP to find out I had 4 positive blood tests and got a referral to a Rheumatologist.

Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus. My levels are so low compared to most Lupus patients.

I strongly suspect my implants to be a big contributor to my illness even though I have saline implants. Am I going crazy, or is there a connection?

[Guest guest]

Hello everyone,

My name is and I was diagnosed with RA officially on May 7th. I had

seen a Rhuematologist in the fall and they believed I might have RA so we did a

Prednison taper and took aleve and I felt better. Obviously it didn't last. I

now have pain in just about every joint and especially my shoulders and very

stiff hands and one terrible knee.

So I did the Prednisone taper again started Plaqunil and Nebumetone. I am still

in pain but I know the Plaqunil takes quite some time to take effect.

I have a few questions if anyone would be able to help out...

How do I know if I have agressive, moderate, etc. RA?

Does anyone else have pain in their hips?

I have read alot of posts of people feeling very depressed with this diagnosis.

I haven't yet so I am wondering if I am not aware how severe this will get. I

have alot of pain and stiffness but I don't know if this means it will continue

to get worse and worse to the point of not being able to do things I normally

do. Not sure if that makes sense or not.

What are some of the better internet sites and books to get?

Thanks,

[Guest guest]

Hi I too an very sorry that you are going through this. I hate that we all are. I have had a doctor say that they

thought that it was lupus too. My ANA test and all of the other came back normal so she sent me to a cancer doctor. I hope that everything works out for you. Are your symptoms all day evryday?Mine are not. I always feel something everyday but it is not always bad enough that I am bedridden every single day. It is like it flares. I will feel so bad for 4 days and then I will feel better then that for a few. That is what scares me that it isn't my implants. If it were wouldn't I be sick 24/7? I don't know. Once again I am so very sorry that you are going through this. It suck's!!!

From: perfecthealth68 <perfecthealth68@...> Sent: Sat, May 15, 2010 8:57:32 PMSubject: Re: Newbie here...Hi ,Sorry to hear you're dealing with this. I can relate! While I have noofficial diagnosis of lupus, I was told by one doctor that theysuspected it. Some of the women on the forum also have a diagnosis orlupus-like symptoms without a diagnosis. In my course of healing haveread several stories of women recovering from lupus through diet changes(using either a vegan diet or the SCD diet) and fasting.If you want to recover I definitely suggest getting explanted. It'shard for the body to recover with foreign

objects in it. You can lookin the files for qualified doctors who understand the relationshipbetween illness and implants.Good luck and if you have any questions, just ask.Take care.PH>> Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.>> I got saline implants w/ a silicone shell in 2004.>> In late '04, I started having weird skin issues, rashes, hives etc.I'd always go to my General Practitioner and get a steroid shot.Everything would be fine for a few months.>> In 2007, I began having migraines and my blood pressure soared. I wasput on meds. I'm not over weight nor do I have a family history of

highBP.>> In 2008, I was having 20-40 day monthly cycles. My GYNO found polypsand cysts. The year before, my Pap was beautiful.>> In 2009, I started having achy joints. The pain was intermittent, butjust in the same joints. I thought maybe I was working out too hard. Ieased off, but the aches got worse and spread to other areas.>> My skin was still breaking out, and I developed a cough and low gradefever that stuck around for about 4 months. My children both got H1N1and I thought I had the flu as well.>> Again, I went to the GP. My flu test was negative, so she (Doctor)asked if she could run some other blood tests.>> 2 weeks later, I went to the GP to find out I had 4 positive bloodtests and got a referral to a Rheumatologist.>> Long story short- I'm on Plaquenil and have a diagnosis of SystemicLupus. My levels are so low compared to

most Lupus patients.> I strongly suspect my implants to be a big contributor to my illnesseven though I have saline implants. Am I going crazy, or is there aconnection?>------------------------------------

[Guest guest]

, My symptoms have been constant since Nov. 2009.

It has progressed from headaches and rashes, to where I am now. My husband and

I don't feel like this is Lupus on it's own.

I have all of the clinical findings of Lupus , but not as many of the physical

findings.

I have a positive ANA, double stranded DNA, Anti Chromatin, and very low levels

of vitamin D. I flare, meaning some weeks are great and some I can't get out of

bed, the fatigue is so severe.

These are most of the problems I've had:

fainting

High blood pressure

chronic fatigue

I am now starting to forget things... words when I'm talking.

joint pain

skin rashes/hives

periods that linger for weeks instead of 7 days

polyps and cysts on my ovaries and cervix

headaches

Low grade fever of 100

I'm constantly cold especially hands and feet

vertigo

my vision seems to be declining- every exam is worse than the one before.

My GP thought I had something called Mixed Connective Tissue Disease. The

Rheumatologist quickly ruled that out.

I'm literally so flippen sick and tired of being sick and tired!

I don't know that if I was ex-planted, the symptoms and tests would go away and

improve. I just feel strongly that it is implant related.

I wish you the best! Hopefully, we will get answers and understand all of this

more to get us back on a healthy track!

> >

> > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> >

> > I got saline implants w/ a silicone shell in 2004.

> >

> > In late '04, I started having weird skin issues, rashes, hives etc.

> I'd always go to my General Practitioner and get a steroid shot.

> Everything would be fine for a few months.

> >

> > In 2007, I began having migraines and my blood pressure soared. I was

> put on meds. I'm not over weight nor do I have a family history of high

> BP.

> >

> > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps

> and cysts. The year before, my Pap was beautiful.

> >

> > In 2009, I started having achy joints. The pain was intermittent, but

> just in the same joints. I thought maybe I was working out too hard. I

> eased off, but the aches got worse and spread to other areas.

> >

> > My skin was still breaking out, and I developed a cough and low grade

> fever that stuck around for about 4 months. My children both got H1N1

> and I thought I had the flu as well.

> >

> > Again, I went to the GP. My flu test was negative, so she (Doctor)

> asked if she could run some other blood tests.

> >

> > 2 weeks later, I went to the GP to find out I had 4 positive blood

> tests and got a referral to a Rheumatologist.

> >

> > Long story short- I'm on Plaquenil and have a diagnosis of Systemic

> Lupus. My levels are so low compared to most Lupus patients.

> > I strongly suspect my implants to be a big contributor to my illness

> even though I have saline implants. Am I going crazy, or is there a

> connection?

> >

>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Oh, :

Welcome to our group, and we are all sorry that you are going through all of this pain. I have SLE too, and my doctors do tell me that my ruptured silicone implants made me sick. I have done so much research (20 years) and we know that silicone is not safe to surgically implant into the human body.

Honey, the flares are awful, and you are not crazy. The breast implants are causing your severe health problems. The best thing that you can do is to have them removed as soon as possible. They must be removed properly, because if the doctor leaves the capsules in your body, you will not get well.

I live in Canada, and our Government seems to think that these devices are safe. We have all tried to have them banned; however, they are still wanting to make money on us. We have become cash cows for the plastic surgeons and the pharmaceuticals. It took me many years to educate my doctors, and now they are listening.

Stay close...sending love and support to you....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

Newbie here...

Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2. I got saline implants w/ a silicone shell in 2004.In late '04, I started having weird skin issues, rashes, hives etc. I'd always go to my General Practitioner and get a steroid shot. Everything would be fine for a few months.In 2007, I began having migraines and my blood pressure soared. I was put on meds. I'm not over weight nor do I have a family history of high BP. In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and cysts. The year before, my Pap was beautiful.In 2009, I started having achy joints. The pain was intermittent, but just in the same joints. I thought maybe I was working out too hard. I eased off, but the aches got worse and spread to other areas.My skin was still breaking out, and I developed a cough and low grade fever that stuck around for about 4 months. My children both got H1N1 and I thought I had the flu as well.Again, I went to the GP. My flu test was negative, so she (Doctor) asked if she could run some other blood tests.2 weeks later, I went to the GP to find out I had 4 positive blood tests and got a referral to a Rheumatologist. Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus. My levels are so low compared to most Lupus patients. I strongly suspect my implants to be a big contributor to my illness even though I have saline implants. Am I going crazy, or is there a connection?

[Guest guest]

Hi and I am so sorry!! Have you talked to any explant doctors? I talked to Dr. Melmed last week and he was so nice. I Emailed Dr.kolb last night and she has emailed me back. Dr. Melmed said that 85% of the time his patients feel better after the have been explanted. I have read alot of women who have a + Ana will return to normal once removed. I would do it asap if I were you. Did you get them in 2009? I started feeling sick in july of 2008. So there are times that you aren't always bedridden. That is what gets me some days are not my bad days. The days that are ok for you what symptoms do you still feel? Thankyou for the email!!

From: yarbroughshannon <yarbroughshannon@...> Sent: Sun, May 16, 2010 9:15:59 AMSubject: Re: Newbie here..., My symptoms have been constant since Nov. 2009.It has progressed from headaches and rashes, to where I am now. My husband and I don't feel like this is Lupus on it's own.I have all of the clinical findings of Lupus , but not as many of the physical findings.I have a positive ANA, double stranded DNA, Anti Chromatin, and very low levels of vitamin D. I flare, meaning some weeks are great and some I can't get out of bed, the fatigue is so severe.These are most of the problems I've had:faintingHigh blood pressurechronic fatigueI am

now starting to forget things... words when I'm talking.joint painskin rashes/hivesperiods that linger for weeks instead of 7 dayspolyps and cysts on my ovaries and cervixheadachesLow grade fever of 100I'm constantly cold especially hands and feetvertigomy vision seems to be declining- every exam is worse than the one before.My GP thought I had something called Mixed Connective Tissue Disease. The Rheumatologist quickly ruled that out.I'm literally so flippen sick and tired of being sick and tired!I don't know that if I was ex-planted, the symptoms and tests would go away and improve. I just feel strongly that it is implant related.I wish you the best! Hopefully, we will get answers and understand all of this more to get us back on a healthy track!> >> > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.> >> > I got saline implants w/ a silicone shell in 2004.> >> > In late '04, I started having weird skin issues, rashes, hives etc.> I'd always go to my General Practitioner and get a steroid shot.> Everything would be fine for a few months.>

>> > In 2007, I began having migraines and my blood pressure soared. I was> put on meds. I'm not over weight nor do I have a family history of high> BP.> >> > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps> and cysts. The year before, my Pap was beautiful.> >> > In 2009, I started having achy joints. The pain was intermittent, but> just in the same joints. I thought maybe I was working out too hard. I> eased off, but the aches got worse and spread to other areas.> >> > My skin was still breaking out, and I developed a cough and low grade> fever that stuck around for about 4 months. My children both got H1N1> and I thought I had the flu as well.> >> > Again, I went to the GP. My flu test was negative, so she (Doctor)> asked if she could run some other blood tests.> >>

> 2 weeks later, I went to the GP to find out I had 4 positive blood> tests and got a referral to a Rheumatologist.> >> > Long story short- I'm on Plaquenil and have a diagnosis of Systemic> Lupus. My levels are so low compared to most Lupus patients.> > I strongly suspect my implants to be a big contributor to my illness> even though I have saline implants. Am I going crazy, or is there a> connection?> >> > > > > > ------------------------------------> >

[Guest guest]

, This is all pretty new to me. I was just diagnosed in March w/ Lupus. So,

no I haven't spoken w/ any Doctors, yet.

I got my implants in 2006. Within a yr. I started having having issues.

The best way to describe *everyday* would be: I can do the P90X workout for 2-3

weeks, then for 3 or 4 days my joints hurt and I am exhausted and freezing. Some

days only my elbow and middle fingers hurt. Other days my knees hurt.

I feel pretty good today. No fever, and only tightness in one finger. I'll

clean house, hang out by the pool w/ my kids. Normal stuff.

Tomorrow, I might take them to school, then crawl back into bed until I pick

them up. It is just so intermittent. That is probably the hardest thing. I never

know when I'm going to have a bad day.

> > >

> > > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> > >

> > > I got saline implants w/ a silicone shell in 2004.

> > >

> > > In late '04, I started having weird skin issues, rashes, hives etc.

> > I'd always go to my General Practitioner and get a steroid shot.

> > Everything would be fine for a few months.

> > >

> > > In 2007, I began having migraines and my blood pressure soared. I was

> > put on meds. I'm not over weight nor do I have a family history of high

> > BP.

> > >

> > > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps

> > and cysts. The year before, my Pap was beautiful.

> > >

> > > In 2009, I started having achy joints. The pain was intermittent, but

> > just in the same joints. I thought maybe I was working out too hard. I

> > eased off, but the aches got worse and spread to other areas.

> > >

> > > My skin was still breaking out, and I developed a cough and low grade

> > fever that stuck around for about 4 months. My children both got H1N1

> > and I thought I had the flu as well.

> > >

> > > Again, I went to the GP. My flu test was negative, so she (Doctor)

> > asked if she could run some other blood tests.

> > >

> > > 2 weeks later, I went to the GP to find out I had 4 positive blood

> > tests and got a referral to a Rheumatologist.

> > >

> > > Long story short- I'm on Plaquenil and have a diagnosis of Systemic

> > Lupus. My levels are so low compared to most Lupus patients.

> > > I strongly suspect my implants to be a big contributor to my illness

> > even though I have saline implants. Am I going crazy, or is there a

> > connection?

> > >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

,

I too have a negative ANA, but a positive DNA and DNA titer.

5 percent of people with lupus have a negative ANA.

I also dont get a high white count when I am ill. My body

just doesnt fight like it should.

There are things you can do to help your body fight for you

again.

Blessings to all ~

Dede

Re: Re: Newbie here...

Hi I too an very sorry that you are going through this. I hate that we all are. I have had a doctor say that they thought that it was lupus too. My ANA test and all of the other came back normal so she sent me to a cancer doctor. I hope that everything works out for you. Are your symptoms all day evryday?Mine are not. I always feel something everyday but it is not always bad enough that I am bedridden every single day. It is like it flares. I will feel so bad for 4 days and then I will feel better then that for a few. That is what scares me that it isn't my implants. If it were wouldn't I be sick 24/7? I don't know. Once again I am so very sorry that you are going through this. It suck's!!!

[Guest guest]

Hi ,

Welcome to our group, though I am sincerely sorry that you have to be here at

all.

Your story is just so familiar to us...we've heard various versions of it over

and over again in the past decade and more. So many women, so much suffering,

and it didn't have to turn out this way, if only the doctors had been more

forthright.

I do believe that your lupus can be traced to your implants.

Saline implants still have a silicone shell, and that can be the contributor to

your immune system dysfunction. Most doctors will discredit this idea, because

many women do NOT have this kind of response. But just because many do not,

doesn't mean that nobody does.

There is a group of women, a subset in the population, that are reacting

negatively to the presence of silicone in the body, and we represent just a

small portion of that subset.

If you act NOW, there is a good chance that you can reverse what is happening in

your body. I've known women who have. It will take a proper explant, some

detoxification, and exercise, and healthy eating. It may take years, but you

can get there with some dedication! Are you up for that?

A proper explant involves taking out the scar tissue along with the implants

themselves. Every women will develop scar tissue around her implants. The

difference is that for some women the scar tissue is thin and paper-like, and

for others, it is thick and rubbery. Either way, its presence in the body is not

a good thing. It must be removed. When it is removed at the same time as the

implants, it is called " en bloc " removal. They are taken out as a unit, in one

piece. If the doctor insists on cutting through the scar tissue first to get at

the implants, and then goes back inside the breast pocket to pull out the scar

tissue, it is called a " total capsulectomy. " You want either one of these

surgical procedures. Just make sure they don't just yank out the implants alone

and leave that scar tissue in the body. It's presence will be a signal to the

immune system to keep on reacting in the same way, due to the presence of

silicone degradation products and other junk. The safest route is total removal

of implants and scar tissue together.

I hope that is helpful. Please ask more questions. You may not have to see a

rheumatologist after all....in my experience, they are pretty worthless, and

will only prescribe toxic drugs in order to manage the symptoms of autoimmunity,

not make it go away if possible. There are thousands upon thousands of people

who have effectively " cured " their autoimmune diseases, though doctors tell you

that they can't be cured. But I beg to differ. They can be so effectively

managed as to be non-existent.

Ask away...we're here to help and offer hope.

God bless,

Patty

>

> Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

>

> I got saline implants w/ a silicone shell in 2004.

>

> In late '04, I started having weird skin issues, rashes, hives etc. I'd

always go to my General Practitioner and get a steroid shot. Everything would be

fine for a few months.

>

> In 2007, I began having migraines and my blood pressure soared. I was put on

meds. I'm not over weight nor do I have a family history of high BP.

>

> In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and

cysts. The year before, my Pap was beautiful.

>

> In 2009, I started having achy joints. The pain was intermittent, but just in

the same joints. I thought maybe I was working out too hard. I eased off, but

the aches got worse and spread to other areas.

>

> My skin was still breaking out, and I developed a cough and low grade fever

that stuck around for about 4 months. My children both got H1N1 and I thought I

had the flu as well.

>

> Again, I went to the GP. My flu test was negative, so she (Doctor) asked if

she could run some other blood tests.

>

> 2 weeks later, I went to the GP to find out I had 4 positive blood tests and

got a referral to a Rheumatologist.

>

> Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus. My

levels are so low compared to most Lupus patients.

> I strongly suspect my implants to be a big contributor to my illness even

though I have saline implants. Am I going crazy, or is there a connection?

>

[Guest guest]

Are you going to have them removed? Do you have any lupus in your family? We got ours the same year. There you should call Dr. Melmed. He is in Dallas. He will not put new ones in. He just explants. I hope you don't have a flare anytime soon. Enjoy your day since you feel good today.

From: yarbroughshannon <yarbroughshannon@...> Sent: Sun, May 16, 2010 9:40:24 AMSubject: Re: Newbie here..., This is all pretty new to me. I was just diagnosed in March w/ Lupus. So, no I haven't spoken w/ any Doctors, yet. I got my implants in 2006. Within a yr. I started having having issues.The best way to describe *everyday* would be: I can do the P90X workout for 2-3 weeks, then for 3 or 4 days my joints hurt and I am exhausted and freezing. Some days only my elbow and middle fingers hurt. Other days my knees hurt.I feel pretty good today. No fever, and only tightness in one finger. I'll clean house, hang out by the pool w/ my kids. Normal stuff.Tomorrow, I

might take them to school, then crawl back into bed until I pick them up. It is just so intermittent. That is probably the hardest thing. I never know when I'm going to have a bad day.> > >> > > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.> > >> > > I got saline implants w/ a silicone shell in 2004.> > >> > > In late '04, I started having weird skin issues, rashes, hives etc.> > I'd always go to my General Practitioner and get a steroid shot.> > Everything would be fine for a few months.> > >> > > In 2007, I began having migraines and my blood pressure soared. I was> > put on meds. I'm not over weight nor do I have a family history of high> > BP.> > >> > > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps> > and cysts. The year before, my Pap was beautiful.> > >> > > In 2009, I started having achy joints. The pain was intermittent, but> > just in

the same joints. I thought maybe I was working out too hard. I> > eased off, but the aches got worse and spread to other areas.> > >> > > My skin was still breaking out, and I developed a cough and low grade> > fever that stuck around for about 4 months. My children both got H1N1> > and I thought I had the flu as well.> > >> > > Again, I went to the GP. My flu test was negative, so she (Doctor)> > asked if she could run some other blood tests.> > >> > > 2 weeks later, I went to the GP to find out I had 4 positive blood> > tests and got a referral to a Rheumatologist.> > >> > > Long story short- I'm on Plaquenil and have a diagnosis of Systemic> > Lupus. My levels are so low compared to most Lupus patients.> > > I strongly suspect my implants to be a big contributor to my

illness> > even though I have saline implants. Am I going crazy, or is there a> > connection?> > >> > > > > > > > > > > > ------------------------------------> > > >

[Guest guest]

, My husband is sitting in the room w/ me. He has been reading over my

shoulder. I got my impants in 2004. Symptoms stated almost a year later.

I don't know why I wrote 2006. I think I was thinking I've had them for 6 years

so I wrote 2006. Classic example of how my brain is working these days.

No Lupus in my family.

I just found this site yesterday. I have a lot of learning to do before I make

any decision.

Have a wonderful day as well!

> > > >

> > > > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> > > >

> > > > I got saline implants w/ a silicone shell in 2004.

> > > >

> > > > In late '04, I started having weird skin issues, rashes, hives etc.

> > > I'd always go to my General Practitioner and get a steroid shot.

> > > Everything would be fine for a few months.

> > > >

> > > > In 2007, I began having migraines and my blood pressure soared. I was

> > > put on meds. I'm not over weight nor do I have a family history of high

> > > BP.

> > > >

> > > > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps

> > > and cysts. The year before, my Pap was beautiful.

> > > >

> > > > In 2009, I started having achy joints. The pain was intermittent, but

> > > just in the same joints. I thought maybe I was working out too hard. I

> > > eased off, but the aches got worse and spread to other areas.

> > > >

> > > > My skin was still breaking out, and I developed a cough and low grade

> > > fever that stuck around for about 4 months. My children both got H1N1

> > > and I thought I had the flu as well.

> > > >

> > > > Again, I went to the GP. My flu test was negative, so she (Doctor)

> > > asked if she could run some other blood tests.

> > > >

> > > > 2 weeks later, I went to the GP to find out I had 4 positive blood

> > > tests and got a referral to a Rheumatologist.

> > > >

> > > > Long story short- I'm on Plaquenil and have a diagnosis of Systemic

> > > Lupus. My levels are so low compared to most Lupus patients.

> > > > I strongly suspect my implants to be a big contributor to my illness

> > > even though I have saline implants. Am I going crazy, or is there a

> > > connection?

> > > >

> > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Thank you Patty. I have so much to learn. The older I get, the less vain I am. I

couldn't care less about having implants. I just want to be healthy and see my

children grow up.

You girls are amazing! It really hurts my heart to know so many of us are in the

same boat.

> >

> > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> >

> > I got saline implants w/ a silicone shell in 2004.

> >

> > In late '04, I started having weird skin issues, rashes, hives etc. I'd

always go to my General Practitioner and get a steroid shot. Everything would be

fine for a few months.

> >

> > In 2007, I began having migraines and my blood pressure soared. I was put

on meds. I'm not over weight nor do I have a family history of high BP.

> >

> > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and

cysts. The year before, my Pap was beautiful.

> >

> > In 2009, I started having achy joints. The pain was intermittent, but just

in the same joints. I thought maybe I was working out too hard. I eased off, but

the aches got worse and spread to other areas.

> >

> > My skin was still breaking out, and I developed a cough and low grade fever

that stuck around for about 4 months. My children both got H1N1 and I thought I

had the flu as well.

> >

> > Again, I went to the GP. My flu test was negative, so she (Doctor) asked if

she could run some other blood tests.

> >

> > 2 weeks later, I went to the GP to find out I had 4 positive blood tests

and got a referral to a Rheumatologist.

> >

> > Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus.

My levels are so low compared to most Lupus patients.

> > I strongly suspect my implants to be a big contributor to my illness even

though I have saline implants. Am I going crazy, or is there a connection?

> >

>

[Guest guest]

Hi .  I want to welcome you to our wonderful group.  You did a good

thing by seeing a

Rheumy.  I have my blood tested every 3 months so my Rheumy can see how I am

doing.  Pred. is my wonder drug.  My Rheumy started to treat my RA agressively

from day one as I was in a very bad flare.  I have taken Pred. daily for almost

6 years now.  I take Methatrexate, Placquenil, Sulfasalazine, and Pred.  I

also take Folic acid 1x a week.  By seeing your Rheumy on a regular basis, and

your Rheumy monitoring your blood work, it will give a good idea what is going

on with your RA.  I do know when I am in bad pain, I call my Rheumy and she

sees me right away.  I have taken mega doses of Pred. when I am in a bad

flare.  I hope you like your Rheumy.  That is a good beginning.  Your Rheumy

should care about how you are feeling, gives you RX for pain meds, etc.  Your

Rheumy should also listen to you at each visit, and be compassionate too.  If

you end up not liking your Rheumy, then search until you find the best one for

you.  I love my Rheumy

and she takes such good care of me.  She is always just a phone call away.

 

I don't check out RA websites or read anything about it.  I read all the posts

here, which are so informative.  does great research for us.  If I have

any questions, I post them here and also ask my Rheumy.

 

I have had hip pain in the beginning, but not anymore.  My feet, ankles, hands

and wrists were hit the hardest.  I lead a full life and work around my RA.  I

do rest as much as I can as it does help.  I just turned 70, and do what I can

each day.

 

Again welcome, and I wish you many pain free days ahead.

 

Hugs,

 

Barbara

From: melbunzz <melbunzz@...>

Subject: [ ] Newbie Here...

Date: Sunday, May 16, 2010, 4:33 PM

 

Hello everyone,

My name is and I was diagnosed with RA officially on May 7th. I had seen

a Rhuematologist in the fall and they believed I might have RA so we did a

Prednison taper and took aleve and I felt better. Obviously it didn't last. I

now have pain in just about every joint and especially my shoulders and very

stiff hands and one terrible knee.

So I did the Prednisone taper again started Plaqunil and Nebumetone. I am still

in pain but I know the Plaqunil takes quite some time to take effect.

I have a few questions if anyone would be able to help out...

How do I know if I have agressive, moderate, etc. RA?

Does anyone else have pain in their hips?

I have read alot of posts of people feeling very depressed with this diagnosis.

I haven't yet so I am wondering if I am not aware how severe this will get. I

have alot of pain and stiffness but I don't know if this means it will continue

to get worse and worse to the point of not being able to do things I normally

do. Not sure if that makes sense or not.

What are some of the better internet sites and books to get?

Thanks,

[Guest guest]

i have ra since i was 32. now i,m 58,raised 2 kids,worked for 20 years

you have to get on the right meds that work for you.i was on gold pills

for 8 years, enbrel for about 7 years,humira i could not take, prednisone on and

off

through the years,now i am justed started on infusions of orencia

go this week for my second one.i am retired now.there will be good days

and bad daYS.there is a lot of things i can't do.long walks are out,going on

vacations is tough, planning ahead is hard.but you learn to accept how things

are.

have a good ra doctor that is understanding.i have pain in hips now when i walk

hope this helped a little

feel better

 

ann

From: melbunzz <melbunzz@...>

Subject: [ ] Newbie Here...

Date: Sunday, May 16, 2010, 4:33 PM

 

Hello everyone,

My name is and I was diagnosed with RA officially on May 7th. I had seen

a Rhuematologist in the fall and they believed I might have RA so we did a

Prednison taper and took aleve and I felt better. Obviously it didn't last. I

now have pain in just about every joint and especially my shoulders and very

stiff hands and one terrible knee.

So I did the Prednisone taper again started Plaqunil and Nebumetone. I am still

in pain but I know the Plaqunil takes quite some time to take effect.

I have a few questions if anyone would be able to help out...

How do I know if I have agressive, moderate, etc. RA?

Does anyone else have pain in their hips?

I have read alot of posts of people feeling very depressed with this diagnosis.

I haven't yet so I am wondering if I am not aware how severe this will get. I

have alot of pain and stiffness but I don't know if this means it will continue

to get worse and worse to the point of not being able to do things I normally

do. Not sure if that makes sense or not.

What are some of the better internet sites and books to get?

Thanks,

[Guest guest]

Welcome , you are in the right place. I am a newbie here too, I got my dx

approximately early Sept.2009, it wasn't a big surprise to me I just knew I had

it, RA runs strong on my moms side. As far as depression goes living with the

pain and limitations can get to the best of us. I think the key here is a

positive attitude, do the best you can, and help others, at least that's what

works for me. You are still new with your rheumy and it will take some time to

get the right meds worked out, and yes they do make a big difference. Yes I have

a lot if pain and stiffness in my hips and spine.

A book that I found informative is (MAYO CLINIC On Arthritis).  ....Randy....

________________________________

From: melbunzz <melbunzz@...>

Sent: Sun, May 16, 2010 2:33:15 PM

Subject: [ ] Newbie Here...

 

Hello everyone,

My name is and I was diagnosed with RA officially on May 7th.  

Does anyone else have pain in their hips?

What are some of the better internet sites and books to get?

Thanks,

[Guest guest]

hi dede;

an ana is autoimmune, right? what kind of test is a dna and a dna titer, and what does it basically show? also, have you ever heard of a way to tell if silicone is in the liver? is there any test or scan to show this?

thanks, dede.

gg

From: DGRAHAMA@...Date: Sun, 16 May 2010 10:41:57 -0400Subject: Re: Re: Newbie here...

,

I too have a negative ANA, but a positive DNA and DNA titer.

5 percent of people with lupus have a negative ANA.

I also dont get a high white count when I am ill. My body

just doesnt fight like it should.

There are things you can do to help your body fight for you

again.

Blessings to all ~

Dede

Re: Re: Newbie here...

Hi I too an very sorry that you are going through this. I hate that we all are. I have had a doctor say that they thought that it was lupus too. My ANA test and all of the other came back normal so she sent me to a cancer doctor. I hope that everything works out for you. Are your symptoms all day evryday?Mine are not. I always feel something everyday but it is not always bad enough that I am bedridden every single day. It is like it flares. I will feel so bad for 4 days and then I will feel better then that for a few. That is what scares me that it isn't my implants. If it were wouldn't I be sick 24/7? I don't know. Once again I am so very sorry that you are going through this. It suck's!!!

[Guest guest]

Wonderful that your husband is showing concern regarding your situation and

looking into it with you....you will need his support during your recovery

journey. It is not an easy road, but it is a necessary one.

God bless,

Patty

> > > > >

> > > > > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> > > > >

> > > > > I got saline implants w/ a silicone shell in 2004.

> > > > >

> > > > > In late '04, I started having weird skin issues, rashes, hives etc.

> > > > I'd always go to my General Practitioner and get a steroid shot.

> > > > Everything would be fine for a few months.

> > > > >

> > > > > In 2007, I began having migraines and my blood pressure soared. I was

> > > > put on meds. I'm not over weight nor do I have a family history of high

> > > > BP.

> > > > >

> > > > > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps

> > > > and cysts. The year before, my Pap was beautiful.

> > > > >

> > > > > In 2009, I started having achy joints. The pain was intermittent, but

> > > > just in the same joints. I thought maybe I was working out too hard. I

> > > > eased off, but the aches got worse and spread to other areas.

> > > > >

> > > > > My skin was still breaking out, and I developed a cough and low grade

> > > > fever that stuck around for about 4 months. My children both got H1N1

> > > > and I thought I had the flu as well.

> > > > >

> > > > > Again, I went to the GP. My flu test was negative, so she (Doctor)

> > > > asked if she could run some other blood tests.

> > > > >

> > > > > 2 weeks later, I went to the GP to find out I had 4 positive blood

> > > > tests and got a referral to a Rheumatologist.

> > > > >

> > > > > Long story short- I'm on Plaquenil and have a diagnosis of Systemic

> > > > Lupus. My levels are so low compared to most Lupus patients.

> > > > > I strongly suspect my implants to be a big contributor to my illness

> > > > even though I have saline implants. Am I going crazy, or is there a

> > > > connection?

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

[Guest guest]

,

It hurts all of us...and there are always new women finding out that their

illness is due to their implants, every day. I have wondered over the years how

many women are out there alone and sick and not knowing why???

Your heart is in the right place. We do tend to get less vain as we get older

and more mature. There are some things that just lose their importance, when

everything gets put into proper perspective, don't they?

We won't be remembered for our boobs...we will be remembered for our

relationships and how well we loved others!

Health is priceless....you have a good chance of recovering it.

Keep your hope up, and keep reading! There are lots of good testimonies of

healing on our group. You can be one of them.

Patty

> > >

> > > Just wanted to introduce myself. I'm , a 35 yr. old Mom of 2.

> > >

> > > I got saline implants w/ a silicone shell in 2004.

> > >

> > > In late '04, I started having weird skin issues, rashes, hives etc. I'd

always go to my General Practitioner and get a steroid shot. Everything would be

fine for a few months.

> > >

> > > In 2007, I began having migraines and my blood pressure soared. I was put

on meds. I'm not over weight nor do I have a family history of high BP.

> > >

> > > In 2008, I was having 20-40 day monthly cycles. My GYNO found polyps and

cysts. The year before, my Pap was beautiful.

> > >

> > > In 2009, I started having achy joints. The pain was intermittent, but just

in the same joints. I thought maybe I was working out too hard. I eased off, but

the aches got worse and spread to other areas.

> > >

> > > My skin was still breaking out, and I developed a cough and low grade

fever that stuck around for about 4 months. My children both got H1N1 and I

thought I had the flu as well.

> > >

> > > Again, I went to the GP. My flu test was negative, so she (Doctor) asked

if she could run some other blood tests.

> > >

> > > 2 weeks later, I went to the GP to find out I had 4 positive blood tests

and got a referral to a Rheumatologist.

> > >

> > > Long story short- I'm on Plaquenil and have a diagnosis of Systemic Lupus.

My levels are so low compared to most Lupus patients.

> > > I strongly suspect my implants to be a big contributor to my illness even

though I have saline implants. Am I going crazy, or is there a connection?

> > >

> >

>

[Guest guest]

That's exactly right, : there are much better drugs for RA these

days. I've had it for 9 years, and don't have any joint damage.

Gracious, I can't believe it's been that long, but it started in 2001.

Sue

On May 18, 2010, at 7:02 PM, wrote:

> But, after reading many posts here, I think there are better drugs

> out there and if you catch it in time before too much damage is

> done, your prognosis is much better. Good luck to you and welcome.

[Guest guest]

I'm still hoping to find some of these better drugs. Unfortunately the first

rheumy I went to doubled my doses every time I went in telling him how HORRIBLE

the drugs made me feel. -- methotrexate hydroxychloroquine folic acid and

gabapentin.

I'd take my methotrexate and literally couldn't crawl out of bed for 3 days.

Every week. He doubled my dose 3x and then told me I wasn't getting better

because I'm depressed.

Also said I needed to get out n take a walk after work. This after I just told

him my joints were so weak after work I could barely get out of my car some

days.

When I stopped seeing him I had a 107 sedrate - which had also been getting

worse and worse.....

Now I'm just seeing my regular dr who put me back on prednisone OH SWEET RELIEF

other than the fact I am so puffy and swollen I look like a monster. But it's

nice waking up and having something there to relieve the joint swelling and

godaweful pain!

I am going to set up a new appt with a new rheumy and was pretty scared about it

but u guys/gals are making me feel better.

These things take time. I'll be patient!

Candace

Sent from my iPhone

On May 18, 2010, at 6:02 PM, " " <anelica1016@...> wrote:

Hi , I am new to this site myself. At first I didn't know if I even

should join because I officially have not been diagnosed with RA yet. It does

run in my family and I have been in pain from one place on my body to another

for a couple years. (since about 40). I have very tender hips. Right at the

joints on the side. It could be anything I guess. Fibro, RA whatever. My wrists

hurt, especially at night. Am stiff feet and ankles, hands fingers you name it.

Takes a little bit to loosen up but never really goes away. My aunt has had RA

since a child and is in a wheel chair now. She is almost 60. I guess I think of

her and the pain and the fingers all bent in ackward ways and I get depressed

about whats to come of me. But, after reading many posts here, I think there are

better drugs out there and if you catch it in time before too much damage is

done, your prognosis is much better. Good luck to you and welcome.

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