Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Hello friends just wondering if anybody has tryed this new drug, I start with my first infusion tommorow and I am kinda nervous about it. Any thing I should no?? Thanks so much ,, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 Marie, My appointment for my first infusion is next week, so we will be together in trying out this new med. I talked to my Rheumy today, and discussed starting Actemra. The side effects are about the same as with any biologic, and there are a few people over on the Arthritis Foundation's list who have been on actemra for over a year with no side effects and it is working nicely for them so far. I've failed three different types of TNF blockers, so my doctor and I decided it was time to try something new. On a personal note, these medications are supposed to slow the progression of RA down. For me the TNF blockers were not doing that, and I have continued to have damage to my spine and now my hips. In fact the damage to my hips in the past six months is noticable on x-rays. Yuck, and I may end up having hip replacement surgery. So, trying something brand new that may slow down future damage is okay with me. > > Hello friends just wondering if anybody has tryed this new drug, I start with my first infusion tommorow and I am kinda nervous about it. Any thing I should no?? Thanks so much ,, Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Marie, Just checking in with you. Did you have your infusion of Actemra yet? Have you noticed any improvement? I haven't noticed anything yet, at least not the same way I did on Enbrel. After the first shot of enbrel, I started to feel good. Apparently Actemra takes a while to build up in your system and start working. Anyway, wanted to know how you were doing. > > Marie, > > My appointment for my first infusion is next week, so we will be together in trying out this new med... So, trying something brand new that may slow down future damage is okay with me. > > > > > > Hello friends just wondering if anybody has tryed this new drug, I start with my first infusion tommorow and I am kinda nervous about it. Any thing I should no?? Thanks so much ,, Marie > > Quote Link to comment Share on other sites More sharing options...
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