Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hello a and Annette, you guys are just amazing, i don't know that i could have handle so much lost it such a short period, and the fact that you can keep going is such a credit to being a strong woman, I am very sorry for your lost, both of you,but proud to see you stand tall. YOU GO LADIES. Annette Barras wrote: Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hello a and Annette, you guys are just amazing, i don't know that i could have handle so much lost it such a short period, and the fact that you can keep going is such a credit to being a strong woman, I am very sorry for your lost, both of you,but proud to see you stand tall. YOU GO LADIES. Annette Barras wrote: Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Thanks, . I think everyone in our shoes just has to suck it up and keep on going. Be be brutally honest my kids are the only thing that got me through it. They didn't know they were, but had they not been my anchor for carrying on I would have either ended up in a mental institution or joining my sister. Now I am a local support person for surgery, motherhood, people grieving, etc. All my providers know that my phone number is free for them hand out. I do not claim to know all the answers, nor do I claim to be any type of therapist or doctor, I just lend an ear and help them get through it. Hello a and Annette, you guys are just amazing, i don't know that i could have handle so much lost it such a short period, and the fact that you can keep going is such a credit to being a strong woman, I am very sorry for your lost, both of you,but proud to see you stand tall. YOU GO LADIES. Annette Barras wrote: Wow, a. You've had a tough time. I am very sorry for your loss. Although no one can say they know how you feel, some of us do have similar incidents. I lost my future brother in law in 2003 to a car accident, as a result, I lost my sister to suicide in 2003. I lost my father to metastasis lung cancer in 2005. All the while, trying to keep myself healthy and maintain my weight. No one every truly know what curve balls god will throw at us. You're in my thoughts and prayers. a wrote: My God has it been like forever since I have been here..sorry to have went AWOL for soooo long but am sure you all will understand. My wonderful husband of only 5 short years was diagnosed with lung cancer back in April of past year went through chemo/radiation was very ill through it then seemed to get better for a coupld of months till a cancer cell broke loose and went to his brain..they detected over 12 brain tumors in Nov and we went through more radiation to shrink them. he was having sever headaches till they were shrunk. He then lived for 1 3/4 months after the last treatment. He wanted to be in Illinois when he passed and wanted to be buried there as well. He was borna nd raised a Mainer, but feel in love with Illinois..lol..us flatlanders grew one him. We moved back to Illinois and got moved into our new home after the 1st of the year. My loving hubby lost his battle on Jan 23, 2006 at 11;45pm. he is now with the Lord and a much better place. He is sadly missed by me and I will always hold him dear in my heart. I am plugging away at my weight loss..had wls/rny laporscopic 06/06/2005 in Augusta,Me. I have lost over 100# to date and have went froma tight 24 to a very loose fitting 13 jr..WOOHOO would never have thought I could get that size..lol.was a size 15.16 in high school and that was my goal. My goal weight was to be at least 1# lighter then my hubby which would have been 164 at his healthy weight! I do have some problems with foods. Meat in particular makes me sick to stomach. There are not too many foods I can eat that do not make me ill, but meat is the worse. I do ahve an appointment with a wls here I Illinois on March 30th and hope he can shed some light on what is causing the problem. The Doctor I will be seeing is a Dr Hammer..my new PCP here has recommended him and I pray he is good. It is hard to find a wls who will take you as a patient after another dr has preformed the wls, but I am blessed that he has said he will take me. I have had totally knee replacement surgery on left knee past Sept and it doesn;t seem to be doing so good either..will have to go see a orthopedic doc for that one after io get my wls problems taken care of. I am sure I am in need of taken more vitamins.mineral.iron,calcium. I have kind of let myself go while hubby was ill and I had him at home taking care of him. But now know it is time to take care of me! I will try to get here to the site more often and keep you undated on what is going on with me. I have added a couple of new pics in the photo area..1 of the newer me! In case anyone is interestd..lol..take a look at me before and now! I will close for now. And God Bless you all a/Illinois 300/168/164 We are a very active support group. If the email becomes overwhelming, please change your setting to NO EMAIL! Please contact Group Creator Robyn@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Well, I went to see the transplant team on March 18th, as many of you know from my previous posts, and my doc said they were going to list me. But, I found out today, that the " team " has voted against listing me yet. It is the weight issue. I still need to lose 30 more pounds. So now they suggested that I see the bariatric surgeon to discuss gastric bypass and/or lapband surgery. And, to their surprise, I refused. I will not undergo gastric bypass surgery to lose 30 pounds! It just isn't worth it for me. Surgery is too risky for us IPFers anyway. And, I am just too reluctant to undergo any kind of unnecessary surgery. If I can't lose the weight, then I suppose I will never get listed. That will be fine too. I will deal with whatever comes my way. I am going to go for another sleep study on Monday, April 7th and see where that leads me. I also got the results back from my MRI. I have arthritis in my neck - thus the pain. It doesn't explain the arm and leg numbness, but the neurologist couldn't explain it either. He told me to let him know if things worsen, but otherwise to just " deal with it " . I am back to pulmonary rehab next week too. I enjoy the exercise more than what I thought I would. And, another month has passed! I am looking forward to May to see everyone who will be able to be in San . And, I am looking forward to May because it will be the first month in the last 14 months that I don't have any scheduled doctor's appointments, tests, or any kind of medical appointment! And, our pool will go up in May. Yippee for warmer weather!!! God Bless, Tina IPF 04/07 PH 11/07 Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Dear Tina, I'm always keen to see posts from our 'younguns'....I'm sorry you've been taken off the Tx list for now.....you have great clarity about your difficult situation Tina. What depth is your pool going to be? I'm loving doing my 'modified' swimming exercise in my local pool. I find I can do a lot more in there than I can on dry land. I do walk as well but in the pool my arms can get sorely needed exercise. I do comfortably long strides while using a breast-stroke action with my arms. Then I do side-ways walking steps & move my arms through the water like a ballet exercise.....keeping my arms 'rounded' & move them sideways up & back through the water. It's great to feel the resistance of the water & to move agaimst that! There is another....you go back to the comfortably long strides & push your arms straight our in front of you with your hands 'splayed' open & your wrists bent upwards to make 'paddles'. These hand paddles provide the water resistance as you push out & then bring your arms back in to your chest.. I've seen advertisments of fancy foam devices to do this but hey why spend $$$$$ when your nody can do the same thing for NUTHIN'. Of course all this works best in a pool that ISN'T over gal's head! Cheers, in Oz >> Well, I went to see the transplant team on March 18th, as many of you > know from my previous posts, and my doc said they were going to list > me. But, I found out today, that the "team" has voted against > listing me yet. It is the weight issue. I still need to lose 30 > more pounds. So now they suggested that I see the bariatric surgeon > to discuss gastric bypass and/or lapband surgery. And, to their > surprise, I refused. I will not undergo gastric bypass surgery to > lose 30 pounds! It just isn't worth it for me. Surgery is too risky > for us IPFers anyway. And, I am just too reluctant to undergo any > kind of unnecessary surgery. If I can't lose the weight, then I > suppose I will never get listed. That will be fine too. I will deal > with whatever comes my way. I am going to go for another sleep study > on Monday, April 7th and see where that leads me. I also got the > results back from my MRI. I have arthritis in my neck - thus the > pain. It doesn't explain the arm and leg numbness, but the > neurologist couldn't explain it either. He told me to let him know > if things worsen, but otherwise to just "deal with it". I am back to > pulmonary rehab next week too. I enjoy the exercise more than what I > thought I would. And, another month has passed! I am looking > forward to May to see everyone who will be able to be in San > . And, I am looking forward to May because it will be the > first month in the last 14 months that I don't have any scheduled > doctor's appointments, tests, or any kind of medical appointment! > And, our pool will go up in May. Yippee for warmer weather!!!> > God Bless,> Tina> IPF 04/07 PH 11/07 Ohio> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Tina, You made the right decision. Good grief! I have lost 30 pounds 30 times. It can be done without surgery! Sometimes the transplant docs have tunnel vision. It will all work out for you in God's time. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> Well, I went to see the transplant team on March 18th, as many of you > know from my previous posts, and my doc said they were going to list > me. But, I found out today, that the "team" has voted against > listing me yet. It is the weight issue. I still need to lose 30 > more pounds. So now they suggested that I see the bariatric surgeon > to discuss gastric bypass and/or lapband surgery. And, to their > surprise, I refused. I will not undergo gastric bypass surgery to > lose 30 pounds! It just isn't worth it for me. Surgery is too risky > for us IPFers anyway. And, I am just too reluctant to undergo any > kind of unnecessary surgery. If I can't lose the weight, then I > suppose I will never get listed. That will be fine too. I will deal > with whatever comes my way. I am going to go for another sleep study > on Monday, April 7th and see where that leads me. I also got the > results back from my MRI. I have arthritis in my neck - thus the > pain. It doesn't explain the arm and leg numbness, but the > neurologist couldn't explain it either. He told me to let him know > if things worsen, but otherwise to just "deal with it". I am back to > pulmonary rehab next week too. I enjoy the exercise more than what I > thought I would. And, another month has passed! I am looking > forward to May to see everyone who will be able to be in San > . And, I am looking forward to May because it will be the > first month in the last 14 months that I don't have any scheduled > doctor's appointments, tests, or any kind of medical appointment! > And, our pool will go up in May. Yippee for warmer weather!!!> > God Bless,> Tina> IPF 04/07 PH 11/07 Ohio> Quote Link to comment Share on other sites More sharing options...
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