HEAT attack

August 17, 2010

Hi,

my name is jackie. I am an 45 year old american with MS who lives in

southern italy. This year we are having the strangest summer. some days

have been cool enough to wear a long sleeved shirt and nights, a

comforter on the bed. However, yesterday temperatures started rising.

100 degree during the day and 90 degree nights. Things are starting to

go haywire inside of me. Walking is harder and heavier but the real

problem is my head. I am feeling extremely anxious with the heat.

anxiety, for me, is connected to depression so i spent the day inside

feeling like crawling out of my skin. cool baths usually help with the

heat but this time, less so. i am also having more cognitive

difficulties. things subside in the evening with the darkness but days

are beyond miserable.

Does anyone have any special recipe on how to deal with the

heat related anxiety? heat in general?

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August 17, 2010

The vests already mentioned are probably the best way to go but I have never

tried them.

Your weather in southern Italy is probably similar to mine in northern Spain.

At night, I do have the luxury (?) of air conditioning but find my limbs hurt

just as much from cold as from heat. I use flannels (wash cloths) wrung out in

cold water and placed upon me during the night when I need to cool down.

During the day, I drape the same flannels around my neck, and always have cold

drinking water at hand. People have said it has been a hot summer but I haven't

noticed as I've swum through most of it. As soon as I cool down, whether it be

the swimming pool or cold showers, things improve.

One thing I did a few years ago, for some other MS reason, was to take apple

cider vinegar in water. At the same time I was taking Spirulina. For some

reason the heat intolerance largely disappeared. I have no idea why. Worth a

try.

Janet

To: mscured

From: kamaladevilove@...

Date: Tue, 17 Aug 2010 12:36:33 +0000

Subject: HEAT attack

temperatures started rising.

100 degree during the day and 90 degree nights. Things are starting to

go haywire inside of me.

August 17, 2010

The vests already mentioned are probably the best way to go but I have never

tried them.

Your weather in southern Italy is probably similar to mine in northern Spain.

At night, I do have the luxury (?) of air conditioning but find my limbs hurt

just as much from cold as from heat. I use flannels (wash cloths) wrung out in

cold water and placed upon me during the night when I need to cool down.

During the day, I drape the same flannels around my neck, and always have cold

drinking water at hand. People have said it has been a hot summer but I haven't

noticed as I've swum through most of it. As soon as I cool down, whether it be

the swimming pool or cold showers, things improve.

One thing I did a few years ago, for some other MS reason, was to take apple

cider vinegar in water. At the same time I was taking Spirulina. For some

reason the heat intolerance largely disappeared. I have no idea why. Worth a

try.

Janet

To: mscured

From: kamaladevilove@...

Date: Tue, 17 Aug 2010 12:36:33 +0000

Subject: HEAT attack

temperatures started rising.

100 degree during the day and 90 degree nights. Things are starting to

go haywire inside of me.

August 18, 2010

On Wed, Aug 18, 2010 at 2:56 AM, jackie herman wrote:

>

> thanks Janet for the suggestion about the vinegar. i will look into that

> one.

>

> i go to the sea when i am losing it. i feel the heat mostly in my head. it

> is like my brain switches off. i stretch out in the sea and imagine the

> salt water is healing me.

>

> where in no. spain do you live?

>

> --- Mar 17/8/10, Janet Orchard

<janetorchard@...<janetorchard%40hotmail.com>>

> ha scritto:

>

> Da: Janet Orchard <janetorchard@... <janetorchard%40hotmail.com>>

> Oggetto: RE: HEAT attack

> A: " MS-Cured " <mscured <mscured%40yahoogroups.com>>

> Data: Martedì 17 agosto 2010, 11:36

>

> I am sensitive to the humidity as well. Luckily I live in Ireland and the

> humidity here is fine usually a little bit during the summer months.

> . This year the weather was good and everyone kept saying isn't it great

> but I had to stay in the cool as much would allow. I stay indoors as much

> as I can and have the window open at night. I would swim and take cold

> showers and this helps.

>

> eimear

>

> Switch to:

Text-Only<mscured-traditional ?subject=Change+Delivery+Format:+Tr\

aditional>,

> Daily Digest<mscured-digest ?subject=Email+Delivery:+Digest>•

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> .

>

August 18, 2010

I live near Girona.

The apple cider vinegar AND spirulina at the same time might have prompted the

loss of heat intolerance, I have no idea why it went and don't take the vinegar

anymore but it has never returned.

How wonderful to go to the sea. That is something I really miss. Wheelchair

tires won't work on sand and the special beach wheelchairs cost far too much.

One day!

Janet

To: mscured

From: kamaladevilove@...

Date: Wed, 18 Aug 2010 01:56:30 +0000

Subject: RE: HEAT attack

thanks Janet for the suggestion about the vinegar.

where in no. spain do you live?

August 18, 2010

hey again. it is amazing that the heat intolerance never came back. MS is such a

mysterious illness.

if you dont mind me asking...are you an american abroad or spanish? or something

else?

--- Mer 18/8/10, Janet Orchard ha scritto:

Da: Janet Orchard

Oggetto: RE: HEAT attack

A: " MS-Cured " <mscured >

Data: MercoledÃ¬ 18 agosto 2010, 03:12

Â

I live near Girona.

The apple cider vinegar AND spirulina at the same time might have prompted the

loss of heat intolerance, I have no idea why it went and don't take the vinegar

anymore but it has never returned.

How wonderful to go to the sea. That is something I really miss. Wheelchair

tires won't work on sand and the special beach wheelchairs cost far too much.

One day!

Janet

To: mscured

From: kamaladevilove@...

Date: Wed, 18 Aug 2010 01:56:30 +0000

Subject: RE: HEAT attack

thanks Janet for the suggestion about the vinegar.

where in no. spain do you live?

August 18, 2010

hey again. it is amazing that the heat intolerance never came back. MS is such a

mysterious illness.

if you dont mind me asking...are you an american abroad or spanish? or something

else?

--- Mer 18/8/10, Janet Orchard ha scritto:

Da: Janet Orchard

Oggetto: RE: HEAT attack

A: " MS-Cured " <mscured >

Data: MercoledÃ¬ 18 agosto 2010, 03:12

Â

I live near Girona.

The apple cider vinegar AND spirulina at the same time might have prompted the

loss of heat intolerance, I have no idea why it went and don't take the vinegar

anymore but it has never returned.

How wonderful to go to the sea. That is something I really miss. Wheelchair

tires won't work on sand and the special beach wheelchairs cost far too much.

One day!

Janet

To: mscured

From: kamaladevilove@...

Date: Wed, 18 Aug 2010 01:56:30 +0000

Subject: RE: HEAT attack

thanks Janet for the suggestion about the vinegar.

where in no. spain do you live?

September 1, 2010

I HAVE NEVER WRITTEN MY STORY OF MS AND HOW IT CHANGED MY LIFE, BUT I THOUGHT

IT WAS ABOUT TIME. I AM NOT SURE WHERE TO BEGIN BUT AT THE BEGINNING.

My husband had just retired after twenty years in the navy.We were in

california, my children and I had been born there, but we were moving to Kansas

and it was a stressful time. I only add this as I know stress has a lot to do

with this. It was a long trip, and I did not want to go

but I was determined to try, and kept up a good front. My husband had been

overseas in Vietnam and had come home a different man that I had married.

After we arrived, I managed to get a god job working for the State of Kansas,

I had put the children in school, we had bought land and a home and started life

over. My husband, Chuck, and his brother started a business. For awhile it

seemed all would go well. Until the symptons began.

I awoke one morning, totally numb on ones ide of my body. I almost fell when I

got up, and so I called my Dr.' You are too young for a stroke' he said'I think

it is nerves and depression', and he wrote a prescription for valium and an

antideppresant and I just looked at hime and did't know what to think. I began

to take the pills, and years later regretted it. But after a few days rest the

numbness went away and I returned to work, just thinking it was nerves. Shortly

later my feet would begin to b urn, my legs would go heavy, and i would have

tingling in my hands. I ignored it and kept working.

Things at home were not good, and just to save time I will say, I took my

children back to California and sought a divorce. Ignoring the symptoms. I found

a job at a communication company and began to work on a switchboard.

My right hand had become numb, and it was hard to operate a switchboard. I had a

job as a switchboard operator and had worked my way up to supervisor. And so I

went to a neurologist who diagnosed it as carpul tunnel syndrome, and did

surgerey. It was painful, and I lost the use of my hand. Looking back now, I

realize it was not necessary. While I was in the hospital another Dr. saw me,

and did a spinal tap. MRI " S were not available then. The results were abnormal.

I kept working, until one day I had a sharp pain in my eye, and lost some

vision. I could no longer ignore this, and I knew it. I had to be driven home

that day as I could not see to drive.

By that time, I had relocated to San Diego, calif. and had remarried and until

that day did the best I could to live a normal life. My new husband, Norman,

took me the best neuoroligist in the city. He did a lot of painful tests, and

one day called me into his office, and I will never forget the words he used at

the diagnosis that would change my life. Dr Raffer said to me, 'I have good

news and I have bad news, the good news is that you do not need any more tests,

he looked directly at me and said you have multiple sclerosis.''

He gave me a book to read, and when I did I knew, It had taken ten years to

diagnose this, the MRIS were available and there was no doubt.

As the years went on I had paralysis as well. But then went oon to voc rehab

and went on to college determined to go one. Ms would go completly away and I

would go into remissiion after the use of IV steriods. It kept me going, until

due to bone loss and fractured they could no longer use them.

To make a long story short, I am now out of the wheelcahair and In a nursing

home in Iowa. My vision returned, and I walk wiith a walker, I am a free lance

writer who wanted to share my story,

Thank you,

Becky worth

________________________________

To: mscured

Sent: Tue, August 17, 2010 9:11:17 AM

Subject: Re: HEAT attack

I have heard cooling vest work well. I ordered on and am waiting for it to come

in. I live in Texas and we have had about 3 weeks of temps over 100 with no

break. I have to stay inside and keep wet towels on my neck and back to keep

cool even inside. The heat is affecting every aspect of my life right now. I

hope you get better.

Subject: HEAT attack

To: mscured

Date: Tuesday, August 17, 2010, 7:36 AM