Re: Re: Shoo Flu, dont bother me!!!

[Guest guest]

Hi OKD.  Thank you for your very kind words.  Pain to me makes me crazy.  It

is so damn wearing.  When we have it 24/7 with no end in sight, it is hard to

bear.  I tell you, when my feet and ankles are painful, so painful I can't bear

to stand on them, I just want to hang myself.  Pain is so debilitating, both

physically and mentally.  I have several kinds of RX pain meds, and when things

are really bad, the only thing that does help, is when my Rheumy ups my Pred.

dose.  I was on 5mg. a day, and now I take 10mg. daily.  When I was in

outrageous pain, I have taken as much as 60mgs. a day, then began to taper the

dose.  I find when I am in a bad flare, the pain meds. do not work well.  I

have been lucky that Pred. works so well for me.  I plan on taking it daily for

the rest of my life..  My blood work has always been great, and my liver test

has always been perfect.  The only side effect of Pred. I had, was

cateract's.  Not like the kind

many elderly people get.  My Opthamologist removed them and my eyes are

perfect.  I have 20/15 vision in both eyes.  I wore glasses since the age of

14 for distance, now no need for them.  I buy over the counter reading glasses

which work great.  The eye surgery takes less then a minute to do.  I had them

done 1 week apart.  I am so glad I had them done.

 

I know just what you are going through with all that pain and suffering.  All I

can say is, rest as much as possible, and really take it easy on your hands. 

My Rheumy insists I rest each day, even if I don't sleep.  Our bodies are busy

fighting this ugly disease, 24/7.  No wonder we hurt so much and are so tired.

 

Since getting RA, I had to restructure my life and my goals.  When I get up

each morning, I mentally make a plan for the day of what I can do and I try to

accomplish it.  If I don't get it all done, I will do it the next day.  If my

feet are horrible, I stay in bed, watch t.v. and read.  I don;t have much

choice when I am feeling like that.  I do try to be positive, and am just

grateful to open my eyes each day.  I really had to work hard to pace myself. 

Not easy for me to do.

 

I hope when you read this, that you know I am thinking about you, and I so want

you to be out of all that pain.  I think when you are finally back to all your

meds., they will begin to work well for you.  I can suggest that if this pain

continues to be so intense, I would call your Rheumy and see about stronger

doses of Pred. to see if you can at least get your pain under control.  That

sure helps me.

 

Take care, and I am wishing you many pain free days ahead.  I care.

 

Hugs,

 

Barbara

From: OKD <Cofade_2000@...>

Subject: [ ] Re: Shoo Flu, dont bother me!!!

Date: Friday, May 7, 2010, 10:07 AM

 

Barbara:

Thanks so much, you are such a soothing writer, your words always make me feel

better.

So much pain today, both shoulders, hands, one side of my jaw, the damn stiffies

came back too, I am on my second week back of meds and I know it will take a

while to build back up in my system. It took me 6 months to get my RA under

control, so imagine.

I am taking OPANA now for the pain, 10 mgs in the morning, 40 at night and still

it hurts. Dont want to take anymore, because its strong to begin with, so I use

my flector patches, hot/cold, rest, whatever works at the moment.

I just keep pushing myself, because I have to overcome this discomfort.

OKD