rant

May 6, 2010

I feel like I live life in nothing but pain, when is it my turn to stop

suffering. When will I find the right medication to manage through this

horrific desease that riddles my body full of pain. There isn't enough tramadol

and percocet in this world to get rid of it. The remicade which I hope would

work seems to be failing just like all the other meds I have been on over the

years.

Day after day I try to live my life and the pain is there no matter what I do.

I work as much as I can and feel like the more I work the more pain I am in.

This time around its my hands and wrists. The only way I could type this was

with the aid of my wrist braces that I have to wear sometimes to give them a

break from the day in and day out pain that I live in them.

I have had a bad day. My neighbors are stupid, the boy next door decided to

heat some grease up to cook chicken nuggets and caught the damn house on fire.

The people I live with who I thought were suppose to be my family forgot about

getting me out. I was asleep in my room in the basement. kinda messed up

isn't. The only thing he could say to me was, oh I thought you were at work.

My truck was sitting right there in front of the house, how the heck could he

miss it. On my way to get my daughter from school today, I saw a tanker truck

crush an suv on the drivers side. The driver instantly died, I travel that

stretch of road daily and it scared me. Then later on this evening I saw a car

run over a motorcycle and the driver thrown into the middle of the highway where

a tractor trailer ran him over. so yeah bad day today really bad day.

May 6, 2010

((((JENNIFER))) Your day sucked. Plain and simple. I hope tomorrow (today) is a

better day.

have you tried Prednisone at all to see if it helps reduce inflammation?

Kami

[ ] rant

I feel like I live life in nothing but pain, when is it my turn to stop

suffering. When will I find the right medication to manage through this horrific

desease that riddles my body full of pain. There isn't enough tramadol and

percocet in this world to get rid of it. The remicade which I hope would work

seems to be failing just like all the other meds I have been on over the years.

Day after day I try to live my life and the pain is there no matter what I do.

I work as much as I can and feel like the more I work the more pain I am in.

This time around its my hands and wrists. The only way I could type this was

with the aid of my wrist braces that I have to wear sometimes to give them a

break from the day in and day out pain that I live in them.

I have had a bad day. My neighbors are stupid, the boy next door decided to

heat some grease up to cook chicken nuggets and caught the damn house on fire.

The people I live with who I thought were suppose to be my family forgot about

getting me out. I was asleep in my room in the basement. kinda messed up isn't.

The only thing he could say to me was, oh I thought you were at work. My truck

was sitting right there in front of the house, how the heck could he miss it. On

my way to get my daughter from school today, I saw a tanker truck crush an suv

on the drivers side. The driver instantly died, I travel that stretch of road

daily and it scared me. Then later on this evening I saw a car run over a

motorcycle and the driver thrown into the middle of the highway where a tractor

trailer ran him over. so yeah bad day today really bad day.

May 6, 2010

I haven't tried prednisone yet and I do have some here but take it with a grain

of salt. Don't like what it does to me. I end up eating everything everytime I

go on it. I usually go through this the week after an infusion. I recently

switched infusion treatments from orencia which failed at 6 months to remicade.

I am going to give it its 6 month march to see if it works. been on it since

the end of march and just had my 3rd infusion about a week ago and i'm just very

fustrated and stressed with everything.

in maryland