2 questions

[Guest guest]

My dd is 3.5 and she can not pedal a tricycle. That is interesting,

I just thought it was my dd. She is having the most difficult time

with potty training as well. Our neuro told us that she has motor

incoordination due to Apraxia.

>

> Hi all

>

> I know someone said here recently that the liquid fish oils should

be

> refrigerated, but what about the capsules? I have ProEFA and ProEPA

> capsules and I keep them in the cupboard. Is that okay? My daughter

> didn't like them as much, when they were refrigerated and it

doesn't say

> you need to on the bottles.

>

> Also, does anyone have some good advice for how to help apraxic

kids

> learn to ride a bike? My daughter is 4.6 and we just got her a

bike with

> training wheels. She was never able to ride a tricycle, she can't

figure

> out how to pedal. Any advice would be appreciated? She loves her

new

> bike, but feels such frustration at not being able to ride.

>

> Thanks,

> Becky

>

[Guest guest]

This is a really random reply to the second question, but here goes:

My son's SLP was walking in the park and overheard two ladies

talking about one of the lady's apraxic sons. This lady was from

California. Anyway, my son's SLP started to eavesdrop a bit

(because they were talking about apraxia) and the lady with the

apraxic son was confiding to her friend how much trouble they had

teaching her son, who was 10, to ride a bike. She ended up calling

his OT from when he was little and asking if she could just come

work with him for a day or two to teach him how. I'm sorry to say I

don't know how this turned out, but it sounds like a good idea, so I

thought I'd pass it along.

As for fish oils, I don't think under normal conditions you need to

refrigerate the capsules since the oil does not get exposed to air

(because it's encapsulated). However, if you don't have central air

conditioning and your house gets very hot, you may want to because I

think the heat is bad for the oil (it's really bad for most oils;

they go rancid). I figure since the liquid kind gets refrigerated

the cold won't hurt it.

>

> Hi all

>

> I know someone said here recently that the liquid fish oils should

be

> refrigerated, but what about the capsules? I have ProEFA and ProEPA

> capsules and I keep them in the cupboard. Is that okay? My daughter

> didn't like them as much, when they were refrigerated and it

doesn't say

> you need to on the bottles.

>

> Also, does anyone have some good advice for how to help apraxic

kids

> learn to ride a bike? My daughter is 4.6 and we just got her a

bike with

> training wheels. She was never able to ride a tricycle, she can't

figure

> out how to pedal. Any advice would be appreciated? She loves her

new

> bike, but feels such frustration at not being able to ride.

>

> Thanks,

> Becky

>

[Guest guest]

Hi,

My globally dyspraxic DS couldn't ride a trike at 4. Then my OT had me put

his feet on the pedals (velcro him if needed) and pulled him around so his legs

will learn the movement of the pedals. I pulled him almost daily from the

living room to the family room back and forth for nearly five months before he

started to pedal himself. Now he can do a short run but still has difficulty

going backwards--another set of leg movements to learn. Typical of motor

planning difficulties.

Take care,

__________________________________________________

[Guest guest]

My son will be 7 years old in August. He still can't ride a bike.

He gets around this by walking his bike! He will spend an hour just

walking with his bike around the yard.

We sort of got around this by buying him a scooter. He can do the

one leg push with no problem. This came in handy when our school had

a bike-a-thon. At least he was able to ride something!

As for toilet training....He was 5 1/2 yrs old. Boy, I thought I'd

never see the end of diapers:). One day I was in a bad mood, and

when he asked me about santa I said that Santa prefers when boys go

on the potty. That night he was trained and hasn't had a pull-up

since!

Regards

Sandy

> >

> > Hi all

> >

> > I know someone said here recently that the liquid fish oils

should

> be

> > refrigerated, but what about the capsules? I have ProEFA and

ProEPA

> > capsules and I keep them in the cupboard. Is that okay? My

daughter

> > didn't like them as much, when they were refrigerated and it

> doesn't say

> > you need to on the bottles.

> >

> > Also, does anyone have some good advice for how to help apraxic

> kids

> > learn to ride a bike? My daughter is 4.6 and we just got her a

> bike with

> > training wheels. She was never able to ride a tricycle, she

can't

> figure

> > out how to pedal. Any advice would be appreciated? She loves her

> new

> > bike, but feels such frustration at not being able to ride.

> >

> > Thanks,

> > Becky

> >

>Hi Becky

[Guest guest]

I love it!!! I think I mentioned once on this site how we had tried

everything and nothing really worked until I said " you made the mess, now

you clean it up " he understood that perfectly and never pooped in his pants

again. he didn't have apraxia though, so this may not apply to some little

tykes.. He was somewhere around 4 when this all happened, he is 28 now..My 8

year old daughter on the other hand had a much more difficult time and was 6

when she no longer had messes. She was in an orphange and unable to walk

til 3.5 so was very delayed but she remembers having to be in stinky diapers

when she was in the crib. But I am sure the apraxia was part of her issue

and delay.

's Mom

_____

From:

[mailto: ] On Behalf Of sandy lehmann

Sent: Tuesday, June 06, 2006 12:44 PM

Subject: [ ] Re: 2 questions

My son will be 7 years old in August. He still can't ride a bike.

He gets around this by walking his bike! He will spend an hour just

walking with his bike around the yard.

We sort of got around this by buying him a scooter. He can do the

one leg push with no problem. This came in handy when our school had

a bike-a-thon. At least he was able to ride something!

As for toilet training....He was 5 1/2 yrs old. Boy, I thought I'd

never see the end of diapers:). One day I was in a bad mood, and

when he asked me about santa I said that Santa prefers when boys go

on the potty. That night he was trained and hasn't had a pull-up

since!

Regards

Sandy

[Guest guest]

I haven't seen any responses on your questions so will tell you has

been going to PT and they include a bike for her exercise that has a small

set of pedal like things for the handlebars while she is pedaling with her

feet. The PT helps with reminding her when her body is off center and

teaches her to shift herself for balance. My daughter is 8 and wants to

learn but just didn't have the motor planning down to help find her center

of gravity. we also had gotten her a new bike for Christmas, it had training

wheels but they didn't keep her from falling over as she didn't catch her

balance so we installed a bar that comes out about 2 to 3 foot from her seat

that my husband found on the web. It helps my back as I walk along with her

(I don't have to bend over and hold the seat) but it is not the cure in fact

we haven't used it much in the last 2 or 3 months rather we have had lots of

luck with roller skates..will try the bike again later.

My daughter takes the fish oils well..chews them up and gives the shells to

our daschund who thinks they are treats..We don't refrigerate them.

Good luck!!! it takes lots of patience and no quick fixes..A funny story to

share..I was interviewing an OT about my daughters inability to throw and

release a baseball for (T-ball) . Any way the OT said " have her throw ice

cubes " of course I went home all excited and poor just ended up with

cold water dripping down her arm... The neurologist said he had heard of the

problem but that he knew of no cure but practice and he was right..Now 80

percent of the time she is throwing with great accuracy and releasing the

ball and we continue to practice.

Roxanne

_____

From:

[mailto: ] On Behalf Of Mcfarland, Becky

Sent: Monday, June 05, 2006 10:56 AM

Subject: [ ] 2 questions

Hi all

I know someone said here recently that the liquid fish oils should be

refrigerated, but what about the capsules? I have ProEFA and ProEPA

capsules and I keep them in the cupboard. Is that okay? My daughter

didn't like them as much, when they were refrigerated and it doesn't say

you need to on the bottles.

Also, does anyone have some good advice for how to help apraxic kids

learn to ride a bike? My daughter is 4.6 and we just got her a bike with

training wheels. She was never able to ride a tricycle, she can't figure

out how to pedal. Any advice would be appreciated? She loves her new

bike, but feels such frustration at not being able to ride.

Thanks,

Becky

[Guest guest]

Hi, was just wondering from some of you who have had RA for a while do you see

your Rheumatologist or the ortho when you have a really bad joint problem? my

RA has been flaring bad for around 2 or 3 months but its usually in my knees and

hands. my left shoulder feels like it has glass in it and hurts all the way to

my hand. It doesnt really feel like the usual RA pain but was trying to decide

which one to go see. I need to see the RA anyways soon to get back on some meds.

the other question is, I was on Methotrexate before and used to get really bad

heartburn from it. My doc said he would probably try Enbrel next time if I

flared up again which I have. I know everyones different but anyone have major

side effects from Enbrel??

Thanks

Kim

[Guest guest]

Hi Kim -

The best thing for your joint issues is to have your RA doc see you first. If an

ortho is needed, your RA doc will let U know. I'm not a good person to ask about

Enbrel but I believe there are several people in the group that have had good

results!

Best to you -

in SC

Sent from my iPhone

On Jan 21, 2010, at 7:31 PM, " lankfordlk " <lankfordlk@...> wrote:

Hi, was just wondering from some of you who have had RA for a while do you see

your Rheumatologist or the ortho when you have a really bad joint problem? my RA

has been flaring bad for around 2 or 3 months but its usually in my knees and

hands. my left shoulder feels like it has glass in it and hurts all the way to

my hand. It doesnt really feel like the usual RA pain but was trying to decide

which one to go see. I need to see the RA anyways soon to get back on some meds.

the other question is, I was on Methotrexate before and used to get really bad

heartburn from it. My doc said he would probably try Enbrel next time if I

flared up again which I have. I know everyones different but anyone have major

side effects from Enbrel??

Thanks

Kim

[Guest guest]

Kim, I've been on Enbrel for over 5 years, with no adverse side

effects. It works wonderfully well for me.

Sue

On Jan 21, 2010, at 7:31 PM, lankfordlk wrote:

> Hi, was just wondering from some of you who have had RA for a while

> do you see your Rheumatologist or the ortho when you have a really

> bad joint problem? my RA has been flaring bad for around 2 or 3

> months but its usually in my knees and hands. my left shoulder

> feels like it has glass in it and hurts all the way to my hand. It

> doesnt really feel like the usual RA pain but was trying to decide

> which one to go see. I need to see the RA anyways soon to get back

> on some meds. the other question is, I was on Methotrexate before

> and used to get really bad heartburn from it. My doc said he would

> probably try Enbrel next time if I flared up again which I have. I

> know everyones different but anyone have major side effects from

> Enbrel??

>

> Thanks

> Kim