Re: Kathy re rituxan

[Guest guest]

Hi Joyce - If you don't mind, I wanted to " chime " into your question about

Rituxan - I have had 2 infusions - and I love it!  Although so many of the other

drugs helped me, the side effects were horrible until I started Rituxan. Now I

am unable to take MTX so I take it alone. I only have to have prednisone and

allergy meds a few days prior to infusion then that's it. I have been extremely

fortunate in that I don't have any problems with it AT ALL and at least for me,

the benefits last for almost a year (not the standard 6 mths).  I have read that

some people feel a little sluggish or so the day after but I have not even

experienced that.

Good luck!!!

in SC

ltdavis_jrdavis@...

From: JOYCE M <joyce21248@...>

Subject: [ ] Kathy re rituxan

Date: Thursday, July 2, 2009, 10:17 AM

Hi Kathy

How long have you been having the Rituxan infusions.

?I am to start having them next week and was wondering how good they are

Joyce mdn

Kathy

I drink 1 ml of methyltrexate, I get Rituxin infusions and then there is the

usual.... planqunile, folic acid, Bayer low dose, clonadine (for high blood

pressure caused by all the meds) and my faviorite weight gaining

friend---Steroids. ..

For the pain I try to just take Tylenol arthritis, but when days are hard I take

Demoral.?? Lately the weather has really stunk, so I've been taking alot of

Demoral which often scares me due to the addictive nature of pain pills.

I hope you feel better soon.. Gentle hugs and a prayer sent your way.

Bonnie

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[Guest guest]

Joyce,

I just got done my 6mth infusion... Unfortunately I had a bad reaction this

past time that was horrible... However, my infusion nurse assured me that this

is unusual. My very first infusion went really well, the only reaction I had

was that the next day I was so tired I could barely function. So far, my

infusions only last about 4months and my doc will only let me have them every 6

months... But during those 4 months, I actually start to feel 85% better then

I have been with any of the other drugs... I have heard of great results with

Rituxin and feel even the bad reaction I just had, is worth it to feel good for

four months... I'm told the more infusions I get, that they may begin to last

longer then the four months... I hope thats right! Please let me know how it

goes... If you don't mind me asking, what is your actual diagnosis? Do you

have strait RA or a combination of things?

Gentle hugs and well wishes!

Bonnie

>

>

> From: JOYCE M <joyce21248@...>

> Subject: [ ] Kathy re rituxan

>

> Date: Thursday, July 2, 2009, 10:17 AM

>

>

>

>

>

>

>

>

> Hi Kathy

> How long have you been having the Rituxan infusions.

> ?I am to start having them next week and was wondering how good they are

> Joyce mdn

>

> Kathy

> I drink 1 ml of methyltrexate, I get Rituxin infusions and then there is the

> usual.... planqunile, folic acid, Bayer low dose, clonadine (for high blood

> pressure caused by all the meds) and my faviorite weight gaining

> friend---Steroids. ..

> For the pain I try to just take Tylenol arthritis, but when days are hard I

take

> Demoral.?? Lately the weather has really stunk, so I've been taking alot of

> Demoral which often scares me due to the addictive nature of pain pills.

> I hope you feel better soon.. Gentle hugs and a prayer sent your way.

> Bonnie

>

> ____________ _________ _________ _________ _________ _________ _

> AOL Email goes Mobile! You can now read your AOL Emails whilst on the move.

Sign up for a free AOL Email account with unlimited storage today.

>

>