study group

[Guest guest]

Dear ,

You have a great teacher! You are very lucky!

You are NOW able to send messages to the group. I expect you will have many!

See you on post....

Jeanetta Mastron CPhT BS

Pharm Tech Educator

F/O

and Balthis <b.otter@...> wrote:

Jeanetta,

I wanted to be able to send messages to everyone in the group. I am

currently one of Jule Barta's students at SJVC and I will be taking the PTCE

in November. Thank you.

Balthis

---

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[Guest guest]

On Dec 20, 11:52am, " ivy " wrote:

} I suspect that my child has a mild case of Aspergers since he does not alwa=

} ys respond to=20

} his name and does not always follow my command, and has not spoken a word, =

} and if he=20

} does say a coherent word, it would be out of context, but he does babble a =

} lot. I have=20

} read the warnings and some traits seem to be present with my 21 month old c=

} hild.

Your very first step would probably be a hearing test. Having a hearing

impairment could account for all of those symptoms.

} My concerns are these:

} 1. New findings suggest that this neurologial disorder may be genetic. My=

} husband=20

} agrees that he is somehow socially isolated, that he sometimes tunes people=

} out, and he=20

} gets unreasonably frustrated. But he excelled in academics; he went to Calt=

} ech and got a=20

} PhD in UCBerkely. He feels that his traits have been passed on to our son, =

} however, he=20

} does not feel that it is an impediment since he believes that his father ha=

} s passed on these=20

} traits to him( his father is also very succesful). My question is: Is ther=

} e a study group=20

} where diagnosed Aspergers toddlers did not get treatment and how did they =

} do as adults?

Oh man, your husband sounds so much like my husband, in terms of attitude.

Even at our son's evaluation at Stanford, he was talking about his friend

who won't eat square cookies but is otherwise just fine...

You will almost never find the label Aspergers given to a toddler. Even

getting an autism diagnosis at that age is fairly rare. Which doesn't

really answer your question. It is generally believed that early

intervention helps kids with autism, but I don't know of any specific

studies, no.

} 2. This disorder has gotten me worried and am in the process of having my =

} son tested. If=20

} my son gets diagnosed as such, can this label be removed once the communica=

} tion and=20

} social impediment get fixed? Can they be considered normal again?

If your child does have some form of autism, thinking in terms of

" getting fixed " is not going to help you in the long-run. Our

children can be helped, they can't usually be " fixed. " How much

of " the label " will ever be given or will remain would be largely

up to you and your child. There is no big database of autistic

kids out there and no one will staple an A to his chest. ;-)

} 3. My husband is a big believer in self-identity and that you define who y=

} ou are as a=20

} person. I fell in love with him just because of that. How will the tests =

} change my son?

At this age, not at all. How you and your husband respond to the result

might, of course.

My best suggestion for you and your husband would be to read some

of the writing by people with Aspergers. They would help show you

how identity forms for them and what the " label " means to them. Many

" Aspies " are very proud of who they are and wouldn't change it. There

are some excellent books now (one I liked is called something like

Songs from a Gorilla Nation) and also lots of web sites. Try

wrongplanet.net for a lot of links to blogs and articles and so on.

Hope this helps,

Willa

[Guest guest]

<<You will almost never find the label Aspergers given to a toddler. Evengetting an autism diagnosis at that age is fairly rare. Which doesn'treally answer your question. It is generally believed that earlyintervention helps kids with autism, but I don't know of any specificstudies, no.>>

This is not so. Many many kids with autism are dx'd as toddlers. Kids with AS are generally dx'd later but I have seen a trend on this list where we are getting people who have kids that are much younger and are dx'd with AS. These are kids who are 2 - 4 yo. There are probably countless studies showing the benefits of early intervention. For kids with autism, look up Lovaas and ABA. You can also google early intervention studies.

RoxannaAutism Happens

Re: ( ) study group

On Dec 20, 11:52am, "ivy" wrote:} I suspect that my child has a mild case of Aspergers since he does not alwa=} ys respond to=20} his name and does not always follow my command, and has not spoken a word, =} and if he=20} does say a coherent word, it would be out of context, but he does babble a =} lot. I have=20} read the warnings and some traits seem to be present with my 21 month old c=} hild.Your very first step would probably be a hearing test. Having a hearingimpairment could account for all of those symptoms.} My concerns are these:} 1. New findings suggest that this neurologial disorder may be genetic. My=} husband=20} agrees that he is somehow socially isolated, that he sometimes tunes people=} out, and he=20} gets unreasonably frustrated. But he excelled in academics; he went to Calt=} ech and got a=20} PhD in UCBerkely. He feels that his traits have been passed on to our son, =} however, he=20} does not feel that it is an impediment since he believes that his father ha=} s passed on these=20} traits to him( his father is also very succesful). My question is: Is ther=} e a study group=20} where diagnosed Aspergers toddlers did not get treatment and how did they =} do as adults?Oh man, your husband sounds so much like my husband, in terms of attitude.Even at our son's evaluation at Stanford, he was talking about his friendwho won't eat square cookies but is otherwise just fine...You will almost never find the label Aspergers given to a toddler. Evengetting an autism diagnosis at that age is fairly rare. Which doesn'treally answer your question. It is generally believed that earlyintervention helps kids with autism, but I don't know of any specificstudies, no.} 2. This disorder has gotten me worried and am in the process of having my =} son tested. If=20} my son gets diagnosed as such, can this label be removed once the communica=} tion and=20} social impediment get fixed? Can they be considered normal again?If your child does have some form of autism, thinking in terms of"getting fixed" is not going to help you in the long-run. Ourchildren can be helped, they can't usually be "fixed." How muchof "the label" will ever be given or will remain would be largelyup to you and your child. There is no big database of autistickids out there and no one will staple an A to his chest. ;-)} 3. My husband is a big believer in self-identity and that you define who y=} ou are as a=20} person. I fell in love with him just because of that. How will the tests =} change my son?At this age, not at all. How you and your husband respond to the resultmight, of course.My best suggestion for you and your husband would be to read someof the writing by people with Aspergers. They would help show youhow identity forms for them and what the "label" means to them. Many"Aspies" are very proud of who they are and wouldn't change it. Thereare some excellent books now (one I liked is called something likeSongs from a Gorilla Nation) and also lots of web sites. Trywrongplanet.net for a lot of links to blogs and articles and so on.Hope this helps,Willa

[Guest guest]

On Dec 21, 6:00am, " Roxanna " wrote:

} <<You will almost never find the label Aspergers given to a toddler. Even

} getting an autism diagnosis at that age is fairly rare. Which doesn't

} really answer your question. It is generally believed that early

} intervention helps kids with autism, but I don't know of any specific

} studies, no.>>

}

} This is not so. Many many kids with autism are dx'd as toddlers. Kids wit=

} h AS are generally dx'd later but I have seen a trend on this list where we=

} are getting people who have kids that are much younger and are dx'd with =

} AS. These are kids who are 2 - 4 yo. There are probably countless studies=

} showing the benefits of early intervention. For kids with autism, look up=

} Lovaas and ABA. You can also google early intervention studies.

Perhaps my information is a little out of date. When Bam was diagnosed

before age 3, that appeared to be unusual. I heard from many people

that no one was willing to give a diagnosis before age 3, or even higher.

Willa

[Guest guest]

My dd was DX at 32 months with AS

- C.A.E.P.Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID

Re: ( ) study group

On Dec 21, 6:00am, "Roxanna" wrote:} <<You will almost never find the label Aspergers given to a toddler. Even} getting an autism diagnosis at that age is fairly rare. Which doesn't} really answer your question. It is generally believed that early} intervention helps kids with autism, but I don't know of any specific} studies, no.>>} } This is not so. Many many kids with autism are dx'd as toddlers. Kids wit=} h AS are generally dx'd later but I have seen a trend on this list where we=} are getting people who have kids that are much younger and are dx'd with =} AS. These are kids who are 2 - 4 yo. There are probably countless studies=} showing the benefits of early intervention. For kids with autism, look up=} Lovaas and ABA. You can also google early intervention studies.Perhaps my information is a little out of date. When Bam was diagnosedbefore age 3, that appeared to be unusual. I heard from many peoplethat no one was willing to give a diagnosis before age 3, or even higher.Willa

[Guest guest]

Has anyone done a study group for TCZ - tocilizumab? How did it go?

results? How did it work into your work schedule?

Would love to hear stories,if any.

Thanks, Darlene

[Guest guest]

Hi Darlene - I participated in a study group for TCZ. Unfortunately, the group

that was running the study was very disorganized and caused me a LOT of undue

stress, so I quit the study after three months of infusions. I wasn't feeling

any better, so I don't know if I was getting a placebo or the real deal. I

haven't been able to work for a long time, so a work schedule was not a worry

for me. I was there for at least 2-3 hours each time, though. They drew blood

each time, did a SED rate, the infusion took about an hour and then I had to

wait about 20 mins or so afterwards so they could recheck my BP.

Hope this helps to answer some of your questions.....Doreen

>

> Has anyone done a study group for TCZ - tocilizumab? How did it go?

> results? How did it work into your work schedule?

> Would love to hear stories,if any.

> Thanks, Darlene

>