psoratic RA, or just psoriasis.

[Guest guest]

............BARBARA..PAULA...TAWNY..CHERYL N OREGON...CARLA...........

.....BARBARA;...So sorry to hear your little girl has this skin problems. I know

how she feels. Not only is it imbarrassing to have, it causes great discomfort.

My biggest problem with psyorisis is not picking it or scratching the affected

area. It is real hard to walk on if I pull the loose dead skin off, it leaves a

sore like a paper cut.

PAULA....YOU ARE SO RIGHT PAULA, the enbrel does help it. If I can just leave it

alone to heal, it would heal. Picking, scratching it seems to prolong the

soreness.

TAWNY...So sorry to hear hubby has to deal with psoriasis. I couldnt spell

psoriasis so I copied your spelling of it and pasted it here. haaaaaaaaa. I am

so good sometimes lol. I already asked my rheumy about RA affiliated with

psoriasis. She said no, but what does she know she only went to school and

training for about 14 years lol.

Cheryle n Oregon.......See I thought for sure it had to do with RA. My rheumy

said the enbrel will clear it up. She said the plaquenil caused the eruptions

cause I had the normal psoriasis or ecxema.(one of them). I thought for sure

there was a psoratic RA. Cheryle do you know what the difference of psoratic ra

and reg psorisis is? Just curious.

CARLA... Hi good to have ya in the group. I don't post very often, but I do like

to read what is going on in our lives with RA. When I first joined the group, I

asked the same question about flare ups. Now being here a year I know what it

means. I have flare ups that make me cry sometimes. I think what they mean by a

flare up is when the normal everyday pain from RA has sky rockeded.

My rheumy has got my pain level down to a tolerable level, meaning I still have

pain but I can handle it. I had days I laid in bed and prayed for death from the

pain. Those days are over. I have developed the ability to tell my rhemy that I

hurt bad and not be ashamed of the pain. The good people of the group here has

taught me to voice my pain to our rheumys. So now when I have a flare up, I have

learned how to take care of it.

EVERYONE.... I been reading about your pain. I understand. You have put it in

words I couldnt think of, so I know what you mean. I am tickled at how you make

these cute little remarks that crack me up, like More fun yet or, the funny

jokes you write even though you are hurting. It makes the day go by forgetting

the pain for a little while. I pray for each of you and I believe in prayer. God

bless and take care everyone.

gentle kind hugs

CLORA

[Guest guest]

Clora,

I'm glad your on the enbrel, I pray it clears up the psoriasis. I'm

glad you have control of your pain right now. I've been in the same

place you have, and it's nice to be able to live a little, without being

in SO MUCH PAIN.

Hugs, back at ya,

Tawny

>

> ...........BARBARA..PAULA...TAWNY..CHERYL N OREGON...CARLA...........

>

> ....BARBARA;...So sorry to hear your little girl has this skin

problems. I know how she feels. Not only is it imbarrassing to have, it

causes great discomfort. My biggest problem with psyorisis is not

picking it or scratching the affected area. It is real hard to walk on

if I pull the loose dead skin off, it leaves a sore like a paper cut.

>

> PAULA....YOU ARE SO RIGHT PAULA, the enbrel does help it. If I can

just leave it alone to heal, it would heal. Picking, scratching it seems

to prolong the soreness.

>

> TAWNY...So sorry to hear hubby has to deal with psoriasis. I couldnt

spell psoriasis so I copied your spelling of it and pasted it here.

haaaaaaaaa. I am so good sometimes lol. I already asked my rheumy about

RA affiliated with psoriasis. She said no, but what does she know she

only went to school and training for about 14 years lol.

>

> Cheryle n Oregon.......See I thought for sure it had to do with RA. My

rheumy said the enbrel will clear it up. She said the plaquenil caused

the eruptions cause I had the normal psoriasis or ecxema.(one of them).

I thought for sure there was a psoratic RA. Cheryle do you know what the

difference of psoratic ra and reg psorisis is? Just curious.

>

> CARLA... Hi good to have ya in the group. I don't post very often, but

I do like to read what is going on in our lives with RA. When I first

joined the group, I asked the same question about flare ups. Now being

here a year I know what it means. I have flare ups that make me cry

sometimes. I think what they mean by a flare up is when the normal

everyday pain from RA has sky rockeded.

>

> My rheumy has got my pain level down to a tolerable level, meaning I

still have pain but I can handle it. I had days I laid in bed and prayed

for death from the pain. Those days are over. I have developed the

ability to tell my rhemy that I hurt bad and not be ashamed of the pain.

The good people of the group here has taught me to voice my pain to our

rheumys. So now when I have a flare up, I have learned how to take care

of it.

>

> EVERYONE.... I been reading about your pain. I understand. You have

put it in words I couldnt think of, so I know what you mean. I am

tickled at how you make these cute little remarks that crack me up, like

More fun yet or, the funny jokes you write even though you are hurting.

It makes the day go by forgetting the pain for a little while. I pray

for each of you and I believe in prayer. God bless and take care

everyone.

>

> gentle kind hugs

> CLORA

>

[Guest guest]

Help my friend i am in the same boat with pain--how do you tell the remy how bad

you hurt. all i want to do is cry and stay away from people.

kathy E

[ ] Re: psoratic RA, or just psoriasis.

Clora,

I'm glad your on the enbrel, I pray it clears up the psoriasis. I'm

glad you have control of your pain right now. I've been in the same

place you have, and it's nice to be able to live a little, without being

in SO MUCH PAIN.

Hugs, back at ya,

Tawny

[Guest guest]

Hi Kathy - I'm sorry you're in so much pain. I've been there as have all of us

here. I would recommend you make a list of where you are hurting and maybe make

a daily note of your pain levels on a 1-10 scale since that's what the doctors

will ask you anyway. I pray you get some relief soon. We DON'T have to live in

pain. If you aren't getting the answers you need from the Rheumy you're seeing,

search for another one.

Praying for pain free days ahead for you. Keep us posted. We care.....Doreen

Help my friend i am in the same boat with pain--how do you tell the remy how

bad you hurt. all i want to do is cry and stay away from people.

kathy E