New to Group

[Guest guest]

Hi,

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I'm new to the group, I was diagnosed with " probable MS " last week and it kind

of threw me for a loop. I had been having balance problems, weird sensations,

numbness, headaches, bladder problems, trouble swallowing at times, etc. for

quite a few years, but then it would get a little better and I was always told I

have fibromyalgia. Then I started having eye problems, eyesight deteriorated

overnight in one eye and it became very dim and I couldn't differentiate colors

very well. Went to see about getting new glasses at Stanton Optical and they

told me I had to go to a regular eye doctor and that they couldn't correct my

vision problems. Went to him and he told me I had optical neuritis and he

thought I might have MS. Went to regular doctor who sent me to neurology. Â

Neurologist said I " walk funny " and I didn't do well on some other tests. I'm

scheduled for a brain and neck MRI.

Â

My aunt died from complications of MS, she had a very bad case of it.Â

Fortunately we are not blood related (I'm adopted) but still, I'm scared.

Â

Kim

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Subject: RE: Sounds like diagnosing MS torturous and expensive

To: " MSCured " <mscured >

Date: Wednesday, September 1, 2010, 7:53 AM

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Hi SW

I'm from Australia and was dxd without the need of a lumbar puncture.

MRIs of brain and spine were all that was needed.

From what I've heard and from what I know, Australian Neurologists don't tend to

do the Lumbar Puncture thing to dx people.

The drugs are also generally covered by our Government's Healthcare System, so

the drugs aren't expensive there.

YOUR situation will, of course, depend on your country's healthcare system AND

your feelings about medication.

I am on the Best Bet Diet and the recommended Supplements and it's a lot better

than when I was on Avonex for a year and a half.

I've been tested for CCSVI and have stenosis in both jugulars - I am now waiting

on the time and date for the procedure (both will be paid for by my hubby as the

UK Healthcare system doesn't cover it).

The MSDiet Yahoo group is a good group to help with following the Dietary

approach.

There are ways around the drugs if you wish to take the 'alternative' route -

'MS' is, and should always be, about following the path that YOU are more

comfortable with.

I wish you a world of luck with conquering the 'MonSter'!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: skywatcher4him@...

Date: Wed, 1 Sep 2010 12:54:27 +0000

Subject: Sounds like diagnosing MS torturous and expensive

I go for my 2nd MRI today, and have heard about lumbar puncture,

to diagnose, then the drugs they'll want to put me on....is it worth it?