Bad Remicade Reaction

[Guest guest]

...a friend of mine called Enbrel (Enliven) and they helped her with a

free 6 month supply. I take the enbrel that I mix myself...25 mgs 2 times

a week. Less chance of a side effect with that.

Hope this helps. a

In a message dated 5/19/2010 2:59:35 P.M. Eastern Daylight Time,

nancymillerellis@... writes:

You were all wonderfully helpful a couple months ago when I lost my

insurance and was looking for help. The & Patient Assistance

Foundation approved me for Remicade infusions. I had had one infusion in late

January before my insurance ran out. Four days after that I got an

" undetermined " viral rash that turned into pneumonia and the worst flare I ever

had

(108 sed rate). So, to make a long story short, my Rheumy wasn't sure it

was a reaction to the remicade so we tried the remicade again once the

& went through. The next day the inflamation started and the

lungs started getting heavy - my rheumy (he's great by the way) said " deja vu "

and started a double strong steroid pack. I have an appoinment later this

week to figure out where to go from here. I'm already on Methotrexate, Folic

Acid, Norco & Hydromorphone, just for the RA (plus the depression, high

BP, cholesterol, etc...). I had tried Humira earlier - no bad side affects

but no help either

.. My rheumy is great at helping me with looking up costs, etc without the

insurance, but the DMARDS and biologics are all going to be outpriced for

me on temporary disability. Does anyone have any ideas of other dmards/

biologics that have patient assistance help? I've been diagnosed with RA for a

year now and I'm still getting worse rather than better - no longer able to

work (in the process of applying for SSDI), etc so I really need to keep

getting more aggressive with the RA. 54 is too young to be " retired " . Sorry

- feeling the " poor me " right now having thought we were finally getting

somewhere only to have everything fall apart again. Thanks for listening and

any help you can give.

from California

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[Guest guest]

You were all wonderfully helpful a couple months ago when I lost my insurance

and was looking for help. The & Patient Assistance Foundation

approved me for Remicade infusions. I had had one infusion in late January

before my insurance ran out. Four days after that I got an " undetermined " viral

rash that turned into pneumonia and the worst flare I ever had (108 sed rate).

So, to make a long story short, my Rheumy wasn't sure it was a reaction to the

remicade so we tried the remicade again once the & went through.

The next day the inflamation started and the lungs started getting heavy - my

rheumy (he's great by the way) said " deja vu " and started a double strong

steroid pack. I have an appoinment later this week to figure out where to go

from here. I'm already on Methotrexate, Folic Acid, Norco & Hydromorphone, just

for the RA (plus the depression, high BP, cholesterol, etc...). I had tried

Humira earlier - no bad side affects but no help either. My rheumy is great at

helping me with looking up costs, etc without the insurance, but the DMARDS and

biologics are all going to be outpriced for me on temporary disability. Does

anyone have any ideas of other dmards/ biologics that have patient assistance

help? I've been diagnosed with RA for a year now and I'm still getting worse

rather than better - no longer able to work (in the process of applying for

SSDI), etc so I really need to keep getting more aggressive with the RA. 54 is

too young to be " retired " . Sorry - feeling the " poor me " right now having

thought we were finally getting somewhere only to have everything fall apart

again. Thanks for listening and any help you can give.

from California

[Guest guest]

,

I'm sorry to hear about all of this.

Most of the DMARDs/biologics are available through patient assistance

programs. I'll post links separately.

Not an MD

On Wed, May 19, 2010 at 1:28 PM, <nancymillerellis@...> wrote:

> You were all wonderfully helpful a couple months ago when I lost my insurance

and was looking for help. The & Patient Assistance Foundation

approved me for Remicade infusions. I had had one infusion in late January

before my insurance ran out. Four days after that I got an " undetermined " viral

rash that turned into pneumonia and the worst flare I ever had (108 sed rate).

So, to make a long story short, my Rheumy wasn't sure it was a reaction to the

remicade so we tried the remicade again once the & went through.

The next day the inflamation started and the lungs started getting heavy - my

rheumy (he's great by the way) said " deja vu " and started a double strong

steroid pack. I have an appoinment later this week to figure out where to go

from here. I'm already on Methotrexate, Folic Acid, Norco & Hydromorphone, just

for the RA (plus the depression, high BP, cholesterol, etc...). I had tried

Humira earlier - no bad side affects but no help either. My rheumy is great at

helping me with looking up costs, etc without the insurance, but the DMARDS and

biologics are all going to be outpriced for me on temporary disability. Does

anyone have any ideas of other dmards/ biologics that have patient assistance

help? I've been diagnosed with RA for a year now and I'm still getting worse

rather than better - no longer able to work (in the process of applying for

SSDI), etc so I really need to keep getting more aggressive with the RA. 54 is

too young to be " retired " . Sorry - feeling the " poor me " right now having

thought we were finally getting somewhere only to have everything fall apart

again. Thanks for listening and any help you can give.

> from California