Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Hi Kim, I was Dxed in 1973, I had ON and the Neurologist told me 99% of people with ON develope MS. I've never had an MRI or Lumber Puncture and D** it I've still got MS. Best advice is to look after yourself. Get on the BBD, learn about Alternatives that do help and avoid medications (England) Went to him and he told me I had optical neuritis and he thought I might have MS. Went to regular doctor who sent me to neurology. Neurologist said I " walk funny " and I didn't do well on some other tests. I'm scheduled for a brain and neck MRI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Thanks everyone, for all your information, I really appreciate it! I'm kind of in a fog right now, it's hard for me to process everything that's happened in the past couple of weeks. I appreciate your help so much! Kim > > Hi, >  > I'm new to the group, I was diagnosed with " probable MS " last week and it kind of threw me for a loop. I had been having balance problems, weird sensations, numbness, headaches, bladder problems, trouble swallowing at times, etc. for quite a few years, but then it would get a little better and I was always told I have fibromyalgia. Then I started having eye problems, eyesight deteriorated overnight in one eye and it became very dim and I couldn't differentiate colors very well. Went to see about getting new glasses at Stanton Optical and they told me I had to go to a regular eye doctor and that they couldn't correct my vision problems. Went to him and he told me I had optical neuritis and he thought I might have MS. Went to regular doctor who sent me to neurology.  Neurologist said I " walk funny " and I didn't do well on some other tests. I'm scheduled for a brain and neck MRI. >  > My aunt died from complications of MS, she had a very bad case of it. Fortunately we are not blood related (I'm adopted) but still, I'm scared. >  > Kim >  > > > Subject: RE: Sounds like diagnosing MS torturous and expensive > To: " MSCured " <mscured > > Date: Wednesday, September 1, 2010, 7:53 AM > > >  > > > > > Hi SW > > I'm from Australia and was dxd without the need of a lumbar puncture. > > MRIs of brain and spine were all that was needed. > > From what I've heard and from what I know, Australian Neurologists don't tend to do the Lumbar Puncture thing to dx people. > > The drugs are also generally covered by our Government's Healthcare System, so the drugs aren't expensive there. > > YOUR situation will, of course, depend on your country's healthcare system AND your feelings about medication. > > I am on the Best Bet Diet and the recommended Supplements and it's a lot better than when I was on Avonex for a year and a half. > > I've been tested for CCSVI and have stenosis in both jugulars - I am now waiting on the time and date for the procedure (both will be paid for by my hubby as the UK Healthcare system doesn't cover it). > > The MSDiet Yahoo group is a good group to help with following the Dietary approach. > > There are ways around the drugs if you wish to take the 'alternative' route - 'MS' is, and should always be, about following the path that YOU are more comfortable with. > > I wish you a world of luck with conquering the 'MonSter'! > > > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > To: mscured > From: skywatcher4him@... > Date: Wed, 1 Sep 2010 12:54:27 +0000 > Subject: Sounds like diagnosing MS torturous and expensive > > I go for my 2nd MRI today, and have heard about lumbar puncture, > to diagnose, then the drugs they'll want to put me on....is it worth it? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Thanks everyone, for all your information, I really appreciate it! I'm kind of in a fog right now, it's hard for me to process everything that's happened in the past couple of weeks. I appreciate your help so much! Kim > > Hi, >  > I'm new to the group, I was diagnosed with " probable MS " last week and it kind of threw me for a loop. I had been having balance problems, weird sensations, numbness, headaches, bladder problems, trouble swallowing at times, etc. for quite a few years, but then it would get a little better and I was always told I have fibromyalgia. Then I started having eye problems, eyesight deteriorated overnight in one eye and it became very dim and I couldn't differentiate colors very well. Went to see about getting new glasses at Stanton Optical and they told me I had to go to a regular eye doctor and that they couldn't correct my vision problems. Went to him and he told me I had optical neuritis and he thought I might have MS. Went to regular doctor who sent me to neurology.  Neurologist said I " walk funny " and I didn't do well on some other tests. I'm scheduled for a brain and neck MRI. >  > My aunt died from complications of MS, she had a very bad case of it. Fortunately we are not blood related (I'm adopted) but still, I'm scared. >  > Kim >  > > > Subject: RE: Sounds like diagnosing MS torturous and expensive > To: " MSCured " <mscured > > Date: Wednesday, September 1, 2010, 7:53 AM > > >  > > > > > Hi SW > > I'm from Australia and was dxd without the need of a lumbar puncture. > > MRIs of brain and spine were all that was needed. > > From what I've heard and from what I know, Australian Neurologists don't tend to do the Lumbar Puncture thing to dx people. > > The drugs are also generally covered by our Government's Healthcare System, so the drugs aren't expensive there. > > YOUR situation will, of course, depend on your country's healthcare system AND your feelings about medication. > > I am on the Best Bet Diet and the recommended Supplements and it's a lot better than when I was on Avonex for a year and a half. > > I've been tested for CCSVI and have stenosis in both jugulars - I am now waiting on the time and date for the procedure (both will be paid for by my hubby as the UK Healthcare system doesn't cover it). > > The MSDiet Yahoo group is a good group to help with following the Dietary approach. > > There are ways around the drugs if you wish to take the 'alternative' route - 'MS' is, and should always be, about following the path that YOU are more comfortable with. > > I wish you a world of luck with conquering the 'MonSter'! > > > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > To: mscured > From: skywatcher4him@... > Date: Wed, 1 Sep 2010 12:54:27 +0000 > Subject: Sounds like diagnosing MS torturous and expensive > > I go for my 2nd MRI today, and have heard about lumbar puncture, > to diagnose, then the drugs they'll want to put me on....is it worth it? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Thanks everyone, for all your information, I really appreciate it! I'm kind of in a fog right now, it's hard for me to process everything that's happened in the past couple of weeks. I appreciate your help so much! Kim > > Hi, >  > I'm new to the group, I was diagnosed with " probable MS " last week and it kind of threw me for a loop. I had been having balance problems, weird sensations, numbness, headaches, bladder problems, trouble swallowing at times, etc. for quite a few years, but then it would get a little better and I was always told I have fibromyalgia. Then I started having eye problems, eyesight deteriorated overnight in one eye and it became very dim and I couldn't differentiate colors very well. Went to see about getting new glasses at Stanton Optical and they told me I had to go to a regular eye doctor and that they couldn't correct my vision problems. Went to him and he told me I had optical neuritis and he thought I might have MS. Went to regular doctor who sent me to neurology.  Neurologist said I " walk funny " and I didn't do well on some other tests. I'm scheduled for a brain and neck MRI. >  > My aunt died from complications of MS, she had a very bad case of it. Fortunately we are not blood related (I'm adopted) but still, I'm scared. >  > Kim >  > > > Subject: RE: Sounds like diagnosing MS torturous and expensive > To: " MSCured " <mscured > > Date: Wednesday, September 1, 2010, 7:53 AM > > >  > > > > > Hi SW > > I'm from Australia and was dxd without the need of a lumbar puncture. > > MRIs of brain and spine were all that was needed. > > From what I've heard and from what I know, Australian Neurologists don't tend to do the Lumbar Puncture thing to dx people. > > The drugs are also generally covered by our Government's Healthcare System, so the drugs aren't expensive there. > > YOUR situation will, of course, depend on your country's healthcare system AND your feelings about medication. > > I am on the Best Bet Diet and the recommended Supplements and it's a lot better than when I was on Avonex for a year and a half. > > I've been tested for CCSVI and have stenosis in both jugulars - I am now waiting on the time and date for the procedure (both will be paid for by my hubby as the UK Healthcare system doesn't cover it). > > The MSDiet Yahoo group is a good group to help with following the Dietary approach. > > There are ways around the drugs if you wish to take the 'alternative' route - 'MS' is, and should always be, about following the path that YOU are more comfortable with. > > I wish you a world of luck with conquering the 'MonSter'! > > > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > To: mscured > From: skywatcher4him@... > Date: Wed, 1 Sep 2010 12:54:27 +0000 > Subject: Sounds like diagnosing MS torturous and expensive > > I go for my 2nd MRI today, and have heard about lumbar puncture, > to diagnose, then the drugs they'll want to put me on....is it worth it? > > > > Quote Link to comment Share on other sites More sharing options...
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