To Dennis

[Guest guest]

Dennis, I even had TMJ in my jaw bone for a few weeks from my RA. It

wasn't any fun at all. It sounds as though you do have a very

aggressive case. What meds have you been on, and what are you on now?

Sue

On Friday, August 20, 2004, at 05:53 PM, Dennis W wrote:

> Mine even

> attacked the pseudo-joints where the ribs tie to the breastbone. The

> only

> area that hasn't suffered yet is my jaw bones. I still wish I could get

> enough relief. It depends on your perspective.

[Guest guest]

Wherever I go, I always seem to find someone worse than me. It makes my

problems seem insignificant. My niece was injured in a car wreck 20 years

ago, before she was born. A blood vein in her brain started bleeding. Blood

kills brain matter, so she was born with only basic motor skills to sustain

life but that's all. She wasn't supposed to live for more than 5 years, but

she's fooled all of us.

The meds I'm taking haven't changed much in the last 14 years. I'm taking:

MTX started at 3 tablets (.3cc) at $4.00 per pill! each week, now injecting

1cc at about $2.50 per

Prednesone varies from 5 to 15 mg per day

Clinoril/Sulendac 400 mg per day

Darvocett/Vicadin as needed, and boy do I need them sometimes!

Folic acid 1 mg per day until recently, now 2 per day

..6 mg Colchicine for swelling, not taking it at this time

Blood Pressure meds and relaxers that help

I've tried Vioxx that made me swell badly in my left leg. It seems that I

shouldn't have been offered it because it doesn't work with my blood

pressure meds. An example of uninformed doctlrs/nurses.

I also tried Celebrex. It made my lower intestines hurt and cramp within 3

days. It went into the trash.

I'm not sure that my original rheumy knew what I needed, just responded to

symptoms and complaints only. The new one was going to have me running and

jumping in a month. Well, he didn't tell my body 'cause it just said, " Huh? "

He also has a coupld of my friends as patients, and one went worse and

worse, and finally had to quit working and is now almost helpless. Not

exactly a ringing endorsement....

Dennis

Re: [ ] To Dennis

> Dennis, I even had TMJ in my jaw bone for a few weeks from my RA. It

> wasn't any fun at all. It sounds as though you do have a very

> aggressive case. What meds have you been on, and what are you on now?

> Sue

>

> On Friday, August 20, 2004, at 05:53 PM, Dennis W wrote:

> > Mine even

> > attacked the pseudo-joints where the ribs tie to the breastbone. The

> > only

> > area that hasn't suffered yet is my jaw bones. I still wish I could get

> > enough relief. It depends on your perspective.

>

>

>

>

>

[Guest guest]

Hey Dennis!! Its so good to see you here! Praising God that your treatments are

almost over and praying that this will be IT and you can resume a semi-normal

life again. I say " semi " because, really - what " is " normal? I, personally,

haven't figured that one out yet - lol.

I understand the hip pain Betty is going through. When I think back, I think my

hip pain started with the birth of my first daughter 31 years ago! I do know

that they have never been the same since and the birth of my second daughter 14½

years later didn't help matters any either - Add the RA on top of that and I am

a mess as well. Sometimes I wonder if this is just one of those crosses that

women have to bear - especially if they have big babies like I did.

Love & Hugs to you & Betty..... Doreen

Betty has been suffering pains in both her hips for a long time. Work was done

to her spine thinking that was the reason, but it wasn't. She had both hips

checked and no reason found. It seems common to not know or find reason for

pains, but since you fell, it's more likely that a reason and fix can be found.

I sure hope so, we go through our 'later' life battling pains. I hope yours is

taken away.

Dennis in eastexas- 7 radiation treatments left (I hope)!