Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 I think we need to remember there are stories of healing through other methods such as chelation, fasting, biodenitcal hormone therapy, calcium eap injections 3x per week, Klenner protocol, vegan diet, and for some BBD alone is enough. ________________________________ To: MS-Cured <mscured > Sent: Thu, November 18, 2010 12:34:52 PM Subject: RE: CCSVI Â It is hard, isn't it, when everything you read is about CCSVI. It used to drive me mad especially as I was so against any invasive treatment and it was still turning up in alternative groups although it is mainstream. In the end I thought if you can't beat 'em, join 'em. Quite by chance I feel I have done things in the right order. Attacked diet and my allergies/food intolerances. Started daily routined exercise. Had my amalgams removed. Took vitamin D and all the other suggested supplements. Changed my lifestyle to get rid of stress. Added medicinal marijuana (I am in one of the places it is OK). Checked into heavy metal toxicity and am doing an on-going detox programme. Got tested for Lyme Disease, Syndrome and a bunch of others that mimic MS. I did all these things that we already knew about with the exception of LDN which I had on the back-burner. THEN did CCSVI testing and treatment. I chose Poland as they had good surgeons and track record. If that doesn't sort you out I am at a loss as to know what else will. People who aren't improved after CCSVI treatment or who indeed don't have CCSVI, maybe don't have MS? Just a thought. Janet To: mscured From: alansamston@... It is still very hard for me to get a grasp on this. At first I was not interested as I am into the natural things and it seemed invasive and hard to find in the U.S., etc. But now it seems every post is about CCSVI, to the point nobody is even talking about Vitamin D, BBD, Ldn, Amalgam removal, etc. I have read (skimmed) through many of the testimonials and there seems to be quite a varied response. Some people report great improvement, others report little improvement, and others report some complications such as shoulder pain for months after the procedure. It is still a bit daunting to me and hard to put together that all the things we have been writing about for years (Vitamin D, Detox, Diet, etc) were not the answer? And yet there are people who remain in complete remission without CCSVI. It is also tough not to know which doctor has the most skill with this procedure. As we all know, the skill of the doctor can make much of the difference in outcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 Hi Alan, I would think that endothelial dysfunction would worsen if ones diet, nutrition and supplementation was poor or if environmental toxicity played its part. All these things need to be seriously addressed for MS patients. CCSVI is just one part of the MS puzzle. Just my 'two bits' worth. Cheers, Pinda PS Here's a link to the tracking I put up for my wife on ThisIsMS.... http://www.thisisms.com/ftopicp-137901.html#137901 > > Thanks Cait. Yes that is one of the pages I was looking for. I think there is > one thread with video testimonials and the other with written testimonials. > > > It is still very hard for me to get a grasp on this. At first I was not > interested as I am into the natural things and it seemed invasive and hard to > find in the U.S., etc. > > But now it seems every post is about CCSVI, to the point nobody is even talking > about Vitamin D, BBD, Ldn, Amalgam removal, etc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 Hi Alan, I would think that endothelial dysfunction would worsen if ones diet, nutrition and supplementation was poor or if environmental toxicity played its part. All these things need to be seriously addressed for MS patients. CCSVI is just one part of the MS puzzle. Just my 'two bits' worth. Cheers, Pinda PS Here's a link to the tracking I put up for my wife on ThisIsMS.... http://www.thisisms.com/ftopicp-137901.html#137901 > > Thanks Cait. Yes that is one of the pages I was looking for. I think there is > one thread with video testimonials and the other with written testimonials. > > > It is still very hard for me to get a grasp on this. At first I was not > interested as I am into the natural things and it seemed invasive and hard to > find in the U.S., etc. > > But now it seems every post is about CCSVI, to the point nobody is even talking > about Vitamin D, BBD, Ldn, Amalgam removal, etc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2010 Report Share Posted November 18, 2010 Hi Alan, I would think that endothelial dysfunction would worsen if ones diet, nutrition and supplementation was poor or if environmental toxicity played its part. All these things need to be seriously addressed for MS patients. CCSVI is just one part of the MS puzzle. Just my 'two bits' worth. Cheers, Pinda PS Here's a link to the tracking I put up for my wife on ThisIsMS.... http://www.thisisms.com/ftopicp-137901.html#137901 > > Thanks Cait. Yes that is one of the pages I was looking for. I think there is > one thread with video testimonials and the other with written testimonials. > > > It is still very hard for me to get a grasp on this. At first I was not > interested as I am into the natural things and it seemed invasive and hard to > find in the U.S., etc. > > But now it seems every post is about CCSVI, to the point nobody is even talking > about Vitamin D, BBD, Ldn, Amalgam removal, etc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2010 Report Share Posted November 19, 2010 Yes, that's me. In Spain they noted that one jugular was working differently to the other but told me it was normal and there was nothing wrong with me. In Poland they found 100% stenosis in the same jugular when seated, 65% when lying. Janet To: mscured From: alansamston@... Date: Thu, 18 Nov 2010 19:20:08 +0000 Subject: Re: CCSVI Janet, I'm trying to recall, Were you the person who tested for CCSVI first and it came out negative and then retested elsewhere and it came out positive? > > > It is hard, isn't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2010 Report Share Posted November 19, 2010 Yes, that's me. In Spain they noted that one jugular was working differently to the other but told me it was normal and there was nothing wrong with me. In Poland they found 100% stenosis in the same jugular when seated, 65% when lying. Janet To: mscured From: alansamston@... Date: Thu, 18 Nov 2010 19:20:08 +0000 Subject: Re: CCSVI Janet, I'm trying to recall, Were you the person who tested for CCSVI first and it came out negative and then retested elsewhere and it came out positive? > > > It is hard, isn't Quote Link to comment Share on other sites More sharing options...
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