Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 sounds like you might have a neuropathy....you need to find the "cause" of the neuropathy....eliminate the cause, and the burning should cease to are you a diabetic? do you drink lots of alcohol? is your thyroid functioning right? i believe all of these might have a link to burning feet. might want to google "neuropathy and burning" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 Try putting the soap in your bed by your feet when you sleep and see if that helps. The soap should not be dove or dial. Supposedly every other soap will work. Please keep us posted. Aletha [low dose naltrexone] Burning feet > In hot weather I used to have burning feet, but when I started LDN > last year it improved somewhat. Suddenly in the heat we have been > having this summer the burning has got really bad - it woke me and > kept me awake for about 3 hours last night. > Has anyone any ideas on how to lessen the pain? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 Once I stopped taking hot showers, the burning sensation in my feet diminished. Now, before I go to bed, I take a cool shower and run about 3 inches of cold, cold water in the tub and stand in it for about 5 minutes. If I can’t get very cold tap water, I add ice. This helps tremendously. During the day, if I over-heat, I repeat this process. I even keep a small container at work that I can fill with cold water and soak my feet under my desk. This has also helped with some of the inflammation I get in my toes. I sure miss the hot showers, but I DON’T miss the burning feet. Hope this helps. -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.9.10/383 - Release Date: 7/7/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Rule #1. NO MORE HOT SHOWERS!!! EVER! NEVER! I was so amazed at how many people weren't told by their Dr.s to stay away from heat and hot showers. Good idea . Sincerely, Juice [low dose naltrexone] Re: Burning feet Once I stopped taking hot showers, the burning sensation in my feet diminished. Now, before I go to bed, I take a cool shower and run about 3 inches of cold, cold water in the tub and stand in it for about 5 minutes. If I can’t get very cold tap water, I add ice. This helps tremendously. During the day, if I over-heat, I repeat this process. I even keep a small container at work that I can fill with cold water and soak my feet under my desk. This has also helped with some of the inflammation I get in my toes. I sure miss the hot showers, but I DON’T miss the burning feet. Hope this helps. --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.9.10/383 - Release Date: 7/7/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 That sounds like neuropathic pain which often starts in the feet/distally & can be associated with/caused by diabetes, MS, autoimmune dz, some treatments etc. I would suggest/You may want to see a University neurologist who specializes in neuropathic pain as it can progress if untreated. Typical EMG/NCS tests do not assess small nerve fiber function (ANS/QST do but may only be available at special centers) which subserve pain & autonomic thermal functions although large nerve fibers may be involved over time (particularly if cause is untreated). Treatment should be directed at its cause whenever possible otherwise symptomatic treatment for neuropathic pain include anticonvulsants (e.g. gabapentin, clonazepam at bedtime), antidepressants, lidocaine patch, antioxidant Alpha Lipoic Acid, etc. If LDN did improve it somewhat, it may have treated an underlying cause in time but heat does stress small nerve fiber neuropathies. You don't want to get in the cycle of pain->sleep problems->more pain. Let us know if the soap trick continues to help it, I have heard it reported as helpful for some but have not as of yet heard the mechanism of action;)? Curious if you noticed any color & /or sweating changes (more of less) associated with pain? Best Wishes & let us know, --- In low dose naltrexone , " anncarisso " <annhaine@...> wrote: > > In hot weather I used to have burning feet, but when I started LDN > last year it improved somewhat. Suddenly in the heat we have been > having this summer the burning has got really bad - it woke me and > kept me awake for about 3 hours last night. > Has anyone any ideas on how to lessen the pain? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 i've had this also. it seems to be worse when my pa is flareing. marylou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 YES I HAVE AND ALSO MY HANDS FEEL AS THOUGH THEY ARE IN HOT WATER. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 To and S. Zorzi, I know that PA can cause a lot of miserable and strange symptoms. Shortly after mine started, (it hit my jaws first) I started having red burning skin on one side of my face. It wasn’t long before it spread to other parts of my body and I found out it is a condition called erythromelalgia. This is another syndrome that is linked to autoimmune diseases, and it’s a syndrome that makes life a living hell at times. I currently have EM flares on my left hand and left side of my face 24/7. When it gets bad it spreads to my entire face, neck, and upper chest area and at night it hits my feet. If you find that the only way to relieve this symptom is cold water or cold gel packs, or fans, then please consider you might have EM. There is a great group called TEA, which has done some excellent work on this and EM is now recognized by NORD. (National Organization of Rare Diseases). It is something I wouldn’t wish on my worst enemy. I am basically a prisoner in my house during the summer months and living in Florida hasn’t made my condition any easier. We moved down here to enjoy fishing and the beach and now I can’t ever go. The only relief I can get is elevating my feet since any movement at all brings it on full force. If you think you might have this condition check out this link, www.erythromelalgia.org <http://www.erythromelalgia.org/> and see if you meet all the criteria. It is very hard to diagnose since it’s not common and very few doctors even know what it is, much less how to treat it. They have done a lot of research at Mayo’s and have found it is now linked to neuropathy and is very similar to complex regional pain syndrome, or RSD. I know this isn’t good news if you do have this condition, but it’s better to know early since some people have responded to medication and found some relief. EM rarely gets better on it’s own and rarely responds to treatment. It almost always progresses, like mine has in the past 7 years. I don’t go anywhere without my gel packs and my fans. Even then, I’m constantly burning and look like I’ve lost a battle with a sun lamp. I hope this helps someone out there who is suffering. If you have any questions please ask. Take care, Fran, trying to stay cool in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Is it PA or neuropathy? I have been taking a drug for neuropathy for years to stop the burning in my feet. Works great sometimes, other times I could chop them off! Especially at night. I have noticed the PA is getting much worse in my feet lately. The big toes draw up under my others at night and my arches seem to be dropping. Sib Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Fran, thanks so much for this info and website. I have a friend who is currently struggling to get a diagnosis and who reports similar symptoms to this. I will pass this info along to her! She is seeing both a neurologist and a rheumy - the last time I talked to her she said they were focusing on her burning, red skin and possible CRPS. Sure sounds a lot like what I read on that site... thanks, sherry z > > my body and I found out it is a condition called erythromelalgia. This is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 I, too, have burning feet, a condition that started about six months ago. I was diagnosed with PA 25 years ago and this is the first time I have had that problem. In my case, I think it's associated with the peripheral neuropathy I developed as a side-effect of the drug Leflunomide (Arava). For six months, I emailed, called and visited my rheumatologist numerous times about the tingling (actually, it was more like electrical shocks) and numbness in my feet and hands, and for six months, my rheumatologist just brushed me off, even as the condition gradually worsened. Despite the fact that peripheral neuropathy is a known side effect of Leflunomide, she kept me on the drug. I don't know if she is not aware that Leflunomide can cause peripheral neuropathy in some people, or she just didn't want to be bothered. In any event, I remained on the drug long after the symptoms began. My NEW rheumatologist says there is bad news and there is worse news. The bad news is that the drug can stay in a person's system for a year after stopping. The worse news is that my nerve damage may be permanent. I would urge you to discuss your symptoms with your rheumatologist PRONTO. If you are just brushed off, I would try another doctor, either your primary physician or another rheumatologist. But my advice is to definitely demand answers and even do research yourself. After six months of being brushed off by my rheumatologist, I went to my primary physician who quickly diagnosed the problem as peripheral neuropathy. I then went home and googled " psoriatic arthritis " and " peripheral neuropathy " and up came references to Leflunomide. I quit the drug immediately and while I continue to have symptoms of nerve damage, the burning in my feet has mostly stopped. Good luck! BeingIrish " Being Irish, he had an abiding sense of tragedy, which sustained him through temporary periods of joy. " -- W.B.Yeats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 Fran, My Mom was diagnosed with Lupus in the 70's, and since my diagnosis with PA she's figured out that she probably has had PA as well. Back when I was a child she would get a huge " red spot " on her hip and would get a very high fever and be bedridden or hospitalized for days. I wonder if that was caused by Erythromelagia! She has never gotten a proper diagnosis on the red spots. They would go away just as mysteriously as they came. I will refer her to the website you suggested. Thanks! As far as my symptoms, my feet just " feel " hot, they do not have a rash on them or anything, so I think it's just the inflammation from the P.A. that others are referring to. I have tried to get relief with ice packs and putting my feet up. Does anyone have any other ideas on how to get relief? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 Oh yes. The first syptoms I ever had were burning feet. I often described it as " buzzing. " The same thing would happen with my hands. It would get worse when I did physical things like painting or other activities involving my hands. I couldn't get a diagnosis from a rheumatologist at that stage. I had to wait until joint damage showed up in my back. Tendinitis is also something that went along with the burning feet and hands...got it in my elbows pretty bad. Good luck - Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2007 Report Share Posted August 25, 2007 I also have had irritating unexplained burning sensations occasionally in several areas.... the palms of my hands, the soles of my feet, and strangely within my mouth... specifically within the sides of my mouth and further back in the throat area... I am replying because I have noticed others on this site posting with similar burning sensations... #2 > YES I HAVE AND ALSO MY HANDS FEEL AS THOUGH THEY ARE IN HOT WATER. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Anyone else that is not diabetic get where the bottom of your feet feel like they are burning? I was just tested for diabetes recently so I know that isn't the issue. I will be seeing my rheumy in 2 weeks and will ask him about it but you all are really the experts from experience. I know diabetics can have this problem but otherwise I just don't know what it could be. Any help would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 , Peripheral neuropathy is common in RA. That could be it. Be sure to ask your rheumatologist about it Not an MD On Tue, Jul 7, 2009 at 10:50 AM, ktandtm<ktandtm@...> wrote: > Anyone else that is not diabetic get where the bottom of your feet feel like they are burning? I was just tested for diabetes recently so I know that isn't the issue. I will be seeing my rheumy in 2 weeks and will ask him about it but you all are really the experts from experience. I know diabetics can have this problem but otherwise I just don't know what it could be. > > Any help would be great. > > Quote Link to comment Share on other sites More sharing options...
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