Re: more test results...grr`

[Guest guest]

,

I suggest having imaging done of your hands and/or feet.

Not an MD

On Fri, Feb 12, 2010 at 9:27 AM, Matlock

<matlock5@...> wrote:

> Well, ANA and CRP are also both normal. So, anyone else still have RA as I

> described before and NO labs are abnormal. Am I dreaming this?

>

>

>

> Thanks,

>

>

>

>

[Guest guest]

No you're not dreaming....I am the same way. My first flare I could barely walk

at times but nothing showed in the blood work. And they did LOTS of blood work.

Thankfully I had a doc who understood that the clinical pic was more revealing

than the blood and treated me appropriately. Most of the time I am pretty good

now, and after more than 2 years I have no joint damage, thanks to the

methotrexate. But I felt like I was losing my mind everytime a new test would

come back normal, when everything about my body was wrong and different. Hang in

there!

>

> Well, ANA and CRP are also both normal. So, anyone else still have RA as I

> described before and NO labs are abnormal. Am I dreaming this?

>

>

>

> Thanks,

>

>

>

>

[Guest guest]

Hello,

No you are not dreaming. I had the same thing, severe swelling and pain in my

joints(espicially my hands) all labs were negative except I had a modestly

elevated ANA. My doc diagnosed me with sero-negative(labs negative) RA about 6

months ago, she says about 20% of people with RA are sero-negative. I have only

had damage in one finger my pinky and currently take Plaquenil, diclofenac, MTX

injections and prednisone. I am still having problems with pain and stiffness

and swelling, I have another appointment in March and possibly may get changed

to arextra or a biologic. She says sero-negative is also more common in young

females and your labs can come back positive at any time, so she rechecks my sed

rate and crp and RF about every 6 months. So you are not alone. I hope the best

for you and let me know if you have any questions!

Vicky -sero-negative RA

>

> No you're not dreaming....I am the same way. My first flare I could barely

walk at times but nothing showed in the blood work. And they did LOTS of blood

work. Thankfully I had a doc who understood that the clinical pic was more

revealing than the blood and treated me appropriately. Most of the time I am

pretty good now, and after more than 2 years I have no joint damage, thanks to

the methotrexate. But I felt like I was losing my mind everytime a new test

would come back normal, when everything about my body was wrong and different.

Hang in there!

>