Advice: headaches and Remicade

[Guest guest]

I have been having headaches the last year or so, coinciding with when I started

having a really bad flare of RA. They went away for about 3 months when I was

feeling better and then started again when I started Remicade. I just finished

my third infusion and had a bit of a headache when I started. 10 minutes into

the infusion, the left side of my head was killing me. I had headaches after

both prior infusions lasting 2 or 3 days around my left eye. So I guess I have 2

questions:

Anyone else have headaches associated with RA in general? None of my doctors

thought they had anything to do with it, but I never had headaches in my life.

They seemed to start when I was weaning off prednisone for a flare.

Anyone else get headaches associated with Remicade and if so, what do you do

about it. I don't want to quit, but I don't want headaches either.

Thanks,

[Guest guest]

Hi

I have headaches related to my RA, they start as a dull ache and build up to the

point i can no longer think or function, my doctor said they were coming off the

inflammation in my neck and shoulders, unfortunately mines built up until i

developed further complications in my neck, but thats another story

I put an ice pack over my eyes and lie down for a wee while, in the absence of

ice i go into a dark room and lie, i can always tell when one is coming on and

no longer try to battle through it as it will only get worse and worse, the

sooner i rest the sooner it goes!

Hope this helps

Sharon xx

________________________________

From: lexi7434 <spine_97@...>

Sent: Friday, 3 July, 2009 3:54:56

Subject: [ ] Advice: headaches and Remicade

I have been having headaches the last year or so, coinciding with when I started

having a really bad flare of RA. They went away for about 3 months when I was

feeling better and then started again when I started Remicade. I just finished

my third infusion and had a bit of a headache when I started. 10 minutes into

the infusion, the left side of my head was killing me. I had headaches after

both prior infusions lasting 2 or 3 days around my left eye. So I guess I have 2

questions:

Anyone else have headaches associated with RA in general? None of my doctors

thought they had anything to do with it, but I never had headaches in my life.

They seemed to start when I was weaning off prednisone for a flare.

Anyone else get headaches associated with Remicade and if so, what do you do

about it. I don't want to quit, but I don't want headaches either.

Thanks,