Update

[Guest guest]

I don't see a new rheumy for a couple more weeks. I'm excited to see what his

recommendation will be.

The mtx made me sick to my stomach but the biggest complaint I had with it was

it knocked me unconscious for DAYS after I took it. If I needed to get up for

something it was like my brain wasn't connected to my muscles. At times I

literally could not stand up! It was scary.

Candace

[Guest guest]

Hi Candace.

     I know these meds. act differently on each person here.  That is a

terrible way for you to feel.

I hope you like your Rhuemy, and are able to discuss these side effects with

him/her.  I had to switch from the MTX pills to the injection form.  Those

pills made me deathly sick to my stomach 24/4.  I could only stand that for a

few weeks.  The shot agrees with me so much better.

     Good luck with your Rheumy appt.

 

Hugs,

 

Barbara 

From: Candace Podratz <candaceandbrock@...>

Subject: Re: [ ] Re: Update

" " < >

Date: Thursday, July 1, 2010, 2:31 PM

 

I don't see a new rheumy for a couple more weeks. I'm excited to see what his

recommendation will be.

The mtx made me sick to my stomach but the biggest complaint I had with it was

it knocked me unconscious for DAYS after I took it. If I needed to get up for

something it was like my brain wasn't connected to my muscles. At times I

literally could not stand up! It was scary.

Candace

[Guest guest]

Hi,

Not to make you feel bad, but I thought 11mm was usually considered

moderate. It seems different orthos have different classification

schemes.

Good luck!

Kathy

On 9/15/2010 3:31 PM, critter lover wrote:

Just an fyi, through many delays which I am mad about but

had no choice I am getting our helmut in 2 weeks. She is

11mm off which I am told is mild. Is it? It doesn't look

mild and she has forehead bossing(?), flat side and

misaligned ears. They only did one measurement. Is that

normal to not measure the ear alignment? They both poo

poo'd banding over 12 months but will let me have a helmut

anyway. She will be 17 months by the time it's made. She

is 6 weeks premature and he did say she had a small head

for a child her age (I'm assuming adjusted at that), so

she might benefit more than the average 17 month old.

Insurance denied coverage even though I read it was in

their policy. It will cost me 1800. I was thinking about

getting a sticker that said something like, 'Like my cool

helmut? Help me by donating a payment at www.com' or

something. Or would that be tacky? :/

I have been complaining for awhile now and when I finally

put my foot down it was still another 3 month wait. If I

only knew now what I didn't then :/

Kim

[Guest guest]

Well.. I think he wanted me to go away :PKimFrom: Kathy Lora Jensen <kathylorajensen@...>Plagiocephaly Sent: Wed, September 15, 2010 4:37:13 PMSubject: Re: update

Hi,

Not to make you feel bad, but I thought 11mm was usually considered

moderate. It seems different orthos have different classification

schemes.

Good luck!

Kathy

On 9/15/2010 3:31 PM, critter lover wrote:

Just an fyi, through many delays which I am mad about but

had no choice I am getting our helmut in 2 weeks. She is

11mm off which I am told is mild. Is it? It doesn't look

mild and she has forehead bossing(?), flat side and

misaligned ears. They only did one measurement. Is that

normal to not measure the ear alignment? They both poo

poo'd banding over 12 months but will let me have a helmut

anyway. She will be 17 months by the time it's made. She

is 6 weeks premature and he did say she had a small head

for a child her age (I'm assuming adjusted at that), so

she might benefit more than the average 17 month old.

Insurance denied coverage even though I read it was in

their policy. It will cost me 1800. I was thinking about

getting a sticker that said something like, 'Like my cool

helmut? Help me by donating a payment at www.com' or

something. Or would that be tacky? :/

I have been complaining for awhile now and when I finally

put my foot down it was still another 3 month wait. If I

only knew now what I didn't then :/

Kim

[Guest guest]

He is really busy.  He only wants to see our boys every few months

now.  I was always nervous they wouldn't return our calls for an

appointment.  It is strange though since I think he likes children. 

One big thing!  He is very anti helmet.  He saw 's helmet on the

first appointment, and after that we took it off before the

appointment and combed 's hair.

I'd try Judy Ann in the meantime. 

Good luck!

Kathy

On 9/15/2010 8:33 PM, critter lover wrote:

 

Well.. I think he

wanted me to go away

Kim

From:

Kathy Lora Jensen <kathylorajensen@...>

To:

Plagiocephaly

Sent:

Wed, September 15, 2010 4:37:13 PM

Subject:

Re: update

 

Hi,

Not to make you feel bad, but I thought 11mm was

usually considered moderate.  It seems different

orthos have different classification schemes.

Good luck!

Kathy

On 9/15/2010 3:31 PM, critter lover wrote:

 

Just an fyi, through many delays which I am

mad about but had no choice I am getting our

helmut in 2 weeks. She is 11mm off which I am

told is mild. Is it? It doesn't look mild and

she has forehead bossing(?), flat side and

misaligned ears. They only did one

measurement. Is that normal to not measure the

ear alignment? They both poo poo'd banding

over 12 months but will let me have a helmut

anyway. She will be 17 months by the time it's

made. She is 6 weeks premature and he did say

she had a small head for a child her age (I'm

assuming adjusted at that), so she might

benefit more than the average 17 month old.

Insurance denied coverage even though I read

it was in their policy. It will cost me 1800.

I was thinking about getting a sticker that

said something like, 'Like my cool helmut?

Help me by donating a payment at www.com'

or something. Or would that be tacky? :/

I have been complaining for awhile now and

when I finally put my foot down it was still

another 3 month wait. If I only knew now what

I didn't then :/

Kim

[Guest guest]

sorry you didn't see a change, but maybe you'll still catch a little growth in

the next few months.

-christine

sydney, 5 yrs, starband grad

>

> No improvement again this month She's just not growing in the head area at

> all. She will be two in a month and they plan on her " graduating " then. Boy, I

> wish I had started sooner but we did our best. I'll probably keep it on after

> the graduation for a month if I can.

>

[Guest guest]

Hi all, I haven't written since I became pregnant, but would read the daily

posts. How I left off before getting pregnant is that I have some sort of

autoimmune inflamatory disorder which caused dry eyes, joint pain, swelling in

wrists and fingers, psoriasis of nails, tenosynovitis of hands and wrists,

nodules on toes and fingers and all over achiness that felt like a fever but did

not have one, also a thyroid goiter and nodules on thyroid and swollen lymph

nodes on neck. Mind you all bloodwork is coming back seronegative.

The RA dr. put me on mobic (didn't help), cellebrex (helped but couldn't

continue due to my GERDs acting up) then finally plaquenal (which may have

helped after 3 or 4 months, however, turned out I got pregnant then).

All symptoms went away during this pregnancy. My face is thin and neck, I look

great. My fingers have shrunk and rings are falling off. I lost 5 pounds and

during the pregnancy (now in the 9th month have only gained 10 pounds). The

baby is textbook perfect and a great size and developing perfectly.

My concerns are after the pregnancy. I look and feel myself. My metabolism is

normal again and joints feel awesome. I am afraid what is going to happen

afterwards. I have read it all comes back and usually with a vengence and it

makes me depressed to look forward to this again. I plan to try to breastfeed

the baby.

Any input would be great or advice. Thanks

[Guest guest]

Hi .

 

It was so nice to read your post today.  I am thrilled you are feeling so

wonderful during your pregnancy.  I am glad you look good too.  That is all so

wonderful for you.

 

I don't know anything about RA returning after you have your baby.  I sure hope

it does not.

 

Having a baby is wonderful, and I hope each day you enjoy each moment together.

 

Hugs,

 

Barbara

BARBARA

From: <anelica1016@...>

Subject: [ ] Update

Date: Friday, April 1, 2011, 7:20 AM

 

Hi all, I haven't written since I became pregnant, but would read the daily

posts. How I left off before getting pregnant is that I have some sort of

autoimmune inflamatory disorder which caused dry eyes, joint pain, swelling in

wrists and fingers, psoriasis of nails, tenosynovitis of hands and wrists,

nodules on toes and fingers and all over achiness that felt like a fever but did

not have one, also a thyroid goiter and nodules on thyroid and swollen lymph

nodes on neck. Mind you all bloodwork is coming back seronegative.

The RA dr. put me on mobic (didn't help), cellebrex (helped but couldn't

continue due to my GERDs acting up) then finally plaquenal (which may have

helped after 3 or 4 months, however, turned out I got pregnant then).

All symptoms went away during this pregnancy. My face is thin and neck, I look

great. My fingers have shrunk and rings are falling off. I lost 5 pounds and

during the pregnancy (now in the 9th month have only gained 10 pounds). The baby

is textbook perfect and a great size and developing perfectly.

My concerns are after the pregnancy. I look and feel myself. My metabolism is

normal again and joints feel awesome. I am afraid what is going to happen

afterwards. I have read it all comes back and usually with a vengence and it

makes me depressed to look forward to this again. I plan to try to breastfeed

the baby.

Any input would be great or advice. Thanks