Update

April 23, 2001

great news! I was wondering where you were and am pleased to hear you are

getting better. kathy

rheumatic Update

>Hello, All,

> I wanted to check in with you and update you on my progress. I just

>returned from Dr. DeWet's in Tyler, Texas, having undergone five days of

>steady clindy treatments, three days of ascorbic acid ivs with added

>supplements, and one final day the following Monday of another iv of DMPS

>to flush the high mercury out of this body. Needless to say, I am in a

>pretty good herx at this time but like before, I know there is light at the

>end of the tunnel having traveled this tunnel before.

> I do want to share the good news with you. My ANA is normal (I have seen

>your message, @RTC and will respond to you privately, and know this is

>not always permanent but definitey a grand bit of news for me now. In

>addition, all three of my mycoplasms are GONE. And lastly, I am a full

>degree warmer body temperature than I was before. One degree makes an

>awfully lot of difference in terms of staying WARM. This was as exciting

>as the other part of my news. Also, my hands have returned to warm

>again!!!

> Dr. DeWet believes my main symptoms now are the results of the high

>mercury level and we are progressing on getting rid of that. Because I

>cannot do chelation, we will attempt to do the DMPS monthly for four to six

>more, continue the ONE clindy iv every two to three weeks, and, of course,

>always do the Minocin/minocycline. In addition, I will attempt to have a

>series of ascorbic acid iv's here in Billings, Montana while I am waiting

>to return to Texas in three months for another go.

> I am thinking of all of you and reading as quickly as I can to catch up on

>all of your news over the past weeks. But in the meantime, you keep

>writing....! Be well, love,

>

>--- Fain

>--- slfain@...

>--- EarthLink: It's your Internet.

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

April 24, 2001

I would love to meet up with you. Again, I thank you for hellping me, and I

hope

you continue to do well. There is another lady, that I met at the clinic.

she has scleoderma, and is doing so much better thanks to Dr. DeWet. Could

I give her your

e-mail address, I know it would help her. She is a very nice person.

rheumatic Update

> >

> > > Hello, All,

> > > I wanted to check in with you and update you on my progress. I just

> > > returned from Dr. DeWet's in Tyler, Texas, having undergone five days

of

> > > steady clindy treatments, three days of ascorbic acid ivs with added

> > > supplements, and one final day the following Monday of another iv of

DMPS

> > > to flush the high mercury out of this body. Needless to say, I am in a

> > > pretty good herx at this time but like before, I know there is light

at

> > the

> > > end of the tunnel having traveled this tunnel before.

> > > I do want to share the good news with you. My ANA is normal (I have

seen

> > > your message, @RTC and will respond to you privately, and know

this

> > is

> > > not always permanent but definitey a grand bit of news for me now. In

> > > addition, all three of my mycoplasms are GONE. And lastly, I am a full

> > > degree warmer body temperature than I was before. One degree makes an

> > > awfully lot of difference in terms of staying WARM. This was as

exciting

> > > as the other part of my news. Also, my hands have returned to warm

> > > again!!!

> > > Dr. DeWet believes my main symptoms now are the results of the high

> > > mercury level and we are progressing on getting rid of that. Because

I

> > > cannot do chelation, we will attempt to do the DMPS monthly for four

to

> > six

> > > more, continue the ONE clindy iv every two to three weeks, and, of

> > course,

> > > always do the Minocin/minocycline. In addition, I will attempt to have

a

> > > series of ascorbic acid iv's here in Billings, Montana while I am

waiting

> > > to return to Texas in three months for another go.

> > > I am thinking of all of you and reading as quickly as I can to catch

up on

> > > all of your news over the past weeks. But in the meantime, you keep

> > > writing....! Be well, love,

> > >

> > > --- Fain

> > > --- slfain@...

> > > --- EarthLink: It's your Internet.

> > >

> > > To unsubscribe, email: rheumatic-unsubscribeegroups

> > >

June 4, 2001

you might look into chelation for your father. Its great for circulation and

there is a book called Bypass Bypass that is very good on the subject. Glad

to hear you are doing well. kathy

rheumatic update

>Hi gang,

>

>I feel like I am racing into the end of the school year with my two kids,

>pheeewww! My daughter just had her first communion(that was in the morning)

>and then an hour later we were at her national gymnastics competition. Talk

>about throwing off this beautiful white dress she had on and munching in

the

>car on the way to her competition. That lasted until supper time and then

we

>all went to supper with the family to celebrate both events!

>

>Before that my dad had an angina attack which really got me nervous because

>he was in bad pain and refusing to take nitro! So, now he saw a

cardiologist

>and is doing a stress test to see for blockages and see if he needs another

>bypass operation. God forbid!

>

>Now this past Friday, I had done my fourth EPd desensitization treatment.

It

>is always like walking on eggs every time. BUT, this time, I made it

through

>without having to take any aminophyllin intravenous for my lungs, my heart

>raced just a bit with the other intravenous, so we stopped that one and the

>rest of the weekend went off like a dream. This is really amazing to make

it

>without any rock and roll.Oh and by the way, I just lost 10 pounds this

time

>around. Not too bad:)

>

>So, now I can concentrate on the rest and get the kids through their exams

>for the next three weeks.

>

>As for my AP, well I am doing the Biaxin and it is going well with that, no

>aches or pains.

>

>Hope all of you are doing well, hugs to you,

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

September 11, 2001

Dear ,

I believe Fibromyalgia is often just a symptom of infection with Mycoplasma

or various other bacteria. I am sure it is all part of the R.A. A lot of

these things seem to overlap. I would encourage you to hang in there with

the A.P. You might also look up www.chronicneurotoxins.com They use Questran

and anti-biotics. The Questran absorbs the toxins from the Herx and carries

them out in the stool. We have been on it for 11 days and it seems to be

working.

Good luck.

Rosemary.

rheumatic Update

> Hi all-

> It's been a long time since I've written, so I thought I'd update you

> on how I'm doing. I started AP in Feb. 2001, and in March I began the

> herx from hell. It has gradually improved, and though I am still not

> up to full speed, I am dealing with it all much better this time than

> any flares in the past. I am now up to 200mg Mino a day, and feeling

> hopeful that this treatment will work. Especially since I seem to have

> the classic two steps back and then a slow recovery. I have definately

> learned patience, and I think that is good. I am wondering if anyone

> else has had Fibromyalgia diagnosed after starting AP. I have just

> been diagnosed with fibro in addition to RA (which I have had 7

> yrs.)My RA docs in the past just said the fibro symptoms I had were

> part of the RA since they were faily mild, but since being on AP they

> have gotten as bothersome as the RA symptoms. I don't know if there is

> a relationship with the fibro abnd the Mino, or if it's just

> progressing on it's own. I hope this makes sense. Just wondering if

> anyone has had a similar experience, or has RA and Fibro together

> because I would like to know how you are treating it. Thanks so much

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

September 12, 2001

Thanks so much to all of you who responded to my e-mail. I will check

out the things you suggested. In the meantime, I am plugging away at

graduate school, and I just found out I got a scholarship! YEA!! I am

determined to not let this disease keep me from my dreams!!! I have

found that by persuing something I am passionate about, it is much

easier to work through the pain and sickness. Anyway...just wanted to

say thanks....and I don't know what I would have done without you all.

You have helped me begin to get my life back, and that is a wonderful

thing!

Hugs-

January 13, 2002

hey Minna,

It sounds very good. She is talking more and " relating " more to life.

Even at the sad parts. used to watch a Bugs Bunny cartoon

where the anvil falls on the person's head and pushes them through a

hole in the ground. would say, " anvils don't just fall from

the sky, and you wouldn't go into a hole, it would crack your head

open and you would be dead or go to the hospital. " Now he just laughs

and laughs at those shows. He also refuses to watch shows that are

possible dangerous such as that movie Mission to Mars. He says that

was the scariest movie he ever saw. Probably because it was real

enough with the space program that someone might actually be drifting

off into space.

Sounds like your son is ready for a higher dose, and your reaction is

very typical when you have a yeast problem. Maybe the GSE will help

here, too.

---Hey, you other guys with the yeast issues, are any of these

symptoms sound similar??

Take care,

.

January 13, 2002

> daughter is still doing good her her enzymes... and am thinking that

> perhaps only effect that have not mentioned before is that she is

EXTREMELY

> sensitive (emotionally).

I think this is a sign of food withdrawals, which is a good sign

because after a while she will do better. Hard to go thru it tho.

> son has started his enzymes and he seems to not be showing any

signs.... so

> will increase to half pill (gave him only 1/4) of each....

> mineself started the enzymes, and the probiotics....

> am very full of yeast obviously...

I had a systemic yeast issue recently, I had many of these signs, but

my most major sign was a nasty headache that made me non-functional

and crying for several days. I used GSE [grapefruit seed extract,

from health food store]. I put 5 drops in a glass of water, and my

headache was basically gone within 20 minutes. I had to drink several

of these glasses of water each day for the first week, but now I just

drink one glass w/GSE before each meal as a preventive. No more

headaches, very nice!

You can read about my kids' yeast issues here

http://www.autismchannel.net/dana/myson.htm#chelation

> am getting little 'eruptions' in some parts of skin, like little

absess

> type things.. dono if this is " normal " ....

This is normal for me if I eat a " bad food " , so probably similar for

you just starting enzymes.

Dana

March 13, 2002

,

Please share with us the name of the manufacturer of the generic

minocycline that gave you problems. Your pharmacist will be able to give

you that name.

Thank you in advance for your valuable input!

Sincerely, Harald

At 10:33 PM 03/12/2002 +0000, you wrote:

>... I went to several Dr.s about the nausea and vomitting but no one had

>any answers... and I suggested trying the Minocin instead of the generic.

>She agreed and switched the

>prescription and saying it was due to drug failure so that the insurance

>would cover it. I started it last friday and have been Nausea free for 5

>days!!!

March 13, 2002

,

Please be kind enough to resend your one-line message with a copy to

rheumatic so that we can all learn from your experience.

Thanks!

Sincerely, Harald

At 01:28 PM 03/13/2002 -0800, you wrote:

>It was the shein generic.

>

>>From: " Harald Weiss, Technical Marketing Group " <hw@...>

>> " rabbitrew " <rabbitrew@...>,rheumatic

>>Subject: Re: rheumatic Update

>>Date: Wed, 13 Mar 2002 07:21:07 -0800

>>

>>,

>>

>>Please share with us the name of the manufacturer of the generic

>>minocycline that gave you problems. Your pharmacist will be able to give

>>you that name.

>>

>>Thank you in advance for your valuable input!

>>

>>Sincerely, Harald

>>

>>At 10:33 PM 03/12/2002 +0000, you wrote:

>>

>>>... I went to several Dr.s about the nausea and vomitting but no one had

>>>any answers... and I suggested trying the Minocin instead of the generic.

>>>She agreed and switched the

>>>prescription and saying it was due to drug failure so that the insurance

>>>would cover it. I started it last friday and have been Nausea free for 5

>>>days!!!

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

March 14, 2002

>>It was the Shein generic.

>>

>>>From: " Harald Weiss, Technical Marketing Group " <hw@...>

>>> " rabbitrew " <rabbitrew@...>,rheumatic

>>>Subject: Re: rheumatic Update

>>>Date: Wed, 13 Mar 2002 07:21:07 -0800

>>>

>>>,

>>>

>>>Please share with us the name of the manufacturer of the generic

>>>minocycline that gave you problems. Your pharmacist will be able to give

>>>you that name.

>>>

>>>Thank you in advance for your valuable input!

>>>

>>>Sincerely, Harald

>>>

>>>At 10:33 PM 03/12/2002 +0000, you wrote:

>>>

>>>>... I went to several Dr.s about the nausea and vomitting (which had

>>>>been going on for more than a year) but no one had

>>>>any answers... and I suggested trying the Minocin instead of the

>>>>generic.

>>>>She agreed and switched the

>>>>prescription and saying it was due to drug failure so that the insurance

>>>>would cover it. I started it last friday and have been Nausea free for 5

>>>>days!!!

>>

>>_________________________________________________________________

>>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>>

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

June 11, 2002

Hi:

Thanks a lot Dana I gave my son 1/4 no-fenol and 1/2

zyme prime and 1 peptizide plus GSE and he seems to be

doing better. We restarted Peptizide and I have seen a

big difference I have been also giving him

Cullturelle.

Thanks,

__________________________________________________

January 25, 2003

> Dana and many others,

>

> Just wanted to thank you again for your help, advice, shared

> experiences, and prayers for my son.

Congratulations!! I am so glad to learn that is doing better.

Yep, violins are wonderful, aren't they?

=)

Dana

January 25, 2003

Maureen,

That is wonderful!! Horray for ! LOL the violin...

---

In , sheba <sheba2@e...> wrote:

> Dana and many others,

>

> Just wanted to thank you again for your help, advice, shared

> experiences, and prayers for my son.

>

> is home with us. He has had a semester in college.

Depression

> hindered his success. His mood is much better now.

>

> His new violin and his enzymes arrived on the same day. Many people

have

> commented on how much better he is.

>

> I heard, " He started getting better right after he got that new

violin. "

>

> LOL Yeah, it MUST have been the violin

>

> plans to return to school this fall. He takes violin

lessons,

> drives a car, and putters in his own workshop with his tools and

> machines. He will soon have a job in the city.

>

> Maureen

February 13, 2003

it could be yeast die off..

had the worst tantrumming, rage outbursts, and just plain

obnoxious, " makes-no-sense " behaviours with son when he started nf

and had huge yeast issues.

it got better. within a month.

sometimes flares up but good generally now.

minna

> well I have good and bad news!! I finally bit the dust and

increased

> Logan's no phenol to a full capsule. This really helped with the

> phenol issues. He had loose bowels one day and that was it. Less

> hyper less stimming.....wonderful. Then yesterday he tantrummed

> twice!! He hasn't tantrummed in at least 6 months. I forgot how

> tiring it was. So I don't know if this is the regression phase

> starting now or what. He has been on all 3 enzymes for 10 days

now.

> I fluctuate the pept. and zyme with what he is eating as the two

> together give him phenol reactions even with the increase in nf.

> Last night I seen he had broken out again in a rash. Is tantrumming

> part of yeast die off or what? I am still waitin on my gse to come

> and my magnesium too. The good news is he has been swallowing them

> whole with a bit of yogurt!! Much easier than trying to mix them

in

> drinks though I do still do that in the morning with his juice and

> for snack at school. Pray for me!! I don't miss the tantrumming

> phase at all and wish it hadn't come back :0(

February 17, 2003

YEAH!!!!!!!!!!!! Congrats

Mx

> Just wanted to post an update on my ds, we have been on pep since last

> weekend and doing great!!! This weekend we were able to reintroduce the

> zyme w/out the hyperness, and we have seen a much calmer, happier boy, with

> alot more speech comming out.

>

February 27, 2003

Wendi, What great news! Go Sky!!! You must be so proud. It's such a special

momment when you have a break thru with your child and can understand something

new. Their face lights up because they know you can actually understand them

and they are communicating with you. Boy, I want to cry too. I am soooo happy

to hear your good news! Take Care, Linette

" wendie <hwendie@...> " <hwendie@...> wrote:

Hi guys! I still feel new around here, it's taking awhile to

remember who everyone is & who is dealing w/what. I read all the

post everyday & it never fails I learn something new everyday. I

probably don't post as much as I should, but I feel like a lot of you

are more knowledgable about all of the things that pop up than I.

Anyway I just wanted to let you guys know my daughter, Sky, had her

O.T. eval w/E.I. yesterday. It was a lot easier this time around &

Sky will now be receiving O.T. & S.T. 1 x a week each for 1 hour.

The O.T. that did the eval confirmed her sensory issues & motor

planning issues. She had some great suggestions for me until O.T.

begins. It took about a month for us to get S.T. started after her

eval. I'm pretty happy with the eval & everything the O.T. had to

say. She was also encouraging us to go ahead w/Tomatis therapy too.

I was afraid she might have a negative reaction about us trying that

along w/regular therapy.

Sky had S.T. scheduled today, but wasn't cooperating so we decided we

weren't getting anywhere & stopped. She had a continuous tantrum for

almost 2 hours this afternoon! Our S.T. is going to try PECS(I think

that's the right name) next week. I think I've read where some of

you have tried this before, did it work or what are your feelings

about it?

Yesterday was a WONDERFUL day. Sky brought a container of Playdoh to

me & said " open " . She did this about 5 times in a row. It's the

first time she's said " open " (she's only had about 5 words for months

now). Later on she was tugging on my husband's pants & then she

began to whine. He couldn't figure out what she wanted, but then I

noticed she was hitting this big bouncy ball she has for therapy. I

told my husband she wants you to bounce her on the ball. Sky does

not point or lead you to what she wants or needs so this was just

amazing!! Then to top it off we were singing her favorite song

Wheels On The Bus & when we finished she did the sign for more &

said " more " . It didn't sound anything like more, but I knew that's

what she was saying. She did this about 6 times & by the 5th & 6th

time I was singing at the top of my lungs w/tears streaming down my

face. This is the first time Sky has attempted to communicate w/us

in a way we all understand each other. It was just great!!

We go next thursday to get her " official " dx from the Ped. Neuro. &

his team. I'm anxious to hear what they have to say. Sorry to

babble on, but so far this week has been the best week I've had in a

long time!

Wendie

February 27, 2003

Thanks Linette!!

Wendie

> Wendi, What great news! Go Sky!!! You must be so proud. It's

such a special momment when you have a break thru with your child and

can understand something new. Their face lights up because they know

you can actually understand them and they are communicating with

you. Boy, I want to cry too. I am soooo happy to hear your good

news! Take Care, Linette

March 12, 2003

In a message dated 3/12/03 10:28:10 AM Eastern Standard Time,

barb2743@... writes:

> In fact he is coming home on a three day pass this weekend ( Fri, Sat & Sun )

> I'm so nervous that something is going to go wrong, that somebody is going

> to set him off, or he will realize that he doesn't want to come home at

> all. I'm just going to keep positive and enjoy him while he is here. The

> treatment center is starting to get discharge services in place, wrap

> around services and day treatment services. We are trying to keep him out

> of the high school he was going to for the rest of the school year.

> Sending him back there would be like putting him in a lions den. Sorry to

> go on so, can you tell the stress is starting again? Barbara

>

Good luck Barbara! Tell us how it goes. Have you discussed the school

issues with his therapist to see about getting him into a different

placement?

Roxanna

Ã²Â¿Ã²

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

March 12, 2003

In a message dated 3/12/2003 12:29:36 PM Eastern Standard Time,

beitchazen@... writes:

> on the other hand his (girl)friend is here , and they are playing very

> nicely with electronics. an hour ago they were playing together in the

> computer, and she had her hand over his....... DOES IT START THIS EARLY

> ?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?

> (btw, I don't think he even realized she was doing so and why).......

NO NO I don't think that is normal for that age. I would inform M if

it happens again I would have him tell you.

March 12, 2003

In a message dated 3/12/03 12:29:25 PM Eastern Standard Time,

beitchazen@... writes:

> on the other hand his (girl)friend is here , and they are playing very

> nicely with electronics. an hour ago they were playing together in the

> computer, and she had her hand over his....... DOES IT START THIS EARLY

> ?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?

> (btw, I don't think he even realized she was doing so and why).......

>

Mattan's got a girlfriend...Mattan's got a girlfriend. LOL. I wonder if he

knows that? <G>

Roxanna

Ã²Â¿Ã²

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

March 12, 2003

> at m's school, the same nasty girl from last time has been

bothering him in the last 3 days (calling him names, making dirty

hand gestures, you get the picture),a dn today he cursed her back and

wrote her a nasty letter. of course, I am expecting trouble as he

can't prove she cursed him, but she now has a proof (his

letter)....... I keep telling him to simply get away form her. even

the teacher said she is not a nice person to be around and for the

most par he does get away from her. bu the said today he has had

it......

>

> on the other hand his (girl)friend is here , and they are playing

very nicely with electronics. an hour ago they were playing together

in the computer, and she had her hand over his....... DOES IT START

THIS EARLY ?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?!?

> (btw, I don't think he even realized she was doing so and

why).......

>

> yesterday he had a class-party and I was pleased to see he

participated in the games and that his teacher really pays attention

and makes sure everyone is included!

> F

Fania,

Yes, for some girls it really does start that early! LOL!

As for the trouble maker girl, that is a scary situation. We don't

want her to provoke M into doing something that will get him into

trouble. I wish I had a suggestion for you. But I'm thinking about

you.

Kathy

March 12, 2003

<<<<<<<<Mattan's got a girlfriend...Mattan's got a girlfriend. LOL. I

wonder if he

knows that? <G>>

sh.....sh...... he will kill me if he finds out I wrote this to you , lol

and no, I don't think he has a clue. he laughs when someone mentions

" girlfriend " and has no inkling that we are talking about *HIS* at least

potential one....... lol

at this stage it is just cute, maybe, but I really thought teenagehood was

far far away, and I guess it is not....... one thing fo rsure: no playing

behind closed doors,

F

March 13, 2003

Smart lady who does not wish to be a granny just yet...

S

Re: ( ) update

<<<<<<<<Mattan's got a girlfriend...Mattan's got a girlfriend. LOL. I

wonder if he

knows that? <G>>

sh.....sh...... he will kill me if he finds out I wrote this to you , lol

and no, I don't think he has a clue. he laughs when someone mentions

" girlfriend " and has no inkling that we are talking about *HIS* at least

potential one....... lol

at this stage it is just cute, maybe, but I really thought teenagehood was

far far away, and I guess it is not....... one thing fo rsure: no playing

behind closed doors,

F

March 13, 2003

Roxanna,

The problem is he is in PA and we live in DE so they are not familiar with what

is available in our area thats why we are looking into a day treatment program

for him to step down to. Hopefully whoever we work with here in DE will be

willing to help with school placement. We are also into the DE child mental

health program, so they will help also. I also have been thinking now is the

time to start looking for a advocate for him. Thanks Barbara

kneeleee@... wrote: In a message dated 3/12/03 10:28:10 AM Eastern Standard

Time,