Update

[Guest guest]

I was just thinking about you the other day and

wondered what the status was. I am glad that you have

gotten the answers you were looking for. I am

interested in the institute and this center the doctor

started. Definitely add that to the database for other

moms.

The casting is not as bad as you think. Just remember

to bring a bottle, pacifier or his favorite toy. It is

over before you know it.

--- jeffandmanon <jeffandmanon@...> wrote:

> I know it's been a few weeks since I've posted but

> I've been away and

> just came back from my second appointment this week

> for my sons plagio

> . I've gotten so much help from everyone on this

> board and would not

> be in the position I am right now if it were not for

> the guidance and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger

> Institute in Baltimore

> to meet with Dr. Trovato. She just started

> a research and

> development clinic there in January for

> plagiocephaly. We met with

> her and a physical therapist and they evaluated him

> for 2 hours. I

> finally had the answers I had been looking for. My

> son has moderate

> to severe brachycephaly with mild plagio and head

> tilt that they felt

> was not due to tort. They did recommend that if we

> decided to treat

> his brachy, that we do it now since he is going into

> his 8th month.

> They said that we should consider CranioSacral

> therapy along with the

> band and that we should start stretching exercises

> for his head tilt.

> So then off to CT this morning..... A 2 hour drive

> there but worth

> every minute. They also evaluated him and told us

> the same thing the

> doctor had. So all we have to wait for now is

> approval from our

> insurance company and will finally get his

> band. My husband and

> I felt so good about our decision to pursue this and

> where it has

> brought us. I'm a little freaked out about the

> casting process. The

> pictures of the process REALLY freaked me out. My

> son hates when

> anything is over his face so I can imagine what

> that's going to be

> like. I just have to tell myself that it's only a

> few minutes and it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our

> progress as we go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

>

>

>

>

__________________________________________________

[Guest guest]

I was just thinking about you the other day and

wondered what the status was. I am glad that you have

gotten the answers you were looking for. I am

interested in the institute and this center the doctor

started. Definitely add that to the database for other

moms.

The casting is not as bad as you think. Just remember

to bring a bottle, pacifier or his favorite toy. It is

over before you know it.

--- jeffandmanon <jeffandmanon@...> wrote:

> I know it's been a few weeks since I've posted but

> I've been away and

> just came back from my second appointment this week

> for my sons plagio

> . I've gotten so much help from everyone on this

> board and would not

> be in the position I am right now if it were not for

> the guidance and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger

> Institute in Baltimore

> to meet with Dr. Trovato. She just started

> a research and

> development clinic there in January for

> plagiocephaly. We met with

> her and a physical therapist and they evaluated him

> for 2 hours. I

> finally had the answers I had been looking for. My

> son has moderate

> to severe brachycephaly with mild plagio and head

> tilt that they felt

> was not due to tort. They did recommend that if we

> decided to treat

> his brachy, that we do it now since he is going into

> his 8th month.

> They said that we should consider CranioSacral

> therapy along with the

> band and that we should start stretching exercises

> for his head tilt.

> So then off to CT this morning..... A 2 hour drive

> there but worth

> every minute. They also evaluated him and told us

> the same thing the

> doctor had. So all we have to wait for now is

> approval from our

> insurance company and will finally get his

> band. My husband and

> I felt so good about our decision to pursue this and

> where it has

> brought us. I'm a little freaked out about the

> casting process. The

> pictures of the process REALLY freaked me out. My

> son hates when

> anything is over his face so I can imagine what

> that's going to be

> like. I just have to tell myself that it's only a

> few minutes and it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our

> progress as we go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

>

>

>

>

__________________________________________________

[Guest guest]

I'm glad that your Son was evaluated and that you are happy with your

decision to band and things are getting started. My Daughter didn't

have the casting, she was scanned at Hanger, but from what I've heard

about the casting... it's over before you know it and the baby won't

even remember it! Just take lollipops, toys, bottle, pacifier, etc.

to distract him.

Good luck with the casting and the fitting. Let us know how it all

goes!

Jen

(11 mo), tort resolved, Hanger Band Grad

(3 years)

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to treat

> his brachy, that we do it now since he is going into his 8th month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

I'm glad that your Son was evaluated and that you are happy with your

decision to band and things are getting started. My Daughter didn't

have the casting, she was scanned at Hanger, but from what I've heard

about the casting... it's over before you know it and the baby won't

even remember it! Just take lollipops, toys, bottle, pacifier, etc.

to distract him.

Good luck with the casting and the fitting. Let us know how it all

goes!

Jen

(11 mo), tort resolved, Hanger Band Grad

(3 years)

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to treat

> his brachy, that we do it now since he is going into his 8th month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

Manon,

I'm so glad to hear that you will getting treatment. Don't worry too

much about the casting process, it's not that bad. The stockingette

that put over the face they can actually see through so it doesn't

bother them usually. Keep us posted on how it goes.

CAROLG

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to treat

> his brachy, that we do it now since he is going into his 8th month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

Manon,

I'm so glad to hear that you will getting treatment. Don't worry too

much about the casting process, it's not that bad. The stockingette

that put over the face they can actually see through so it doesn't

bother them usually. Keep us posted on how it goes.

CAROLG

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to treat

> his brachy, that we do it now since he is going into his 8th month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

I was wondering when you were coming back! Sounds like the new

doctor you found was great! I'm glad you didn't waste your time

with Dr. Carson. The casting isn't soo bad, many babies don't even

cry. The part that goes over the eyes is see through, so he'll be

able to see you the whole time. Bring a bottle, lollipop, and

pacifier if he likes one. It's very quick at least. As Hannah got

older the castings were easier than doing the pictures (as you can

see if you've ever looked at the progress pics on her website!!!),

lol. Keep us posted.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has

moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to

treat

> his brachy, that we do it now since he is going into his 8th

month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

I was wondering when you were coming back! Sounds like the new

doctor you found was great! I'm glad you didn't waste your time

with Dr. Carson. The casting isn't soo bad, many babies don't even

cry. The part that goes over the eyes is see through, so he'll be

able to see you the whole time. Bring a bottle, lollipop, and

pacifier if he likes one. It's very quick at least. As Hannah got

older the castings were easier than doing the pictures (as you can

see if you've ever looked at the progress pics on her website!!!),

lol. Keep us posted.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> I know it's been a few weeks since I've posted but I've been away

and

> just came back from my second appointment this week for my sons

plagio

> . I've gotten so much help from everyone on this board and would

not

> be in the position I am right now if it were not for the guidance

and

> support of this group. Thanks so very much :-)

> Anyway, we started on Monday at Kennedy Krieger Institute in

Baltimore

> to meet with Dr. Trovato. She just started a research and

> development clinic there in January for plagiocephaly. We met with

> her and a physical therapist and they evaluated him for 2 hours. I

> finally had the answers I had been looking for. My son has

moderate

> to severe brachycephaly with mild plagio and head tilt that they

felt

> was not due to tort. They did recommend that if we decided to

treat

> his brachy, that we do it now since he is going into his 8th

month.

> They said that we should consider CranioSacral therapy along with

the

> band and that we should start stretching exercises for his head

tilt.

> So then off to CT this morning..... A 2 hour drive there but worth

> every minute. They also evaluated him and told us the same thing

the

> doctor had. So all we have to wait for now is approval from our

> insurance company and will finally get his band. My husband

and

> I felt so good about our decision to pursue this and where it has

> brought us. I'm a little freaked out about the casting process.

The

> pictures of the process REALLY freaked me out. My son hates when

> anything is over his face so I can imagine what that's going to be

> like. I just have to tell myself that it's only a few minutes and

it

> well worth it.... :-)

> Thanks again for everything and I'll be posting our progress as we

go

> along.

>

> Manon

> Mom to

> Brachy/seeking treatment

[Guest guest]

I'm glad to hear everyone saying the casting isn't too

bad. It makes me feel better :-). CT called me today

to tell me that my insurance will cover 50% of the

treatment cost. I guess it's better then nothing. We

haven't gotten approval yet but they said we will know

by next week. So things are moving along well! :-)

I mentioned Dr. Carson to the Dr. we met with and she

and the PT looked at each other and smirked. So I was

so happy that someone gave the heads up before we

wated out time.

Anyway, I'll keep everyone posted!

:-)

--- <sarahhollis@...> wrote:

> I was wondering when you were coming back! Sounds

> like the new

> doctor you found was great! I'm glad you didn't

> waste your time

> with Dr. Carson. The casting isn't soo bad, many

> babies don't even

> cry. The part that goes over the eyes is see

> through, so he'll be

> able to see you the whole time. Bring a bottle,

> lollipop, and

> pacifier if he likes one. It's very quick at least.

> As Hannah got

> older the castings were easier than doing the

> pictures (as you can

> see if you've ever looked at the progress pics on

> her website!!!),

> lol. Keep us posted.

> , mom to Hannah, DOCgrad

> Cape Cod, Ma

> http://hannahsnoggin.typepad.com

>

>

>

> > I know it's been a few weeks since I've posted but

> I've been away

> and

> > just came back from my second appointment this

> week for my sons

> plagio

> > . I've gotten so much help from everyone on this

> board and would

> not

> > be in the position I am right now if it were not

> for the guidance

> and

> > support of this group. Thanks so very much :-)

> > Anyway, we started on Monday at Kennedy Krieger

> Institute in

> Baltimore

> > to meet with Dr. Trovato. She just

> started a research and

> > development clinic there in January for

> plagiocephaly. We met with

> > her and a physical therapist and they evaluated

> him for 2 hours. I

> > finally had the answers I had been looking for.

> My son has

> moderate

> > to severe brachycephaly with mild plagio and head

> tilt that they

> felt

> > was not due to tort. They did recommend that if

> we decided to

> treat

> > his brachy, that we do it now since he is going

> into his 8th

> month.

> > They said that we should consider CranioSacral

> therapy along with

> the

> > band and that we should start stretching exercises

> for his head

> tilt.

> > So then off to CT this morning..... A 2 hour drive

> there but worth

> > every minute. They also evaluated him and told us

> the same thing

> the

> > doctor had. So all we have to wait for now is

> approval from our

> > insurance company and will finally get his

> band. My husband

> and

> > I felt so good about our decision to pursue this

> and where it has

> > brought us. I'm a little freaked out about the

> casting process.

> The

> > pictures of the process REALLY freaked me out. My

> son hates when

> > anything is over his face so I can imagine what

> that's going to be

> > like. I just have to tell myself that it's only a

> few minutes and

> it

> > well worth it.... :-)

> > Thanks again for everything and I'll be posting

> our progress as we

> go

> > along.

> >

> > Manon

> > Mom to

> > Brachy/seeking treatment

>

>

>

Manon

Mom to T.

Brachy/seeking treatment

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.

[Guest guest]

I'm glad to hear everyone saying the casting isn't too

bad. It makes me feel better :-). CT called me today

to tell me that my insurance will cover 50% of the

treatment cost. I guess it's better then nothing. We

haven't gotten approval yet but they said we will know

by next week. So things are moving along well! :-)

I mentioned Dr. Carson to the Dr. we met with and she

and the PT looked at each other and smirked. So I was

so happy that someone gave the heads up before we

wated out time.

Anyway, I'll keep everyone posted!

:-)

--- <sarahhollis@...> wrote:

> I was wondering when you were coming back! Sounds

> like the new

> doctor you found was great! I'm glad you didn't

> waste your time

> with Dr. Carson. The casting isn't soo bad, many

> babies don't even

> cry. The part that goes over the eyes is see

> through, so he'll be

> able to see you the whole time. Bring a bottle,

> lollipop, and

> pacifier if he likes one. It's very quick at least.

> As Hannah got

> older the castings were easier than doing the

> pictures (as you can

> see if you've ever looked at the progress pics on

> her website!!!),

> lol. Keep us posted.

> , mom to Hannah, DOCgrad

> Cape Cod, Ma

> http://hannahsnoggin.typepad.com

>

>

>

> > I know it's been a few weeks since I've posted but

> I've been away

> and

> > just came back from my second appointment this

> week for my sons

> plagio

> > . I've gotten so much help from everyone on this

> board and would

> not

> > be in the position I am right now if it were not

> for the guidance

> and

> > support of this group. Thanks so very much :-)

> > Anyway, we started on Monday at Kennedy Krieger

> Institute in

> Baltimore

> > to meet with Dr. Trovato. She just

> started a research and

> > development clinic there in January for

> plagiocephaly. We met with

> > her and a physical therapist and they evaluated

> him for 2 hours. I

> > finally had the answers I had been looking for.

> My son has

> moderate

> > to severe brachycephaly with mild plagio and head

> tilt that they

> felt

> > was not due to tort. They did recommend that if

> we decided to

> treat

> > his brachy, that we do it now since he is going

> into his 8th

> month.

> > They said that we should consider CranioSacral

> therapy along with

> the

> > band and that we should start stretching exercises

> for his head

> tilt.

> > So then off to CT this morning..... A 2 hour drive

> there but worth

> > every minute. They also evaluated him and told us

> the same thing

> the

> > doctor had. So all we have to wait for now is

> approval from our

> > insurance company and will finally get his

> band. My husband

> and

> > I felt so good about our decision to pursue this

> and where it has

> > brought us. I'm a little freaked out about the

> casting process.

> The

> > pictures of the process REALLY freaked me out. My

> son hates when

> > anything is over his face so I can imagine what

> that's going to be

> > like. I just have to tell myself that it's only a

> few minutes and

> it

> > well worth it.... :-)

> > Thanks again for everything and I'll be posting

> our progress as we

> go

> > along.

> >

> > Manon

> > Mom to

> > Brachy/seeking treatment

>

>

>

Manon

Mom to T.

Brachy/seeking treatment

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.

[Guest guest]

I was going to go ahead and add her name to the

database but I didn't know if I can do it or someone

else was in charge of updating it. Who else is close

to my area in this group? I saw a name on the sign up

sheet at CT that sounded familiar to me when we went

there on the 29th. I think it was Shaunt but can't be

sure.

--- pennylac <pennylac@...> wrote:

> I was just thinking about you the other day and

> wondered what the status was. I am glad that you

> have

> gotten the answers you were looking for. I am

> interested in the institute and this center the

> doctor

> started. Definitely add that to the database for

> other

> moms.

>

> The casting is not as bad as you think. Just

> remember

> to bring a bottle, pacifier or his favorite toy. It

> is

> over before you know it.

>

> --- jeffandmanon <jeffandmanon@...> wrote:

>

> > I know it's been a few weeks since I've posted but

> > I've been away and

> > just came back from my second appointment this

> week

> > for my sons plagio

> > . I've gotten so much help from everyone on this

> > board and would not

> > be in the position I am right now if it were not

> for

> > the guidance and

> > support of this group. Thanks so very much :-)

> > Anyway, we started on Monday at Kennedy Krieger

> > Institute in Baltimore

> > to meet with Dr. Trovato. She just

> started

> > a research and

> > development clinic there in January for

> > plagiocephaly. We met with

> > her and a physical therapist and they evaluated

> him

> > for 2 hours. I

> > finally had the answers I had been looking for.

> My

> > son has moderate

> > to severe brachycephaly with mild plagio and head

> > tilt that they felt

> > was not due to tort. They did recommend that if

> we

> > decided to treat

> > his brachy, that we do it now since he is going

> into

> > his 8th month.

> > They said that we should consider CranioSacral

> > therapy along with the

> > band and that we should start stretching exercises

> > for his head tilt.

> > So then off to CT this morning..... A 2 hour drive

> > there but worth

> > every minute. They also evaluated him and told us

> > the same thing the

> > doctor had. So all we have to wait for now is

> > approval from our

> > insurance company and will finally get his

> > band. My husband and

> > I felt so good about our decision to pursue this

> and

> > where it has

> > brought us. I'm a little freaked out about the

> > casting process. The

> > pictures of the process REALLY freaked me out. My

> > son hates when

> > anything is over his face so I can imagine what

> > that's going to be

> > like. I just have to tell myself that it's only a

> > few minutes and it

> > well worth it.... :-)

> > Thanks again for everything and I'll be posting

> our

> > progress as we go

> > along.

> >

> > Manon

> > Mom to

> > Brachy/seeking treatment

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

I was going to go ahead and add her name to the

database but I didn't know if I can do it or someone

else was in charge of updating it. Who else is close

to my area in this group? I saw a name on the sign up

sheet at CT that sounded familiar to me when we went

there on the 29th. I think it was Shaunt but can't be

sure.

--- pennylac <pennylac@...> wrote:

> I was just thinking about you the other day and

> wondered what the status was. I am glad that you

> have

> gotten the answers you were looking for. I am

> interested in the institute and this center the

> doctor

> started. Definitely add that to the database for

> other

> moms.

>

> The casting is not as bad as you think. Just

> remember

> to bring a bottle, pacifier or his favorite toy. It

> is

> over before you know it.

>

> --- jeffandmanon <jeffandmanon@...> wrote:

>

> > I know it's been a few weeks since I've posted but

> > I've been away and

> > just came back from my second appointment this

> week

> > for my sons plagio

> > . I've gotten so much help from everyone on this

> > board and would not

> > be in the position I am right now if it were not

> for

> > the guidance and

> > support of this group. Thanks so very much :-)

> > Anyway, we started on Monday at Kennedy Krieger

> > Institute in Baltimore

> > to meet with Dr. Trovato. She just

> started

> > a research and

> > development clinic there in January for

> > plagiocephaly. We met with

> > her and a physical therapist and they evaluated

> him

> > for 2 hours. I

> > finally had the answers I had been looking for.

> My

> > son has moderate

> > to severe brachycephaly with mild plagio and head

> > tilt that they felt

> > was not due to tort. They did recommend that if

> we

> > decided to treat

> > his brachy, that we do it now since he is going

> into

> > his 8th month.

> > They said that we should consider CranioSacral

> > therapy along with the

> > band and that we should start stretching exercises

> > for his head tilt.

> > So then off to CT this morning..... A 2 hour drive

> > there but worth

> > every minute. They also evaluated him and told us

> > the same thing the

> > doctor had. So all we have to wait for now is

> > approval from our

> > insurance company and will finally get his

> > band. My husband and

> > I felt so good about our decision to pursue this

> and

> > where it has

> > brought us. I'm a little freaked out about the

> > casting process. The

> > pictures of the process REALLY freaked me out. My

> > son hates when

> > anything is over his face so I can imagine what

> > that's going to be

> > like. I just have to tell myself that it's only a

> > few minutes and it

> > well worth it.... :-)

> > Thanks again for everything and I'll be posting

> our

> > progress as we go

> > along.

> >

> > Manon

> > Mom to

> > Brachy/seeking treatment

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

> >

> > > I know it's been a few weeks since I've posted but

> > > I've been away and

> > > just came back from my second appointment this

> > week

> > > for my sons plagio

> > > . I've gotten so much help from everyone on this

> > > board and would not

> > > be in the position I am right now if it were not

> > for

> > > the guidance and

> > > support of this group. Thanks so very much :-)

> > > Anyway, we started on Monday at Kennedy Krieger

> > > Institute in Baltimore

> > > to meet with Dr. Trovato. She just

> > started

> > > a research and

> > > development clinic there in January for

> > > plagiocephaly. We met with

> > > her and a physical therapist and they evaluated

> > him

> > > for 2 hours. I

> > > finally had the answers I had been looking for.

> > My

> > > son has moderate

> > > to severe brachycephaly with mild plagio and head

> > > tilt that they felt

> > > was not due to tort. They did recommend that if

> > we

> > > decided to treat

> > > his brachy, that we do it now since he is going

> > into

> > > his 8th month.

> > > They said that we should consider CranioSacral

> > > therapy along with the

> > > band and that we should start stretching exercises

> > > for his head tilt.

> > > So then off to CT this morning..... A 2 hour drive

> > > there but worth

> > > every minute. They also evaluated him and told us

> > > the same thing the

> > > doctor had. So all we have to wait for now is

> > > approval from our

> > > insurance company and will finally get his

> > > band. My husband and

> > > I felt so good about our decision to pursue this

> > and

> > > where it has

> > > brought us. I'm a little freaked out about the

> > > casting process. The

> > > pictures of the process REALLY freaked me out. My

> > > son hates when

> > > anything is over his face so I can imagine what

> > > that's going to be

> > > like. I just have to tell myself that it's only a

> > > few minutes and it

> > > well worth it.... :-)

> > > Thanks again for everything and I'll be posting

> > our

> > > progress as we go

> > > along.

> > >

> > > Manon

> > > Mom to

> > > Brachy/seeking treatment

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

> >

> > > I know it's been a few weeks since I've posted but

> > > I've been away and

> > > just came back from my second appointment this

> > week

> > > for my sons plagio

> > > . I've gotten so much help from everyone on this

> > > board and would not

> > > be in the position I am right now if it were not

> > for

> > > the guidance and

> > > support of this group. Thanks so very much :-)

> > > Anyway, we started on Monday at Kennedy Krieger

> > > Institute in Baltimore

> > > to meet with Dr. Trovato. She just

> > started

> > > a research and

> > > development clinic there in January for

> > > plagiocephaly. We met with

> > > her and a physical therapist and they evaluated

> > him

> > > for 2 hours. I

> > > finally had the answers I had been looking for.

> > My

> > > son has moderate

> > > to severe brachycephaly with mild plagio and head

> > > tilt that they felt

> > > was not due to tort. They did recommend that if

> > we

> > > decided to treat

> > > his brachy, that we do it now since he is going

> > into

> > > his 8th month.

> > > They said that we should consider CranioSacral

> > > therapy along with the

> > > band and that we should start stretching exercises

> > > for his head tilt.

> > > So then off to CT this morning..... A 2 hour drive

> > > there but worth

> > > every minute. They also evaluated him and told us

> > > the same thing the

> > > doctor had. So all we have to wait for now is

> > > approval from our

> > > insurance company and will finally get his

> > > band. My husband and

> > > I felt so good about our decision to pursue this

> > and

> > > where it has

> > > brought us. I'm a little freaked out about the

> > > casting process. The

> > > pictures of the process REALLY freaked me out. My

> > > son hates when

> > > anything is over his face so I can imagine what

> > > that's going to be

> > > like. I just have to tell myself that it's only a

> > > few minutes and it

> > > well worth it.... :-)

> > > Thanks again for everything and I'll be posting

> > our

> > > progress as we go

> > > along.

> > >

> > > Manon

> > > Mom to

> > > Brachy/seeking treatment

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Opps, I left it blank on the previous message. Manon, your dr. is

wonderful. I looked up their website and that clinic looks great. I

also e-mailed Dr. Trovato and she e-mailed me right back and gave me

some advice about our situation. She was wonderful. Your in good

hands there. I hope that more hospitals open clinics like theirs.

Keep us posted. Debbie and Brielle

> > >

> > > > I know it's been a few weeks since I've posted but

> > > > I've been away and

> > > > just came back from my second appointment this

> > > week

> > > > for my sons plagio

> > > > . I've gotten so much help from everyone on this

> > > > board and would not

> > > > be in the position I am right now if it were not

> > > for

> > > > the guidance and

> > > > support of this group. Thanks so very much :-)

> > > > Anyway, we started on Monday at Kennedy Krieger

> > > > Institute in Baltimore

> > > > to meet with Dr. Trovato. She just

> > > started

> > > > a research and

> > > > development clinic there in January for

> > > > plagiocephaly. We met with

> > > > her and a physical therapist and they evaluated

> > > him

> > > > for 2 hours. I

> > > > finally had the answers I had been looking for.

> > > My

> > > > son has moderate

> > > > to severe brachycephaly with mild plagio and head

> > > > tilt that they felt

> > > > was not due to tort. They did recommend that if

> > > we

> > > > decided to treat

> > > > his brachy, that we do it now since he is going

> > > into

> > > > his 8th month.

> > > > They said that we should consider CranioSacral

> > > > therapy along with the

> > > > band and that we should start stretching exercises

> > > > for his head tilt.

> > > > So then off to CT this morning..... A 2 hour drive

> > > > there but worth

> > > > every minute. They also evaluated him and told us

> > > > the same thing the

> > > > doctor had. So all we have to wait for now is

> > > > approval from our

> > > > insurance company and will finally get his

> > > > band. My husband and

> > > > I felt so good about our decision to pursue this

> > > and

> > > > where it has

> > > > brought us. I'm a little freaked out about the

> > > > casting process. The

> > > > pictures of the process REALLY freaked me out. My

> > > > son hates when

> > > > anything is over his face so I can imagine what

> > > > that's going to be

> > > > like. I just have to tell myself that it's only a

> > > > few minutes and it

> > > > well worth it.... :-)

> > > > Thanks again for everything and I'll be posting

> > > our

> > > > progress as we go

> > > > along.

> > > >

> > > > Manon

> > > > Mom to

> > > > Brachy/seeking treatment

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Opps, I left it blank on the previous message. Manon, your dr. is

wonderful. I looked up their website and that clinic looks great. I

also e-mailed Dr. Trovato and she e-mailed me right back and gave me

some advice about our situation. She was wonderful. Your in good

hands there. I hope that more hospitals open clinics like theirs.

Keep us posted. Debbie and Brielle

> > >

> > > > I know it's been a few weeks since I've posted but

> > > > I've been away and

> > > > just came back from my second appointment this

> > > week

> > > > for my sons plagio

> > > > . I've gotten so much help from everyone on this

> > > > board and would not

> > > > be in the position I am right now if it were not

> > > for

> > > > the guidance and

> > > > support of this group. Thanks so very much :-)

> > > > Anyway, we started on Monday at Kennedy Krieger

> > > > Institute in Baltimore

> > > > to meet with Dr. Trovato. She just

> > > started

> > > > a research and

> > > > development clinic there in January for

> > > > plagiocephaly. We met with

> > > > her and a physical therapist and they evaluated

> > > him

> > > > for 2 hours. I

> > > > finally had the answers I had been looking for.

> > > My

> > > > son has moderate

> > > > to severe brachycephaly with mild plagio and head

> > > > tilt that they felt

> > > > was not due to tort. They did recommend that if

> > > we

> > > > decided to treat

> > > > his brachy, that we do it now since he is going

> > > into

> > > > his 8th month.

> > > > They said that we should consider CranioSacral

> > > > therapy along with the

> > > > band and that we should start stretching exercises

> > > > for his head tilt.

> > > > So then off to CT this morning..... A 2 hour drive

> > > > there but worth

> > > > every minute. They also evaluated him and told us

> > > > the same thing the

> > > > doctor had. So all we have to wait for now is

> > > > approval from our

> > > > insurance company and will finally get his

> > > > band. My husband and

> > > > I felt so good about our decision to pursue this

> > > and

> > > > where it has

> > > > brought us. I'm a little freaked out about the

> > > > casting process. The

> > > > pictures of the process REALLY freaked me out. My

> > > > son hates when

> > > > anything is over his face so I can imagine what

> > > > that's going to be

> > > > like. I just have to tell myself that it's only a

> > > > few minutes and it

> > > > well worth it.... :-)

> > > > Thanks again for everything and I'll be posting

> > > our

> > > > progress as we go

> > > > along.

> > > >

> > > > Manon

> > > > Mom to

> > > > Brachy/seeking treatment

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

I'm glad you were able to get in touch with her. She

really is wonderful and her phone number is also on

the website and she'll call you right back if you want

to give her a call about anything at all regarding

your daughter. Where do you live??

--- Deborah B <aguinesslover@...> wrote:

> Opps, I left it blank on the previous message.

> Manon, your dr. is

> wonderful. I looked up their website and that

> clinic looks great. I

> also e-mailed Dr. Trovato and she e-mailed me right

> back and gave me

> some advice about our situation. She was wonderful.

> Your in good

> hands there. I hope that more hospitals open

> clinics like theirs.

> Keep us posted. Debbie and Brielle

>

>

>

> > > >

> > > > > I know it's been a few weeks since I've

> posted but

> > > > > I've been away and

> > > > > just came back from my second appointment

> this

> > > > week

> > > > > for my sons plagio

> > > > > . I've gotten so much help from everyone on

> this

> > > > > board and would not

> > > > > be in the position I am right now if it were

> not

> > > > for

> > > > > the guidance and

> > > > > support of this group. Thanks so very much

> :-)

> > > > > Anyway, we started on Monday at Kennedy

> Krieger

> > > > > Institute in Baltimore

> > > > > to meet with Dr. Trovato. She just

> > > > started

> > > > > a research and

> > > > > development clinic there in January for

> > > > > plagiocephaly. We met with

> > > > > her and a physical therapist and they

> evaluated

> > > > him

> > > > > for 2 hours. I

> > > > > finally had the answers I had been looking

> for.

> > > > My

> > > > > son has moderate

> > > > > to severe brachycephaly with mild plagio and

> head

> > > > > tilt that they felt

> > > > > was not due to tort. They did recommend

> that if

> > > > we

> > > > > decided to treat

> > > > > his brachy, that we do it now since he is

> going

> > > > into

> > > > > his 8th month.

> > > > > They said that we should consider

> CranioSacral

> > > > > therapy along with the

> > > > > band and that we should start stretching

> exercises

> > > > > for his head tilt.

> > > > > So then off to CT this morning..... A 2 hour

> drive

> > > > > there but worth

> > > > > every minute. They also evaluated him and

> told us

> > > > > the same thing the

> > > > > doctor had. So all we have to wait for now

> is

> > > > > approval from our

> > > > > insurance company and will finally

> get his

> > > > > band. My husband and

> > > > > I felt so good about our decision to pursue

> this

> > > > and

> > > > > where it has

> > > > > brought us. I'm a little freaked out about

> the

> > > > > casting process. The

> > > > > pictures of the process REALLY freaked me

> out. My

> > > > > son hates when

> > > > > anything is over his face so I can imagine

> what

> > > > > that's going to be

> > > > > like. I just have to tell myself that it's

> only a

> > > > > few minutes and it

> > > > > well worth it.... :-)

> > > > > Thanks again for everything and I'll be

> posting

> > > > our

> > > > > progress as we go

> > > > > along.

> > > > >

> > > > > Manon

> > > > > Mom to

> > > > > Brachy/seeking treatment

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> __________________________________________________

> > > >

[Guest guest]

Hi Manon,

Good to hear from you. Doesn't it feel good when the Dr and the ortho agree on treatment! Casting is really not that bad. Yes, he probably will be mad. na was very mad during casting the first 2 times (she was casted 3 times - 2 bands and an exit cast). It made it easier since I could tell it was a mad cry and not I'm scared or hurt. For her exit cast we gave her a lollipop - oh what a wonderful thing. She was fine as long as it was in her mouth. Get one that is very secure on the stick - not a DUM DUM pop. There are pictures on our website ...

http://www.thefilyaws.com/Album%20to%20publish/exitcast.html

Good luck.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.comjeffandmanon <jeffandmanon@...> wrote:

I know it's been a few weeks since I've posted but I've been away andjust came back from my second appointment this week for my sons plagio. I've gotten so much help from everyone on this board and would notbe in the position I am right now if it were not for the guidance andsupport of this group. Thanks so very much :-)Anyway, we started on Monday at Kennedy Krieger Institute in Baltimoreto meet with Dr. Trovato. She just started a research anddevelopment clinic there in January for plagiocephaly. We met withher and a physical therapist and they evaluated him for 2 hours. Ifinally had the answers I had been looking for. My son has moderateto severe brachycephaly with mild plagio and head tilt that they feltwas not due to tort. They did recommend that if we decided to treathis brachy,

that we do it now since he is going into his 8th month. They said that we should consider CranioSacral therapy along with theband and that we should start stretching exercises for his head tilt. So then off to CT this morning..... A 2 hour drive there but worthevery minute. They also evaluated him and told us the same thing thedoctor had. So all we have to wait for now is approval from ourinsurance company and will finally get his band. My husband andI felt so good about our decision to pursue this and where it hasbrought us. I'm a little freaked out about the casting process. Thepictures of the process REALLY freaked me out. My son hates whenanything is over his face so I can imagine what that's going to belike. I just have to tell myself that it's only a few minutes and itwell worth it.... :-)Thanks again for everything and I'll be posting our progress as we

goalong.ManonMom to Brachy/seeking treatmentFor more plagio info

[Guest guest]

(((Tess))))

I'm so sorry that your having such a difficult time right now. You

have had a rough time, and I just keep praying that things will heal,

and you will be well. I can understand how this ways heavy on your

emotions. Your always here for all of us, and always know that your

I'm here for you. We usually can always tell when one isn't feeling

well, we don't hear from them. So, please don't apologize when you

don't feel like posting, we understand. I love you Tess, and will

continue prayers for you. A big hug, Tawny

>

> > WOW!

> >

> > 5 years ago I went through all kinds of testing, even an MRI

of my

> > brain stem trying to find out why I have muffled hearing, I'm

missing

> > some tones, some bad tinnitus and sometimes have a hard time

making

> > out what people are saying (mine is particularly bad in spring

and

> > high humidity -- the worst times for my RA). Most of the time

I can

> > hear sounds inside my head, including my eyes moving back and

forth

> > (it took me years to link that sound with the movement of my

eyes).

> > It's not disabling, but annoying!

> >

> > No one, including the Arthritis Foundation could tell me about

any

> > link to RA. Thank you a for this information!!!!!!!!

> >

> > Sure it doesn't mean there's anything I can do, but nice to

know I'm

> > not crazy or that it's not age related (had it since about 35,

43

> > now).

> >

> > Sharon

>

>

[Guest guest]

Tess,

I'm sorry you're hurting so much Tess. I know you must be counting

the days until the hernia surgery is done. I'm guessing that they will

remove the adhesions at the same time? Is there anything the doctors

can do to give you some relief until your surgery?

Hang in there sweetie.

a

On Jul 6, 2005, at 11:00 AM, Grammi B wrote:

> Hi Friends...I'm sorry I have not been here to support folks much

> lately.  Please know you are all in my heart and in my prayers.

>

> I am still struggling with the abdominal craziness.  The hernia is

> problamatic, but complicated by problems just discovered with

> adhesions amassed on the underside of my belly wall, and impaction,

> though I have a BM everyday.  I feel crummy, and am discouraged.  The

> RA and PsA are doing so-so, that is a plus.

>

> Love.

>

[Guest guest]

Glen, thanks so much for the update, wish we were there to lend a

hand if yall need it..we will continue to keep yall in our prayers.

Jane

> Hi everyone,

> There isn't much to report today. is still stable yet sedated.

> The doctors wants to keep her that way until they can clear the

> infection. Yhey do have her on high doses of pain medications

because

> she is in obvious pain. They have her off of all her medication for

> her RA. I will let you know as soon as there are changes.Thank you

for

> your prayers and well wishes.

> Sincerely,

> Glen

[Guest guest]

Amber,

This same thing happens to my son everytime I treat for yeast. I think that it

is bad bacteria especially if his poop is chemically smelling and his behavior

becomes a bit oppositional.

Yeast and bacteria have a ratio relationship. As the yeast dies, the bacteria

overgrows and vise versa. I think that the homepopathy notions of the body's

bioterrain makes so much sense.

In about 6 days I get Keyon's test results and will tell you what causes my

son to only get formed poops for one or two days and then back to mush. I

wonder if it helps to give both probiotics as well as beneficial yeast to

maintain the ballence of the gut. I think this is what is in Threelac but need

to do more research.

Will keep you posted.

Best,

Haleh

--- kennetheriklucy <eislerfamily@...> wrote:

> Well, his poop is getting mushy, again.

> And, last night, he woke up around 1:00am, was up for about 2 hours,

> and went back to sleep. I haven't fed him anything different, why would

> he improve for 3 days, and go back?

> Could it be to much fat or potatoes in his diet?

> Last night was my youngest daughters 3rd birthday, and for supper I

> made her favorite foods- potatoes and gravy, and sweet potatoes.

> Any thoughts?

>

>

>

>

[Guest guest]

> Well, his poop is getting mushy, again.

> And, last night, he woke up around 1:00am, was up for about 2 hours,

> and went back to sleep. I haven't fed him anything different, why would

> he improve for 3 days, and go back?

> Could it be to much fat or potatoes in his diet?

> Last night was my youngest daughters 3rd birthday, and for supper I

> made her favorite foods- potatoes and gravy, and sweet potatoes.

> Any thoughts?

Sweet potatoes, being orange, really set off my son, even with enzymes.

Dana

[Guest guest]

So, would carrots do the same thing? They're also orange. What other foods

would do that??

What is it about an orange food that reacts with people??

On 1/29/06, danasview <danasview@...> wrote:

>

>

> > Well, his poop is getting mushy, again.

> > And, last night, he woke up around 1:00am, was up for about 2 hours,

> > and went back to sleep. I haven't fed him anything different, why would

> > he improve for 3 days, and go back?

> > Could it be to much fat or potatoes in his diet?

> > Last night was my youngest daughters 3rd birthday, and for supper I

> > made her favorite foods- potatoes and gravy, and sweet potatoes.

> > Any thoughts?

>

>

> Sweet potatoes, being orange, really set off my son, even with enzymes.

>

> Dana

>

>

>

>

>

>

>

[Guest guest]

>

> So, would carrots do the same thing? They're also orange. What other

foods

> would do that??

> What is it about an orange food that reacts with people??

Carrots and oranges were the WORST, but any orange or green food, and

many red and yellow foods, were really nasty for my son, even with

enzymes.

It was because his body did not convert carotenes. That problem was

eliminated with ALA chelation, selenium, and a few other supplements.

Dana