Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 What exactly would your son do when he ate one of those foods? I am trying to identify food reactions as opposed to die-off reactions. If you eliminated orange, green, red, and yellow foods from his diet, what did you feed him mostly? On 1/29/06, danasview <danasview@...> wrote: > > > > > > So, would carrots do the same thing? They're also orange. What other > foods > > would do that?? > > What is it about an orange food that reacts with people?? > > > Carrots and oranges were the WORST, but any orange or green food, and > many red and yellow foods, were really nasty for my son, even with > enzymes. > > It was because his body did not convert carotenes. That problem was > eliminated with ALA chelation, selenium, and a few other supplements. > > Dana > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 > > What exactly would your son do when he ate one of > those foods? Lose contact with reality and start MAJOR stimming. When he was younger those foods would also give him a major burning diaper rash, looked like second degree burns. > If you eliminated orange, green, red, and yellow foods from his > diet, what did you feed him mostly? Chicken, certain nuts, certain fruits and veggies [he did well with bananas, pears, green grapes, yellow beans, pinto beans] and wheat with HNI enzymes. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 > > Dana, I've heard that bananas are bad for feeding yeast, Yes >>so, I haven't given > any for a long time. Are they all right, because he used to LOVE > bananas??? They are high amine, which for some kids act like phenols. I have amine links on the phenol page, near the middle http://www.danasview.net/phenol.htm My son tolerated bananas with No-Fenol enzyme. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Dear Tammy, Congratulations to and his wonderful accomplishment and to you first, in encouraging him to pursue the tapping and secondly for the joy his accomplishment brought you. As a mother of a 13 year old son with severe apraxia I know all too well how important it is to find something they are good at! The one defining moment in my sons (and mine!) life came as he read a speech to the entire school. He was running for student council Vice President in 4th grade. What an accomplishment for him as he entered school unintelligible. The icing on the cake was that he won the election. That one accomplishment gave him enough " I can do it " confidence to last him a long time. This year in 7th grade he tried out for the football team and made it. In his mind there was no doubt. He still has problems with reading, writing and math but continues to make progress. Most of all he's a happy kid. Best of luck to you and ! Bravo!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 After all the horror stories we see on this site, it's wonderful to see something like this! It gives the rest of us hope. Congratulations and good luck. Pat ** <inspiringmind@...> wrote: Sorry I haven't written in so long. I have been soooo busy! was placed from a resource room and is now in a TLC setting. (Therapeutic Learning Center) There are only 8 students, they do everything together and there are 4 teachers. For the first time is excited about going to school. He is going to a school out of our boundaries so they have a special bus with a para-professional on the bus that comes and picks him up. They have a genie pig named fluffy (reminds me of the Capitol One commercial LOL) So, things are doing good! Mommy to - 9 - Aspie - 8 - ADHD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 That's great! let us know how tonight goes. Jen --- In Plagiocephaly , " " <stephjerryj@...> wrote: > > Well after the adjustment yesterday because of the swollen red spot on > 's head, she slept 12 hours straight last nite. She woke up happy > and cooing and took a 2 hour nap already too. I bet that the area that > had to be adjusted was the cause of her not sleeping the first 3 > nights. Let's just hope tonight is a repeat. Thank you everyone for > your kind words and assistance!!!!!! > > in Idaho > 7 mos. > Starband 2/23 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 That's great! let us know how tonight goes. Jen --- In Plagiocephaly , " " <stephjerryj@...> wrote: > > Well after the adjustment yesterday because of the swollen red spot on > 's head, she slept 12 hours straight last nite. She woke up happy > and cooing and took a 2 hour nap already too. I bet that the area that > had to be adjusted was the cause of her not sleeping the first 3 > nights. Let's just hope tonight is a repeat. Thank you everyone for > your kind words and assistance!!!!!! > > in Idaho > 7 mos. > Starband 2/23 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 , I am so happy to hear this. Hope it continues. CAROLG --- In Plagiocephaly , " " <stephjerryj@...> wrote: > > Well after the adjustment yesterday because of the swollen red spot on > 's head, she slept 12 hours straight last nite. She woke up happy > and cooing and took a 2 hour nap already too. I bet that the area that > had to be adjusted was the cause of her not sleeping the first 3 > nights. Let's just hope tonight is a repeat. Thank you everyone for > your kind words and assistance!!!!!! > > in Idaho > 7 mos. > Starband 2/23 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 , I am so happy to hear this. Hope it continues. CAROLG --- In Plagiocephaly , " " <stephjerryj@...> wrote: > > Well after the adjustment yesterday because of the swollen red spot on > 's head, she slept 12 hours straight last nite. She woke up happy > and cooing and took a 2 hour nap already too. I bet that the area that > had to be adjusted was the cause of her not sleeping the first 3 > nights. Let's just hope tonight is a repeat. Thank you everyone for > your kind words and assistance!!!!!! > > in Idaho > 7 mos. > Starband 2/23 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Carolyn, Why don't you schedule the casting for 2 weeks from now? It can sometimes take a while to get worked in. This way you'll already have an appointment. If you decide to give insurance a little more time you can just reschedule it. I'm glad to hear you ditched that nasty PT! Good ridance! Mom to Dane (4 yo) and Cece (14 mo) DOC Grads Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Carolyn, Why don't you schedule the casting for 2 weeks from now? It can sometimes take a while to get worked in. This way you'll already have an appointment. If you decide to give insurance a little more time you can just reschedule it. I'm glad to hear you ditched that nasty PT! Good ridance! Mom to Dane (4 yo) and Cece (14 mo) DOC Grads Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 hi Carolyn, Thanks for the hug Wow you ahve been busy and I totally understand the frustrations of insurance - ergh. When you called did you give them the treatment code S1040 - that's specifically cranial orthosis. Another tip is to have your ped write the RX for DOC band - no subsititute, just in case they come back and want to send you some place else. Keep hounding E/I. If they are like ours you won't see treatment start for 2 months after 1st eval. Kiersten was evaluated beginning of Nov and treatment started in Janaury. It's a lot of red tape. However, I really like our e/i person and she comes to the house which is so much easier on Kiersten and me. I work and my MIL stays at home with my girls. Whenever they have an out of house appt I take them. Have you tried calling the local children's hospital for recommendation on pediatric pt with tort experience? When someone calls our hospital they usually refer to Kiersten's Pt - she's know as the tort baby pt - poor lady. It's a hard job and the babies usually just scream at her I agree with just go ahead and make your casting appt for 2 weeks. Just let CT know if insurance doesn't come through before then you will pay out of pocket. They can put you on a payment plan ($600 at cast and then once a month) or I think they give 10% off if you pay all up front. It's usually $3000. Keep us posted and thanks for the great update (the reminder really helps). na, DOC Grad Feb 04, Tort Resolved Kiersten, DOC Band 1/10/06, Tort www.thefilyaws.com > > A big hug and kiss to everyone who posts on this blog. Everyone here > has been so supportive. I don't know what I would have done without you > this past week. It's not easy dealing with a baby who has plagio > (flattening and facial asymmetry) and tort and struggling find medical > treatment and fighting insurance companies, pt, etc. > > > > (As a reminder, our four-month-old son Malcolm was born breech with plagio > (flattening and facial asymmetry) and tort. We've been doing 'aggressive > repo' diligently, essentially, since he was born and haven't noticed any > improvements. In fact, he's got a bald spot on the flattened side and I > believe his facial asymmetry appears more pronounced now. We therefore > decided to go with CT and get a DOC band a week ago). > > > > We're playing the waiting game now as to whether our insurance will cover > the Doc band or not. Our pediatrician has sent the prescription and letter > of medical necessity to CT for the DOC band. CT is supposed to contact > Oxford and then tell our pediatrician's office whether they will pay for our > son's Doc band or not. Hopefully, we'll hear either this week or by next > Tuesday what the story is. If Oxford denies us coverage for the Doc band, > our pediatrician's office will appeal it. Unfortunately, when I tried to > find out whether Oxford would cover the DOC band or not, I was unsuccessful > and got the run around. In the end, I decided to make my life less > stressful and defer to our pediatrician's office and let them deal with the > insurance company. > > > > While I'm not happy about playing the waiting game, I'm thinking about > giving CT and our pediatrician's office two weeks to sort out the situation > with the insurance coverage. After two weeks of waiting for a decision, I > think my husband and I may pay for the Doc band ourselves. I understand > insurance companies don't want members calling them up and bugging them > about whether they will cover a DOC band or not, but it doesn't make it easy > for parents and just adds to rising anxiety levels with the whole process. > It's agonizing waiting to hear about the insurance coverage while watching > Malcolm's head worsen or look more pronounced. I'm now beginning to wonder > whether Malcolm's head is more moderate/severe than simply moderate. > > > > We're very fortunate that our pediatrician diagnosed our son Malcolm with > plagio and tort five days after he was born. I realize that many of you > here have not been as fortunate and feel truly sorry for you. We're very > fortunate that our pediatrician backs our decision with the Doc band and the > office is willing to help us with the insurance process. It helps that our > pediatrician's office had a baby with plagio two years ago and dealt with CT > and the insurance process then. It also helps living in NYC and being > within a relatively short distance to a top pediatric hospital and CT. > Hopefully, this will get sorted within the next two weeks, but my heart goes > out to those of you fighting with your pediatricians. This situation is > tough on parents, even more so for parents with uncooperative pediatricians. > > > > > Meanwhile, while we're playing the waiting game, I ditched the crazy pt/ot > who advised me to apply pressure with my fingertips underneath the base of > Malcolm's skull to remedy his plagio. I strongly disagreed with her opinion > about helmet therapy, seeing an osteopath, her demeanor and her belief that > I could affect my son's plagio. I lost complete trust and faith in her. In > hindsight, I should have left her a couple of weeks ago when she preached > for the osteopath and against helmet therapy, but I was in denial and > praying Malcolm's head would improve and that he wouldn't need it. > > > > I've been scrambling to find another pt/ot for my Malcolm. I called a > cranialfacial surgeon at Montefiore (Dr. Goodrich) who is listed with > CT about a referral for a pt/ot, but they said that my son needs to see him > first before getting a referral for a pt/ot. Needless to say, I made an > appointment with him. I called our pediatrician's office for another pt/ot > and got a name and number, but we're not seeing them until next Monday so > we're left without a pt/ot for a week. I haven't called Early Intervention > yet, but plan on calling them today or asap. > > > > Between the cranialfacial surgeon, the referral from our pediatrician's > office and Early Intervention, I should and expect success with getting a > pt/ot. But does anyone have any other ideas on finding a friendly, > competent and helpful pt/ot? I'd love to hear. > > > > Is it me or am I the only one desperate for a set of standard policies and > treatments for plagio and tort? Why isn't there a book or DVD instructing > parents, pts, doctors, etc. on various exercises, repositioning, helmet > therapy, etc? I'm completely annoyed and frustrated that parents are too > often left to second guess their doctors and pts with plagio and tort. If > someone has crooked teeth, they get braces. Why do we have to fight to get > our baby's heads straightened? This is mind boggling to me. I know I'm > fortunate with my insurance, pediatrician, and living in NYC, but it > shouldn't matter whether you have insurance, who your doctor is, and where > you live. Sorry, I had to rant..thanks. > > > > Thanks again for your support and help. > > > > Carolyn - in NYC > > Mum to Malcolm - 4 mos. - plagio and tort > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 hi Carolyn, Thanks for the hug Wow you ahve been busy and I totally understand the frustrations of insurance - ergh. When you called did you give them the treatment code S1040 - that's specifically cranial orthosis. Another tip is to have your ped write the RX for DOC band - no subsititute, just in case they come back and want to send you some place else. Keep hounding E/I. If they are like ours you won't see treatment start for 2 months after 1st eval. Kiersten was evaluated beginning of Nov and treatment started in Janaury. It's a lot of red tape. However, I really like our e/i person and she comes to the house which is so much easier on Kiersten and me. I work and my MIL stays at home with my girls. Whenever they have an out of house appt I take them. Have you tried calling the local children's hospital for recommendation on pediatric pt with tort experience? When someone calls our hospital they usually refer to Kiersten's Pt - she's know as the tort baby pt - poor lady. It's a hard job and the babies usually just scream at her I agree with just go ahead and make your casting appt for 2 weeks. Just let CT know if insurance doesn't come through before then you will pay out of pocket. They can put you on a payment plan ($600 at cast and then once a month) or I think they give 10% off if you pay all up front. It's usually $3000. Keep us posted and thanks for the great update (the reminder really helps). na, DOC Grad Feb 04, Tort Resolved Kiersten, DOC Band 1/10/06, Tort www.thefilyaws.com > > A big hug and kiss to everyone who posts on this blog. Everyone here > has been so supportive. I don't know what I would have done without you > this past week. It's not easy dealing with a baby who has plagio > (flattening and facial asymmetry) and tort and struggling find medical > treatment and fighting insurance companies, pt, etc. > > > > (As a reminder, our four-month-old son Malcolm was born breech with plagio > (flattening and facial asymmetry) and tort. We've been doing 'aggressive > repo' diligently, essentially, since he was born and haven't noticed any > improvements. In fact, he's got a bald spot on the flattened side and I > believe his facial asymmetry appears more pronounced now. We therefore > decided to go with CT and get a DOC band a week ago). > > > > We're playing the waiting game now as to whether our insurance will cover > the Doc band or not. Our pediatrician has sent the prescription and letter > of medical necessity to CT for the DOC band. CT is supposed to contact > Oxford and then tell our pediatrician's office whether they will pay for our > son's Doc band or not. Hopefully, we'll hear either this week or by next > Tuesday what the story is. If Oxford denies us coverage for the Doc band, > our pediatrician's office will appeal it. Unfortunately, when I tried to > find out whether Oxford would cover the DOC band or not, I was unsuccessful > and got the run around. In the end, I decided to make my life less > stressful and defer to our pediatrician's office and let them deal with the > insurance company. > > > > While I'm not happy about playing the waiting game, I'm thinking about > giving CT and our pediatrician's office two weeks to sort out the situation > with the insurance coverage. After two weeks of waiting for a decision, I > think my husband and I may pay for the Doc band ourselves. I understand > insurance companies don't want members calling them up and bugging them > about whether they will cover a DOC band or not, but it doesn't make it easy > for parents and just adds to rising anxiety levels with the whole process. > It's agonizing waiting to hear about the insurance coverage while watching > Malcolm's head worsen or look more pronounced. I'm now beginning to wonder > whether Malcolm's head is more moderate/severe than simply moderate. > > > > We're very fortunate that our pediatrician diagnosed our son Malcolm with > plagio and tort five days after he was born. I realize that many of you > here have not been as fortunate and feel truly sorry for you. We're very > fortunate that our pediatrician backs our decision with the Doc band and the > office is willing to help us with the insurance process. It helps that our > pediatrician's office had a baby with plagio two years ago and dealt with CT > and the insurance process then. It also helps living in NYC and being > within a relatively short distance to a top pediatric hospital and CT. > Hopefully, this will get sorted within the next two weeks, but my heart goes > out to those of you fighting with your pediatricians. This situation is > tough on parents, even more so for parents with uncooperative pediatricians. > > > > > Meanwhile, while we're playing the waiting game, I ditched the crazy pt/ot > who advised me to apply pressure with my fingertips underneath the base of > Malcolm's skull to remedy his plagio. I strongly disagreed with her opinion > about helmet therapy, seeing an osteopath, her demeanor and her belief that > I could affect my son's plagio. I lost complete trust and faith in her. In > hindsight, I should have left her a couple of weeks ago when she preached > for the osteopath and against helmet therapy, but I was in denial and > praying Malcolm's head would improve and that he wouldn't need it. > > > > I've been scrambling to find another pt/ot for my Malcolm. I called a > cranialfacial surgeon at Montefiore (Dr. Goodrich) who is listed with > CT about a referral for a pt/ot, but they said that my son needs to see him > first before getting a referral for a pt/ot. Needless to say, I made an > appointment with him. I called our pediatrician's office for another pt/ot > and got a name and number, but we're not seeing them until next Monday so > we're left without a pt/ot for a week. I haven't called Early Intervention > yet, but plan on calling them today or asap. > > > > Between the cranialfacial surgeon, the referral from our pediatrician's > office and Early Intervention, I should and expect success with getting a > pt/ot. But does anyone have any other ideas on finding a friendly, > competent and helpful pt/ot? I'd love to hear. > > > > Is it me or am I the only one desperate for a set of standard policies and > treatments for plagio and tort? Why isn't there a book or DVD instructing > parents, pts, doctors, etc. on various exercises, repositioning, helmet > therapy, etc? I'm completely annoyed and frustrated that parents are too > often left to second guess their doctors and pts with plagio and tort. If > someone has crooked teeth, they get braces. Why do we have to fight to get > our baby's heads straightened? This is mind boggling to me. I know I'm > fortunate with my insurance, pediatrician, and living in NYC, but it > shouldn't matter whether you have insurance, who your doctor is, and where > you live. Sorry, I had to rant..thanks. > > > > Thanks again for your support and help. > > > > Carolyn - in NYC > > Mum to Malcolm - 4 mos. - plagio and tort > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I tried to schedule the casting last Tuesday when I phoned CT. However, CT said to wait a week or two before scheduling it unless I wanted to forfeit insurance coverage. CT said insurance companies have denied coverage when parents have got the cast before hearing from the insurance company. URGH. Yes, I agree with you . I should call CT and schedule for a casting regardless. Like you said, I can always reschedule if needed. As for the pt/ot, good riddance is right! Thanks for your help and support! I really appreciate it. Carolyn Mum to Malcolm - 4 mos - plagio and tort Re: update Carolyn, Why don't you schedule the casting for 2 weeks from now? It can sometimes take a while to get worked in. This way you'll already have an appointment. If you decide to give insurance a little more time you can just reschedule it. I'm glad to hear you ditched that nasty PT! Good ridance! Mom to Dane (4 yo) and Cece (14 mo) DOC Grads For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I tried to schedule the casting last Tuesday when I phoned CT. However, CT said to wait a week or two before scheduling it unless I wanted to forfeit insurance coverage. CT said insurance companies have denied coverage when parents have got the cast before hearing from the insurance company. URGH. Yes, I agree with you . I should call CT and schedule for a casting regardless. Like you said, I can always reschedule if needed. As for the pt/ot, good riddance is right! Thanks for your help and support! I really appreciate it. Carolyn Mum to Malcolm - 4 mos - plagio and tort Re: update Carolyn, Why don't you schedule the casting for 2 weeks from now? It can sometimes take a while to get worked in. This way you'll already have an appointment. If you decide to give insurance a little more time you can just reschedule it. I'm glad to hear you ditched that nasty PT! Good ridance! Mom to Dane (4 yo) and Cece (14 mo) DOC Grads For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hi , Thanks for the update. Good luck with your repositioning efforts. Have you checked out our Repositioning Headquarters in the files section? I'm sure you'll find it helpful. Please keep us posted on your little one and let us know how you make out your next CT appointment. -- In Plagiocephaly , " lrajo2001 " <lrajo2001@...> wrote: > > I took to CT last Thursday, and I must say the experience was > less scary than I expected. The PT was great with him! She suggested > we continue reposition him and increase the tummy time for the next > three weeks and she will then make a reccomendation. We shall see > what happens when we return. Thank you to those who responded with > suggestions! I will keep you updated! > > linda, mom to (14 wks) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hi , Thanks for the update. Good luck with your repositioning efforts. Have you checked out our Repositioning Headquarters in the files section? I'm sure you'll find it helpful. Please keep us posted on your little one and let us know how you make out your next CT appointment. -- In Plagiocephaly , " lrajo2001 " <lrajo2001@...> wrote: > > I took to CT last Thursday, and I must say the experience was > less scary than I expected. The PT was great with him! She suggested > we continue reposition him and increase the tummy time for the next > three weeks and she will then make a reccomendation. We shall see > what happens when we return. Thank you to those who responded with > suggestions! I will keep you updated! > > linda, mom to (14 wks) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Check out those BUMBO chairs I think they are called they are brilliant - using for my boy allows them to sit from 8 weeks no resting on the back of their head i am loving it. --- In Plagiocephaly , " stripes6060 " <taime@...> wrote: > > Hi , > Thanks for the update. Good luck with your repositioning efforts. Have > you checked out our Repositioning Headquarters in the files section? > I'm sure you'll find it helpful. Please keep us posted on your little > one and let us know how you make out your next CT appointment. > > -- In Plagiocephaly , " lrajo2001 " <lrajo2001@> wrote: > > > > I took to CT last Thursday, and I must say the experience was > > less scary than I expected. The PT was great with him! She suggested > > we continue reposition him and increase the tummy time for the next > > three weeks and she will then make a reccomendation. We shall see > > what happens when we return. Thank you to those who responded with > > suggestions! I will keep you updated! > > > > linda, mom to (14 wks) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Check out those BUMBO chairs I think they are called they are brilliant - using for my boy allows them to sit from 8 weeks no resting on the back of their head i am loving it. --- In Plagiocephaly , " stripes6060 " <taime@...> wrote: > > Hi , > Thanks for the update. Good luck with your repositioning efforts. Have > you checked out our Repositioning Headquarters in the files section? > I'm sure you'll find it helpful. Please keep us posted on your little > one and let us know how you make out your next CT appointment. > > -- In Plagiocephaly , " lrajo2001 " <lrajo2001@> wrote: > > > > I took to CT last Thursday, and I must say the experience was > > less scary than I expected. The PT was great with him! She suggested > > we continue reposition him and increase the tummy time for the next > > three weeks and she will then make a reccomendation. We shall see > > what happens when we return. Thank you to those who responded with > > suggestions! I will keep you updated! > > > > linda, mom to (14 wks) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Aren't they cool? A lot of our members have them. You can even get them off ebay! -- In Plagiocephaly , " hillwine1 " <hillwine1@...> wrote: > > Check out those BUMBO chairs I think they are called they are > brilliant - using for my boy allows them to sit from 8 weeks no > resting on the back of their head i am loving it. > > > > > > > > > I took to CT last Thursday, and I must say the > experience was > > > less scary than I expected. The PT was great with him! She > suggested > > > we continue reposition him and increase the tummy time for the > next > > > three weeks and she will then make a reccomendation. We shall > see > > > what happens when we return. Thank you to those who responded > with > > > suggestions! I will keep you updated! > > > > > > linda, mom to (14 wks) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Aren't they cool? A lot of our members have them. You can even get them off ebay! -- In Plagiocephaly , " hillwine1 " <hillwine1@...> wrote: > > Check out those BUMBO chairs I think they are called they are > brilliant - using for my boy allows them to sit from 8 weeks no > resting on the back of their head i am loving it. > > > > > > > > > I took to CT last Thursday, and I must say the > experience was > > > less scary than I expected. The PT was great with him! She > suggested > > > we continue reposition him and increase the tummy time for the > next > > > three weeks and she will then make a reccomendation. We shall > see > > > what happens when we return. Thank you to those who responded > with > > > suggestions! I will keep you updated! > > > > > > linda, mom to (14 wks) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 , I am so glad that you were made to feel more comfortable about this situation. Remember there are tips in the files here for repo if you need anymore. I will be thinking rounding thoughts for the next few weeks for Ben. CAROLG > > I took to CT last Thursday, and I must say the experience was > less scary than I expected. The PT was great with him! She suggested > we continue reposition him and increase the tummy time for the next > three weeks and she will then make a reccomendation. We shall see > what happens when we return. Thank you to those who responded with > suggestions! I will keep you updated! > > linda, mom to (14 wks) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 , I am so glad that you were made to feel more comfortable about this situation. Remember there are tips in the files here for repo if you need anymore. I will be thinking rounding thoughts for the next few weeks for Ben. CAROLG > > I took to CT last Thursday, and I must say the experience was > less scary than I expected. The PT was great with him! She suggested > we continue reposition him and increase the tummy time for the next > three weeks and she will then make a reccomendation. We shall see > what happens when we return. Thank you to those who responded with > suggestions! I will keep you updated! > > linda, mom to (14 wks) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 Hi, Thanks for sharing your great news with us! Check out the files section there's a folder repositioning headquarters. You'll find a lot of really helpful repo info in there. Keep us posted on your little one. > > Sorry it took so long to update on my son. We took him to a Cranial > Tech office in Columbus and we were told he had very mild > plagiocephaly and a 2+ standard deviation for brachy. The PT (who > has been doing this for 25 years) said that he wouldn't recommend the > band since it really wouldn't fix the brachy. He said that the > plagio is so mild that he's pretty positive that even though my son > is almost 7 months old, it would round out by itself with him just > learning to sit up and crawl, etc. I've read a few posts that stated > that the helmet has helped round out their babies head but it's still > flat in the upper portion, which is where my son has his flat spot > and the PT said, that's correct,that most people don't see much a > difference in that area. He said that my son has no facial assymetry > and said he isn't a candidate but told me if I wanted to, we could > band, but after a lot of discussion and after realizing someone who > specializes in this for 25 years wouldn't do it, we opted not to. It > has been 2 weeks and with my son sleeping on his belly, we can > already notice a little rounding in the lower portion of his head, > and our expectations aren't that high for the upper portion, but it > is nice to know that there is already a change with just > repositioning. Now, if anyone could give me any advice on how to > keep my son on his belly during the night, that would be helpful > Believe me, he's more than strong enough to sleep on his belly. If > this would have been a 3 month old I would have said no way to > sleeping on the belly, but since he's 7 months, I wouldn't mind some > advice. I'll keep you posted. I still sometimes wonder if I've done > the right thing, but my gut is really telling me I am. Thanks for > the support!! Oh and p.s. the PT at CranTech said that my son had > some mild tort, which I never really noticed, but it's corrected > itself. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 , To me, it does sound like progress, and I think it's been mentioned here before that behavior gets worse or a bit wild (or maybe just age appropriate) right before a surge so that might be what the " stroppy-ness " is about. Just one small thing, I wondered when I read your post, if you might lose some of the effectiveness of the ProEFA by putting it in his sandwich spread and letting it sit till lunch. I think the oils are delicate and oxidise quickly, so perhaps you should try giving it to him at home--maybe giving his toast with the ProEFA-chocolate spread at breakfast if he likes that, or maybe mix it with apple sauce, yogurt or even pudding. I wonder if you would see improved results that way. Just a thought... Otherwise, good luck with everything, sounds like you are doing a great job! Kristi > > Hi, > > Thought I'd post an update on my son, Rory aged 6 and Omega & Vit E. It's a bit long so if you don't have time I am summarising at the beginning! > > 1. 3 weeks in > 2. No real change in speech as yet > 3. was very vocal/noisy at the weekend and bit stroppy - normally quite passive > 4. teacher says he is picking up the word recognition for new vocab much quicker. > > To start with I'd better sum up his problems... > > First of all he is deaf but he has an implant and actually hears quite well so I am putting that aside for this group. > He has severe verbal apraxia. His oral motor skills are not that impaired, his comprehension is pretty good and far far ahead of expression. His fine motor skills are very good BUT I have realised that he has a real problem with doing different things with each hand, so Playstation is impossible for him (at present) because he wants to use the joysticks for each hand and can't co-ordinate the button pushing with the right hand. In somethings he is really co- ordinated but others hopeless. Regarding his fine motor skills - he saw an occupational therapist when he was 4 because they were behind, then all of a sudden he went from only being able to draw straight lines and dots to drawing pictures! > > His pain threshold is higher than most children and i put it down to him being stoic, now i realise that could be part of the apraxia as it has been mentioned by other mums. > > His language is developing but very slowly. Yeah and no are very clear but mummy, daddy and james are not so clear. He can count to ten but 4,5,6,7,8 are the clearest. > > He has a problem with retaining information and concentration. School reports that every now and then they just lose him and it's hard to get him back on track. Also one day he can do something but the next he can't. And they know now that he is trying but just can't rather than he's not making any effort. > > He's very active and has a very happy sunny nature and loves dressing up. > > So, I have been trying omega since August but only really been successfully achieving regular dosage since going back to school three weeks ago. I am giving him two half teaspoons of the proefa liquid. One with breakfast and one with lunch - hidden in a small chocolate spread sandwich each time. i did start with the vit e but decided to stick to proefa and then add the vit e later. > > I have not seen any real increase in his speech yet but this weekend he was soooo noisy, shouting BAH Bah BAh to get our attention all the time and quite stroppy - for him. Although it meant a few more stares than normal when we were out i saw it as positive behaviour as he is really too passive and easy most of the time. > > He's been wide awake each evening and not sleeping until 10. But I am not sure that is the ProEFA as he often finds it difficult to sleep. > > I met with his teacher yesterday and the most positive result she has seen is that when he was working on new vocabulary and word recoginition, it seemed that he grasped it quicker and then has retained it. Normally it would take quite a few days if not longer but he was picking it up after one. > > So, I am hopeful and will be continuing with the ProEFA. Any comments would be appreciated. Do you think this sounds like progress? > > Regards > > > UK Mummy to 8 and Rory 6. Both Deaf with cochlear Implants > > > > Quote Link to comment Share on other sites More sharing options...
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