Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 I had no problems with plaquenil for the first month or so. It made me tired > in the beginning but then I got used to it. Then, out of the blue, I started > losing my hair. Finding a lot on my pillow, and huge chunks coming out in > the shower. I told the doctor and he took me off it, and the hair loss > stopped, but the hair has not grown back. Fortunately it is not very > noticeable (at least that's what I've been told) So if you start to lose > hair, let your doctor know right away. I also heard that it can cause > trouble for your eyes, but my RA doctor says that usually only happens after > taking it for five years or more. Good luck with the med. It did work and > helped me until I had to go off it. I'm on Chloriquine (or something like > that) instead and so far no problems. Also Sulfasaline and Arava. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Barbara, My doctor didn't mention having my eyes checked. What is the reason for this, and should I be asking my doctor about this? Jen singlemomx2@... > > Hi Jen. >  > I have been on daily Placquenil for over 5 years now, and have no issues with it. I did have to have my eyes checked with my Opthamologist before starting the Placquenil. My eyes checked out fine before and always afterwards. >  > I wish you good luck with it. >  > Hugs, >  > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Jen  So my hubby has RA and I have gone to all his appts with him since its new for both of us and i'm big talker and i ask a ton of questions (a doctors dream) . So his doctor actually said he would have to get his eyes checked every 6 months due to the Placquenil, and when my hubby went to the eye doctor in decemeber the doctor told him he HAS to visit him every 6 months becasue of that med. So give your eye doctor a call. Now my hubby was kind of sort taken off Placquenil and was put on Enbrel cause the Placquenil wasnt working that well, so he is on Placquenil, Enbrel and a sternoid until things start to show some change. I hope this helps you. good luck  Sunny (a concern wife) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Ok - I'm going to chime in. My first RA doc told me that I needed to get myeyes checked annually because (although it isn't common) RA can effect your eyes. There are several drugs, including plaquenil that can have adverse reactions, etc with the eyes. I want to also note, even though RA doesn't cause organ problems with most (that I know of) - it CAN. So my only suggestion is to research and keep asking those great questions!! Good luck! in SC Sent from my iPhone On Feb 16, 2011, at 3:00 PM, sunny saidian <ssunny1812@...> wrote: > Hi Jen > > So my hubby has RA and I have gone to all his appts with him since its new for both of us and i'm big talker and i ask a ton of questions (a doctors dream) . So his doctor actually said he would have to get his eyes checked every 6 months due to the Placquenil, and when my hubby went to the eye doctor in decemeber the doctor told him he HAS to visit him every 6 months becasue of that med. So give your eye doctor a call. Now my hubby was kind of sort taken off Placquenil and was put on Enbrel cause the Placquenil wasnt working that well, so he is on Placquenil, Enbrel and a sternoid until things start to show some change. I hope this helps you. good luck > > Sunny > (a concern wife) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 It sounds like you are very similar to me in how you are starting out. I have no advice, but I am glad to see others new like me similar issues/questions. I too just started Sulfasalazine,however, so far so good on tolerating it. I know if it doesnt work, plaquenil is on her list for next in line tx (at least I believe that based on the literature she gave me). I will be curious to see the responses to you here. Can i ask, were any of your labs indicating RA? All my labs came back good which seems weird. Have a great week. Theresa > > My rheumatologist has determined that he believes me to have RA even though my RA factor is still 0. He started me on sulfasalazine initially, but by the second pill I was having a bad allergic reaction. So now I'm to start on Plaquenil but I'm taking the pharmacists recommendation of waiting until my children aren't sick with the flu since it will affect my immune system. I'm always nervous starting a new drug for any condition because I am so drug sensitive. Has anyone else had any experience with Plaquenil they can share? > > Jen (singlemomx2@...) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi Theresa, My labs also came back all fine same as you. My rheumy said that can be normal for some people and still have RA. I have all the symptoms of classic RA, so he's convinced it is what I have. My primary Dr. thought maybe fibro when she sent me to him because of the normal ra blood tests. But he doesn't think its fibro at all because it is definitely my joints that hurt. My son is past contagious with his bug now, so just a couple more days till my daughter is done with it...crossing my fingers I don't get it....then I can start the plaquenil. Jen Quote Link to comment Share on other sites More sharing options...
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