UPDATERe: please, aid me in my present condition

[Guest guest]

Hey all.

So I have gone only worse after 4 grams of Solumedrol. Hypersensitivity and

paresthesis of whole body from chest down, still able to walk though. Soft

motorics of hands going worse. Belly twitching, not able to feel hunger or full

stomach, difficulties urinate and with bowels. Even pain coming at night, severe

insomnia from steroids. I tried to be positive but now I am beginning to feel

lost.

Brain MRI showed no lesions. Spinal one I am gonna have in 1 month. If I don't

get better, they'll put cyclofosfamide into me on friday, used to treate cancer.

Doctor said it might be from borelia I had some issues with this summer, but the

olny was how to find out is lumbar puncture, which I fear like hell, I suffered

greatly the last one.

Thanks for letting me ramble.

Sincerely

>

> Hi group.

> I confess I post almost only when I have some troubles. But I cant help it and

hope you can offer me some ideas. For 14 months, I have had not any major

relapse. And apart from living a spiritually aware lifestyle, on the edge of

alternative, I have gotten also caught up a lot in the worldly surroundings, be

it my work, my relationship that is now over, and my gained back social life and

all this has brought a lot of stress with it which contributed to my relapse I

have been having since tuesday. Hypestesis of legs, and whole down part of my

body, up to my chest, paresthesis of feet fingers, affected bladder function...

Worsening since then. I am still able to walk,talk,write and think, I am

grateful for this, yet I still have a strong yearning to be completely cured.

>

> I am well aware this group does not support the use of CRAB drugs. I didnt

want to take any either, but the vision of being in a wheelchair forced me to do

so. I have been on avonex for 13 months now, as well as on the best bet diet.

Wondering which of it actually works. I tried to heal myself naturally even this

time. Meditated, reflected, had a reiki session, but my body is still

protesting. So I had 1gram of Solumedrol today. Before, it worked instantly.

Now, almost 11 hours from the infusion, no sign of getting better.

>

> I must confess, last month I slipped a little from the BBD and ate some food

with lactosis every now and then. I immediately got back to the strist regime as

I believe that food is very crucial in healing. I have severe allergy issues.

Also some boreliosa issues this summer, the blood tests still arent clear.

Haven't had my 2 amalgams removed yet, I am a little affraid, as there is not

much awareness in Czech Republic in this field. No one is able to do me Vit-D

testing and my GP considers me insane when I tell him I take it every day.

> Yesterday, I had a brain and Cervical-spine MRI, showed nothing. Gonna have

spinal cord MRI soon. Docs sugessted to go to Rebif which I strictly refuse as I

have troubles coping with flu-like symptoms on avonex.

>

> My key question is now LDN.

> Can I take it together with Avonex?

> Is it wise to experimentate during a relapse at all?

> Any suggestions what should I do at all?

> I wonder where could I obtain the sample of LDN, so that I could have it

tested with my homeopath and healer, before i start taking it. I hope my doc

will presrcibe it to me, though she was hesitant to do so.

>

>

> Thanks so much.

> Desperate, yet hopnig,

>

>