UPDATE Re: please, aid me in my present condition

[Guest guest]

Dear Bianca.

YOur feedback is most appreciated.

Yes, I dont completely trust doctors. I will try to have some good blood

analysis for the borelia. I hated the lumbar puncture and suffered from it a

lot.

Doctor said that its weird that I have such severe symptoms with no brain

lesions at all. We will see what the spinal cord MRI does. I stick religiously

to the BBD now once again, I try to have positive spiritual attitude, but thats

about everything I can do besides getting rest and taking supplements.

I think that here in Czech Republic, Europe, we are really far beyond the trend,

and dont have such good tests and openmimded staff. My doc is good, but she is

so scholarly-medicine scientific.

What exactly is abx treatment? I am glad your husband is better and I hope I am

gonna too. I am just confused. I will stay on avonex for now and plan to try LDN

when I am stabilized. But I have no option that to trust doctors and go for the

cyclo-fosfamide if I dont get better... And I am really feeling bad. Okay,

doubled-vision and vertigo last summer were worse, but this state is so severely

muscle-affected that I am not sure how to stand it.

I hope the insomnia gets better today or I it will drive me crazy.

Thanks for reaching out.

Kind regards,

> >

> > Hi group.

> > I confess I post almost only when I have some troubles. But I cant help it

and

> >hope you can offer me some ideas. For 14 months, I have had not any major

> >relapse. And apart from living a spiritually aware lifestyle, on the edge of

> >alternative, I have gotten also caught up a lot in the worldly surroundings,

be

> >it my work, my relationship that is now over, and my gained back social life

and

> >all this has brought a lot of stress with it which contributed to my relapse

I

> >have been having since tuesday. Hypestesis of legs, and whole down part of my

> >body, up to my chest, paresthesis of feet fingers, affected bladder

function...

> >Worsening since then. I am still able to walk,talk,write and think, I am

> >grateful for this, yet I still have a strong yearning to be completely cured.

> >

> > I am well aware this group does not support the use of CRAB drugs. I didnt

want

> >to take any either, but the vision of being in a wheelchair forced me to do

so.

> >I have been on avonex for 13 months now, as well as on the best bet diet.

> >Wondering which of it actually works. I tried to heal myself naturally even

this

> >time. Meditated, reflected, had a reiki session, but my body is still

> >protesting. So I had 1gram of Solumedrol today. Before, it worked instantly.

> >Now, almost 11 hours from the infusion, no sign of getting better.

> >

> > I must confess, last month I slipped a little from the BBD and ate some food

> >with lactosis every now and then. I immediately got back to the strist regime

as

> >I believe that food is very crucial in healing. I have severe allergy issues.

> >Also some boreliosa issues this summer, the blood tests still arent clear.

> >Haven't had my 2 amalgams removed yet, I am a little affraid, as there is not

> >much awareness in Czech Republic in this field. No one is able to do me Vit-D

> >testing and my GP considers me insane when I tell him I take it every day.

> > Yesterday, I had a brain and Cervical-spine MRI, showed nothing. Gonna have

> >spinal cord MRI soon. Docs sugessted to go to Rebif which I strictly refuse

as I

> >have troubles coping with flu-like symptoms on avonex.

> >

> > My key question is now LDN.

> > Can I take it together with Avonex?

> > Is it wise to experimentate during a relapse at all?

> > Any suggestions what should I do at all?

> > I wonder where could I obtain the sample of LDN, so that I could have it

tested

> >with my homeopath and healer, before i start taking it. I hope my doc will

> >presrcibe it to me, though she was hesitant to do so.

> >

> >

> > Thanks so much.

> > Desperate, yet hopnig,

> >

> >

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