Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Hi ~ My daughter has relapsing-remitting MS....diagnosed 3 years ago-no remission though treated...experiencing more and more symptoms and brain and spine MRI's that are ptretty bad. They are encouraging her to try Tysabri, however the caveat is the 'chance' of contracting PML which is a deadly/seriously disabling brain infection which can arise using Tysabri. If they said it is a tough problem, but they could treat the PML it would be one thing. But the specialists are saying if you do contract PML there is NOTHING they can do to treat or cure it. My daughter's stance right now is that she rather have the MS progress than contract PML. She is BEYOND terrified, and emotionally drained from all the bad news the past few weeks. She is currently doing the Dr. Swank MS Diet and using the drug Copaxone, this drug which if not useless for her has not done enough as her MS and MRI's are worse. Has anyone here any experience, pro or con, with Tysabri? I have read about a low dose of Naltroxone, which at high doses is used to treat drug withdrawls, being found helpful in MS as well as RA and other autoimmune diseases. Any experiences with that either? Thanks so much... Cheryle, in Oregon Quote Link to comment Share on other sites More sharing options...
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