RE: Re: PLM discussion forum, was re: MS drugs

[Guest guest]

PLM (thought this post was going to be about PML - read it wrong but the

sentiments are the same) stinks of Big Pharma.

All the best Alice on 5th January - you won't believe the difference.

My wish for the New Year is that all of us who want it can get CCSVI treatment.

My unrealistic wish is that Big Pharma would get its one uppance (think that's

the English term).

My New Year's Resolution is to NEVER see my neurologist again unless I can

stride into his office and shake his hand firmly goodbye.

What the f$$$$ has he ever done for me? I saw him last week and he ridiculed

CCSVI, ridiculed diet, supplements and exercise too. Asked if I was so stupid

to believe that CCSVI could take away the symptoms I said it had and that it was

no more than placebo. He believes we should all be on Tysabri. F$$$ him!

Sorry but I am still pissed off with him.

Janet

To: mscured

From: alimrobb@...

Date: Fri, 31 Dec 2010 19:51:03 +0000

Subject: Re: PLM discussion forum, was re: MS drugs

>

>

> When I posted my data on the Patients Like Me (PLM) MS board, it was amazing

how many people threw " flames " at me ! Didn't apologize. Just brought up more

links to posts where it didn't work.

I occasionally look at the forum there (although I very seldom post) and have

observed lots of flaming directed at those with " unorthodox " views. It seems,

for example, that several pro-CCSVI people have been chased away. As have been

those who talked of removing mercury amalgam filings to deal with MS, and other

alternatives.

But then, since the site is funded by selling data on members for research

purposes, I guess the orthodox orientation should not be surprising. I suspect

that there are several " plants " on the forum as well. Lots of people talk about

always checking with your neurologist before you do anything new, like taking a

vitamin pill....what rubbish!

I haven't seen a neurologist in more than 2 years....and I'm scheduled for CCSVI

next Tuesday, January 5th! ;-)

Alice

[Guest guest]

Hi Alice

Yeah, I've had a few 'lectures' from Moderators on PLM regarding my views and my

management of MY dis-ease.

*shakes head*

I don't go there very often at all anymore - as an adult, I don't really enjoy

being lectured about MY choices by people who haven't any REAL idea what they're

talking about.

I do spread word to people there though because I'll be buggered if I'll be

stopped from spreading the 'alternative' point of view to people in order to

give them a choice regarding THEIR situation and how THEY handle THEIR 'MS'.

It's great to hear that you're moving forward with your CCSVI journey!!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alimrobb@...

Date: Fri, 31 Dec 2010 19:51:03 +0000

Subject: Re: PLM discussion forum, was re: MS drugs

>

>

> When I posted my data on the Patients Like Me (PLM) MS board, it was amazing

how many people threw " flames " at me ! Didn't apologize. Just brought up more

links to posts where it didn't work.