Re: CCSVI

[Guest guest]

I usually shop at iherb and I'll order some ip 6 tomorrow. Since I live in

Siberia of the Southwest I'll use clo. Thanks,

>

> i have learned that fish oil is recommended for those who live in warm

climates in the winter because they have exposure to the sun, otherwise you'd

use cod liver oil.

[Guest guest]

A homeopathic doctor that I saw several years ago recommended that I take

artemesinin to kill parasites. I found this article today thast might explain

the free-radical/iron association. I have a bottle of artemesinin and I have

taken it for a couple of days recently along with Colon Protective by Baseline.

I feel cleaned out. I had a herx for a couple of days before I did the cleanse

but today I feel strong and I'm standing better. This could be another reason

that iron in your brain is detremental.

Artemesinin reacts with the high iron concentrations found in the malaria

parasite, forming free radicals (charged atoms and molecules). The free radicals

then disrupt the cell membranes of the single-celled parasite, causing their

demise.

I'm wondering what other parasites depend on iron. I know that cancer does.

>

>

> I read that if you are on blood-thinners (after angio) then to steer clear of

fish oil, Vitamin K, Vitamin E, Vitamin C, horse chestnut, ECGc AND I

have just found not to take butcher's broom either. They all interact as they

further thin the blood.

> I'd gradually decrease them before treatment, it might help stop bruising so

easily.

> Can't wait to stop the aspirin and go back to these good old natural

supplements.

> IP6, milk thistle (I think it crosses the BBB) and pycnogenol all cross the

BBB and detox iron.

> Janet

[Guest guest]

My Husband and son were treated by the Hubbards in San Diego. We love them and

would highly recommend going to them. The interventional Radiologist used in

their study was wonderful also. San Diego was a nice getaway too. We live in MN

and could not find anyone local no matter how hard I begged. My husband has PPMS

and our son had optic neuritis with precursors for MS. We treated him in hopes

of stoping him from being diagnosed and he had one of the worst cases of CCSVI

they had seen.

Amy

[Guest guest]

My Husband and son were treated by the Hubbards in San Diego. We love them and

would highly recommend going to them. The interventional Radiologist used in

their study was wonderful also. San Diego was a nice getaway too. We live in MN

and could not find anyone local no matter how hard I begged. My husband has PPMS

and our son had optic neuritis with precursors for MS. We treated him in hopes

of stoping him from being diagnosed and he had one of the worst cases of CCSVI

they had seen.

Amy

[Guest guest]

I'm sure we all understand the misgivings and uncertainty that some of us have

regarding the CCSVI procedure, but I think that people should go into

researching it and the intricacies of it with an open mind and without any

doubts/fears ruling their decision making.

I'm lucky. I've had the procedure and have had great benefit as far as I'm

concerned. I know that some would judge MY experience as a 'nothing much'

outcome if they're rating and expecting such things like marathon running as the

measurement of CCSVI success!

I know people have fear. I was a bit fearful too - but I'm a bit of a

needlephobe and had let all the words and curses of the naysayers and Colin

Roses of the world sit in the back of my mind before the procedure - that's one

of my downfalls.....I have a self-sabotage/fear mechanism built into my psyche.

lol

As I lay on the table with Dr. Reid (Mr. Reid actually) working on my stenosed

Azygous I felt silly for having been afraid! Whilst it hurt when he was getting

through the 70% stenosed vein, it was nothing and was easily got through.

They took such good care of me and were so on top of it all that I knew I had

nothing to fear. I actually knew that beforehand having done a large amount of

research on them, but I still was afraid and uncertain. I didn' feel tis way in

the forefront of my mind, but the fears lurked beneath the facts and the

positivity, waiting to blindside me as I packed my bag before the long car

journey to Scotland.

My husband laughed at me when I told him that I'd been afraid. He told me that

he'd only seen that I was on-edge immediately before the procedure - it appears

that I really should have stuck to acting when I was a student!

I tell everyone this because I just want to remind all that it really isn't

something to be afraid of. Just take the plunge and get the procedure done.

Whilst I know I'm sometimes far more open to 'taking risks' than others

sometimes are, I do feel I must underline that the procedure can, and has,

helped tens of thousands of people greatly and is a procedure with minimal risk.

It's easy to be afraid of a 'new' procedure (especially an 'untested' one), but

if I'd let myself be held back by concerns about every step of the procedure,

the clearing of my stenosis, wether I'd end up with stents, what the stents were

made of, what the actual pain killers they'd give me, would they give me

blood-thinners, would I be allergic to them etc etc etc? There are a million

things to be afraid of or concerned about, but it's ultimately about whether you

believe in the facts about the procedure and the vascular condition it

addresses.

It's always up to the individual and each person is likely to have a different

experience as there are so many differing factors for each person's experience.

The one common thing though is the condition, and from there, the procedure

which addresses it.

Granted, each location might do the procedure differently, but the bottom line

on it stays the same.

I'm lucky. I had no stents. I didn't have any dye in my veins - no dye that I'M

aware of anyway. I've stuck to the BBD for the last 2+ years and am just on

supplements. I'm lucky - LDN takes away the searing pain which would keep me

awake in tears writhing in pain each night were I left without it.

I'm lucky, my legs work better again so that I am able to rebuild those muscles

enough to move 'properly' again. I'm lucky - I can now sleep through the night

without 'dashing'/stumbling to the toilet 3 or 4 times in the dark, and I'm

lucky that my eyes have returned to being bright blue again frm the hazy grey

they were prior to the procedure.

Having said that, we can't measure our personal experiences by those of others

too much. Little improvements to some would be HUGE improvements to others.

I just send my best wishes to those who are entering the CCSVI zone and who have

fears or concerns. It is right to have questions and concerns. Nothing is ever a

surity and nothing is guaranteed - but this procedure is nowhere near as

dangerous as it can seem in the dark of the night when we lay down to sleep at

night, alone in our thoughts. Please don't let fear of a million things hold you

back - no matter how important we make them in our minds, sometimes we make

these monsters bigger than they really are.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alansamston@...

Date: Thu, 17 Mar 2011 01:48:31 +0000

Subject: CCSVI

I contacted the doctor who is to perform my CCSVI and asked if the MRV could be

done without the gadolinium contrast. He said that if my Doppler is conclusive,

then we could probably do the MRV without the gadolinium contrast, although he

ususally does like to use the gad contrast as it tells him more. I guess it will

unravel when I go for my testing and procedure--and obviously there will be a

chance they will tell me I have no blockages, but I think everyone they have

seen they found blockages.