RE: Re: I have a theory....are there any Dr.s that would entertain it? ()

[Guest guest]

, I think you are where I was. There is only so much we can do. CCSVI

was the missing piece of the puzzle for me. It does not remove MS but it sure

removes many of the symptoms.

I don't know how much CCSVI treatment costs over there but in Poland the actual

treatment was 3995 euros, the tests 1795 euros then there is additional travel

and accommodation.

Can you have tests locally to see if you indeed have CCSVI then, if you do, take

out a small loan or remortgage? Your health is worth it.

CCSVI is my Xmas present (and everyone else's - no one is getting gifts this

year - or next ---) and my birthday present (and everyone else's), and my

vacation, and there will be no new car, new clothes, etc. for a long time.

It is early days for me, day 9 after procedure but a week of that I had a bad

cold which is today almost gone but even so I have seen so many improvements.

Today I climbed two steps

No fatigue, no pain, still total upper body strength and upper body balance, no

bowel or bladder issues - life is bliss even if it doesn't get better from now.

Janet

To: mscured

From: alpdesigns1@...

Date: Wed, 3 Nov 2010 02:43:33 +0000

Subject: Re: I have a theory....are there any Dr.s that would

entertain it?

I drink raw goat's milk, eat free-range eggs, grass-fed meat, organic produce,

EVCO. Some of those things I eat fermented. This is a natural probiotic but I

take others as well. Immuno modulators didn't seem to make a difference for me.

They help other people but I think that eliminating free radicals by taking

digestive enzymes and not eating fake food takes care of an immune response.

Immuno-modulators would be good before the other things take hold. I don't take

LDN but other people take it and love it. I've tried all of the things that

you've mentioned. I have improved a lot but not as much as I want to. There is

more than one way to skin a cat! I want to win a lottery and have CCSVI!

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> How encouraging!!!

[Guest guest]

, I am still in the chair. 3 weeks but that is such a small time

compared to the 15 years since diagnosis.

I am gradually getting back and my left leg is quite strong now but the right

still plays tricks like not remembering how to place itself on the floor without

tripping the other one up.

(Did stair 3 though today.)

It is about more than just being able to walk. I tidied and sorted in the house

all day today and didn't have one bit of fatigue - wonderful - and still have

heaps of energy.

It will come in time.

Janet

To: mscured

From: alpdesigns1@...

Date: Sun, 14 Nov 2010 22:47:12 +0000

Subject: Re: I have a theory....are there any Dr.s that would

entertain it? ()

Janet, I want to know if you are out of the chair! Not being able to stand is my

greatest concern as I want to take care of others instead of them taking care of

me. Congrats on the second stair.

The Arizona Heart Institute does CCSVI for $2000 for the test and an additional

$12,000 for the treatment. Phoenix was my home for many years and I can stay

there with a friend.

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