RE: CCSVI - My procedure in Edinburgh

[Guest guest]

Hi all

Just a brief update on my 'CCSVI journey' - I've updated the members on the

MS-Diet group and thought I should update everyone here too.

I had the procedure on the 9th of November in Edinburgh. I had severe stenosis

of my Azygous (75% stenosis), malformed valves in my jugulars with stenosis high

in the right jugular behind my right ear. I was on the table for just over 2 and

a half hours as the stenosis in the Azygous took a lot of ballooning.

Dr. Reid didn't expect me to be feeling very good at all until next week and

expected me to go backwards a bit for a few days afterwards due to the pain and

sedation etc.......but, me being me, I just couldn't stay in bed!

I haven't done much since we got home, but CAN report that my walking is much

easier and my eyes (which have been grey throughout the last couple of years)

are back to being bright azure blue again! The whites of my eyes are white again

too.

My left foot which was continually cold and darkish in colour, is now warm and

the same size and colour of my right foot! This thrilled Dr. Reid as it happened

on the table!!

My left ankle and leg was also very sore to the touch, but is now far improved.

My hubby can now touch my leg without me punching him!

My balance is pretty good again and once I regain confidence and leg strength, I

should be walking without the 'leg-swing' that I've had for quite a few years

now too.

I now have improved heat tolerance and am able to feel cold again! Thank

goodness I never threw out my jumpers!!

Whilst I know that many have reported HUGE improvements straight after their

procedures, I'm scratching my head about a couple of their reports. Dr Reid has

ordered me NOT to push myself for a week, and to push myself and exercise only

after a week's rest.

I will start re-entering the world of truly 'pushing myself' and exercising once

the recommended time of rest has passed. I cannot wait to get 'active' again!!

A final note on MY procedure - I didn't have stents as Dr. Reid thought that if

we opted for that, it wouldn't leave many options were the Azygous to restenose

after stenting, and because rates of stenosis are relatively quite small.

5 days after the procedure now - I can stand for a much longer period of time,

am only habitually touching walls as I walk through the house now (not out of

necessity!), am able to hold the contents of my bladder through the night (no

more 'midnight dashes'!), can crouch and bend, my feet have 'shrunk' back almost

to my 'normal' size and am able to fit back into my shoes again, 'rugging up' is

again possible and my 'night-blindness' is nowhere near as total!

All of the things that I have mentioned in my update may seem a bit 'nothing

much' to some, but they're ALL making a huge difference in my days and in my

nights! Each day I can feel that my body is waking up again and that my

improvements will continue.

As always, I'll be happy to answer any questions people may have.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

[Guest guest]

Hiya .

I'd just like to say well done. Congrats that you've been brave enough to go for

it and its gone well! I very much hope that you continue to experience

improvements. Thanks very much for giving us the inside track and please keep us

all posted on how it goes.

Best wishes.

Steve

________________________________

To: MSCured <mscured >

Sent: Mon, 15 November, 2010 19:17:48

Subject: RE: CCSVI - My procedure in Edinburgh

 

Hi all

Just a brief update on my 'CCSVI journey' - I've updated the members on the

MS-Diet group and thought I should update everyone here too.

I had the procedure on the 9th of November in Edinburgh. I had severe stenosis

of my Azygous (75% stenosis), malformed valves in my jugulars with stenosis high

in the right jugular behind my right ear. I was on the table for just over 2 and

a half hours as the stenosis in the Azygous took a lot of ballooning.

Dr. Reid didn't expect me to be feeling very good at all until next week and

expected me to go backwards a bit for a few days afterwards due to the pain and

sedation etc.......but, me being me, I just couldn't stay in bed!

I haven't done much since we got home, but CAN report that my walking is much

easier and my eyes (which have been grey throughout the last couple of years)

are back to being bright azure blue again! The whites of my eyes are white again

too.

My left foot which was continually cold and darkish in colour, is now warm and

the same size and colour of my right foot! This thrilled Dr. Reid as it happened

on the table!!

My left ankle and leg was also very sore to the touch, but is now far improved.

My hubby can now touch my leg without me punching him!

My balance is pretty good again and once I regain confidence and leg strength, I

should be walking without the 'leg-swing' that I've had for quite a few years

now too.

I now have improved heat tolerance and am able to feel cold again! Thank

goodness I never threw out my jumpers!!

Whilst I know that many have reported HUGE improvements straight after their

procedures, I'm scratching my head about a couple of their reports. Dr Reid has

ordered me NOT to push myself for a week, and to push myself and exercise only

after a week's rest.

I will start re-entering the world of truly 'pushing myself' and exercising once

the recommended time of rest has passed. I cannot wait to get 'active' again!!

A final note on MY procedure - I didn't have stents as Dr. Reid thought that if

we opted for that, it wouldn't leave many options were the Azygous to restenose

after stenting, and because rates of stenosis are relatively quite small.

5 days after the procedure now - I can stand for a much longer period of time,

am only habitually touching walls as I walk through the house now (not out of

necessity!), am able to hold the contents of my bladder through the night (no

more 'midnight dashes'!), can crouch and bend, my feet have 'shrunk' back almost

to my 'normal' size and am able to fit back into my shoes again, 'rugging up' is

again possible and my 'night-blindness' is nowhere near as total!

All of the things that I have mentioned in my update may seem a bit 'nothing

much' to some, but they're ALL making a huge difference in my days and in my

nights! Each day I can feel that my body is waking up again and that my

improvements will continue.

As always, I'll be happy to answer any questions people may have.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

[Guest guest]

I have to get busy and earn the money for this!

Each day I can feel that my body is waking up again and that my

> improvements will continue.

> As always, I'll be happy to answer any questions people may have.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

[Guest guest]

rachael,

this is truly exciting news. have been researching ccsvi and possible treatment

in israel for a few weeks now in earnest, and feeling some trepidation over

restenosis and treatment back in the states. i'm probably going to wait on it a

while, but will be following your progress and janet's with interest and

unmitigated support. so excited for you both! and there are no small

reliefs--with ms, every little alleviation is a huge victory. savor these. you

deserve them.

all my love,

aviva

>

> Hiya .

>

> I'd just like to say well done. Congrats that you've been brave enough to go

for

> it and its gone well! I very much hope that you continue to experience

> improvements. Thanks very much for giving us the inside track and please keep

us

> all posted on how it goes.

>

> Best wishes.

> Steve

>

>

>

> ________________________________

>

> To: MSCured <mscured >

> Sent: Mon, 15 November, 2010 19:17:48

> Subject: RE: CCSVI - My procedure in Edinburgh

>

>  

>

> Hi all

>

> Just a brief update on my 'CCSVI journey' - I've updated the members on the

> MS-Diet group and thought I should update everyone here too.

>

> I had the procedure on the 9th of November in Edinburgh. I had severe stenosis

> of my Azygous (75% stenosis), malformed valves in my jugulars with stenosis

high

> in the right jugular behind my right ear. I was on the table for just over 2

and

> a half hours as the stenosis in the Azygous took a lot of ballooning.

>

> Dr. Reid didn't expect me to be feeling very good at all until next week and

> expected me to go backwards a bit for a few days afterwards due to the pain

and

> sedation etc.......but, me being me, I just couldn't stay in bed!

>

> I haven't done much since we got home, but CAN report that my walking is much

> easier and my eyes (which have been grey throughout the last couple of years)

> are back to being bright azure blue again! The whites of my eyes are white

again

> too.

>

> My left foot which was continually cold and darkish in colour, is now warm and

> the same size and colour of my right foot! This thrilled Dr. Reid as it

happened

> on the table!!

> My left ankle and leg was also very sore to the touch, but is now far

improved.

> My hubby can now touch my leg without me punching him!

>

> My balance is pretty good again and once I regain confidence and leg strength,

I

> should be walking without the 'leg-swing' that I've had for quite a few years

> now too.

>

> I now have improved heat tolerance and am able to feel cold again! Thank

> goodness I never threw out my jumpers!!

>

> Whilst I know that many have reported HUGE improvements straight after their

> procedures, I'm scratching my head about a couple of their reports. Dr Reid

has

> ordered me NOT to push myself for a week, and to push myself and exercise only

> after a week's rest.

>

> I will start re-entering the world of truly 'pushing myself' and exercising

once

> the recommended time of rest has passed. I cannot wait to get 'active' again!!

>

> A final note on MY procedure - I didn't have stents as Dr. Reid thought that

if

> we opted for that, it wouldn't leave many options were the Azygous to

restenose

> after stenting, and because rates of stenosis are relatively quite small.

>

> 5 days after the procedure now - I can stand for a much longer period of time,

> am only habitually touching walls as I walk through the house now (not out of

> necessity!), am able to hold the contents of my bladder through the night (no

> more 'midnight dashes'!), can crouch and bend, my feet have 'shrunk' back

almost

> to my 'normal' size and am able to fit back into my shoes again, 'rugging up'

is

> again possible and my 'night-blindness' is nowhere near as total!

>

> All of the things that I have mentioned in my update may seem a bit 'nothing

> much' to some, but they're ALL making a huge difference in my days and in my

> nights! Each day I can feel that my body is waking up again and that my

> improvements will continue.

> As always, I'll be happy to answer any questions people may have.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

[Guest guest]

Hi Aviva

Restenosis is not as common or as likely as people think. Do NOT concern

yourself with it as stressing about it isn't good for us. The rates given by the

CCSVI experts do differ from one to another and aren't now supposed to be quite

as high as Zamboni's figure of 44%.

Just manage your diet and concentrate on 'getting everything working' again!

I know that it will be likely to cross your mind from time to time in the shape

of 'I hope I don't restenose' but don't make that your common or regular

thought.

Everything will be fine I'm sure, and it's VERY important to stay positive and

to keep stress out of your life (as much as you can)!

I look forward to reading your great news to come - just remember not to push

yourself too far too fast afterwards!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: tsavka68@...

Date: Mon, 22 Nov 2010 16:07:33 +0000

Subject: Re: CCSVI - My procedure in Edinburgh

rachael,

this is truly exciting news. have been researching ccsvi and possible treatment

in israel for a few weeks now in earnest,