Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 ________________________________ Dear All. Im an MS sufferer of several years now and have been doing what i can on the diet. However, my partners ill health now threatens to destroy us all, that includes our four young children. I have leant on lynne heavily over the last few years for support and ms dietary recipes. Its kept me going and even managed to keep me at work! However, we went on holiday 6 weeks ago and the days after we arrived follwing a five hour car journey Lynne started to go numb from the feet up and mostly down her right side. We thought she had a bad back, previous car crash and rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she started dragging her leg. 6 weeks on she has a feeling of ice cold in her right leg and numbness all over her right side. The left leg is also affected and she has severe fatigue. An MRI carried out in July this year shows 1 lesion in the pons, 2 other lesions on the brain and a lesion in the spinal column. Not enough for an MS diagnosis we are told. There is also a bulging disc in her neck causing some, but not much interference. We saw a neuro yesterday after i complained the NHS were leaving her too long and a very nice chap he was too. Another MRI has now been ordered as the symptoms she has post date the MRI ive already mentioned. Im frightened to hell by this. Neither of us can sleep, lynne mostly due to pain and me due to worry. I cant see us being able to manage to look after ourselves and our kids? Social service have offered no help at all and im in desperation here. We have no family or friends to support us and dont know what we can do? Money is already as tight as can be and getting Lynne on to the supplements and diet will be anpother added expense we cant afford. It seems to me that you need to be quite well off to have chance of defeating MS, and we arent. Im also under a double threat of redundancy, all due to ruch bankers and all in all im totally lost. I had DLA earlier this year till the DWP took it off me, basically saying that anyone who can work, no matter how disabled, cannot get it. I only used it to pay for my diet which ive stuck to religiously and feel the whole world wants to bash me and mine to pieces. Im sorry to rant on but at this time i cant see any light at the end of the tunnel. I feel we will all end up very ill, i will loose my job, lwe will end up loosing our house and go knows what will end up happening to my lovely kids. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 Hi Steve, LDN is a very inexpensive treatment for MS that has helped many. For more information, visit http://tinyurl.com/intro-to-ldn All the best, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 my new de wont prescribe it it helped me in the past I BELIEVE IN IT ________________________________ To: mscured Sent: Wed, September 29, 2010 12:29:40 PM Subject: Re: HELP!!! Â Hi Steve, LDN is a very inexpensive treatment for MS that has helped many. For more information, visit http://tinyurl.com/intro-to-ldn All the best, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 steve, are you and lynne chelating? > > > > > ________________________________ > > Dear All. > > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms > dietary > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived > follwing a > five hour car journey Lynne started to go numb from the feet up and mostly > down > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and > she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her > right > leg and numbness all over her right side. The left leg is also affected and > she > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other > lesions > on the brain and a lesion in the spinal column. Not enough for an MS > diagnosis > we are told. There is also a bulging disc in her neck causing some, but not > much > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too > long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to > pain > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We > have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet > will > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im > totally > lost. > > I had DLA earlier this year till the DWP took it off me, basically saying > that > anyone who can work, no matter how disabled, cannot get it. I only used it > to > pay for my diet which ive stuck to religiously and feel the whole world > wants to > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will > end up > loosing our house and go knows what will end up happening to my lovely kids. > > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2010 Report Share Posted September 29, 2010 Bulging disk in the neck?????????? that spells CCSVI to me. Get yourselves on a CCSVI treatment list. My MS started the same way - numb down one side, dragging foot etc. and 15 years later I am still happy, and healthy thanks to the BBD. OK so I'm in a wheelchair but that is no big deal - I am still alive! Everyone's MS is different. Don't despair - it might look awful but a lot is what you make of it. Good luck Janet To: mscured From: stephenrm64@... Date: Wed, 29 Sep 2010 15:41:00 +0000 Subject: Re: HELP!!! ________________________________ Dear All. Im an MS sufferer of several years now and have been doing what i can on the diet. However, my partners ill health now threatens to destroy us all, that includes our four young children. I have leant on lynne heavily over the last few years for support and ms dietary recipes. Its kept me going and even managed to keep me at work! However, we went on holiday 6 weeks ago and the days after we arrived follwing a five hour car journey Lynne started to go numb from the feet up and mostly down her right side. We thought she had a bad back, previous car crash and rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she started dragging her leg. 6 weeks on she has a feeling of ice cold in her right leg and numbness all over her right side. The left leg is also affected and she has severe fatigue. An MRI carried out in July this year shows 1 lesion in the pons, 2 other lesions on the brain and a lesion in the spinal column. Not enough for an MS diagnosis we are told. There is also a bulging disc in her neck causing some, but not much interference. We saw a neuro yesterday after i complained the NHS were leaving her too long and a very nice chap he was too. Another MRI has now been ordered as the symptoms she has post date the MRI ive already mentioned. Im frightened to hell by this. Neither of us can sleep, lynne mostly due to pain and me due to worry. I cant see us being able to manage to look after ourselves and our kids? Social service have offered no help at all and im in desperation here. We have no family or friends to support us and dont know what we can do? Money is already as tight as can be and getting Lynne on to the supplements and diet will be anpother added expense we cant afford. It seems to me that you need to be quite well off to have chance of defeating MS, and we arent. Im also under a double threat of redundancy, all due to ruch bankers and all in all im totally lost. I had DLA earlier this year till the DWP took it off me, basically saying that anyone who can work, no matter how disabled, cannot get it. I only used it to pay for my diet which ive stuck to religiously and feel the whole world wants to bash me and mine to pieces. Im sorry to rant on but at this time i cant see any light at the end of the tunnel. I feel we will all end up very ill, i will loose my job, lwe will end up loosing our house and go knows what will end up happening to my lovely kids. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 ! I am new to the group so I hope I am not overstepping. I wish I could tell you to relax, take a step back and come down but I can't you should be upset. Unfortunately none of us can afford to let ourselves be upset for to long. I strongly believe their is a reason why I have MS as well as many other problems! We are all very strong people and you will overcome this newest obstacle! Hang is there and hugs! I do dream of winning the lotto..being rich would help! JIll > > > > > > ________________________________ > > Dear All. > > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms dietary > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived follwing a > five hour car journey Lynne started to go numb from the feet up and mostly down > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her right > leg and numbness all over her right side. The left leg is also affected and she > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other lesions > on the brain and a lesion in the spinal column. Not enough for an MS diagnosis > we are told. There is also a bulging disc in her neck causing some, but not much > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to pain > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet will > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im totally > lost. > > I had DLA earlier this year till the DWP took it off me, basically saying that > anyone who can work, no matter how disabled, cannot get it. I only used it to > pay for my diet which ive stuck to religiously and feel the whole world wants to > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will end up > loosing our house and go knows what will end up happening to my lovely kids. > > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 Hi Steve, Regarding the bulging disc in Lynne's neck - are you sure this is not impinging on a nerve and causing any other issues? Has this been confirmed by an MRI as well? Could this be the root of the problems? - Bulging/Herniated disc's can cause a whole host of issues. I would suggest you make sure it isn't a posture related issue first. Regarding the DLA - you can still get DLA even if you work. Try speaking to someone at the MS Society as they should be able to advise. Good luck mate. Cheers, Pinda > > > > > > ________________________________ > > Dear All. > > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms dietary > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived follwing a > five hour car journey Lynne started to go numb from the feet up and mostly down > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her right > leg and numbness all over her right side. The left leg is also affected and she > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other lesions > on the brain and a lesion in the spinal column. Not enough for an MS diagnosis > we are told. There is also a bulging disc in her neck causing some, but not much > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to pain > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet will > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im totally > lost. > > I had DLA earlier this year till the DWP took it off me, basically saying that > anyone who can work, no matter how disabled, cannot get it. I only used it to > pay for my diet which ive stuck to religiously and feel the whole world wants to > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will end up > loosing our house and go knows what will end up happening to my lovely kids. > > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Hello Pinda. Thanks for your advice. Have had no internet connection for some time due to a line fault. Lynne has just had EPT tests and got another MRI later so will know more in the coming weeks i hope and i do hope its the disc but the neuro we first saw said it wasnt??? DLA is getting impossible to get cus of the tyrants at the DWP and this govt and their views that alternative therapies mean your not at all unwell which isnt true. Big business and their drugs rule ok and if you dont take part they cut off your right to other things. We, the patient and tax payers dont matter do we? if we did they would support us all to do the diet which is more successful than other things but there is no profit in it for conglomerates and multi nationals. What chance is there of ever getting any democracy and getting what we want and need and not what someone else tells us we need so they can profit from it? Its a real eye opener getting ms. Steve ________________________________ To: mscured Sent: Thu, 30 September, 2010 16:10:26 Subject: Re: HELP!!!  Hi Steve, Regarding the bulging disc in Lynne's neck - are you sure this is not impinging on a nerve and causing any other issues? Has this been confirmed by an MRI as well? Could this be the root of the problems? - Bulging/Herniated disc's can cause a whole host of issues. I would suggest you make sure it isn't a posture related issue first. Regarding the DLA - you can still get DLA even if you work. Try speaking to someone at the MS Society as they should be able to advise. Good luck mate. Cheers, Pinda > > > > > > ________________________________ > > Dear All. >  > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms >dietary > > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived follwing >a > > five hour car journey Lynne started to go numb from the feet up and mostly down > > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her right > > leg and numbness all over her right side. The left leg is also affected and she > > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other >lesions > > on the brain and a lesion in the spinal column. Not enough for an MS diagnosis > we are told. There is also a bulging disc in her neck causing some, but not >much > > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to >pain > > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet >will > > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im totally > lost. >  > I had DLA earlier this year till the DWP took it off me, basically saying that > anyone who can work, no matter how disabled, cannot get it. I only used it to > pay for my diet which ive stuck to religiously and feel the whole world wants >to > > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will end >up > > loosing our house and go knows what will end up happening to my lovely kids. >  > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 HelloJill. Your right and im not going to tell you to get lost. Iam grateful for your support! Steve ________________________________ To: mscured Sent: Thu, 30 September, 2010 12:13:17 Subject: Re: HELP!!!  ! I am new to the group so I hope I am not overstepping. I wish I could tell you to relax, take a step back and come down but I can't you should be upset. Unfortunately none of us can afford to let ourselves be upset for to long. I strongly believe their is a reason why I have MS as well as many other problems! We are all very strong people and you will overcome this newest obstacle! Hang is there and hugs! I do dream of winning the lotto..being rich would help! JIll > > > > > > ________________________________ > > Dear All. >  > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms >dietary > > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived follwing >a > > five hour car journey Lynne started to go numb from the feet up and mostly down > > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her right > > leg and numbness all over her right side. The left leg is also affected and she > > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other >lesions > > on the brain and a lesion in the spinal column. Not enough for an MS diagnosis > we are told. There is also a bulging disc in her neck causing some, but not >much > > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to >pain > > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet >will > > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im totally > lost. >  > I had DLA earlier this year till the DWP took it off me, basically saying that > anyone who can work, no matter how disabled, cannot get it. I only used it to > pay for my diet which ive stuck to religiously and feel the whole world wants >to > > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will end >up > > loosing our house and go knows what will end up happening to my lovely kids. >  > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Not really. Its something ive never really done. Not sure how to really altho i do take lots of supplements when i can afford them? Steve ________________________________ To: mscured Sent: Wed, 29 September, 2010 19:06:18 Subject: Re: HELP!!!  steve, are you and lynne chelating? > > > > > ________________________________ > > Dear All. > > Im an MS sufferer of several years now and have been doing what i can on the > diet. However, my partners ill health now threatens to destroy us all, that > includes our four young children. > > I have leant on lynne heavily over the last few years for support and ms > dietary > recipes. Its kept me going and even managed to keep me at work! > However, we went on holiday 6 weeks ago and the days after we arrived > follwing a > five hour car journey Lynne started to go numb from the feet up and mostly > down > her right side. We thought she had a bad back, previous car crash and > rheaumatiod arthritus diagnosis 15 years ago. The numbness progressed and > she > started dragging her leg. 6 weeks on she has a feeling of ice cold in her > right > leg and numbness all over her right side. The left leg is also affected and > she > has severe fatigue. > An MRI carried out in July this year shows 1 lesion in the pons, 2 other > lesions > on the brain and a lesion in the spinal column. Not enough for an MS > diagnosis > we are told. There is also a bulging disc in her neck causing some, but not > much > interference. > We saw a neuro yesterday after i complained the NHS were leaving her too > long > and a very nice chap he was too. Another MRI has now been ordered as the > symptoms she has post date the MRI ive already mentioned. > Im frightened to hell by this. Neither of us can sleep, lynne mostly due to > pain > and me due to worry. > I cant see us being able to manage to look after ourselves and our kids? > Social service have offered no help at all and im in desperation here. We > have > no family or friends to support us and dont know what we can do? Money is > already as tight as can be and getting Lynne on to the supplements and diet > will > be anpother added expense we cant afford. It seems to me that you need to be > quite well off to have chance of defeating MS, and we arent. Im also under a > double threat of redundancy, all due to ruch bankers and all in all im > totally > lost. > > I had DLA earlier this year till the DWP took it off me, basically saying > that > anyone who can work, no matter how disabled, cannot get it. I only used it > to > pay for my diet which ive stuck to religiously and feel the whole world > wants to > bash me and mine to pieces. > Im sorry to rant on but at this time i cant see any light at the end of the > tunnel. I feel we will all end up very ill, i will loose my job, lwe will > end up > loosing our house and go knows what will end up happening to my lovely kids. > > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 WWW.PATIENTSLIKEME.COM Â ________________________________ To: mscured Sent: Fri, October 15, 2010 7:38:42 AM Subject: Re: Re: HELP!!! Â HelloJill. Your right and im not going to tell you to get lost. Iam grateful for your support! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 i can send you my story if you want ________________________________ To: mscured Sent: Fri, October 15, 2010 6:37:11 AM Subject: Re: Re: HELP!!! Hello Pinda. Thanks for your advice. Have had no internet connection for some time due to a line fault. Lynne has just had EPT tests and got another MRI later so will know more in the coming weeks i hope and i do hope its the disc but the neuro we first saw said it wasnt??? Quote Link to comment Share on other sites More sharing options...
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