New Member

[Guest guest]

Hey Kait! Nice to see you here:-) I'm glad that you joined because

I really think that you'll get a lot of good info here in regards to

's speech issues. The PRN group is great for the PRS issues,

but since speech/language delay is not necessarily a component of

PRS, I think that this group is probably better equipped to help you

with those issues.

Hugs to GG! It's nice to know you from not one, but two groups,

lol.

Laurel and Evan (27.5 mo, PRS, cleft palate repaired, 2nd set of ear

tubes [and probably needs a new set soon:-(], non-verbal with 15-25

signs, suspected dx of Receptive-Expressive Language Disorder and

Verbal Apraxia)

> Hello Group.

> New member here, I have been lurking for a few weeks now,

> and thought it time to introduce myself.

> Just briefly, I am mum to , he has just turned five years

> old, and was born with PRS(Pierre Robin Syndrome)

> His cleft palate was repaired at 15 months, and he has had

> three sets of ear tubes inserted to help his hearing. He was

> diagnosed with Epilepsy about s months ago, and as yet, he is

> still not talking.

> is a foster child, whom I am in the process of adopting,

> and he has been in my care since he was six months old.

> Because he is a foster child, we have had a nightmare of a time

> getting him speech therapy, which I think has a bit to do with

> his non talking, but the good news is, as of four weeks ago, we

> have finally started seeing a decent therapist on a weekly basis,

> and our long road to learning to talk is finally starting to take

off.

> As to why he isn't talking, well that still remains a mystery, both

> his parents are disabled so im guessing thats got a lot to do

> with it.

> ANyway, thats me, I very much look forward to getting to know

> you all.

>

> Kait

[Guest guest]

Welcome Chris! Great news that is responding so well on the EFA's! Hope

to hear more success stories from you in the near future.

Kris

[ ] New member

> Everyone...welcome Chris!

>

> ----- Original Message -----

> From: CJ Jagerson cjjagerson@...

>

> Dear

[Guest guest]

Lynne,

It is your choice on your course of treating/dealing with your Hep

C. My husband, Shane, is Geno 1, but the doctor was unable to

determine the rest. Shane's mother has the antibodies which she has

treated with milkthistle and other herbs. But, she ran into a

Hepatologist at the airport on her way home and he filled her tons

of information regarding Hep C and treatments. She is now

considering undergoing tx after speaking with him. I'm sorry that

you're in poor health, and I'll keep you in my prayers. I know you

are scared. I was so scared myself when we got the diagnosis from

his doc. Although Shane wasn't sedated, you can be sedated for your

biopsy. I remember reading that several members here were. My

thinking, and this is just my opinion....if it were me. I would at

least have the biopsy done to find out what stage of the Hep C

you're in. Then consider your options from there. The results of

the biopsy may change your mind. All I know is if my role was

reversed with Shane I would be doing the same he is. We have a 3

year old son, and I would/will do anything to be healthy and

productive for him....even if it means a year of hardship for a

chance to be healthier. I know that Shane feels the same way. This

last week hasn't been a walk in the park, but we'll continue

on...even just for that chance.

My thoughts and prayers are with you,

> ADVERTISEMENT

>

>

> I was just diagnosed with Hepatitis C and I am a wreck. I had a

> bunch of blood tests done before gallbladder surgery and I came up

> positive for Hep C and then was given a more intensive test and it

> came up positive, too. I am 53, have always been in poor health,

and

> now this. I am devastated. Since the gallbladder surgery, I have

> been having pain in my liver and extreme fatigue but I will not go

to

> a Gastroenterologist because this is a virus and viruses are

> incurable. I went through enough complications and hell with the

> gallbladder ordeal (it was not simple), and I am just not going to

> subject myself to the agonizing pain of a liver biopsy and all the

> other horrid tests that they run. What's the point? All they can do

> is treat me with Interferon and Ribovirin which my low-income

> government issued insurance does not cover anyway. Plus there is

> only a 30% remission rate with those drugs and the virus usually

> comes back. I am old. I am not young and strong and not in good

> shape at all. I don't smoke or drink and I eat healthy foods. I

> also take Milkthistle and a few other Hep friendly herbal

supplements.

> I figure that this is the best that I can do and hope that I have

> more than 5 years to live. The worst thing for me is that I have a

> 17 year old daughter that I worship and adore and I may not live to

> see her go through college, have her nursing career, and get

married.

> That part breaks my heart and as I write this, I am crying. I am

not

> ready to leave this earth just yet. I was hoping that I would at

> least make it for another 15-20 years but I guess not.

> I just need some hope and support right now. This has hit me like a

> ton of bricks and I don't know where to turn.

> Lynne

[Guest guest]

Hi Lynne. Welcome to our group, I’m sorry about the circumstances that

bring us together, but glad to make your acquaintance anyway. Viruses are not

incurable. They do not use the word “cured” in the case of the

hepatitis virus, because it can’t be proved and there is not much long

term data available yet. Several of us have been through the treatment and are

now considered long-term responders. There is a threshold of discovery for the

virus of a certain number of copies. So when I am tested undetectable, that

doesn’t necessarily mean that I have zero copies, so they cannot say I am

cured, just undetectable under the current technology. When you are retested 6 mos later and a year later and are still undetectable, they

consider you a long-term responder. My thoughts are that without the interferon

or other meds for over a year, those few copies that could have been present

would have multiplied enough to be detectable within that year. My hope is that

I am completely free of the virus. With the treatment I was on there was a 30%

remission rate. Under the new pegylated version of

interferon that has moved up around 50%. The biopsy was the only test that

caused me any real discomfort. I was suffered moderate pain the day of the

biopsy and a little lighter the second day. There are groups that help uninsured or

underinsured people to get this treatment if you ever decide you are interested

in it. I am 50 years old and completed the treatment the Christmas before last.

The majority

of people with hep c, treated or not, die with

the disease, not of it. I see no reason why you shouldn’t enjoy your

daughter’s wedding and even a few grandchildren!!

Good luck to you whatever you decide to

do, I hope to hear more from you. –dz-

[ ] New

Member

ADVERTISEMENT

I was just diagnosed with Hepatitis C and I am a

wreck. I had a

bunch of blood tests done before gallbladder

surgery and I came up

positive for Hep C and then was given a more

intensive test and it

came up positive, too. I am 53, have always been

in poor health, and

now this. I am devastated. Since the gallbladder

surgery, I have

been having pain in my liver and extreme fatigue

but I will not go to

a Gastroenterologist because this is a virus and

viruses are

incurable. I went through enough complications and

hell with the

gallbladder ordeal (it was not simple), and I am

just not going to

subject myself to the agonizing pain of a liver

biopsy and all the

other horrid tests that they run. What's the point?

All they can do

is treat me with Interferon and Ribovirin which my

low-income

government issued insurance does not cover anyway.

Plus there is

only a 30% remission rate with those drugs and the

virus usually

comes back. I am old. I am not young and strong

and not in good

shape at all. I don't smoke or drink and I eat

healthy foods. I

also take Milkthistle and a few other Hep friendly

herbal supplements.

I figure that this is the best that I can do and

hope that I have

more than 5 years to live. The worst thing for me

is that I have a

17 year old daughter that I worship and adore and

I may not live to

see her go through college, have her nursing

career, and get married.

That part breaks my heart and as I write this, I

am crying. I am not

ready to leave this earth just yet. I was hoping

that I would at

least make it for another 15-20 years but I guess

not.

I just need some hope and support right now. This

has hit me like a

ton of bricks and I don't know where to turn.

Lynne

[Guest guest]

Hi Girl --

I am Cheri, I live across the state from you in Pullman. You've had P for

so long that you can probably tell us a thing or two. Finding this site is

good thing. There is a lot of information and the support is superb.

Although it is not a very convenient time for most people you might want to

join the saturday chat at 1:00 our time.

Cheri

[Guest guest]

Dear Girl in the Moon,

I love your name by the way. Welcome to our group. I've only been a member

for about 9 months and am amazed how much I have learned from all these

smart people with PA. Not only are they extremely knowledgeable of their

disease and medications, but they are caring and very compassionate. It's

also a great place to go when you need to vent and are totally overwhelmed

dealing with PA. I'm glad you found us. I think all the rheumatologist

should tell their patients about support groups on line. Unfortunately too

many of them are intimidated by support groups and disregard anything you

tell them from the Internet. Now instead of telling my doctors, " I heard

this on the internet from my support group " , I say, " I was talking to

someone who has had PA for several years... " and I've found they listen. I

guess it's all in how you present it to them.

Believe me I don't think you sound negative at all. You should hear me when

I'm down and depressed. My life has gone from working full time to barely

able to get a shower some days. I haven't driven in over 3 years, rarely

leave the house except for doctor appointments, and am in pain management.

I'm not trying to depress you or scare you, but I guess even with all of

this I've found I can still be happy. Lets face it,...it's not as easy as

it used to be, but it's still possible.

I'm lucky in the fact that I have a great family behind me and a husband who

can support me if I don't work. (Though I'm still the vice president of our

company and I stay involved as I can.) It sure isn't the same as going in

the office every day, but at least we still discuss big decisions and all

the problems that arise from running an office. When I first got sick I had

so much guilt, I think that was one of my worst problems. I felt like I was

letting my husband down at work and at home. My girls who were in college

and high school at the time PA hit did fine, but I still felt like I wasn't

there enough for them. I enrolled my daughter in college one summer,

walked the campus and did all the things parents are supposed to do. Then

when she graduated 4 years later, it was all I could do to make the ceremony

in a wheelchair. As rough as it has been, good things have come from this

miserable disease. My girls are more self-reliant. They have loads of

compassion and don't take me for granted anymore. I am definitely blessed.

I also have two little dogs who stay by my side day in and day out. They

keep me company and remind me just what unconditional love is all about. So

life does go on, it's different, but still life.

Is your psoriasis really bad? I'm also lucky that mine is the guttate form,

so I only have small little dots all over my arms and legs. It's not

beautiful, but not as disfiguring as so many others have spoken about.

Do you have a good rheumatologist? That is one of the biggest and best

things you can do for yourself, is get a doctor you can talk to and who you

can trust. It took me 5 rheumatologist to find one who actually knew what I

had. The rest of them only thought I had fibromyalgia, (which is bad enough

in itself, and osteoarthritis). I kept telling anyone who would listen,

that my symptoms came on almost over night. When I fell and caused the

trauma that kicked the PA into gear, I damaged my jaw. Within 6 months, the

ball of the joint socket was almost totally gone. From what I've read about

osteoarthritis, it doesn't destroy the joint that fast. I went through a

terrible jaw surgery that only made things worse. Then 5 months later the

pain started spreading, so I knew something else was wrong. Do your best to

find a great doctor. Someone in the group might be able to help you find

someone in your area. I do resent the time I spent with the lousy doctors

who dismissed me while my joints continued to fall apart, but at least now I

have someone who I think can help me. I've just begun taking Humira and so

far I think it is working already. I'm having some side effects that I need

to talk to the doctor about, but I'm staying as positive as I can.

Write me anytime here or at my personal email address...fran@...

I'm online during the day and evening when I can't sleep. The computer has

become my personal friend. It's great that we can reach out this way to

each other and not run up huge phone bills. I hope you find some answers

here and make some new friends. Take care and I hope today you aren't in

too much pain. Getting a handle on the pain, makes a huge difference as

well. You can cope if the pain is under control. Good luck and welcome.

Sincerely, Fran

[Guest guest]

( I'm sending this direct to you, since it's a little faster.)

Dear Girl in the Moon,

I love your name by the way. Welcome to our group. I've only been a member

for about 9 months and am amazed how much I have learned from all these

smart people with PA. Not only are they extremely knowledgeable of their

disease and medications, but they are caring and very compassionate. It's

also a great place to go when you need to vent and are totally overwhelmed

dealing with PA. I'm glad you found us. I think all the rheumatologist

should tell their patients about support groups on line. Unfortunately too

many of them are intimidated by support groups and disregard anything you

tell them from the Internet. Now instead of telling my doctors, " I heard

this on the internet from my support group " , I say, " I was talking to

someone who has had PA for several years... " and I've found they listen. I

guess it's all in how you present it to them.

Believe me I don't think you sound negative at all. You should hear me when

I'm down and depressed. My life has gone from working full time to barely

able to get a shower some days. I haven't driven in over 3 years, rarely

leave the house except for doctor appointments, and am in pain management.

I'm not trying to depress you or scare you, but I guess even with all of

this I've found I can still be happy. Lets face it,...it's not as easy as

it used to be, but it's still possible.

I'm lucky in the fact that I have a great family behind me and a husband who

can support me if I don't work. (Though I'm still the vice president of our

company and I stay involved as I can.) It sure isn't the same as going in

the office every day, but at least we still discuss big decisions and all

the problems that arise from running an office. When I first got sick I had

so much guilt, I think that was one of my worst problems. I felt like I was

letting my husband down at work and at home. My girls who were in college

and high school at the time PA hit did fine, but I still felt like I wasn't

there enough for them. I enrolled my daughter in college one summer,

walked the campus and did all the things parents are supposed to do. Then

when she graduated 4 years later, it was all I could do to make the ceremony

in a wheelchair. As rough as it has been, good things have come from this

miserable disease. My girls are more self-reliant. They have loads of

compassion and don't take me for granted anymore. I am definitely blessed.

I also have two little dogs who stay by my side day in and day out. They

keep me company and remind me just what unconditional love is all about. So

life does go on, it's different, but still life.

Is your psoriasis really bad? I'm also lucky that mine is the guttate form,

so I only have small little dots all over my arms and legs. It's not

beautiful, but not as disfiguring as so many others have spoken about.

Do you have a good rheumatologist? That is one of the biggest and best

things you can do for yourself, is get a doctor you can talk to and who you

can trust. It took me 5 rheumatologist to find one who actually knew what I

had. The rest of them only thought I had fibromyalgia, (which is bad enough

in itself, and osteoarthritis). I kept telling anyone who would listen,

that my symptoms came on almost over night. When I fell and caused the

trauma that kicked the PA into gear, I damaged my jaw. Within 6 months, the

ball of the joint socket was almost totally gone. From what I've read about

osteoarthritis, it doesn't destroy the joint that fast. I went through a

terrible jaw surgery that only made things worse. Then 5 months later the

pain started spreading, so I knew something else was wrong. Do your best to

find a great doctor. Someone in the group might be able to help you find

someone in your area. I do resent the time I spent with the lousy doctors

who dismissed me while my joints continued to fall apart, but at least now I

have someone who I think can help me. I've just begun taking Humira and so

far I think it is working already. I'm having some side effects that I need

to talk to the doctor about, but I'm staying as positive as I can.

Write me anytime here or at my personal email address...fran@...

I'm online during the day and evening when I can't sleep. The computer has

become my personal friend. It's great that we can reach out this way to

each other and not run up huge phone bills. I hope you find some answers

here and make some new friends. Take care and I hope today you aren't in

too much pain. Getting a handle on the pain, makes a huge difference as

well. You can cope if the pain is under control. Good luck and welcome.

Sincerely, Fran

[Guest guest]

Hi Bill and welcome.

Out of interest what were some of your misdiagnoses? I was first dxed with

Freidreich's Ataxia, ME(CFS), Guillain-Barré syndrome, CIP (chronic

inflammatory polyradiculoneuropathy), and MS over a course of 27 years!!!

Borreliosis was finally confirmed in 2003 after two MIs at age 45...

BW,

Kezzi. . . UK

The Samento FAQ

http://samento-faq.eu.kz

On or about Thursday, April 08, 2004 4:16 AM [GMT+1=CET],

billcon3109 <billcon3109@...> sprinkled letters onto the page, saying:

> hi,

> i am a new member who has chronic lymes...i'm from northern

> baltimore county in maryland and i am 49...i was misdiagnosed by

> 12 " specialists " in an area known for its quality health care..

<snipped...>

[Guest guest]

Welcome, Tina

Does your son have a diagnosis?

Others will explain much more about what exactly apraxia entails. I

will try to answer as much as I know about Prednisone and Autism.

It is not about prednisone CAUSING Autism. Instead, some children

on the Autistic Spectrum with speech disorders have improved greatly

when treated with Prednisone. I supplied a link earlier today which

nicely explains the theories behind the ongoing research.

I briefly mentioned this study to my doctor DH. Contrary to his

ordinary rolling of the eyes, he really listened. Prednisone has

horrible side effects (and predictable side effects) but he is going

to actually read the link's information. Wow. What a day at the

Haselow house!

Take care,

Pam

> Hello my name is Tina, i have a 10 year old son with some autistic

> symptoms. He only has a few words which he repeats over and over.

I`m

> not clear on what apraxia is. I`m interested in auditory

integration

> therapy and or anyother therapys that anyone can recomend. Whats

that

> about steroids and autism. My son was on prednesolone or

deltacortil

> or whatever you call it.briefly for allergys. Tina

[Guest guest]

Hi Pam: His official diagoses is pervasive developmental didorder not

otherwise specified. with 7 symptoms of autism. He wah diagnosed at

the University of Michigan. At his school he is in an AI classroom. I

believe he has hypothyroidism also ,but can`t get a doctor to do

anything about it. He`s very small and dos not absorb well at all.

Tina

[Guest guest]

Tina,

It sounds to me like your son has pervasive developmental disorder,

does he have other issues too? PDD is a high functioning form of

autism. Does he repeat things that he has heard on tv, video, or

things you say without knowing what they mean. The difference

between apraxia and pdd (autism) is that with apraxia, children

have trouble with wiring of their brains. IE the beginning sounds of

speech, therefore they don't know how to produce the sounds for words

etc. In autism the words are already in their brains it is just a

matter of getting them to say it frequently and get it out.

Both my kids have different diagnoses. Adam has apraxia and adhd,

and Josh is pdd. Jeanne

> Hello my name is Tina, i have a 10 year old son with some autistic

> symptoms. He only has a few words which he repeats over and over.

I`m

> not clear on what apraxia is. I`m interested in auditory

integration

> therapy and or anyother therapys that anyone can recomend. Whats

that

> about steroids and autism. My son was on prednesolone or

deltacortil

> or whatever you call it.briefly for allergys. Tina

[Guest guest]

Tina,

If he is hypo or hyper thyroidism at this stage there is nothing you

can do except have him tested for the t3-t4 blood test to determine

if this is true. If he is either I don't know of any medications at

this time for children that young. I was hyper thyroid all of my life

until it was corrected, then I became hypothyroid when I had my

kids. I am on synthroid now to control it. There is always a 50

percent chance that my kids will have either or when they get older

they just have to get tested and watched. Jeanne

> Hi Pam: His official diagoses is pervasive developmental didorder

not

> otherwise specified. with 7 symptoms of autism. He wah diagnosed at

> the University of Michigan. At his school he is in an AI classroom.

I

> believe he has hypothyroidism also ,but can`t get a doctor to do

> anything about it. He`s very small and dos not absorb well at all.

> Tina

[Guest guest]

Hi Jeanne: I had him tested at the University of Michigan because i

wanted to look into growth hormone therapy. They tested his levels

and said he didn`t have a thyroid problem and they said he wasn`t a

candidate for growth hormone therapy. I have no more faith in doctors

except ones that deal in alternative medicine and not all of them are

any good, but some are. I joined Shomons Thyroid group and

started asking questions and getting advice. I was told those

standard tests are only accurate a small percent of the time. I had

him tested again through healthcheck USA and it did show he was

hypo.I read the book by Dr. Brownsteine. I`m treating him

myself, although i don`t know if it`s to late to do anything or not.

I give him armour thyroid and isocort for his adrenal glands. He`s

only been on it since Oct. So maybe to soon to know anything. Tina

[Guest guest]

Some of the autistic symptoms my son has. Not playing with toys

appropritely.Like he will flip a car over and turn the wheels on it.

he has no imaginative play. he does not interact with other kids his

age. hand flapping and toe walking. self abusive behavior. carring

around one object all day like a stick or straw or wooden spoon. He

likes the preview channel and the credits at the end of a movie.

Would you say those are symptoms of autism? Tina

[Guest guest]

There must be ways to treat hypothyroidism in children. I posted

this link:

http://www.magicfoundation.org/clinhypo.html

And, Tina, thyroid levels were the FIRST thing checked in my son

when we started testing. He also can get the PDD-NOS diagnosis from

some doctors but none have gone as far as making it the formal

diagnosis (they'll start talking about it with us in the exam room

and then Ian will do something very socially engaging and put them

back up on the fence again).

What blood levels for thyroid function have been run? If you

believe your doctor is being neglegent and your insurance easily

allows, switch doctors. You'd switch grocery stores if they kept

selling you sour milk...

Take care,

Pam

> > Hi Pam: His official diagoses is pervasive developmental

didorder

> not

> > otherwise specified. with 7 symptoms of autism. He wah diagnosed

at

> > the University of Michigan. At his school he is in an AI

classroom.

> I

> > believe he has hypothyroidism also ,but can`t get a doctor to do

> > anything about it. He`s very small and dos not absorb well at

all.

> > Tina

[Guest guest]

Hi, Tina

Have you ever looked in to your son's diet? Enzymes for more

efficient digestion of foods? Supplements? I had my son on the

gluten/casein free diet from the age of 19-26 months. Although it

did not drastically change his behavior, Ian did seem to start

developing at a more normal pace during this time. I stopped the

diet after thorough testing showed no reason to continue (we used a

naturopath and a pediatric allergist for testing). I do still use a

whey protein powder since Ian won't eat meats or other proteins.

Unlike your son, he is a solidly built little guy.

There are metabolic conditions that lead to poor growth/absorbtion

and even some of the behavioral symptoms. If you were diagnosed at

the University of MI, they must have done some tests, yes?

Can I ask what the 7 symptoms of Autism are?

Pam

> Hi Pam: His official diagoses is pervasive developmental didorder

not

> otherwise specified. with 7 symptoms of autism. He wah diagnosed

at

> the University of Michigan. At his school he is in an AI

classroom. I

> believe he has hypothyroidism also ,but can`t get a doctor to do

> anything about it. He`s very small and dos not absorb well at all.

> Tina

[Guest guest]

Yes; symptoms of Autism (and other disorders).

Tina, do they license naturopaths in Michigan? If so, I'd look

around for a good N.D. and ask for help since you are treating him

yourself at this time.

How frustrating it can be!

Pam

> Some of the autistic symptoms my son has. Not playing with toys

> appropritely.Like he will flip a car over and turn the wheels on

it.

> he has no imaginative play. he does not interact with other kids

his

> age. hand flapping and toe walking. self abusive behavior. carring

> around one object all day like a stick or straw or wooden spoon.

He

> likes the preview channel and the credits at the end of a movie.

> Would you say those are symptoms of autism? Tina

[Guest guest]

I'm not familiar with the symptoms of autism, but I know those things you

described are things Faith used to do as well. She's been getting OT, PT,

DT, ST and special instruction for the last year. Now she plays

appropriately with toys most of the time. The times she doesn't she usually

just has a more imaginative use for it, like using the plastic Lego

container as a hat or a boat. Her pretend play is excellent, she plays with

other kids her age (and any other age if they'll let her). She toe walks

constantly and jumps up and down for no real reason at all. Autism was

ruled out for Faith, but she does have DSI.

Toni

[ ] Re: New member

Some of the autistic symptoms my son has. Not playing with toys

appropritely.Like he will flip a car over and turn the wheels on it.

he has no imaginative play. he does not interact with other kids his

age. hand flapping and toe walking. self abusive behavior. carring

around one object all day like a stick or straw or wooden spoon. He

likes the preview channel and the credits at the end of a movie.

Would you say those are symptoms of autism? Tina

[Guest guest]

So i`m still confused about what apraxia is compared to autism.

Actually i don`t think my son is autistic at all. He make eye contact

and he is sociable with adults, he`s not in his own little world like

they portray autistic people to be. I have read that symptoms of

mercury poisoning mimic autism. I chose to give him the label of

autism because there were more services available to him that way. He

does have autistic symptoms. Do you all think he has apraxia, because

i`ve never heard any professional use that term. I`m not saying he`s

not. I just don`t know what it is. Mentaly he is about 2 years old. I

feel the key to his making any progress is fixing his digestive

system. I`ve been trying to do that for 5 years and not getting

anywhere. Tina

[Guest guest]

hi tina

I work with autistic children and looks like he has symptoms of a child with

autism but I do not have your son in front of me and noone can diagnose autism

or pdd than a psychologist or nuerologist. does your son have any services?

what do the professionals say about him.

chris

pennington1994 <pennington1994@...> wrote:

Some of the autistic symptoms my son has. Not playing with toys

appropritely.Like he will flip a car over and turn the wheels on it.

he has no imaginative play. he does not interact with other kids his

age. hand flapping and toe walking. self abusive behavior. carring

around one object all day like a stick or straw or wooden spoon. He

likes the preview channel and the credits at the end of a movie.

Would you say those are symptoms of autism? Tina

[Guest guest]

hi tina,

I work with autistic children, can you tell me what he does that is autistic?

I've been working with autistic children and speech and language delayed for

about 12 years. I could be a good judge of what's autistic like. My clients who

had autisim also had apraxia too. but apraxia is including to the autism not a

definition of autism. People ask me all the time what is apraxia because that is

what my son is diagnosed in. I say its a motor disorder of the mouth, he has the

words but he can't get his mouth to say them this is very simplistic definition

of apraxia and please if I'm wrong people correct me. now from this website and

clients i've worked with the children have gross and fine motor problems as

well. With the autistic children i've worked with who had apraxia as well. were

uncoordinated for example they would fall alot, they jump before they look.

these children did not have a PT but had OT. being that autism and apraxia are

neurologically based it makes sense that

they go together.

but the major difference i see between my son who is just apraxic and my clients

is that through aba and I do the modified form especially with speech, the

autistic children really respond to the aba whereas my son it didn't. he would

cry and cry when it came to learn cognitive things but now I do modified aba

with speech with him. I don't use the SD-say but i just say the word and make

him play while were doing it, or sing it. I'll a 3-5 trials of it. Its just

practice not to get a % grade of the trials.

thanks to

[Guest guest]

Hi Tina

I just want to add one more thing about my son diagnosed PDD-NOS. You said

your son has good eye contact and is sociable -- well, my son is THE most

social kid every where he goes. He says hi to every person in the

supermarket, in church, in the playground, etc. He is definitely too

friendly at times! That is why most people would not believe he was on the

spectrum, even many medical professionals. But that is exactly why it is

called a " spectrum " . Some kids live in their own worlds and some don't. My

son's weakness is in pragmatic langauge -- he can answer very basic

questions but has a ways to go to develop real conversation.

Just wanted to share that little bit of extra info.

Bernadette

----- Original Message -----

>

> pennington1994 <pennington1994@...> wrote:

> So i`m still confused about what apraxia is compared to autism.

> Actually i don`t think my son is autistic at all. He make eye contact

> and he is sociable with adults, he`s not in his own little world like

> they portray autistic people to be. I have read that symptoms of

> mercury poisoning mimic autism. I chose to give him the label of

> autism because there were more services available to him that way. He

> does have autistic symptoms. Do you all think he has apraxia, because

> i`ve never heard any professional use that term. I`m not saying he`s

> not. I just don`t know what it is. Mentaly he is about 2 years old. I

> feel the key to his making any progress is fixing his digestive

> system. I`ve been trying to do that for 5 years and not getting

> anywhere. Tina

>

>

>

>

>

>

>

>

[Guest guest]

I don`t think his problems are only diet related, i just think his

symptoms are not as bad with the diet and supplements. I haven`t read

any of those books, but I`d like to check them out. I`ve been focused

a lot on his thyroid problem lately. I do feel that if his body is not

absorbing nutrients then his brain is not absorbing nutrients and if

i could fix that i feel he would improve. He does better when on the

candida diet, very hard to keep him on it and he loses a lot of weight

on it. I did chelation therapy on him to remove heavy metals. he

broke out in hives for something like 3 or 4 months. Big huge welt

all over his body. Freaked me out at first. I was taking him to a

chiropracter for awhile and he explained that it was the toxins

seeping out through his skin. They do brushing and massage with him

at school. There`s another therapy i tried i can`t think of the name

of it. Where they press on certain pressure points. They do some of

it at school, but i took him to a doctor in Lansing that did it. Kind

of like chiropractic or massage therapy, but that wasn`t it. He

wouldn`t hold still to well for it. Tina

[Guest guest]

Oh there was another thing i wanted to mention. My son was thought to

have Syndrome at about two years of age, but the tests came

back negetive for , but they did find he had a chromoseome

abnormality. He had symptoms of and some facial features.

Tina

[Guest guest]

hi tina,

they did not go into what these chromosome problems were?

that would drive me crazy not knowing what that means. were these tests done by

his ped?

chris

pennington1994 <pennington1994@...> wrote:

Oh there was another thing i wanted to mention. My son was thought to

have Syndrome at about two years of age, but the tests came

back negetive for , but they did find he had a chromoseome

abnormality. He had symptoms of and some facial features.

Tina