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There are a lot of good informational sites to check out. You need

to become as knowlegeble as possible. You need to find a lyme

literate doctor (a LLMD or LD or whateve you'll see various abbrv's).

Post a lttle something about your symptoms, how you were finally

diaznosed etc.

Pam

>

>

> Hello,

> I'm a new member here. I have just been told that I have lyme

> disease. I've had it for 30 years and suffered a dozen or more

> symptoms over the years.

>

> Reading some of the post here has me more concerned than I

> was when I found out. I am not happy I have Lyme, but thrilled to

> find out I am not crazy and my illnesses were not " in my head. "

> I will be reading past post to help me understand this awful

> disease better.

>

> I'm glad I've found this group.

>

> Alice

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Hi Alice

If you live in the Houston, Tx area come to our support group. We had our first

meeting on Nov 6th, 04. We meet the first Sat of each month. Contact me for more

info.

lucher@...

Alice <alice@...> wrote:

Hello,

I'm a new member here. I have just been told that I have lyme

disease. I've had it for 30 years and suffered a dozen or more

symptoms over the years.

Reading some of the post here has me more concerned than I

was when I found out. I am not happy I have Lyme, but thrilled to

find out I am not crazy and my illnesses were not " in my head. "

I will be reading past post to help me understand this awful

disease better.

I'm glad I've found this group.

Alice

Questions and/or comments can be directed to the list owner at

-Owner

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Thanks , but I live in FL. In fact Tampa is where I was

bitten by the tick over 30 years ago.

alice

> Hi Alice

> If you live in the Houston, Tx area come to our support group.

We had our first meeting on Nov 6th, 04. We meet the first Sat of

each month. Contact me for more info.

> lucher@s...

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I find myself in the same situation...I do not have insurance as well! My ex husband

and I own a small business together and it is an expense that is simply out of reach.

We provide coverage for our sons, but that is it!

There are many programs available however, in just about every community to provide

treatment either at a significantly reduced cost, or at no cost at all.

I recently hooked up with a clinic in my neighborhood that offers such a program.

I have a genotype that is not successfully treated, and have not yet decided to try it

or not...but knowing that it is available to me is a great comfort.

I have been told by the clinicians that the treatment is worst in the very begining,

and gets more tolerable as time goes on, once your system adjusts to it.

Your father is very young...I would try to encourage him to give it another shot.

Perhaps there are other factors making the treatment difficult?

If he smokes or drinks for example, and does not otherwise maintain a healthy

lifestyle, I'm sure it will be more difficult for him on the meds.

Maybe he could take some time to recover with healthy diet and some immune

boosting supplements before trying again?

It must be hard for you to feel so helpless in the wake of it all.

He is fortunate to have you for support!

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Welcome to the group. Your Dad & I are about the same age. The newer combo drugs are not as bad, as far as side affects. But they still can make you a lttle sick. Most of us found them livable, and was still able to hold down our jobs. They are worth giving them a shot. If your Dad can't tollerate the sides, he can always stop them. Terryschaftra <schaftra@...> wrote:

Hi... My father (50 yrs.old) was diagnosed in 1993 with hepatitis c. He has suffered alot with this and is starting to get worse. He has tried interfuron and rapoviron? He is single and self employed, trying to make a living while keeping his health up. He couldn't continue on the medicines because of the side effects. He had to work and support his himself, but was to sick and decided to stop them. His health insurance is soooo expensive and can't even take these meds. so he figures he should drop this now. I feel so bad for him and he is stubborn and won't accept alot of help from me. Does anyone know of any other meds that may work without making him sick? Is there any help out there for self employed people who can't any longer work? He wouldn't get enough from disability to keep paying his bills. He is very depressed and

worrying me.. Please, if anyone has any info please respond.. Thank you __________________________________________________

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Dear , Welcome to our group, but I'm sorry for the reason you have

to join. When I first found out about PA, I joined the National Psoriasis

Foundation. ( http://www.psoriasis.org/home/) You can join for as little

as a few dollars and they will send you all the booklets you want concerning

PA and how to go about finding help.

Here are some websites that I think explain the disease in easy terms.

Medicine Net.com -

http://www.medicinenet.com/psoriatic_arthritis/article.htm

Psoriatic arthritis by Dr DocOnLine - www.health.xq23.com/arthritis/...

WebMdHealth - http://my.webmd.com/content/article/74/89263.htm

If you don't feel like reading up on the disease, you can read all our posts

and find out that some of us are severely limited by PA, to the point of

being disabled and homebound, where others have good and bad days and manage

to work and lead fairly normal lives. Then a lot of people fall in the

middle of both groups. For me, I was finally diagnosed at the age of 46,

but I had been having severe pain and problems for several years. I also

have fibromyalgia so sometimes it was really hard to tell the muscle pain

from the bone pain. At times it still is.

The key for most people seems to be an early diagnosis and good treatment

plan. The sooner you stop the damage to your joints the faster you can get

on with your life and control the disease. It's unfortunate that a lot of

people go years before they ever know what is wrong with them. I happened

to be one of them, and even after I knew what I had, it still took a long

time to find a medication I could tolerate. So I have a lot to deal with

now, but my life is better since I started on Arava about 3 months ago.

it's amazing how some of these medications can help people, so keep thinking

positive. Find a good rheumatologist, one you can talk too and who listens

well, and get on a treatment plan as soon as possible.

This is a great group and write all the time when ever you want. We have

very few rules and everyone just seems to get along great. Take care and

welcome. Love, Fran

[ ] new member

I just found out about 4 months ago that I have psoriatic arthritis.

I am 36 years old and I am wondering what I have to look foward to

later in years. I already have a large knot in the joint of the thumb

on my right hand. The Dr. has not explained much to me about what

will happen. I would like some imput from people that are in my shoes.

Thanks,

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If you can, start Enbrel immediately. This early in the disease it has the

possibility of putting you into remission. They will try to put you on MTX

or other poisons because these drugs are cheaper. Enbrel is much less toxic

in most cases and much more effective. If I could have started Enbrel in

the beginning, I believe I could have avoided permanent joint damage. As it

is Enbrel has been a miracle for me. See an RD. Ask about Enbrel.

[ ] new member

I just found out about 4 months ago that I have psoriatic arthritis.

I am 36 years old and I am wondering what I have to look foward to

later in years. I already have a large knot in the joint of the thumb

on my right hand. The Dr. has not explained much to me about what

will happen. I would like some imput from people that are in my shoes.

Thanks,

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shannon,

first of all a very hearty welcome to you - you have come to the

right place - a place where you can learn, share, tell us how you

are doing, laugh, cry, and above all else, feel safe knowing that we

all understand. we are right there with you - through all your down

times and through you victories, whether they be small or large.

all of us here have psoriasis (p) and psoriatic arthritis (ps).

some of us are worse than others, but one way or another, we are all

in 'this' together. as i mentioned, you will learn a great deal

about this disease that has now decided to make its home in your

body, but i would strongly suggest you don't stop there. i have

found the internet to be a wonderful source of information to learn

from. as well, i would keep a diary of how you are from day to day,

or week from week, if you prefer. any questions you have for your

doctor, write them down and take them with you to your next

appointment - you did not mention if you have a rheumatologist or

not. i hope you do. if not, i would strongly suggest you have your

doctor provide you with a referral for one. lastly, ask us

questions - anything you like - don't be afraid it might be

a 'stupid' question - the only stupid questions are those that are

not asked... if i don't have the answer (and i often don't),

someone here will, or if not, someone will be able to point you in

the right direction to find the answer. this is a place to share

amongst a group of individuals who really care.

i'm so glad you have joined this group. for me it is a safe

lifeline and a means to feel much less alone as i continue to learn

how to live with pa.

god bless and gentle hugs,

karen (in vancouver, bc canada)

ps - is usually type in lower case because of my hands, wrists and

fingers - :)

k.

>

>

> I just found out about 4 months ago that I have psoriatic

arthritis.

> I am 36 years old and I am wondering what I have to look foward to

> later in years. I already have a large knot in the joint of the

thumb

> on my right hand. The Dr. has not explained much to me about what

> will happen. I would like some imput from people that are in my

shoes.

> Thanks,

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---

Hi ,

I wanted to welcome you to our group. I don't know if you mean that

your joint is swollen in a knot-that is the way my fingers and toes

are.

God Bless, Sue.

In , " burrellsboss "

<burrellstreet@c...> wrote:

>

>

> I just found out about 4 months ago that I have psoriatic

arthritis.

> I am 36 years old and I am wondering what I have to look foward to

> later in years. I already have a large knot in the joint of the

thumb

> on my right hand. The Dr. has not explained much to me about what

> will happen. I would like some imput from people that are in my

shoes.

> Thanks,

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Welcome t,

Your on the group list and have addressed the group correctly! You

asked how to answer to group messages? " Most discussion groups are

set as Reply-to All, where replies go to all members of this group.

Change the address setting, (the check mark in the right corner) only

if you want all replies to go back to the author of a message. " If you

have questions about /membership options, they provide

instruction at groups help. http://help./help/us/groups/messages

Below are some web sites that provide info on dysphasia/aphasia.

Perhaps these can help with your search for answers. Please feel

free to ask questions at the group and join in-group discussions.

Speechville resources on dysphasia/aphasia

http://www.speechville.com/diagnosis-destinations/aphasia/aphasia.html

Aphasia Dysphasia files

http://www.specialneedsfamilyfun.com/files/aphasiadysphasia.html

aphasiahelp.org

http://www.aphasiahelp.org/information/aphasia/

Hope this helps,

Mustafa

>

>

> Hi. I'm not sure if this is the way to address the group, or am I

> sending this to one person? I have a daughter (7) with dysphasia,

> and am wondering if anyone can answer questions I have? Also, how

do

> I answer an email I've read on your site?

>

> Thanks in advance,

>

> t

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> >

> >

> > I just found out about 4 months ago that I have psoriatic

> arthritis.

> > I am 36 years old and I am wondering what I have to look foward to

> > later in years. I already have a large knot in the joint of the

> thumb

> > on my right hand. The Dr. has not explained much to me about what

> > will happen. I would like some imput from people that are in my

> shoes.

> > Thanks,

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Hi --

So sorry you had to find us but glad you did. There is a lot of information

about living with PA. I hope you have a good rheumatologist and that you will

be receving aggressive treatment. I feel it is important to prevent damage

which is what my meds have done for me in the 3 years since diagnosis. I am 55

(I take Enbrel & Arava) so my experience with this disease will undoubtedly be

different than yours as I have some other health issues, ie. menopause, high

blood pressure, too much weight, etc. I'm sure you will hear from some of our

younger members who can give you better information than I can. I just want you

to know that we are here for you. Let us know how we can help.

Cheri

burrellsboss <burrellstreet@...> wrote:

I just found out about 4 months ago that I have psoriatic arthritis.

I am 36 years old and I am wondering what I have to look foward to

later in years. I already have a large knot in the joint of the thumb

on my right hand. The Dr. has not explained much to me about what

will happen. I would like some imput from people that are in my shoes.

Thanks,

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Hey Tammy I just wanted to welcome you to the group. I have only

posted a few times but everyone is always so helpful. I've learned

so much just from reading. So anyway Welcome!! Jill

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I myself have never had a cortisone shot. I have been on Mobic and

methotrexate for about a month and it seems to be ok. I still have

some pretty yucky days but so far I can still do my job.My family is

adjusting pretty well ,as far as helping out when I need it.We just

bought a new house and I am hoping the stairs won't be a problem for

years. Good Luck

> > >

> > >

> > > I just found out about 4 months ago that I have psoriatic

> > arthritis.

> > > I am 36 years old and I am wondering what I have to look foward

to

> > > later in years. I already have a large knot in the joint of the

> > thumb

> > > on my right hand. The Dr. has not explained much to me about

what

> > > will happen. I would like some imput from people that are in my

> > shoes.

> > > Thanks,

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Hi and welcome!

Since you are a new member -I have a new member archive that may

help!

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

I would also have at least one private " out of pocket " (if possible)

exam with a knowledgeable speech pathologist as well. This SLP can

coordinate with your child's MD, and school therapist and other

professionals, and again be there to assist in a therapeutic plan,

help set goals and oversee your child's development over the years

if needed.

Networking with parents of other speech-impaired children is also

possibly one of the best moves you could make in your child's

recovery. Others will steer you to the " right " professionals and

programs in your area -and you won't feel so alone. I would HIGHLY

recommend joining a whose goal is to unite parents and

professionals. This group

/ is through CHERAB

http://www.cherab.org

The speechville website also has message boards so that you can talk

to other parents on particular topics.

http://www.speech-express.com/boards/

Check your state resources at Speechville to find local support

groups and resources.

http://www.speech-express.com/regional-resources.html

http://www.speech-express.com/communication-station/regional-support-

groups.html

(BTW -for anyone who is either running or starting a support group -

due to The Late Talker book and the many who will see your group,

please make sure your info is up at this website and accurate)

For all your other questions including what type of testing -just

read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read

It!') At Amazon.com you can even start today and read sample pages

of the book online!

" The first book to show parents how to tell whether a child has a

speech

delay -or a more serious speech disorder

Every parent eagerly awaits the day his or her child will speak for

the fist

time. For millions of mothers and fathers, however, anticipation

turns to

anxiety when those initial, all-important words are a long time

coming. Many

worried parents are reassured that their child is " just a late

talker, " but

unfortunately, that is not always the case. Co-author

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Dear Patty, It's so hard to have this disease, but when your family doesn't

understand or support you it can be intolerable. As hard as it is, you need

to educate them the best you can about PA. Try and get someone to go with

you to your doctor appointment and have the doctor explain just what this

disease is like. Maybe coming from a medical professional, they will listen

and understand more of your daily pains and problems.

I've been told by my many doctors that I could have RA and PA, and I've

decided it really doesn't matter. They treat them both the same way, except

with PA you have the extra fun of a skin problem. Sometimes a dermatologist

can help with the itching of your skin. When mine gets bad I take Benedryl

and I use Aveeno and all sorts of creams all the time. If my skin gets dry

and it seems to be drying out like crazy lately, it makes the itching much

worse.

I also have a list of pain tips that can help with family, if you can get

them to read them. It sort of explains how we feel daily just dealing with

chronic pain and how the little things can mean so much to a person in pain.

I've posted them a million times on here, but I figure one more time won't

hurt anyone. They don't have to read them if they don't want too. I hope

they help you in some little way.

You've found a good group and keep writing. You aren't alone and knowing

that helps as much as anything I think. Hopefully since you are only 38,

you can get on a good medication schedule and stop any future damage from

either disease. Try and stay positive, it's the only way to beat or stay

ahead of this disease. I know it's not easy, and I'm thinking today I

should have taken my own advice. We all have our down days. Just don't let

them run into too many or then the depression becomes as big a problem as

the PA. Anyway, Welcome and I'm glad you found us. Take care. Love, Fran

Tips for Dealing With People in Pain

1. People with chronic pain seem unreliable (we can't count on ourselves).

When feeling better we promise things (and mean it); when in serious pain,

we may not even show up. Pain people need the " rubber time " (flexible) found

in South Pacific countries and many aboriginal cultures.

2. An action or situation may result in pain several hours later, or even

the next day. Delayed pain is confusing to people who have never experienced

it.

3. Pain can inhibit listening and other communication skills. It's like

having someone shouting at you, or trying to talk with a fire alarm going

off in the room. The effect of pain on the mind can seem like attention

deficit disorder. So you may have to repeat a request, or write things down

for a person with chronic pain. Don't take it personally, or think that they

are stupid.

4. The senses can overload while in pain. For example, noises that wouldn't

normally bother you may seem too loud or glaring.

5. Patience may seem short. We can't wait in a long line; can't wait for a

long, drawn out conversation.

6. Don't always ask " How are you? " unless you are genuinely prepared to

listen - it just points attention inward.

7. Pain can sometimes trigger psychological disabilities (usually very

temporary). When in pain, a small task, like hanging out the laundry, can

seem like a huge wall, too high to climb over. An hour later the same job

may be quite okay. It is sane to be depressed occasionally when you hurt.

8. Pain can come on fairly quickly and unexpectedly. Pain sometimes abates

after a short rest. Chronic pain people appear to arrive and fade

unpredictably to others.

9. Knowing where a refuge is, such as a couch, a bed, or a comfortable

chair, is as important as knowing where a bathroom is. A visit is much more

enjoyable if the chronic pain person knows there is a refuge if needed. A

person with chronic pain may not want to go somewhere that has no refuge

(e.g. no place to sit or lie down).

10. Small acts of kindness can seem like huge acts of mercy to a person in

pain. Your offer of a pillow or a cup of tea can be a really big thing to a

person who is feeling temporarily helpless in the face of encroaching pain.

11. Not all pain is easy to locate or describe. Sometimes there is a

body-wide feeling of discomfort, with hard to describe pains in the entire

back, or in both legs, but not in one particular spot you can point to. Our

vocabulary for pain is very limited, compared to the body's ability to feel

varieties of discomfort.

12. We may not have a good " reason " for the pain. Medical science is still

limited in its understanding of pain. Many people have pain that is not yet

classified by doctors as an officially recognized " disease " . That does not

reduce the pain; it only reduces our ability to give it a label, and to have

you believe us

[ ] New Member

Hello, I'm a 38 year old female with RA, my rhumy has told me that I may

have PA but no definite diag. All I know is right now I feel pretty

miserable and alone. I hurt all the time and never feel good, I have this

horrible rash that's dry and icky all over my body. It hurts and itches so

bad I want to scream. When I try to explain to my family they just think I

am being lazy and don't want to work. I am so glad to have found this group.

That's it for now, I will continue reading the messages and see what I can

find out before I post. God Bless to you all and many healing thoughts your

way.

Patty

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> Hi, I am a new member to the group. I've been study and using this

> protocol for 10 months and I have a few questions. My father-in-law

> suffers from Parkinson's and while he is not interested in the

> protocol my husband is.

Hi ,

I have a neurodegeneratives protocol sheet that is practical and

science-based. This is aimed at stopping the progress of the disorder

and then reversing much of it.

The detox and nutrition protocol doesn't use frequencies, but

possibly could benefit from them as I'm hearing good things from the

Rife lists.

Anyway, write me privately for the neurodegeneratives sheet

(anybody).

regards,

Duncan Crow (copyright waived)

duncancrow/

--- live and help live... ---

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To get rid of heavy metals, you might consider doing some EDTA

therapy. Between 10-20 sessions is recommended. It is supposed to be

very effective for true heavy metals like mercury.

-Ken Bagwell

>

>

> Hi, I am a new member to the group. I've been study and using this

> protocol for 10 months and I have a few questions. My father-in-law

> suffers from Parkinson's and while he is not interested in the

> protocol my husband is. He had his mouth completely " renovated " by

a

> biological dentist familiar with mercury toxicity (one of four in

the

> country) and has been a bit sick since completing the removal of

> fillings and root canals. He was very ill immediately after the

work

> but now his sickness is now mild, sore throat, headaches once in a

> while. Zapping brings temporary relief. Is this detox illness? I

am

> starting him on a kidney cleanse and then a liver cleanse. Is there

> anything else we can do? How can we get rid of the heavy metals in

> his body? He is 36 and used to be an athlete. Went to olympic

trials

> three times in rowing.

>

> Also, I have completed my first liver cleanse and my asthma has

> disappeared (for a while at least - it's only been two weeks but I

> haven't needed an inhaler yet.)My asthma was not severe and

triggered

> by a lot of things that I can't even keep track of. Sometimes simply

> laughing would bring on an attack. I now have a sore throat and

common

> cold symptoms that will not go away even though I have been zapping

> for an hour three to four times a day. It seems to have no effect.

My

> husband seems to think I am allergic to our Christmas tree since

this

> began the day we brought it into the house but I have never been

> allergic to trees before. Is it possible I've developed an allergy

> during the detox process? Is there anything I can do to get rid of

> this cold? I would appreciate any advice you can give!

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Hi ,

You know, you just reminded me of something.

Does anyone here use the syncometer on a regular/semi-regular basis?

Most of the post I see never talk about the syncometer, and

hopefully, at some point, I want to start using it myself.

-Ken Bagwell

>

>

> Hi all, I'm a new member. i had found Dr. and found it

> interesting.i m very new to this and hope to learn many things. i

> have only been reading whats on line. and waiting for the VHS to

> come.

> i have not made my syncrometer yet for i m waiting for the tape. i

> would like to know? one line it tells of 3 ways to make the

> syncrometer.

> 1. from a radio shack kit 200 in one electronic project lab kit

> 2. a kit on line

> 3. buy the parts

>

> which one do you think is the best to make. if you had to start

> again? think you for any help!!!

>

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>

. . . .

Also, I have completed my first liver cleanse and my asthma has

disappeared (for a while at least - it's only been two weeks but I

haven't needed an inhaler yet.)My asthma was not severe and triggered

by a lot of things that I can't even keep track of. Sometimes simply

laughing would bring on an attack. I now have a sore throat and common

cold symptoms that will not go away even though I have been zapping

for an hour three to four times a day. It seems to have no effect. My

husband seems to think I am allergic to our Christmas tree since this

began the day we brought it into the house but I have never been

allergic to trees before. Is it possible I've developed an allergy

during the detox process? Is there anything I can do to get rid of

this cold? I would appreciate any advice you can give!

>>>>The allergy is probably something you already had--not something

you just developed as a results of detoxing. A lot of people are

allergic to Xmas trees, real or fake:

http://www.creativehomemaking.com/articles/122703h.shtml

http://www.louisville.edu/ur/onpi/scripts/1298/tree.html

http://www.docguide.com/dg.nsf/PrintPrint/8F2D380097D7A631852563E6006B

98F6

~Lorna

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> To get rid of heavy metals, you might consider doing some EDTA

> therapy. Between 10-20 sessions is recommended. It is supposed to be

> very effective for true heavy metals like mercury.

>

> -Ken Bagwell

For mercury toxicity one could certainly use therapy. However most of

us are not mercury toxic although it does impose an oxidative burden

and resulting depressed immune response.

Part of the neurodegeneratives sheet mentions glutathione increasers.

Glutathione is the natural antioxidant the body makes that happens to

reduce heavy metal load by blotting it up the instant it's free, and

escorting it from the body. Because glutathione depletion results in

disease and infection, increasing it should be part of everybody's

health initiative.

regards,

Duncan Crow (copyright waived)

duncancrow/

--- live and help live... ---

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How can we get rid of the heavy metals in his body?

>>>>>www.noamalgam.com addresses amalgam illness and how to diagnose

and eliminate it. Warning: this book is not easy to get through

because it's written by a PHd, PE, who does not have the best writing

skills (sorry Andy if this should ever get back to you . . . .). But

the guy knows his stuff and is an amazing resource.

Lorna

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Dear Patty, You are most welcome and I hope it helps you and your family.

Love, Fran

Fran,

Thanks so much for the list of things on pain, I printed and hung it on

the frig so the family could read them.

Bless You

Patty

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On Wed, 08 Dec 2004 20:57:32 -0000, you wrote:

> I don't have a copy of hubby's test results, not sure what was done

>yet, except was told he was " low normal " of 226ng/dl. If a baseline

>wasn't done during his youth, how do they know if that is a big drop

>or not in his Testosterone levels now that he is 54?

226 is terribly low. Look for age distributions here:

Look up your age on this table to see normal ranges by age.

http://www.alt-support-impotence.org/hormone_charts.htm

Yes you should be looking at androgel or shots for him. It will change

his life and not just in the bedroom.

- - - -

Just another albino black sheep

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One point that Dr. Shippen makes in his book " The Testosterone Syndrome " and

should be

the main point in hypogonadism and aging in general, is that when the body no

longer has

all the hormones it needs to have a very active sexual ability and activity,

then the body no

longer deems it necessary to continue to keep the body alive.

It is mother nature's way of getting rid of all the old " no longer able to

reproduce " people.

So sexual vigor is one way to measure TRT and HRT results, and being able to be

as sexual

as a 21 year old is how i can tell if i have all my hormones dialed in.

>

>

> Hi Folks,

> What a good wife/partner I am. Dealing w/ my own HRT issues

> associated w/ Menopause and looking for help for hubby and his. We

> have alot of libido issues between us that were not there in 'the good

> old days'. My doc is willing to work w/ me and my researched

> determinations of what I want/need for HRT, but...Hubby has a urolgist

> that is as his staff told me " Convervative " with his treatment

> recommendations. He once told us while chuckling that what is

> happening is just a cruel trick of mother nature, that when we can

> relax and enjoy sex without fear of pregnancy and the kids out of the

> nest, that the means to do that isn't what it used to be. Grrrr.

> Hubby's mild ED is responding nicely to Cialis so that is not a

> problem currently. Its not loss of function, its desire that is

> stressful in this household. And if one more person tells us that

> thats good because we are both on the same page of not wanting sex, so

> its ok, I will scream. LOL

> I don't have a copy of hubby's test results, not sure what was done

> yet, except was told he was " low normal " of 226ng/dl. If a baseline

> wasn't done during his youth, how do they know if that is a big drop

> or not in his Testosterone levels now that he is 54?

> I have read alot of the files and done quite a bit of researching

> and printing and will take my findings w/ us when we go back which

> isn't until Dec 30th!! I have AACE's guidlines 2003 and have found

> alot of easily understood info for lil' ole' layperson me. If the doc

> doesn't work w/ us, he may find he needs a proctologist to help him

> remove the guidlines.

> I want a 3 month trial of Androgel. Too much to ask? Not according

> to the AACE.

> Thanks for listening to the newbie ramble...lol

> Kay

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