New Member

[Guest guest]

Hi Kay, nice to see you here! :-) Small world, huh?

[Guest guest]

One point that Dr. Shippen makes in his book " The Testosterone

Syndrome " and should be the main point in hypogonadism and aging in

general, is that when the body no longer has all the hormones it

needs to have a very active sexual ability and activity, then the

body no longer deems it necessary to continue to keep the body alive.

It is mother nature's way of getting rid of all the old " no longer

able to reproduce " people. -------

That is absolutely remarkable. While at my lowest point before

finding HRT that worked, I developed an appetite loss - it seemed

like too much trouble to eat or drink nutritious foods. Also had a

strange aversion to being touched and the really bizarre symptom was

a recurring vision, strangely not unpleasant, of lying out on the

desert as a skeleton with the sun bleaching my bones.

I reached the conclusion that this was indeed my body signalling me

to leave the important resources for the younger members of the herd

and to go off by myself and die.

I *must* get a copy of that book!

[Guest guest]

Hi Kay,

Welcome. The " good wife/partner " description is an understatement.

I suggest you start looking for another doc now. Even if you can re-educate

the current uro, the extent of his knowledge will be what you teach him. That's

a lot better than he already knows, but shouldn't a doc know more about what

he's treating than you do? Find someone who doesn't deserve to be written up

in the American Journal of Proctology. There are good TRT docs out there.

Don't get confused that a specialty in urology or endocrinology implies

competence in male hormone issues.

One way to find a good doc is by asking a compounding pharmacy. They can

probably tell you the name of a good doc. Ask for one that orders testosterone

and hCG. Look under Compounding Pharmacy, in the Files section here, or

do a web search. One is Collage Pharmacy in Colorado, (800) 888-9358 or

(719) 262-0022, or go online:

http://www.collegepharmacy.com/

and click " Find a Health Care Provider " . (Thanks Phil). (I found a great doc

through a testosterone pellet manufacturer).

Here's a brainless quip from one of my prior endos: " You know, half of the

human race gets along without any testosterone... they're called women " My

wife let him live, darn it.

Best,

Bruce

>

>

> Hi Folks,

> What a good wife/partner I am. Dealing w/ my own HRT issues

> associated w/ Menopause and looking for help for hubby and his. We

> have alot of libido issues between us that were not there in 'the good

> old days'. My doc is willing to work w/ me and my researched

> determinations of what I want/need for HRT, but...Hubby has a urolgist

> that is as his staff told me " Convervative " with his treatment

> recommendations. He once told us while chuckling that what is

> happening is just a cruel trick of mother nature, that when we can

> relax and enjoy sex without fear of pregnancy and the kids out of the

> nest, that the means to do that isn't what it used to be. Grrrr.

> Hubby's mild ED is responding nicely to Cialis so that is not a

> problem currently. Its not loss of function, its desire that is

> stressful in this household. And if one more person tells us that

> thats good because we are both on the same page of not wanting sex, so

> its ok, I will scream. LOL

> I don't have a copy of hubby's test results, not sure what was done

> yet, except was told he was " low normal " of 226ng/dl. If a baseline

> wasn't done during his youth, how do they know if that is a big drop

> or not in his Testosterone levels now that he is 54?

> I have read alot of the files and done quite a bit of researching

> and printing and will take my findings w/ us when we go back which

> isn't until Dec 30th!! I have AACE's guidlines 2003 and have found

> alot of easily understood info for lil' ole' layperson me. If the doc

> doesn't work w/ us, he may find he needs a proctologist to help him

> remove the guidlines.

> I want a 3 month trial of Androgel. Too much to ask? Not according

> to the AACE.

> Thanks for listening to the newbie ramble...lol

> Kay

[Guest guest]

> One way to find a good doc is by asking a compounding pharmacy. They

can

> probably tell you the name of a good doc. Ask for one that orders

testosterone

> and hCG. Look under Compounding Pharmacy, in the Files section here,

or

> do a web search. One is Collage Pharmacy in Colorado, (800) 888-9358

or

> (719) 262-0022, or go online:

Generally, that's a good advice. However, please note that HCG is an

injectables. No compounding is required. Therefore, I wouldn't expect

that a compounding pharmacy would be knowledgeable about HCG. In fact,

many pharmacies (e.g., CVS) don't sell HCG or other injectables. I

believe that Walgreen's does.

If I were to approach a compounding pharmacy to find a good HRT doctor,

I would ask for doctors that prescribe compounded HRT for men and women

using bioidentical hormones. I suspect that doctors who prescribe

compounded HRT gels/creams are also doctors that prescribe HCG. If the

pharmacist is open to it, I'd also try to get a sense of the doctor's

philosophy on TRT and ask for the pharmacist's recommendation.

-

[Guest guest]

Actually, I have purchased injectable testosterone from CVS.

Mark

> that a compounding pharmacy would be knowledgeable about HCG. In fact,

> many pharmacies (e.g., CVS) don't sell HCG or other injectables. I

[Guest guest]

Welcome, Mike-

You have a big advantage in joining us BEFORE starting any testosterone

therapy. You've probably saved yourself several years of lackluster &

unsuccessful treatment. How did you know to come to this group?

Phil's advice on the AACE guidelines and archives here is a good start. This

will probably be confusing at first, but you'll pick it up.

The biggest step now is finding the doctor who will treat you. The most

important subject for your upcoming appointment is that. It could be your GP, if

he/she is willing, able and open enough to do the job well. Some GP's

develop an interest in this and become good at it. Personally, I recommend

finding a doctor whose practice includes regular successful treatment of

hypogonadism.

If your doc refers you to a specialist, his first choice might be an

endocrinologist or a urologist. Those specialties are only good if the doctor's

practice includes regular successful treatment of hypogonadism. An

astonishing number of those specialists simply don't understand male

hormone issues, and worse, think that they do.

I suggest preparing a list of candidate doctors to have when you talk with your

GP. Contact a compounding pharmacy, like Collage Pharmacy in Colorado,

(800) 888-9358 or (719) 262-0022, or go online:

http://www.collegepharmacy.com/

and click " Find a Health Care Provider " . There's a form to fill out. Submit the

form & they'll e-mail a list of docs nearest you.

Your total testosterone test results mean you next need a full panel of male

hormone tests (I'll spare you the list for now). Further testing is needed to

determine if your hypogonadism is primary (testicles cannot make T) or

secondary (testicles can but aren't making T). Do not start treatment until

you've been completely tested and know all your options.

Bruce

>

>

> Hello,

>

> I just found out this week after taking a blood test that my

> testertorine level was low (210), I am 44 years old. I have been

> feeling fatigued at times and my libido is real low. I suffered a

> very mild heart attack in April 2003 and I have blamed every anxiety

> attack, my poor libido, joint and stomach pain and fatigue on it. I

> have a meeting scheduled with my GP next tuesday but I was asking

> for advise to what comes next? What questions to ask my doctor? What

> should I expect for treatment options and the timeframes to see

> positive results or side effects?

>

> Thanks

> Mike Sullivan

[Guest guest]

--- Hi Bruce,

Your advice to Mike applies to me/us as well. I called the

Urologist and asked for copy of the labs to be sent and sure enough,

all he did was a total testosterone, up from 226 to 251 ( I read that

diurnal results can cause the changes?) Still on the low side

of 'normal'. Rather than wrestle w/ this 'tightass conservative "

doctor, hubby wants to go somewhere else. I went to the pharmacy

website and asked for drs in our area to be sent. Hopefully there is

someone close that they can recommend. My doc deals with Women's

International Pharmacy and I know they do TRT too so It won't hurt to

ask them what doctors in this area use their services. Hubby is also

open to asking his GP if she will work with him if we don't find a

recommended doc.

This group is so helpful, Thanks everyone

Kay

[Guest guest]

Mike, the link below will take you to a very good forum which

contains a lot of guys in the UK (including Nick).

Post your problems there.

very good luck.

http://www.globalandropause.com/forum/disc6_frm.htm

>

>

> Hello,

>

> I just found out this week after taking a blood test that my

> testertorine level was low (210), I am 44 years old. I have been

> feeling fatigued at times and my libido is real low. I suffered a

> very mild heart attack in April 2003 and I have blamed every

anxiety

> attack, my poor libido, joint and stomach pain and fatigue on it.

I

> have a meeting scheduled with my GP next tuesday but I was asking

> for advise to what comes next? What questions to ask my doctor?

What

> should I expect for treatment options and the timeframes to see

> positive results or side effects?

>

> Thanks

> Mike Sullivan

[Guest guest]

Hi Kay,

I learned the pharmacy trick the day I joined this group, finding a post about

it

in the archives. Most likely from Phil (thank you, thank you, thank you Phil!).

I

was investigating pellets, so I found a manufacturer, Bartor Pharmicl. They

gave me the names of 3 docs and the one I chose is marvelous. Please let us

know if Women's International Pharmacy is also a good place to locate a doc.

Caution in medicine is a good thing, excessive caution is not. Overly-cautious

docs put so much emphasis on " first do no harm " that they miss " second, do

some good " .

Peace,

Bruce

- probably

>

>

> --- Hi Bruce,

> Your advice to Mike applies to me/us as well. I called the

> Urologist and asked for copy of the labs to be sent and sure enough,

> all he did was a total testosterone, up from 226 to 251 ( I read that

> diurnal results can cause the changes?) Still on the low side

> of 'normal'. Rather than wrestle w/ this 'tightass conservative "

> doctor, hubby wants to go somewhere else. I went to the pharmacy

> website and asked for drs in our area to be sent. Hopefully there is

> someone close that they can recommend. My doc deals with Women's

> International Pharmacy and I know they do TRT too so It won't hurt to

> ask them what doctors in this area use their services. Hubby is also

> open to asking his GP if she will work with him if we don't find a

> recommended doc.

> This group is so helpful, Thanks everyone

> Kay

[Guest guest]

Hi Bruce -

Women's International was very helpful to me in providing a list of docs in

my area.

Drake

>From: " Bruce " <bruceharvey@...>

>Reply-

>

>Subject: Re: New member

>Date: Sun, 12 Dec 2004 16:31:44 -0000

>

>

>

>Hi Kay,

>

>I learned the pharmacy trick the day I joined this group, finding a post

>about it

>in the archives. Most likely from Phil (thank you, thank you, thank you

>Phil!). I

>was investigating pellets, so I found a manufacturer, Bartor Pharmicl. They

>gave me the names of 3 docs and the one I chose is marvelous. Please let us

>know if Women's International Pharmacy is also a good place to locate a

>doc.

>

>Caution in medicine is a good thing, excessive caution is not.

>Overly-cautious

>docs put so much emphasis on " first do no harm " that they miss " second, do

>some good " .

>

>Peace,

>Bruce

>

>- probably

> >

> >

> > --- Hi Bruce,

> > Your advice to Mike applies to me/us as well. I called the

> > Urologist and asked for copy of the labs to be sent and sure enough,

> > all he did was a total testosterone, up from 226 to 251 ( I read that

> > diurnal results can cause the changes?) Still on the low side

> > of 'normal'. Rather than wrestle w/ this 'tightass conservative "

> > doctor, hubby wants to go somewhere else. I went to the pharmacy

> > website and asked for drs in our area to be sent. Hopefully there is

> > someone close that they can recommend. My doc deals with Women's

> > International Pharmacy and I know they do TRT too so It won't hurt to

> > ask them what doctors in this area use their services. Hubby is also

> > open to asking his GP if she will work with him if we don't find a

> > recommended doc.

> > This group is so helpful, Thanks everyone

> > Kay

>

>

>

>

>

>

>

>

[Guest guest]

Bruce,

I started on WEBMD and then also look at some other linked sites and

one of them referred me to this group. I recently go married in

October and we want to have children so I want to try and address

this problem head on for my future family's sake but also for my

general well being. I read the AEA paper and found most of it

confusing. I think I am more confused than I was before. I did go to

the link you gave me below to find a list of doctors. My first

question and I think I know the answer is is this a life long

treatment program? Do most men see good positive results from TRT? I

saw some references to cardiovascular disease that low T could cause

elevated LDL is that correct? Also not to sound too negative but

what is your involvement with the group? Quite a few messages get

sent to you or are answered by you. Are you a doctor or a patient

with extensive history and background in the subject? Sorry if that

was too negative a questions. I feel relieved that I now know

something is wrong with the way I was feeling and supposedly there

are treatments for it. Any other suggestions you might have would be

appreciated?

Thank You

Mike Sullivan

> >

> >

> > Hello,

> >

> > I just found out this week after taking a blood test that my

> > testertorine level was low (210), I am 44 years old. I have been

> > feeling fatigued at times and my libido is real low. I suffered

a

> > very mild heart attack in April 2003 and I have blamed every

anxiety

> > attack, my poor libido, joint and stomach pain and fatigue on

it. I

> > have a meeting scheduled with my GP next tuesday but I was

asking

> > for advise to what comes next? What questions to ask my doctor?

What

> > should I expect for treatment options and the timeframes to see

> > positive results or side effects?

> >

> > Thanks

> > Mike Sullivan

[Guest guest]

Hi Mike,

Glad you found us. I guess you learned to be a more sophisticated patient as

the result of your heart trouble. I learned to be that through personal

experience with prostate cancer, among other things. I'm not a doctor. I'm a 55

y.o. retired businessman, addicted to amateur research on the internet. I've

been on testosteorne replacement therapy since 1998. I finally found a

hormone doctor who knows what he's doing this year. I may tend to speak

authoritatively (ego thing), fortunately others here catch me if I spout bad

advice.

To the best of my knowledge hypogonadism is a lifetime thing. My personal

results are mixed, but I think there's something else going on. I think others

here have had more consistent success than me. I am confident that your life

will be better if the hypogonadism is properly treated. I'm not knowledgeable

about the LDL thing, mine is under control using Lipitor.

Your wish to have children influence your treatment. TRT eventually makes

men sterile, so you want to see if other treatment is an option. You should be

tested to see if stimulating your system can boost natural testosterone

production. That will probably be done through an hCG (Human Chorionic

Gonadotrophin) test, or similar. See " Dynamic Tests " on p. 443 of the AACE

Guideline excerpt. If you respond well to the test, your hypogonadism will be

" secondary " . A suitable treatment might be hCG injections. These stimulate

the pituitary gland to send hormones to the testicles signalling them to

increase testosterone production. See " Gonadotropins " on p. 442 of the AACE

Guideline excerpt. I haven't used hCG personally, but plenty here do.

I might be wrong, but I think LDL is affected by supplemental testosterone,

maybe not hCG.

Best,

Bruce

>

>

> Bruce,

>

> I started on WEBMD and then also look at some other linked sites and

> one of them referred me to this group. I recently go married in

> October and we want to have children so I want to try and address

> this problem head on for my future family's sake but also for my

> general well being. I read the AEA paper and found most of it

> confusing. I think I am more confused than I was before. I did go to

> the link you gave me below to find a list of doctors. My first

> question and I think I know the answer is is this a life long

> treatment program? Do most men see good positive results from TRT? I

> saw some references to cardiovascular disease that low T could cause

> elevated LDL is that correct? Also not to sound too negative but

> what is your involvement with the group? Quite a few messages get

> sent to you or are answered by you. Are you a doctor or a patient

> with extensive history and background in the subject? Sorry if that

> was too negative a questions. I feel relieved that I now know

> something is wrong with the way I was feeling and supposedly there

> are treatments for it. Any other suggestions you might have would be

> appreciated?

>

> Thank You

> Mike Sullivan

-

[Guest guest]

Bruce,

Actually, I think HCG takes the place of the pituitary hormones. From

what I understand I don't think it stimulates the pituitary, it

stimulates the testicles.

Mark

> " secondary " . A suitable treatment might be hCG injections. These

stimulate

> the pituitary gland to send hormones to the testicles signalling

them to

> increase testosterone production. See " Gonadotropins " on p. 442 of

[Guest guest]

Mark, I think you're right. - Bruce

> Bruce,

> Actually, I think HCG takes the place of the pituitary hormones. From

> what I understand I don't think it stimulates the pituitary, it

> stimulates the testicles.

> Mark

[Guest guest]

I know you are right. That's the reason it works on me with Secondary

Hypo (pituitary failure) and not on men with Primary Hypo (testicular

failure)

Regards,

K4

> > Bruce,

> > Actually, I think HCG takes the place of the pituitary hormones.

From

> > what I understand I don't think it stimulates the pituitary, it

> > stimulates the testicles.

> > Mark

[Guest guest]

On Sat, 11 Dec 2004 20:30:44 -0000, you wrote:

>

>

>

>Hello,

>

>I just found out this week after taking a blood test that my

>testertorine level was low (210), I am 44 years old. I have been

>feeling fatigued at times and my libido is real low. I suffered a

>very mild heart attack in April 2003 and I have blamed every anxiety

>attack, my poor libido, joint and stomach pain and fatigue on it. I

>have a meeting scheduled with my GP next tuesday but I was asking

>for advise to what comes next? What questions to ask my doctor? What

>should I expect for treatment options and the timeframes to see

>positive results or side effects?

What comes next is a full work up BEFORE starting testosterone

therapy. Too may docs start T before finding out why and then end up

having to stop it or continue on in ignorance.

They need to test for prolactin, FSH, LH, Total T, Free T, Estradiol

(E2), ferritin to get a full picture.

These tests provide the baseline for diagnosis.

After diagnosis you need a cholesterol and PSA (prostate specific

antigen) test to serve as baselines to watch out for potential side

effects of the therapy.

T therapy will do wonders for your energy, focus, concentration and

for many folks, libido.

- - - -

Just another albino black sheep

[Guest guest]

On Sun, 12 Dec 2004 04:53:18 -0000, you wrote:

>--- Hi Bruce,

> Your advice to Mike applies to me/us as well. I called the

>Urologist and asked for copy of the labs to be sent and sure enough,

>all he did was a total testosterone, up from 226 to 251 ( I read that

>diurnal results can cause the changes?) Still on the low side

>of 'normal'.

Look at where you should be for your age:

http://www.alt-support-impotence.org/hormone_charts.htm

- - - -

Just another albino black sheep

[Guest guest]

>

>

> I posted last week that I just received bloodwork that indicated

low

> testosterone (210). I met with my GP and after some discussion and

a

> pretty positive outlook from him he is prescribing Androgel. I

would

> appreciate any comments positive or negative with your experience

> with Androgel.

>

> Thanks

> Mike

------------------

Hi Mike, welcome aboard. Some people do and some don't respond well

to skin spread ons whether it is extremely high priced Androgel or a

testosterone gel made up cheaply by a local compounding pharmacy.

You may well respond to it, hope your insurance covers the cost.

The cheapest and often the most effective way to go is with

depotestosterone injection injections. I have not read of anybody

who did not respond to this method. You do want to spread the

androgel on a non fatty area, ideally the inner arm and bicep area

so that it absorbs into muscle and not fat. The problem with a

fatty area is the the testosterone gets absorbed in the fat and

converts to estrogen more readily, and thusly does not efficiently

get directed into your blood. A high estrogen problem can result in

water retention, as in weight gain, and breast enlargment.

norton

[Guest guest]

Hi Mike how much are you on I have been on it and now using Testim Gel. I am on

the max dose 10 g's. When I was using AndorGel I found if I spread it on and

did not rub let it dry from wet I had higher levels on my blood tests I get

tested every month. It will take a few months but little by little you will

start to feel better. I comes on slow..

Phil

Mike Sullivan <the.mick@...> wrote:

I posted last week that I just received bloodwork that indicated low

testosterone (210). I met with my GP and after some discussion and a

pretty positive outlook from him he is prescribing Androgel. I would

appreciate any comments positive or negative with your experience

with Androgel.

Thanks

Mike

[Guest guest]

On Fri, 17 Dec 2004 21:49:28 -0000, you wrote:

>

>I posted last week that I just received bloodwork that indicated low

>testosterone (210). I met with my GP and after some discussion and a

>pretty positive outlook from him he is prescribing Androgel. I would

>appreciate any comments positive or negative with your experience

>with Androgel.

Don't start taking it till you get a full diagnosis. Read the AACE

guidelines:

http://www.aace.com/clin/guidelines/hypogonadism.pdf

there are several causes for the condition. Depending on what they are

you may need something else besides T therapy. Your GP should have

tested for prolactin, ferritin, LH, FSH, E2, T and Free T, SHBG for

starters. If you have not had these get them before you start therapy.

For example high prolactin indicates a prolactinoma ( a tumor

producing excess prolactin). This will depress your T. But the answer

is not T, but a medicine that reduces the tumor. Similarly high Iron

can cause the problem, and depending on the reason you may not need T.

You also need to find out if you are primary (testes don't work) or

secondary - defective signals from the pituitary.

Do you plan to have kids yet? Oddly, T therapy will kill your sperm.

So you see there are lots of questions to get answered before you

start.

Good luck. Hang out here, post your test results and learn from the

folks here. (There's lots of doctors out there who know darn little

about this condition and regularly do the wrong thing.) Check here

first so you're fully informed.

- - - -

Just another albino black sheep

[Guest guest]

On Sat, 18 Dec 2004 01:22:00 -0000, you wrote:

> The problem with a

>fatty area is the the testosterone gets absorbed in the fat and

>converts to estrogen more readily, and thusly does not efficiently

>get directed into your blood. A high estrogen problem can result in

>water retention, as in weight gain, and breast enlargment.

It also kills libido and most of the positive effects of T.

- - - -

Just another albino black sheep

[Guest guest]

Hi,

I used AndroGel for a couple of years. Liked it better than Androderm. I didn't

absorb it well, had to spread it as far and thin as I could, increase from 5mg

to

10mg/day. Free T never got sufficiently high (highest was 344 ng/dL

[241-827], usually lower). I would have switched because of poor results if two

consecutive endos hadn't thought that was high enough. I disliked having to

shower it off before sex (inhibited spontaneity). At 10mg/day co-pay was about

$98/mo. Finally switched to injections.

Give it a try. Some people absorb it well, others don't. Tests should be done

every 4 - 6 weeks for at least total T, free T & E2.

Bruce

>

>

> I posted last week that I just received bloodwork that indicated low

> testosterone (210). I met with my GP and after some discussion and a

> pretty positive outlook from him he is prescribing Androgel. I would

> appreciate any comments positive or negative with your experience

> with Androgel.

>

> Thanks

> Mike

[Guest guest]

I'm glad you found us! Good luck!

Kimmie

rheumatic New member

>

>

> Good afternoon all, I would like to first thank you

> for this support

> group and also introduce myself.

>

> My name is Robbin, I just received my formal

> diagnosis of

> Polymyositis yesterday and just began my antibiotic

> therapy today

> after one more CK level being drawn as a baseline.

> Needless to say

> this has been an experience and far more drawn out

> than expected. The

> Web site rheumatic.org has been a God send.

>

> Three months ago I did not know that Polymyositis

> existed, this seems

> like years ago and many hours of reading ago!

>

> After noticing that something is just not right,

> falling backwards

> when trying to run on a tennis court, trying to run

> up the steps two

> at a time and falling backwards, trying to carry my

> Kayak and feeling

> like every muscle in my body had led in it, I went to

> see my family

> physician who argeed that there is a problem and sent

> me for an EMG

> (fun, fun, fun, NOT!) which upon the first stick in

> my right thigh

> revealed that I had not lost my mind, that something

> is very wrong.

> The Doc that did the EMG called my Family Physician

> immediately and

> suggested a full battery of blood work, which was

> done the very next

> day and two days later I had a partial answer, smoe

> type of myositis.

> I was then referred to a neurologist at VCU Medical

> center, this is

> where it gets drawn out, it took almost a month to

> get in to see her.

> This provided me with loads of time to really

> research what the

> problm could be. In my research I found Polymyositis

> which my

> symptoms matched a little two well. I had had strep

> in early spring,

> had a car accident two weeks later, been diagnosed

> with a torn

> lateral miniscus and scheduled for PT and later on

> Surgery (needless

> to say not a good spring).

>

> After figuring that I had PM and praying that I did

> not have IBM

> started researching treatment. This was most

> depressing, I have had

> asthma since the age of 15 and loads of sinus

> infections so when I

> saw that the " accepted treatment " was steriods,

> methotrexate and a

> list of very caustic drugs all with horrific side

> affects,have been

> down the steroid path and refuse to do that again and

> definitely not

> long term! So I began to search for alternative

> solutions and thats

> when I found Rheumatic.org (yes there is hope, end of

> depression!)

>

> So I finally get in to the Neurologist who examines

> me and says yes

> definite weakness and off for more blood work,

> scheduled for another

> EMG (2 weeks later). EMG produces the same findings

> as before and the

> blood work shows that my sed rate is up and my CPK is

> 460. CPK being

> 460 is not bad it was down 190 points from the first,

> the week that I

> had the second blood draw I had been on ominceff (new

> antibiotic) for

> most of that week (hum!). Then I had the muscle

> biopsy on the 16th of

> December. My Neuro did a little strength test prior

> to doing the

> biopsy and made asked " how did you get most of your

> strength back? " I

> tried to explaine that I was currently on a Z pack

> for an upper

> respiratory infection, but she only looked at me as

> if I had two

> heads. That is when I knew as soon as I receive the

> results we will

> be parting company. I had my sutures removed

> yesterday and formal

> diagnosis of PM. She wanted to treat with Imuran and

> of course I

> refused and tried one more time to suggest antibiotic

> therapy she was

> in absolute disbelief that anyone treats PM with

> antibiotics and also

> made the statement that I cannot stay on them for the

> rest of my life.

> My statement to her was, " sorry to hear that you are

> not willing to

> learn something new and had her transfer my file back

> to my famly

> physician. I called his office and spoke with his

> nurse who said that

> she would get back with me, she did with in 30

> minutes my FP is

> treating this with antibiotics and beleives that we

> can experiment

> and take of the PM.

>

> Once again thank all of you for sharing your stories,

> I hope that I

> am totally able to avoid any of the caustic drugs and

> will be able to

> schedule an appointment with my Neuro in about 5

> months just to show

> her that this treatment does work. Hopefully this

> will help her

> future patients.

>

> Thanks,

> Robbin

>

>

>

>

>

>

[Guest guest]

Robbin - I'm so glad you found a doc to work with you! I have DM - it has

been in remission for about 3yrs now thanks to AP! My story is on both the

rheumatic.org site and also on the stories page on www.rs.option8.net - good

luck to you! Lee/Liesl

[Guest guest]

>

>

Try this group x-xy/

as well as the present group.

It needs more new blood, not very active.

They are klinefelters of various X groups.

Many are 47-XXY and professionals, programmers, & ....

The new stats are more Klinefelters per 100,000 births than one.

I don;t think it is the mother's age related. Mine was in her 20s.

> Hi

>

> This group was referred to me by a friend. I am in my 40's and

have

> known that I have Klinefelter's for nearly 30 years, having been

> diagnosed with a buccal smear. I initially read up on the

syndrome,

> became frightened, and put it back on the shelf for a number of

years.

>

> During my college years, I had bilat. gynecomastia reduction

surgery

> and have been aware of other conditions that are associated with

the

> syndrome.

>

> Due to my friend's pursuasion, or shall I say nagging [sorry T.], I

> talked to my M.D. a few mo. back and got the TRT RX's, had them

> filled @ the pharmacy and parked them in the closet until I was

ready

> to deal with them. Today, 01/01/05 I decided to start the hormone

> replacement journey.

>

> Though the group mentions Klinefelter's, there are few posts

> concerning the syndrome, and those that are, well.......I would

like

> to point out that all of us are not abherantly behaved. I am a

> professional and a leader.

>

> Are the stats still that Klienfelter's syndrome occurs 1X in

300,000

> male births? My mother was 40 when I was born, and I was told

that

> it was a birth defect from conception.

>

> Ya'll can sure generate a large volume of posts I must say!

>

> I would like to see posts from others with Klinefelter's or email

me

> directly.

>

> Mikel