New Member

[Guest guest]

Penny <smadaynnep@...> wrote:

Hi,

I am a new member - I just found this group by seeing the address on Jackie's

post about sensory products - Thanks Jackie :-)

I have an almost 9 year old son with ADHD and SPD - I also have a 6 year old

daughter who we are not 100% sure what her dx is. This past year her teacher

was convinced that she had oppositional defant disorder, I was leaning towards

Central Auditoy Processing Disorder with a parsody sub-type. BUT the child

therapist that I took her to felt that my daughter probably has Aspergers.

After reading Tony Atwood's book and the Oasis book I feel that my daughter

probably does have Aspergers and thus am on a quest to learn as much as I can.

I have discovered from being my son's Mom that I have learned more from other

Moms and their discussions on then I have learned from the medical

" experts " and or from other sources - so I am hoping that from this group I will

learn more about how best to help my daughter.

Penny

Welcome Penny!

Roxanna

Always Remember You're Unique

Just Like Everyone Else

---------------------------------

Start your day with - make it your home page

[Guest guest]

Hi Bonnie,I'm glad you came to vent. So many of us

need this group to do just that sometimes!. You are so

young, it amazes me how many people are not very old

that have RA. I also thought at one time it was a

disease for " old " people , like granma and grandpa.

I've learned a lot, and know how frustrating the

diagnoses and the adjustments we must make in our

daily lives are. I also hate taking pills, sometimes I

wonder if they do what they are supposed to , and if

one may be affecting another. Hang in there, and feel

free to vent anytime in Missouri

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

a,

I have had a Gazelle now for over a year and live it. They sell them at

sears, Walmart and many sporting goods stores. I would check out sears to see

if they have a demo model on the sales floor that your could try. I went to

my local gym and they have the professional model which I tried before I

bought one for myself.

I got mine from HSN.com. Though check them out carefully cause they are not

all the same. The walmart version is stripped down and can only handle a

person of 250 lbs or less. The gazzelle super crosstrainer and many of the

other models can handle up to 300 lbs and have all the electronic monitoring,

cup holders and all the new workout DVDs.

Its so hot here in Texas that the Gazelle is the only way I get exercise. LOL

Toni

In a message dated 8/18/05 4:15:20 A.M. Central Daylight Time,

writes:

Date: Wed, 17 Aug 2005 23:00:17 -0400

From: a <a54@...>

Subject: Re: New Member

Welcome Bonnie,

Sorry for your diagnosis, but glad you found us. I know it's difficult

taking so many meds. We all hate it.

Were you on folic acid with the methotrexate? Is the Humira helping?

I take Enbrel & Mtx and naproxen. That gazelle looks very interesting.

I've thought about trying it.

My exercise is done in a pool, but I'm sure I could do the gazelle.

Nice to meet you.

a

[Guest guest]

Hi a - I did take folic acid and I still had a lot of problems.

I'm at 90 pills per week and Humira weekly - and it's not really

helping - Nice to meet you too! And thanks for listening.

Regards, Bonnie

>

> > Hi all - my name is Bonnie, from CT - and I was diagnosed one

year ago

> > with RA (my RF factor was 269) - and I'm now 37 years old.

> >

> > It's been a rough year - was on 1000mg of Naproxen for 9

months -

> > which caused bad gastritis and acid reflux, tried Methotrexate -

but

> > got huge mouth ulcers.

> >

> > Now I'm on Humira (now weekly), plus plaquinel (it didn't work

alone),

> > plus they are starting me on sulfasalazine plus 5 mg of

predinsone, 50

> > mg zoloft and for the stomach I have to take 2 prevacid, 1

zantac 150

> > and 4 carafate....I " M a walking drug store and I hate it!

> >

> > I gained 20 or so pounds this year - and I do work out for 15

mins 5

> > days/week on the Tony Little's gazelle machine -

> >

> > I just needed to vent - it's so hard - thanks for listening!

> >

> > Bonnie

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Bonnie,

Welcome to the group. You will learn a lot from

everyone. I hope you are feeling better. Vent anytime

you need to. We all do.

Beth(AR)

--- bhudick <bhudick@...> wrote:

> Hi all - my name is Bonnie, from CT - and I was

> diagnosed one year ago

> with RA (my RF factor was 269) - and I'm now 37

> years old.

>

> It's been a rough year - was on 1000mg of Naproxen

> for 9 months -

> which caused bad gastritis and acid reflux, tried

> Methotrexate - but

> got huge mouth ulcers.

>

> Now I'm on Humira (now weekly), plus plaquinel (it

> didn't work alone),

> plus they are starting me on sulfasalazine plus 5 mg

> of predinsone, 50

> mg zoloft and for the stomach I have to take 2

> prevacid, 1 zantac 150

> and 4 carafate....I " M a walking drug store and I

> hate it!

>

> I gained 20 or so pounds this year - and I do work

> out for 15 mins 5

> days/week on the Tony Little's gazelle machine -

>

> I just needed to vent - it's so hard - thanks for

> listening!

>

> Bonnie

>

>

>

>

>

__________________________________________________

[Guest guest]

Welcome, Bonnie!

Sorry that you have to take so many medications, but maybe some of them can

be eliminated in the future.

It's great that you are exercising.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New Member

Hi all - my name is Bonnie, from CT - and I was diagnosed one year ago

with RA (my RF factor was 269) - and I'm now 37 years old.

It's been a rough year - was on 1000mg of Naproxen for 9 months -

which caused bad gastritis and acid reflux, tried Methotrexate - but

got huge mouth ulcers.

Now I'm on Humira (now weekly), plus plaquinel (it didn't work alone),

plus they are starting me on sulfasalazine plus 5 mg of predinsone, 50

mg zoloft and for the stomach I have to take 2 prevacid, 1 zantac 150

and 4 carafate....I " M a walking drug store and I hate it!

I gained 20 or so pounds this year - and I do work out for 15 mins 5

days/week on the Tony Little's gazelle machine -

I just needed to vent - it's so hard - thanks for listening!

Bonnie

[Guest guest]

Hi, Jocelyne!

I've heard that methotrexate does " something " to the

teeth, but I'm not sure what. In fact, my

ear/nose/throat doc said that my teeth " are in

amazingly good shape " for someone on methotrexate. I'm

not really sure what he means....

-

--- Jocelyne <smartjo@...> wrote:

> because I keep losing

> my new fillings and was wondering if the meds had

> anything to do with

> it.

=====================================================

Stein

http://www.noblefusion.com/astein

http://www.livejournal.com/users/astein142/

http://darkart42.deviantart.com/

-----------------------------------------------------

" Do or do not. There is no try. " - Yoda

-----------------------------------------------------

" If you're tired of fighting battles with yourself

If you want to be somebody else, change your mind... "

-- Sister Hazel

=====================================================

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

> Hi, just joined this group. Have been using TD-DMPS every 48 hour

> protocol a-la Buttar for 8 months. Observed no significant

improvement.

>

> Have switched to 3 days on, 4 days off based on Andy Cutler's

> suggestion. Have completed two cycles of that so far. Again, not

much

> is going on.

>

> Thinking of adding ALA to the TD-DMPS, since it's the only one,

> according to Andy Cutler, that crosses the BBB.

>

> Can someone please tell me which ALA in what form, and from where?

The common ALA that is for sale at most HFS in my area, and at

most or all supplement retailers. Very available. Kirkman's

sells it in smaller amounts (like 25 mg??). More info here:

http://home.earthlink.net/~moriam/HOW_TO_buy_DMSA.html

(see ALA section).

Most people use it orally, and Andy's recommended dosages are

ALL ORAL:

http://home.earthlink.net/~moriam/Andy_dose_sched.html

Please note it needs to be given every THREE hours, INCLUDING

AT NIGHT. Some use 4 hours apart at night, considered

" acceptable " , but 3 is the real guideline, and 4 is

" stretching it " but passable.

> Is

> anyone else in my position, which a child as young as 3 1/2, have

been

> using TD-DMPS for 8 months, and have benefited very little form

it, if

> at all? I'm very puzzled and in despair, because his stool tests

show

> good pull of everything, including gradual excretion of mercury,

but I

> see no behavioral/clinical changes.

wishing you well,

Moria

[Guest guest]

ALA is available at most health food stores and at stores like Trader Joe's.

Did you do a hair test for your child? Did he meet the counting rules? Did he

have high levels of other metals? Which ones?

S S

<tt>

Hi, just joined this group. Have been using TD-DMPS every 48 hour <BR>

protocol a-la Buttar for 8 months. Observed no significant improvement. <BR>

<BR>

Have switched to 3 days on, 4 days off based on Andy Cutler's <BR>

suggestion. Have completed two cycles of that so far. Again, not much <BR>

is going on. <BR>

<BR>

Thinking of adding ALA to the TD-DMPS, since it's the only one, <BR>

according to Andy Cutler, that crosses the BBB. <BR>

<BR>

Can someone please tell me which ALA in what form, and from where? Is <BR>

anyone else in my position, which a child as young as 3 1/2, have been <BR>

using TD-DMPS for 8 months, and have benefited very little form it, if <BR>

at all? I'm very puzzled and in despair, because his stool tests show <BR>

good pull of everything, including gradual excretion of mercury, but I <BR>

see no behavioral/clinical changes. <BR>

<BR>

Thanks a bunch everyone.<BR>

Beti<BR>

<BR>

<BR>

</tt>

<!-- |**|begin egp html banner|**| -->

<br><br>

<tt>

=======================================================<BR>

[Guest guest]

> Can someone please tell me which ALA in what form, and from where?

I used Natural Factors brand ALA, from my local health food store.

>>I'm very puzzled and in despair, because his stool tests show

> good pull of everything, including gradual excretion of mercury, but I

> see no behavioral/clinical changes.

See my previous message. I did not do testing, so I don't know

exactly what metal/s were excreted, but most of my son's improvements

came from supplementation, not from chelation.

Dana

[Guest guest]

Wellcome ! You came to the right place.Everyone here knows what

it is like to be in pain and to be frustrated.This is the place to

vent,ask questions, whine(I've been good at that one. lol)or anything

to need with very loving and caring people going through the pain and

suffering of RA.I am new to this too so just hang on tight and we will

learn together.I don't like prednisone either.I 'm not on it right now

but probably not for long.I have the most problems with my knees and

elbows.Best of luck and hope you enjoy being here as much as I have.-

Tammy-

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do?

The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

[Guest guest]

Welcome . Do you prefer to be called Bree? I know all about

well intended advise. Most people are clueless and we

just have to appreciate that they care enough to try to help.

I have 2 family members that have eye problems, both with scleritis-

my mom has scleritis as well as eye fluids that leak behind her

eye for some unknown reason. My BIL was prescribed very high doses of

prednisone, which resulted in necrosis of his hip bones.

My mom reacted to prednisone thank the good Lord, so she didn't take

it. Instead they injected steroids in her eye. I know it sounds

awful, but she said she didn't even feel it. My BIL also had the

injections, which allowed him to get off the prednisone (to bad he

didn't go this route first and save his hips as well as saved himself

from about 60 extra pounds of weight). Both went to ophthalmologists.

Do you see an ophthalmologist?

a

On Sep 22, 2005, at 2:28 PM, bree4444 wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do? The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

>

>

>

>

>

>

>

>

[Guest guest]

> Hi all, I have Asperger's. Thanks,

>

>

[Guest guest]

Hi Sharon, Sure, I am 26 years old..have Asperger's since 2000. Thanks,

( ) Re: New Member

> Hi all, I have Asperger's. Thanks,

>

>

[Guest guest]

Tammy,

Thanks for your email. I am so surprised by all the emails I received. Now I

don't know what to do with all of them! Do you have mail come to your inbox or

get messages online?

It's funny the meds haved helped my joints a lot. People say, " Now that things

are better, you could try natural methods to control the disease. " I don't

think I can deal with those hot joints again on methods that have worked. I

take 20mg of Methotrexate each Friday, Naprosen 500mg two times a day, and

currently 5mg of Predisone each day. That's fairly new though. My eye

(scleritis) wasn't getting better like my feet, knees and hand. I am a bit

concerned about all the side effects, but the disease sure has some bad side

effects too. I guess it's pick your poison.

What's your regimen? If you don't mind talking about it.

I really cannot answer all the emails. So I may change the setting to view on

the web. But my best email address is bree444@... if you would like to

chat.

Thanks!

clarabell4ever2000 <clarabell4ever2000@...> wrote:

Wellcome ! You came to the right place.Everyone here knows what

it is like to be in pain and to be frustrated.This is the place to

vent,ask questions, whine(I've been good at that one. lol)or anything

to need with very loving and caring people going through the pain and

suffering of RA.I am new to this too so just hang on tight and we will

learn together.I don't like prednisone either.I 'm not on it right now

but probably not for long.I have the most problems with my knees and

elbows.Best of luck and hope you enjoy being here as much as I have.-

Tammy-

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do?

The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

[Guest guest]

a,

I have got to talk with you , but am on the run right now. Can we email at

bree444@... ? I recieved so many emails, I am overwhelmed! What should

I do?

Thanks so much for yoru email!

bree

a <a54@...> wrote:

Welcome . Do you prefer to be called Bree? I know all about

well intended advise. Most people are clueless and we

just have to appreciate that they care enough to try to help.

I have 2 family members that have eye problems, both with scleritis-

my mom has scleritis as well as eye fluids that leak behind her

eye for some unknown reason. My BIL was prescribed very high doses of

prednisone, which resulted in necrosis of his hip bones.

My mom reacted to prednisone thank the good Lord, so she didn't take

it. Instead they injected steroids in her eye. I know it sounds

awful, but she said she didn't even feel it. My BIL also had the

injections, which allowed him to get off the prednisone (to bad he

didn't go this route first and save his hips as well as saved himself

from about 60 extra pounds of weight). Both went to ophthalmologists.

Do you see an ophthalmologist?

a

On Sep 22, 2005, at 2:28 PM, bree4444 wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do? The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

>

>

>

>

>

>

>

>

[Guest guest]

Hi

Thanks for the reply. Where do you work? Do you live at home or are you on your

own.? Did school get harder for you as you got into the higher grades.

is in grade 2 now, and is doing fine. He excels in reading and has an

amazing memory. But like most Aspies he has difficulty interacting in the

neuro-typical manner with his peers. Did you make any good friends when you were

in school? If there's any thing I can answer for you please feel free to ask?

Sharon

Trzecinski <MTrez@...> wrote:

Hi Sharon, Sure, I am 26 years old..have Asperger's since 2000. Thanks,

( ) Re: New Member

> Hi all, I have Asperger's. Thanks,

>

>

[Guest guest]

Hi Sharon, I don't work now. I live with my parents. Yep. Just one. Do your son

have friend?. Thanks,

( ) Re: New Member

> Hi all, I have Asperger's. Thanks,

>

>

[Guest guest]

Hi Ed,

I know you sent this almost two months ago but I have been out of action

since then so I just wanted to welcome you to the group.

I'm , aged 47, had P since the age of 23yrs and PA for the last 18

years. We are almost med twins. lol I take Indocid, MTX and Enbrel. I also

managed to work on for 16 years

with very painful heels so, hopefully, sheer determination will get you

through a few more. Come on. You have got to beat me! lol

Seriously though, I hope the MTX/Remicade mix kicks in soon for you (Have

you been on both of them long?)

Hope you are well,

[Guest guest]

Hi Deanna,

Welcome to the group! On to your questions, some specialists will

order x-rays or CT scans to rule out any premature fusing. He/she

will most likely just look at and feel your son's head at the

evaluation. Some insurance companies have a set criteria for paying

for a band. They want to see a certain degree of asymmetry. Not all

insurance companies are like that though. Yes, they do work for older

babies! :-) Most babies wear a band for about 4.5 months depending on

the babies age and the severity. Your son, I think would most likely

need 2 bands b/c of his " older " age. The side effects of wearing a

band are a round head. No, they don't hurt our babies.

It is SUPER important that the orthotist who is going to band your

son is experienced! Experience is KEY when it comes to treating

plagio babies. You're going to have to do your homework and throughly

interview any potential orthos.

A LOT of specialist are anti-band, why I don't know. It is ENTIRELY

up to you whether or not you band your son. All you need is a script

from a doctor, your pediatrician could write it.

Are you located near a Cranial Tech office? They'll give you an

honest opinion on whether or not your son would benefit from a band.

Good luck and keep us posted.

--- In Plagiocephaly , " DVyborny " <dvyborny@y...>

wrote:

> Hi Everyone - I am new to this group. My name is Deana and i have

a

> 13 month old son, Tyler. He was born 10 weeks premature. He didn't

> sit up until he was about 7 months, but it wasn't until about 8-9

> months he was really sitting up unsupported. Early on we tried to

do

> tummy time about 2 times a day for about 5-10 minutes, but it

wasn't

> until about the 6 month mark that one of the neonatalogists

mentioned

> more tummy time to help his head shapen out (which we did). In the

> past, I mentioned Tyler's flat spot to my pediatrician who advised

me

> that his head will shapen naturally. Now, I am starting to feel

like

> I messed up by not following up.

>

> After reading an article about Plagiocephaly, I just sent an email

to

> my pediatrician asking for a referral to a specialist.

>

> So, I have a few questions for the group....what happens at an

> evaluation? Is there certain criteria for getting a helmet? Do

they

> work for old babies (my son is 13 months old). How long would he

have

> to wear one? Are they are side affects to wearing the helmet?

Will

> it hurt my son?

> I think that is about it for now....I am sure that I will have more

> questions later on.

>

> Thanks, Deana

[Guest guest]

Deana,

Unfortunately some peds and doctors are not educated thoroughly on

plagiocephaly. In the case of plagiocephaly treatment it is actually

good that he was a preemie. They use the adjusted age. Most people

here have either gone through a specialists(cranio facial,

nuero,plastic surgeon) or they have recieved the prescription for

band treatment from thier pediatrician. Some require x-rays, or CT

scan, some do not. Cranial Technologies if there is one you can get

to will do an evaluation for free. At an evaluation, the baby's is

checked for asymmetry of the head and face and the alignment of his

ears. Some docs or OT's take measurements, some like to do things by

look and feel, some will take pictures. Alot of what happens is

directed by what your insurance company wants. The bands are

completely safe and do not restrict brain developement or hinder

developement in any way. At Tylers age you really have no option for

treatment but to use a band if the doc or OT says one is necessary.

There are no side effects from the bands. Yes Tyler is older and

treatment may take longer than a younger infant, but you should

certainly see good correction. The time in a band depends on age,

severity, and growth during treatment. There are many providers of

bands/helmets out there so you will want to be sure the orthotist

that you use is well educated in the treatment of plagiocephaly using

the device they will be providing. I can share with you my experience

with plagiocephaly, this is my son's website

www.mybandedbaby.typepad.com we used a Doc Band from Cranial

Technologies with amazing results. The website has lots of

information, pictures of progress throughout treatment, and takes you

through the whole process from diagnosis to graduation and then

some,lol.

CAROLG

--- In Plagiocephaly , " DVyborny " <dvyborny@y...>

wrote:

> Hi Everyone - I am new to this group. My name is Deana and i have

a

> 13 month old son, Tyler. He was born 10 weeks premature. He didn't

> sit up until he was about 7 months, but it wasn't until about 8-9

> months he was really sitting up unsupported. Early on we tried to

do

> tummy time about 2 times a day for about 5-10 minutes, but it

wasn't

> until about the 6 month mark that one of the neonatalogists

mentioned

> more tummy time to help his head shapen out (which we did). In the

> past, I mentioned Tyler's flat spot to my pediatrician who advised

me

> that his head will shapen naturally. Now, I am starting to feel

like

> I messed up by not following up.

>

> After reading an article about Plagiocephaly, I just sent an email

to

> my pediatrician asking for a referral to a specialist.

>

> So, I have a few questions for the group....what happens at an

> evaluation? Is there certain criteria for getting a helmet? Do

they

> work for old babies (my son is 13 months old). How long would he

have

> to wear one? Are they are side affects to wearing the helmet?

Will

> it hurt my son?

> I think that is about it for now....I am sure that I will have more

> questions later on.

>

> Thanks, Deana

[Guest guest]

Deana,

Unfortunately some peds and doctors are not educated thoroughly on

plagiocephaly. In the case of plagiocephaly treatment it is actually

good that he was a preemie. They use the adjusted age. Most people

here have either gone through a specialists(cranio facial,

nuero,plastic surgeon) or they have recieved the prescription for

band treatment from thier pediatrician. Some require x-rays, or CT

scan, some do not. Cranial Technologies if there is one you can get

to will do an evaluation for free. At an evaluation, the baby's is

checked for asymmetry of the head and face and the alignment of his

ears. Some docs or OT's take measurements, some like to do things by

look and feel, some will take pictures. Alot of what happens is

directed by what your insurance company wants. The bands are

completely safe and do not restrict brain developement or hinder

developement in any way. At Tylers age you really have no option for

treatment but to use a band if the doc or OT says one is necessary.

There are no side effects from the bands. Yes Tyler is older and

treatment may take longer than a younger infant, but you should

certainly see good correction. The time in a band depends on age,

severity, and growth during treatment. There are many providers of

bands/helmets out there so you will want to be sure the orthotist

that you use is well educated in the treatment of plagiocephaly using

the device they will be providing. I can share with you my experience

with plagiocephaly, this is my son's website

www.mybandedbaby.typepad.com we used a Doc Band from Cranial

Technologies with amazing results. The website has lots of

information, pictures of progress throughout treatment, and takes you

through the whole process from diagnosis to graduation and then

some,lol.

CAROLG

--- In Plagiocephaly , " DVyborny " <dvyborny@y...>

wrote:

> Hi Everyone - I am new to this group. My name is Deana and i have

a

> 13 month old son, Tyler. He was born 10 weeks premature. He didn't

> sit up until he was about 7 months, but it wasn't until about 8-9

> months he was really sitting up unsupported. Early on we tried to

do

> tummy time about 2 times a day for about 5-10 minutes, but it

wasn't

> until about the 6 month mark that one of the neonatalogists

mentioned

> more tummy time to help his head shapen out (which we did). In the

> past, I mentioned Tyler's flat spot to my pediatrician who advised

me

> that his head will shapen naturally. Now, I am starting to feel

like

> I messed up by not following up.

>

> After reading an article about Plagiocephaly, I just sent an email

to

> my pediatrician asking for a referral to a specialist.

>

> So, I have a few questions for the group....what happens at an

> evaluation? Is there certain criteria for getting a helmet? Do

they

> work for old babies (my son is 13 months old). How long would he

have

> to wear one? Are they are side affects to wearing the helmet?

Will

> it hurt my son?

> I think that is about it for now....I am sure that I will have more

> questions later on.

>

> Thanks, Deana

[Guest guest]

Hi - Welcome to the group. You really have to get the book " The Late

Talker. " It will give you alot of info. My son (5) was non-verbal at 2. Now

he

can talk up a storm. He might not always be understandable but he's come so

far.

You should be eligible for preschool for his with services through your

school district. You should contact them.

Good luck.

Patti

>

> Hello everyone I am a new member here My son is 3 and didn't start

> talking until he was almost 3 We talked to several different doctors

> before one finally listened to us about him not talking When we went

> to the speech evaluation they were amazed of how much he didnt speak

> he only spoke like 5 words at the most he has been in speech therapy

> since March of 2005 and is doing well he is still not where he is

> suspose to be with his speech but the therapist said he has all the

> signs of apraxia and gave us the www.apraxia.org website to find help

> although I still feel that I need to know more can anyone please help

> me

>

> It has caused alot of worries and wonders from me about what I have

> done wrong and what I should do to help him

>

>

> Thanks

>

[Guest guest]

Hello and Welcome!

You are definitely in the right place. I have found so much info just reading

other peoples stories. My son just turned 3 in Sept. and we just started him

in a preschool where he is in a mixed class of children. He gets some speech

therapy while he is there. We also take him to a place outside of there 2X/wk.

Also, we are awaiting his developmental eval. appt in Jan. just to rule out

any other issues.

The best things to start are to read the " Late Talker " book and to start him

on the Pro Efa's. I have also started teaching my son some sign language (the

videos work best).

If you ever need support please feel free to email me, we are all right there

together.

Good Luck!

pam and dominick

[Guest guest]

This may seem like a silly question, but I've noticed posts where

some people say that they interrupt the meds if they have a dental

procedure coming up

Hi Jocelyne,

A very belated welcome to the group.

I know some people have mentioned that. All I can say is that I have not

been told that I should do this. I can understand why people do though. I had to

stop Enbrel when I had a cold as I couldn't shake it off at the time.

Hope you got some better replies than this.

Again, welcome.