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A cream is the most appropriate carrier for the

concentration of 20 Grams than the alcohol carrier. I

also learned that it is important to rub it on a non

hair area. Absorbtion is better where the blood supply

is not focused on supplying nutrition to the hair

folical. I will have lab values done in 3 months for

follow up. BUD

--- veganman23 <veganman23@...> wrote:

---------------------------------

Hi Bud -

welcome!

May I ask why you are switching to a cream?

Drake

>

> switching from Androl=gel to a cream to be made by a

> Pharmacist. glad i found this group for support BUD

>

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My doctor told me the " trick " about the hairless area. It is not mentioned

anywhere in the Androgel literature. I acutally remove hair from my abdomen and

shoulders so that it absorbs correctly. Kind of a PITA, but worth it if it

helps.

Bud Bowen <stbuddaious@...> wrote:A cream is the most appropriate

carrier for the

concentration of 20 Grams than the alcohol carrier. I

also learned that it is important to rub it on a non

hair area. Absorbtion is better where the blood supply

is not focused on supplying nutrition to the hair

folical. I will have lab values done in 3 months for

follow up. BUD

--- veganman23 <veganman23@...> wrote:

---------------------------------

Hi Bud -

welcome!

May I ask why you are switching to a cream?

Drake

>

> switching from Androl=gel to a cream to be made by a

> Pharmacist. glad i found this group for support BUD

>

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If application is better in a hairless area, then Houston, we have a

problem. I have always have lots of skin hair and first the Androgel

then the compounded T made it worse.

Flaco ()

> >

> > switching from Androl=gel to a cream to be made by a

> > Pharmacist. glad i found this group for support BUD

> >

>

>

>

>

>

>

>

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I'm a hairy bear kind of guy...few places on me that are hairless, but

I've been applying AG to my inner bicep (sparse hair) and my shaved

neck, with any residual getting onto the cheeks and inner side of the

wrists (like where you would slit them.

Seems to work, though for other issues, the doc is switching me to Test

Cyp shots instead of AG.

Re: new member

If application is better in a hairless area, then Houston, we have a

problem. I have always have lots of skin hair and first the Androgel

then the compounded T made it worse.

Flaco ()

> >

> > switching from Androl=gel to a cream to be made by a

> > Pharmacist. glad i found this group for support BUD

> >

>

>

>

>

>

>

>

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Hi Bud -

I hadn't heard that about the cream being a more appropriate

carrier. I have T compounded in a gel at 25mg/ml with no problem.

I know when I was doing 50mg/ml, it was too saturated and some of

the T fell out of suspension. Where do you get yours compounded?

Drake

> >

> > switching from Androl=gel to a cream to be made by a

> > Pharmacist. glad i found this group for support BUD

> >

>

>

>

>

>

>

>

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Good idea. My concern, however, is that if the issue is blood

supply focusing on the hair folicle, I would think that would

continue to be an issue even after shaving.

Drake

> >

> > switching from Androl=gel to a cream to be made by a

> > Pharmacist. glad i found this group for support BUD

> >

>

>

>

>

>

>

>

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25mg T/mL is only a 2.5% T mixture (and 50mg/mL only gives a 5%

mixture). I'm guessing that when Bud stated a " concentration of 20

grams, " that he may have meant a 20% T cream (i.e., made with 200mg

T/mL). I have seen both hydroalcoholic- and PLO-type gels at up to

20% T concentration, but perhaps the T has a tendency to precipitate

out too readily (or never even goes into solution) at that level

(depends on the skill of the compounding pharmacist, too, of course).

By comparison, AndroGel is a whimpy 1% T formulation (i.e.,

10mg T/mL). That's why compounded versions can be better (in

addition to the cost savings) in order to avoid having to slather on

huge amounts of gel or cream. For example, you'd have to slather on

10g (= 10mL volume and 100mg T) of AndroGel to equal 0.5mL of a

compounded 20% T cream or gel.

> > >

> > > switching from Androl=gel to a cream to be made by a

> > > Pharmacist. glad i found this group for support BUD

> > >

> >

> >

> >

> >

> >

> >

> >

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I think the bigger issue with applying to hairy areas is the stuff gets

on the hair (dead keratin) and not into the skin, effectively lowering

the dosage received.

Re: new member

Good idea. My concern, however, is that if the issue is blood

supply focusing on the hair folicle, I would think that would

continue to be an issue even after shaving.

Drake

> >

> > switching from Androl=gel to a cream to be made by a

> > Pharmacist. glad i found this group for support BUD

> >

>

>

>

>

>

>

>

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Hello,

I am waiting this week of the new Rx of Testoterone to

show up on the doorstep. It is suppose to be in a

cream application and i will share any and all info

that I can get. this group has bben a revelation and

source of encouragement

--- frankwhardy <frankwhardy@...> wrote:

---------------------------------

25mg T/mL is only a 2.5% T mixture (and 50mg/mL only

gives a 5%

mixture). I'm guessing that when Bud stated a

" concentration of 20

grams, " that he may have meant a 20% T cream (i.e.,

made with 200mg

T/mL). I have seen both hydroalcoholic- and PLO-type

gels at up to

20% T concentration, but perhaps the T has a tendency

to precipitate

out too readily (or never even goes into solution) at

that level

(depends on the skill of the compounding pharmacist,

too, of course).

By comparison, AndroGel is a whimpy 1% T formulation

(i.e.,

10mg T/mL). That's why compounded versions can be

better (in

addition to the cost savings) in order to avoid having

to slather on

huge amounts of gel or cream. For example, you'd have

to slather on

10g (= 10mL volume and 100mg T) of AndroGel to equal

0.5mL of a

compounded 20% T cream or gel.

> > >

> > > switching from Androl=gel to a cream to be made

by a

> > > Pharmacist. glad i found this group for support

BUD

> > >

> >

> >

> >

> >

> >

> >

> >

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Hey Wyndi,

Welcome to the group. Hope your two are doing well!

Lou

--- wyndi <wjadkins2@...> wrote:

> Hello my name is Wyndi and I am a sahm to 3 yr old

> twins. My son

> was diagnosed with oral apraxia back in

> March of this year. We

> are learning more and more everyday. Sometimes its

> so difficult to

> understand what he is saying to me and he gets so

> frustrated with me

> that I feel bad. So I look forward to any info and

> ideas this great

> group has to share. Thanks for letting me join.

>

> Wyndi

>

>

>

>

>

>

Lou

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Thanks Lou,

How are your twins doing? Is the eating getting better?

Hugs,

Wyndi

Full time mommy to :

- 3 yrs old, twin, hypoplasia lungs, rt side diaphgram paralyed, GERD,

SID, developmental delays in oral, gross, and fine motor skills, oral apraxia, g

tube fed, hypotonia, 10 weeks premature.

Mykayla- 3 yr old twin, GERD, SID, g tube fed, asthma, history of aspiration,

10 weeks premature.

www.babiesonline.com/babies/m/michaelandmykayla

parents_of_special_children/

Re: [ ] New Member

Hey Wyndi,

Welcome to the group. Hope your two are doing well!

Lou

--- wyndi <wjadkins2@...> wrote:

> Hello my name is Wyndi and I am a sahm to 3 yr old

> twins. My son

> was diagnosed with oral apraxia back in

> March of this year. We

> are learning more and more everyday. Sometimes its

> so difficult to

> understand what he is saying to me and he gets so

> frustrated with me

> that I feel bad. So I look forward to any info and

> ideas this great

> group has to share. Thanks for letting me join.

>

> Wyndi

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hi wyndi and welcome to the group-my name is charlotte hewnry-i ive in west

des moines in iowa and i have a small in home business so i can stay home with

my 2 kids-sarah who just started 1st grade and josh who is in his 3rd year at

jordon creek preschool-josh has apraxia and sid. you are not alone. charlotte

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Thanks for the warm welcome Charlotte.

Hugs,

Wyndi

Full time mommy to :

- 3 yrs old, twin, hypoplasia lungs, rt side diaphgram paralyed, GERD,

SID, developmental delays in oral, gross, and fine motor skills, oral apraxia, g

tube fed, hypotonia, 10 weeks premature.

Mykayla- 3 yr old twin, GERD, SID, g tube fed, asthma, history of aspiration,

10 weeks premature.

www.babiesonline.com/babies/m/michaelandmykayla

parents_of_special_children/

Re: [ ] New Member

hi wyndi and welcome to the group-my name is charlotte hewnry-i ive in west

des moines in iowa and i have a small in home business so i can stay home

with

my 2 kids-sarah who just started 1st grade and josh who is in his 3rd year at

jordon creek preschool-josh has apraxia and sid. you are not alone. charlotte

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  • 5 weeks later...

In a message dated 11/29/05 11:20:41 AM GMT Standard Time,

angiedemers05@... writes:

Im taking methotrexate and it doesnt seem to do anything but

make me tired. My husband and I were looking forward to trying to have

a baby in the next few months and my doctor told me he dosent advise

it. Can anyone give me an imput if they have gone through pregancy and

PA. I need some comfort and glad im found this Group. Thanks In

advance.

Hi Angie,

You would need to stop taking the MTX and make sure it is out of your system

before trying for a family. Are you seeing a Rheumy at present Angie? It

might be worth asking to be put on a med that will not cause problems during

pregnancy.

Welcome to the group. I hope you get what you are looking for from it.

Good luck,

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If this could be answered on the forum - I would appreciate this, because I am

in the same situation.

Thank you

[ ] New Member

Hi Guys,

I am 22 years old and live in Florida. I have been diagnosed with PA

about 6 months ago. Right now the Arthritis is just in my hands, but

it hurts. Im taking methotrexate and it doesnt seem to do anything but

make me tired. My husband and I were looking forward to trying to have

a baby in the next few months and my doctor told me he dosent advise

it. Can anyone give me an imput if they have gone through pregancy and

PA. I need some comfort and glad im found this Group. Thanks In

advance.

Angie

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Hi, I can't tell you about having PA and going through

pregnancy, I had my son pre-PA. However, there are a

couple of gals in the group who've had babies in the

last year, and may be able to respond with their

experiences. I do know that it's not advisable to be

taking MTX when trying to conceive, my brother also

with PA had to stop it for a couple of years when they

were trying. Can MTX users speak to this?

warm blessings,

jane

--- & Avi <michelleb@...> wrote:

> If this could be answered on the forum - I would

> appreciate this, because I am in the same situation.

>

> Thank you

>

>

> [ ] New Member

>

>

> Hi Guys,

> I am 22 years old and live in Florida. I have been

> diagnosed with PA

> about 6 months ago. Right now the Arthritis is

> just in my hands, but

> it hurts. Im taking methotrexate and it doesnt

> seem to do anything but

> make me tired. My husband and I were looking

> forward to trying to have

> a baby in the next few months and my doctor told

> me he dosent advise

> it. Can anyone give me an imput if they have gone

> through pregancy and

> PA. I need some comfort and glad im found this

> Group. Thanks In

> advance.

> Angie

>

>

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

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I would definately advise against it while taking the methotrexate.

It has a very bad history with pregnancy. Birth defects, etc.. My

pastors wife lost her baby and it wasn't even her, it was her

husband who was taking the Methotrexate. Her doctor as well as his

told them that the probability was very high that the Methotrexate

was directly involved, unfortunately her doctor didn't know her

husband was on the medication and his didn't know his wife was

expecting. I do know a few ladies that I see at my doctors office

who had wonderful pregnancies. Now they are enjoying wonderful and

completely healthy children. They tell me that there are many times

that thier children help keep them from being so depressed about the

pain they are experiencing. Don't give up on the dream of children

but be sure and talk to your doctor before trying. He can probably

put you on a different med that may even work better for you and not

pose a threat to the baby. GOOD~LUCK!

~Debi

, " & Avi "

<michelleb@d...> wrote:

>

> If this could be answered on the forum - I would appreciate this,

because I am in the same situation.

>

> Thank you

>

>

> [ ] New Member

>

>

> Hi Guys,

> I am 22 years old and live in Florida. I have been diagnosed

with PA

> about 6 months ago. Right now the Arthritis is just in my hands,

but

> it hurts. Im taking methotrexate and it doesnt seem to do

anything but

> make me tired. My husband and I were looking forward to trying

to have

> a baby in the next few months and my doctor told me he dosent

advise

> it. Can anyone give me an imput if they have gone through

pregancy and

> PA. I need some comfort and glad im found this Group. Thanks In

> advance.

> Angie

>

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Angie,

My DH also had PA or what they are now calling polyarthritis.

He was 27 when it started, at the same time he developed UC.

Anyhoo, we were TTC and his Dr took him off all the BIG meds

and put him on prednisone until we concieved. The unfortunate

thing for us is that it took us long to concieve b/c I have endometriosis

and ended up having to do IVF. The up side is now we have happy,

healthy 5yo triplet boys. The loves of our life.

Don't give up hope, when there is a will, there is a way. My prayers

are with you.

Ali in CT

Angie wrote:

> Hi Guys,

> I am 22 years old and live in Florida. I have been diagnosed with PA

> about 6 months ago. Right now the Arthritis is just in my hands, but

> it hurts. Im taking methotrexate and it doesnt seem to do anything but

> make me tired. My husband and I were looking forward to trying to have

> a baby in the next few months and my doctor told me he dosent advise

> it. Can anyone give me an imput if they have gone through pregancy and

> PA. I need some comfort and glad im found this Group. Thanks In

> advance.

> Angie

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I agree with everyone else that you need to work with your doctor on

how long you need to be off of particular medicinces before trying to

concieve. I have been very blessed to have 2 children (in the last 4

years) since I was diagnosed with PA. Both times I had to stick it

out, try to control my PA with different meds that weren't always as

effective but helped make life bearable before we tried to conceive.

I had been on Arava and they made me do a " wash out " for several

months, and then wait before the first one. I kept the PA under

control (somewhat) with Sulfasalizine while we tried- an old drug,

not great- but it has been tested long enough, my dr. felt it was

safe risk. With the 2nd, I had been on Enberel and had to quit for 4

months.

For me, as soon as I got pregnant, my PA went into remission. I loved

being pregnant- I was free of joint pain and loved it! (besides some

of the PA meds made me nauseua enough, I didn't know the difference

between that and morning sickness the first time around!)

For my husband and I, it has been worth the months of more pain,

while off the meds to have our two beautiful children. (He was much

more helpful with things around the house, and cognizant of what I

what kind of pain I was in to try to be realitivly " drug free " ) But

I would say you must work with your Rheumy and OB/GYN to find the

right time and balance with meds. Good luck!

Lori

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Do you need referrals to see specialists? If not, you should find a neurosurgeon or craniofacial surgeon who is band friendly. They could write a prescription for you. Or perhaps, even if your ped won't write the prescription, they would be willing to give you a referral for the specialist at least.

(mom to Georgia)

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Lab_mom2Sent: Saturday, December 03, 2005 7:30 PMPlagiocephaly Subject: new memberHi everyone. I'm new to the group. I've taken my son Auston, getting ready to turn 5 months old, to the ped. twice now for what I believe is a mild form of plagiocephaly. The ped keeps telling me his head will round out--keep repositioning and that she's seen worse. My son's head is misshaped in the back and his ears don't line up -- i've been trying repositioning and it's not working. I go back for a well baby visit monday. I'm going to make her document again that the repositioning isn't working and that I want a DOC band - but I don't think she'll write a prescription for it. I've got a 2 year old that never had this problem, and Auston's twin Conner doesn't have it either. So, I'm not just blowing this up from nothing, his head really looks like the pics on some of the drawings. Any suggestions on what I can do? I'm to the point that I don't care whether I have to pay out of pocket or not - I just want someone who specializes in this stuff to take a look at my kid and tell me whether I'm being neurotic or that I need to keep looking for a way for my kid to get a band. Any thoughts would be very appreciated - thank you.

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Do you need referrals to see specialists? If not, you should find a neurosurgeon or craniofacial surgeon who is band friendly. They could write a prescription for you. Or perhaps, even if your ped won't write the prescription, they would be willing to give you a referral for the specialist at least.

(mom to Georgia)

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Lab_mom2Sent: Saturday, December 03, 2005 7:30 PMPlagiocephaly Subject: new memberHi everyone. I'm new to the group. I've taken my son Auston, getting ready to turn 5 months old, to the ped. twice now for what I believe is a mild form of plagiocephaly. The ped keeps telling me his head will round out--keep repositioning and that she's seen worse. My son's head is misshaped in the back and his ears don't line up -- i've been trying repositioning and it's not working. I go back for a well baby visit monday. I'm going to make her document again that the repositioning isn't working and that I want a DOC band - but I don't think she'll write a prescription for it. I've got a 2 year old that never had this problem, and Auston's twin Conner doesn't have it either. So, I'm not just blowing this up from nothing, his head really looks like the pics on some of the drawings. Any suggestions on what I can do? I'm to the point that I don't care whether I have to pay out of pocket or not - I just want someone who specializes in this stuff to take a look at my kid and tell me whether I'm being neurotic or that I need to keep looking for a way for my kid to get a band. Any thoughts would be very appreciated - thank you.

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  • 2 weeks later...

Hello to all,

My name is , I'm 33 yrs old, have been ill on and off for 8 years

with no diagnosis, and I have recently been diagnosed with Lyme Disease. My

diagnosis was made based on symptoms and then was verified with results from

the Bowen Q-RiBb test. Anyway, I am about to temporarily relocate from my

home in the Chicago suburbs to Kansas City MO to begin extremely rigorous IV

treatment. The doctor that I am working with is brilliant and I have all

the confidence in the world with her but I am very nervous about the

finances involved. Since she is out of network the costs are very high and

my insurance is estimating to pay about 40 percent. I was just wondering

if anybody else is seeing an out of network doctor and what the out of

pocket costs for you are? AT this point, I don't even know what to expect

because I don't know what standard charges for this type of treatment are?

What can I expect to pay? What are others paying for IV treatment with out

of network doctors. By the way, all my IV treatments will be done in the

physicians clinic, twice a day seven days a week. I am so desperate to get

well and but at the same time I am scared to death of the possibility of

going into financial ruins. Any input will help, I am desperate!!

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>

> Hello to all,

>

> My name is , I'm 33 yrs old, have been ill on and off for 8

years

> with no diagnosis, and I have recently been diagnosed with Lyme

Disease. My

> diagnosis was made based on symptoms and then was verified with

results from

> the Bowen Q-RiBb test. Anyway, I am about to temporarily relocate

from my

> home in the Chicago suburbs to Kansas City MO to begin extremely

rigorous IV

> treatment. The doctor that I am working with is brilliant and I

have all

> the confidence in the world with her but I am very nervous about the

> finances involved. Since she is out of network the costs are very

high and

> my insurance is estimating to pay about 40 percent. I was just

wondering

> if anybody else is seeing an out of network doctor and what the out of

> pocket costs for you are? AT this point, I don't even know what to

expect

> because I don't know what standard charges for this type of

treatment are?

> What can I expect to pay? What are others paying for IV treatment

with out

> of network doctors. By the way, all my IV treatments will be done

in the

> physicians clinic, twice a day seven days a week. I am so desperate

to get

> well and but at the same time I am scared to death of the possibility of

> going into financial ruins. Any input will help, I am desperate!!

>

>

>

Welcome,

My LLMD gave me the prescription for the rocephin. I found a pharmacy

that sold it for a reasonable price. Shop around. I had the IV put in

at my local hospitol. I got a nurse to teach me how mix the saline

with the rocephin which is a powder in a small bottle and to

administer the rocephin and clean the site once a week. It took about

1/2 hr. I administered my rocephin twice a day and never had a problem

with the site becomming infected. Real important to clean the site,

change bandages, every week. This saved me a ton of money! And it was

easy to do. It takes a while to do each injection, so I would just

turn on the TV and just take it slow, about 20 min to inject. You can

do this I promise. I was a wreck the first time but after that I

realized I could do it myself. I am right handed so I had the IV on my

left said. I did this myself for 8 months.

Best of luck to you,

Lizzie

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and Lizzie,

Yes,, Rocephin is very expensive. 1g of Rocephin is $200 and

the flushes of saline and heparin additional $28.00. The PICC line

placed in at a local hospital was $2,500. Maybe IV is less expensive.

Lizzie, 8 months is truly a long time. PICC line is usually prefere

to be placed into the R arm, less risks. The tip end just above the

heart in the Superior Vena Cava. The drip took about 4o min

1time/day.Good luck with finding a way. I think there is a company

that will donate medications to those who cannot afford it. I am

sorry I cannot rember where I read it. The name started with R, maybe

someone else knows.

Did you, Lizzie, see any improvement of your symptoms? What were

your symptoms? Are you considered to be Lyme free? How do you feel?

Did you worry about getting Candida with such a long course of

Rocephin treatments. How many G? 1g or 2g? My main symptoms have been

nerve pain, painful contractions, extreme sensitivity to cold drafts

and airconditioning. I also have vasospasm and neuropathy. After the

acute Lyme diagnosiss, this August, my symptoms flared up even more

and I also developed chest pains, profuse sweats lasting two months,

irritability, moodiness and severe sleep problems. My memory isn't

that good and I have diffculty with concentration. English is my

second language so the mispelled words have nothing to do with Lyme.

Thank you for your reply.

-- In , " " <betneal@y...> wrote:

>

>

> >

> > Hello to all,

> >

> > My name is , I'm 33 yrs old, have been ill on and off

for 8

> years

> > with no diagnosis, and I have recently been diagnosed with Lyme

> Disease. My

> > diagnosis was made based on symptoms and then was verified with

> results from

> > the Bowen Q-RiBb test. Anyway, I am about to temporarily

relocate

> from my

> > home in the Chicago suburbs to Kansas City MO to begin extremely

> rigorous IV

> > treatment. The doctor that I am working with is brilliant and I

> have all

> > the confidence in the world with her but I am very nervous about

the

> > finances involved. Since she is out of network the costs are very

> high and

> > my insurance is estimating to pay about 40 percent. I was just

> wondering

> > if anybody else is seeing an out of network doctor and what the

out of

> > pocket costs for you are? AT this point, I don't even know what to

> expect

> > because I don't know what standard charges for this type of

> treatment are?

> > What can I expect to pay? What are others paying for IV treatment

> with out

> > of network doctors. By the way, all my IV treatments will be done

> in the

> > physicians clinic, twice a day seven days a week. I am so

desperate

> to get

> > well and but at the same time I am scared to death of the

possibility of

> > going into financial ruins. Any input will help, I am desperate!!

> >

> >

> >

> Welcome,

> My LLMD gave me the prescription for the rocephin. I found a

pharmacy

> that sold it for a reasonable price. Shop around. I had the IV put

in

> at my local hospitol. I got a nurse to teach me how mix the saline

> with the rocephin which is a powder in a small bottle and to

> administer the rocephin and clean the site once a week. It took

about

> 1/2 hr. I administered my rocephin twice a day and never had a

problem

> with the site becomming infected. Real important to clean the site,

> change bandages, every week. This saved me a ton of money! And it

was

> easy to do. It takes a while to do each injection, so I would just

> turn on the TV and just take it slow, about 20 min to inject. You

can

> do this I promise. I was a wreck the first time but after that I

> realized I could do it myself. I am right handed so I had the IV on

my

> left said. I did this myself for 8 months.

> Best of luck to you,

> Lizzie

>

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