New Member

[Guest guest]

Is there some animosity between Amrein and Dr ?

The impression given is that they have a good relationship and he supports her

work in other ways than financial.

I have always assumed that they had a close relationship from the newsletters,

even if Dr did not profit from it,

and that all the products on the website were syncrometer tested and given the

safe nod by her?

At any rate I believe it is an excellent website that does good work in getting

the information out.

Thanks,

Dean

New Member

Hi All,

I'm Michele from NY. I've been lurking for a few days now & thought it

was about time I wrote in.

A little about myself... I work professionally in the alternative

health field & also own a health food business. I'm well versed in the

field of herbs & classify myself as a self taught herbologist!

I started using Dr. s Zapper to treat IBS a few years ago. It has

helped me tremendously. I love it & would never be w/o it!

I just purchased a few of the program keys. Today I used the Blood

Pressure key & experienced shocks when the unit finishes its cycles.

Has anyone experienced these small shocks or have any thoughts about

it?

I look forward to being an active contributor to the group. Thanks

Michele

[Guest guest]

Hello, Norell...

Love your humor: " I am taking Zegerid (which I think sounds like a city in

Iraq) " It's this

sort of thinking that makes an otherwise miserable thing bearable.

Also a fairly new forum member. Had so few outward signs of psoriasis until

lately, but

had all other symptoms for years until one was so disabling that I finally saw a

rheumatologist. I have a brother with Ank. Spondlosis (spelling) and knowing

how much

pain his spine has given him, can only sympathize with you.

I took Celebrex for nearly three years for osteoarthritis. After two 48+/- hour

episodes of

bloody diarreah (ugh), a colonoscopy showed scarring, leading to a diagnosis of

" transcient ischemic colitis. " Stopped the Celebrex ASAP. More more trouble

from that.

So, if it helps, that's great, but be on lookout for gastrointestinal problems.

It seems like it takes such a long time to arrive at something that really

works. It's like

trying to put together all the pieces of a very complex jigsaw puzzle. Do you

have a

rheumatologist you really trust and like, someone who really listens to you?

That makes

all the difference to me. Best wishes to you.

Lucia

>

> Hello everyone! After ten years of head-scratching and " Well, I think

> you have rheumatoid arthritis " from other docs, I was finally

> accurately diagnosed with psoriatic arthritis. I am taking Zegerid

> (which I think sounds like a city in Iraq), and Celebrex (with a baby

> aspirin). In March, I had twelve steroid injections in my spine.

>

> This is all new to me, and I'm still a little scared about the future.

> My husband suggested I join a group so I can find out how other

> people are coping and living with this thing.

>

> What is the general feeling about Celebrex? I've had good luck with

> it so far. I saw some earlier postings about Sulfasalizine, which my

> doc really wants me to try.

>

> So, I'm just looking forward to making sense out of all of it!

>

> Norell

>

[Guest guest]

Hi

Need to know how to disconnect from this group. I'm

not going to be around for months and don't want the

emails to continue. If you can help in advising me

how to go about it - i would appreciate

shirley

shirleyenslin@...

[Editor's Note: Go to and click after entering your name and

password click on " Edit Membership " and then click on " No Mail " . Kathy F.]

[Guest guest]

--- Hi welcome ! I know you will find alot of good answers

and support here.

Toni

In , " jackfaithsmom0304 "

<jackfaithsmom0304@...> wrote:

>

> Hello to everyone!

> My name's and I'm the proud mommy of (2 1/2) and

Faith

> (18 mos). is in the process of all of the " testing " for

> autism spectrum disorders. He's pretty high functioning, for what

I

> know I guess. He has big speech delays, headbanging problems

(which

> goes hand in hand with unrealistic sense of pain), tantrum

problems,

> and he's also exhibiting some strange behavior, which to me could

be

> considered " savant " It's actually pretty amazing (to me anyway)

he

> counts to 100, knows the alphabet backwards and forwards

(literally),

> reads all the numbers and letters, colors, shapes, you name it.

But

> up until I started practically forcing him to use some words other

> than numbers or letters, he wouldn't even ask for juice. I'm just

> looking for some support from other parents who know what I'm

coping

> with! Best wishes to all!

>

[Guest guest]

Welcome ! My daughter didn't start showing an appropriate sense of pain

until we started the gluten-free/casien-free diet. We then moved to the diet

and enzymes and over about 4 years we do just the enzymes.

jackfaithsmom0304 <jackfaithsmom0304@...> wrote: Hello to everyone!

My name's and I'm the proud mommy of (2 1/2) and Faith

(18 mos). is in the process of all of the " testing " for

autism spectrum disorders. He's pretty high functioning, for what I

know I guess. He has big speech delays, headbanging problems (which

goes hand in hand with unrealistic sense of pain), tantrum problems,

and he's also exhibiting some strange behavior, which to me could be

considered " savant " It's actually pretty amazing (to me anyway) he

counts to 100, knows the alphabet backwards and forwards (literally),

reads all the numbers and letters, colors, shapes, you name it. But

up until I started practically forcing him to use some words other

than numbers or letters, he wouldn't even ask for juice. I'm just

looking for some support from other parents who know what I'm coping

with! Best wishes to all!

[Guest guest]

Hi, thanks for the warm welcome. I have heard alot about these type of dietetic

changes and the help it seems to provide, I'm just really hesistant b/c

loves his " treats " ie cookies, fruit snacks etc. and even if I take them from

him, my little girl LOVES them too...I feel cruel! I know it's for the better

good, maybe I'm just sticking my head in the sand...He is supposed to be going

to the Dr soon and hopefully we will have a more definitive dx of what is going

on.

ston <jjtripletmom@...> wrote:

Welcome ! My daughter didn't start showing an appropriate sense of

pain until we started the gluten-free/casien-free diet. We then moved to the

diet and enzymes and over about 4 years we do just the enzymes.

jackfaithsmom0304 <jackfaithsmom0304@...> wrote: Hello to everyone!

My name's and I'm the proud mommy of (2 1/2) and Faith

(18 mos). is in the process of all of the " testing " for

autism spectrum disorders. He's pretty high functioning, for what I

know I guess. He has big speech delays, headbanging problems (which

goes hand in hand with unrealistic sense of pain), tantrum problems,

and he's also exhibiting some strange behavior, which to me could be

considered " savant " It's actually pretty amazing (to me anyway) he

counts to 100, knows the alphabet backwards and forwards (literally),

reads all the numbers and letters, colors, shapes, you name it. But

up until I started practically forcing him to use some words other

than numbers or letters, he wouldn't even ask for juice. I'm just

looking for some support from other parents who know what I'm coping

with! Best wishes to all!

[Guest guest]

Hi Beck welcome. You will find alot of love, suggestions and support

here. Everyone is so helpful! Toni

charliisaacsmum wrote:

> Hello everyone,

> I just wanted to quickly introduce myself. My name is Beck and I have

> two children. My son Isaac is almost 6 and has recently been

> diagnosed with High functioning Austism. We live in Australia. I am

> looking forward to sharing ideas and support with you all.

>

> Beck

>

>

>

>

>

>

[Guest guest]

Welcome you will find alot of help and support here, alot of

people have wonderful suggestions! Toni

wrote:

> I am new to the group, with a son 5, who is being eval'd for

> Aspergers. The school

> psychologist performed assessments that he scored in the " high

> probability " range. We are

> currently visiting a private psychologist for a diagnosis. He

> previously was dx'd SPD with a

> speech delay. I am looking for information and support.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

You are doing the right thing. It is a difficult road and you are not alone.

Andib

<amthomas718@...> wrote: I am new to the group, with a son 5,

who is being eval'd for Aspergers. The school

psychologist performed assessments that he scored in the " high probability "

range. We are

currently visiting a private psychologist for a diagnosis. He previously was

dx'd SPD with a

speech delay. I am looking for information and support.

[Guest guest]

Subject: ( ) New Member

Hello to everyone!

My name's and I'm the proud mommy of (2 1/2) and Faith

(18 mos). is in the process of all of the " testing " for

autism spectrum disorders. He's pretty high functioning, for what I

know I guess. He has big speech delays, headbanging problems (which

goes hand in hand with unrealistic sense of pain), tantrum problems,

and he's also exhibiting some strange behavior, which to me could be

considered " savant " It's actually pretty amazing (to me anyway) he

counts to 100, knows the alphabet backwards and forwards (literally),

reads all the numbers and letters, colors, shapes, you name it. But

up until I started practically forcing him to use some words other

than numbers or letters, he wouldn't even ask for juice. I'm just

looking for some support from other parents who know what I'm coping

with! Best wishes to all!

You might look into " hyperlexia. " This might explain the savant issues.

Roxanna

[Guest guest]

HELLO BOBBIE I AM CAROL IN NY MY HEART GOES OUT TO YOU. MY LITTLE GUY Is 9 AND

IN A SPECIAL PROGRAM. IF THERE ARE NO PROGRAMS IN YOUR AREA ......WHAT ABOUT

CAMPS YOU COULD SEND HIM TO OUT OF STATE. YOU VE LOST A LOT OF GROUND CAN YOU

GET SOCIAL SKILLS TRAINING FOR HIM? there are wonder books out there , you could

work with him one on one. what about trying local university and college where

students are working on becoming child psychologist they need kids to work with

you need some to work with him. make phone calls visit the

schools...............stay close to god. i had trouble find programs to ,check

out programs for autism also ...............they offer so much because it been

around longer they face the same problems. good luck.

Bobbie <bobbiekatmontana@...> wrote: Hi,,my name is Barbra and my son

was just dianosed with

Aspergers, 2 weeks ago. Relief,,and fear,,both. OK,,BJ, short for

Joe, is just a few days from being 16. He has been in school

for 13 years, having started in special ed, when 3 for speech

development. For 13 years, I have been given the run around, by

educaters. The famous " he will grow out of this " being my

favorite. We live in South Dakota, and the law is, you can quit

school when 16. Two months ago, at the retesting for special ed,

BJ's IQ fianally kicked him out for special classes. Now, he will

be totally mainstreamed. When I ask,,he is flunking every single

class, what did they expect him to do?, they looked at me so

confused. Its like they had never seen one of his report card in

their life. So,,,at my roped end,and BJ's too, we said he would not

be back in school next year. (BJ has been programed to fail for 13

years, having never passed a class yet.) Hes 16, law says he can

quit. WOW, when you threaten to take away a schools money, do they

jump. Within a week, we were at a mental health unit, being tested

for everything, learning related.

The counclers that we are working with,,nice,,but do not sugar

coat anything!!! I am still trying to protect my baby,,and they are

very open about what BJs options are. Maybe I needed time to absorb

some stuff, but they believe being honest to the kid and the kid

will be honest with them. BJ is a non talker to strangers. Number

one,,just being with a strange person, was devastating, and then,

being told a word you have never heard of,,well,,I'm sure you

understand. Now, BJ sees a councler once a week at school, to deal

with issues he has about Aspergers, and to make sure hes doing ok

with that.

I have read for 2 weeks,,some possative,,some not, and just found

your group last night. As far as I can tell,,BJ is the ONLY Aspie

in South Dakota...lol..ok, I am sure he is not. BJ is a little boy

in a teenagers body. Hes 5 foot 7, and weights 135 pounds, and is

around 12, on a good day, 8 on a bad. He is quite, (shy?), sweet,

still hugs me, even in front of his classmates, is obedent to a

fault. Must have his watch on, and his Yu-ge-oh cards at all time.

He never leaves my side in town. To the point of hanging on to the

basket at the grocery store.

We have the same problems that all people have, divorced last

year, and a daughter leaving home at 18. I do not date, due to BJ's

just not ready for a stranger around, and I am just not ready

either.

Any advice, or comments, or help, or just say hi, would be

great!!! I know this is a long post, but,,,I just needed to vent,

thanks, barbra

[Guest guest]

Hi Barbara,

I've read other posts on this site that South Dakota is beautiful but not the

state to move with a child that needs support from school. How do you feel now

after getting him to the mental health unit.? Did they give you any

recommendations/strategies? are they (the school) going to help with the

right programs for your son? This is a great support group here & I hope you

keep us posted on your sons progress. I wish you well too. hugs to you &

family

Bobbie <bobbiekatmontana@...> wrote:

Hi,,my name is Barbra and my son was just dianosed with

Aspergers, 2 weeks ago. Relief,,and fear,,both. OK,,BJ, short for

Joe, is just a few days from being 16. He has been in school

for 13 years, having started in special ed, when 3 for speech

development. For 13 years, I have been given the run around, by

educaters. The famous " he will grow out of this " being my

favorite. We live in South Dakota, and the law is, you can quit

school when 16. Two months ago, at the retesting for special ed,

BJ's IQ fianally kicked him out for special classes. Now, he will

be totally mainstreamed. When I ask,,he is flunking every single

class, what did they expect him to do?, they looked at me so

confused. Its like they had never seen one of his report card in

their life. So,,,at my roped end,and BJ's too, we said he would not

be back in school next year. (BJ has been programed to fail for 13

years, having never passed a class yet.) Hes 16, law says he can

quit. WOW, when you threaten to take away a schools money, do they

jump. Within a week, we were at a mental health unit, being tested

for everything, learning related.

The counclers that we are working with,,nice,,but do not sugar

coat anything!!! I am still trying to protect my baby,,and they are

very open about what BJs options are. Maybe I needed time to absorb

some stuff, but they believe being honest to the kid and the kid

will be honest with them. BJ is a non talker to strangers. Number

one,,just being with a strange person, was devastating, and then,

being told a word you have never heard of,,well,,I'm sure you

understand. Now, BJ sees a councler once a week at school, to deal

with issues he has about Aspergers, and to make sure hes doing ok

with that.

I have read for 2 weeks,,some possative,,some not, and just found

your group last night. As far as I can tell,,BJ is the ONLY Aspie

in South Dakota...lol..ok, I am sure he is not. BJ is a little boy

in a teenagers body. Hes 5 foot 7, and weights 135 pounds, and is

around 12, on a good day, 8 on a bad. He is quite, (shy?), sweet,

still hugs me, even in front of his classmates, is obedent to a

fault. Must have his watch on, and his Yu-ge-oh cards at all time.

He never leaves my side in town. To the point of hanging on to the

basket at the grocery store.

We have the same problems that all people have, divorced last

year, and a daughter leaving home at 18. I do not date, due to BJ's

just not ready for a stranger around, and I am just not ready

either.

Any advice, or comments, or help, or just say hi, would be

great!!! I know this is a long post, but,,,I just needed to vent,

thanks, barbra

[Guest guest]

I'll just say hi Barbra as I'm pretty new here and my son is only 5 so I haven't

reached the whole teenage thing yet. Thank goodness

Beck

( ) New Member

Hi,,my name is Barbra and my son was just dianosed with

Aspergers, 2 weeks ago. Relief,,and fear,,both. OK,,BJ, short for

Joe, is just a few days from being 16. He has been in school

for 13 years, having started in special ed, when 3 for speech

development. For 13 years, I have been given the run around, by

educaters. The famous " he will grow out of this " being my

favorite. We live in South Dakota, and the law is, you can quit

school when 16. Two months ago, at the retesting for special ed,

BJ's IQ fianally kicked him out for special classes. Now, he will

be totally mainstreamed. When I ask,,he is flunking every single

class, what did they expect him to do?, they looked at me so

confused. Its like they had never seen one of his report card in

their life. So,,,at my roped end,and BJ's too, we said he would not

be back in school next year. (BJ has been programed to fail for 13

years, having never passed a class yet.) Hes 16, law says he can

quit. WOW, when you threaten to take away a schools money, do they

jump. Within a week, we were at a mental health unit, being tested

for everything, learning related.

The counclers that we are working with,,nice,,but do not sugar

coat anything!!! I am still trying to protect my baby,,and they are

very open about what BJs options are. Maybe I needed time to absorb

some stuff, but they believe being honest to the kid and the kid

will be honest with them. BJ is a non talker to strangers. Number

one,,just being with a strange person, was devastating, and then,

being told a word you have never heard of,,well,,I'm sure you

understand. Now, BJ sees a councler once a week at school, to deal

with issues he has about Aspergers, and to make sure hes doing ok

with that.

I have read for 2 weeks,,some possative,,some not, and just found

your group last night. As far as I can tell,,BJ is the ONLY Aspie

in South Dakota...lol..ok, I am sure he is not. BJ is a little boy

in a teenagers body. Hes 5 foot 7, and weights 135 pounds, and is

around 12, on a good day, 8 on a bad. He is quite, (shy?), sweet,

still hugs me, even in front of his classmates, is obedent to a

fault. Must have his watch on, and his Yu-ge-oh cards at all time.

He never leaves my side in town. To the point of hanging on to the

basket at the grocery store.

We have the same problems that all people have, divorced last

year, and a daughter leaving home at 18. I do not date, due to BJ's

just not ready for a stranger around, and I am just not ready

either.

Any advice, or comments, or help, or just say hi, would be

great!!! I know this is a long post, but,,,I just needed to vent,

thanks, barbra

[Guest guest]

Hello-

I'm new to this group, I have a daughter, now 23 with AS, that was diagnosed

as such at 12--the specialists and school counselors that worked with her up

until then kept telling me it was ADHD, even though she was having mega social

skills/coping problems in school and at home and others that didn't fit the ADHD

mold.

I am also a single parent, have raised both my girls alone for past 16 years,

so have had to look for, fight for, help with my daughter, often times just

dealing with the problems myself.

She didn't quit school, was always mainstreamed, but had LOTS of help in

school--resource assistants, speech and language, remedial math and english

classes and was finally able to graduate from high school with the rest of her

class.

I like the idea of mainstreaming AS kids for the social skills part, but

remember if you keep your AS kid around others his/her own age, they will expect

to be treated THE SAME as they are with all their priviliges and rights, without

the same responsibilities and understanding of other kids their age--that's the

problem I'm having now. She knows she's 23 and since her friends get all these

freedoms (driving, staying out all night, etc), she thinks she's entitled to the

same, even though she can't handle them. (like your son, she has good days

(when she acts about 16) and bad (when she acts quite younger). It seems the

older they get, the more evident AS becomes in their behavior.

As far as SD not offering any help to you with your son, remember Asperger's

is a recognized disability and you should be able to claim some benefits from

the state because of that disability. That could include counseling, respite

care services, vocational rehab to help him learn a trade and help find him a

job and work with him while employed, behavior counseling, a case manager to

help you obtain available services for him, etc. (I live in Indiana and we have

that made available to us already)

As far as your son's future being bleak--you may want to look into Social

Security Disability (SSDI)--Even though my daughter graduated from high school,

I was able to justify the fact that she would not be able to get or maintain a

job because of her AS and the results of this on her everyday behavior--her

limitations, the need to supervise her all the time, etc--She now gets SSDI plus

state (IN) Medicaid benefits, Vocational Rehab support services, as well as a

few other support services made available to her because she did qualify for

state-funded Medicaid. Using these services, she was able to get and keep a

job--has been employed in same job for over 3 years--with their assistance. I

still struggle with her sometimes, but it sure is easier with experienced help.

If you have any other questions or need to vent some more, plz let me know.

Norma

Mark son <thejacobsons@...> wrote:

I'll just say hi Barbra as I'm pretty new here and my son is only 5 so I

haven't reached the whole teenage thing yet. Thank goodness

Beck

( ) New Member

Hi,,my name is Barbra and my son was just dianosed with

Aspergers, 2 weeks ago. Relief,,and fear,,both. OK,,BJ, short for

Joe, is just a few days from being 16. He has been in school

for 13 years, having started in special ed, when 3 for speech

development. For 13 years, I have been given the run around, by

educaters. The famous " he will grow out of this " being my

favorite. We live in South Dakota, and the law is, you can quit

school when 16. Two months ago, at the retesting for special ed,

BJ's IQ fianally kicked him out for special classes. Now, he will

be totally mainstreamed. When I ask,,he is flunking every single

class, what did they expect him to do?, they looked at me so

confused. Its like they had never seen one of his report card in

their life. So,,,at my roped end,and BJ's too, we said he would not

be back in school next year. (BJ has been programed to fail for 13

years, having never passed a class yet.) Hes 16, law says he can

quit. WOW, when you threaten to take away a schools money, do they

jump. Within a week, we were at a mental health unit, being tested

for everything, learning related.

The counclers that we are working with,,nice,,but do not sugar

coat anything!!! I am still trying to protect my baby,,and they are

very open about what BJs options are. Maybe I needed time to absorb

some stuff, but they believe being honest to the kid and the kid

will be honest with them. BJ is a non talker to strangers. Number

one,,just being with a strange person, was devastating, and then,

being told a word you have never heard of,,well,,I'm sure you

understand. Now, BJ sees a councler once a week at school, to deal

with issues he has about Aspergers, and to make sure hes doing ok

with that.

I have read for 2 weeks,,some possative,,some not, and just found

your group last night. As far as I can tell,,BJ is the ONLY Aspie

in South Dakota...lol..ok, I am sure he is not. BJ is a little boy

in a teenagers body. Hes 5 foot 7, and weights 135 pounds, and is

around 12, on a good day, 8 on a bad. He is quite, (shy?), sweet,

still hugs me, even in front of his classmates, is obedent to a

fault. Must have his watch on, and his Yu-ge-oh cards at all time.

He never leaves my side in town. To the point of hanging on to the

basket at the grocery store.

We have the same problems that all people have, divorced last

year, and a daughter leaving home at 18. I do not date, due to BJ's

just not ready for a stranger around, and I am just not ready

either.

Any advice, or comments, or help, or just say hi, would be

great!!! I know this is a long post, but,,,I just needed to vent,

thanks, barbra

[Guest guest]

Hello Val. There are no real definitive studies on plagio causing

developmental delays or anything like that, though there has been some

speculation on that. Technically (physically), the brain could grow in

a box, so a " mishappen " brain shouldn't really much affect it's

function. There are plagio babies out there with developmental delays

and speech delays, though this is sometimes related to torticollis

and/or sometimes unrelated to any plagio and/or tort. You may also

want to go to OlderPlag/ and talk

to some of the Moms on there who also have older children with

unresolved plagio. They may also be able to give you some insight.

Jen

(21 mo), tort resolved, Hanger Band grad

(4 years)

>

> Hi, my name is Val and I am new to the group. My daughter, Emma, is

> almost three and and is microcephalic(small head) and the back of her

> head is flat. She has learning difficulties and although she is doing

> really well she functions at the level of a one year old. She is not

> talking and started walking last Xmas. What I am hoping to find out

> from other members is if anyone knows of plagiocephaly causing brain

> damage? I may just 'be clutching at straws' but Emma,s head was not

> flat when she was born and her head measurments were fine. I would be

> greatful for any information anyone can give me. Thanks Val

>

[Guest guest]

Hi Val,

There have not been any definitive studies saying plagio causes brain

damage. Is she flat across the entire back of her head? There was

some hinting in one study that this headshape may cause delays later

in life but they wouldn't be seen until school age. I think there is

a link to it in the files section.

Have the drs not been helpful in helping you to determine a cause for

her delays?

na, DOC Grad Feb 04

Kiersten, DOC Grad April 06

www.thefilyaws.com/plagio/plagio.html

>

> Hi, my name is Val and I am new to the group. My daughter, Emma, is

> almost three and and is microcephalic(small head) and the back of

her

> head is flat. She has learning difficulties and although she is

doing

> really well she functions at the level of a one year old. She is not

> talking and started walking last Xmas. What I am hoping to find out

> from other members is if anyone knows of plagiocephaly causing brain

> damage? I may just 'be clutching at straws' but Emma,s head was not

> flat when she was born and her head measurments were fine. I would

be

> greatful for any information anyone can give me. Thanks Val

>

[Guest guest]

Hello Wyndi

Welcome to the Group, I am sure you will find great support here

Chrissy

Wyndi <w.adkins@...> wrote:

Hello,

My name is Wyndi and I have four year old twins, my son has

been diagnosed with oral apraxia.

I hope I have found the right group for support and advice on how I

can benefit and help him.

Wyndi

[Guest guest]

Hi ,

I have twins that will be six on aug. 2 and they are both apraxic. They are

doing much better since I've found a PROMPT spl. I also hired an advocate and

they are getting much more services.

christine rowe <chrissylionhearted@...> wrote:

Hello Wyndi

Welcome to the Group, I am sure you will find great support here

Chrissy

Wyndi <w.adkins@...> wrote:

Hello,

My name is Wyndi and I have four year old twins, my son has

been diagnosed with oral apraxia.

I hope I have found the right group for support and advice on how I

can benefit and help him.

Wyndi

[Guest guest]

Welcome Ruth,

This group is a great place full of information and advice. I am sure it will

help you get the answers you are looking for.

Beck

( ) New member

I joined this group looking for help for our son. The school is

telling us that our son has social problems with other children, but

never with adults. He usually has a hard time focusing on his tasks.

They are suggesting evaluation. He is extremely intelligent and loves

to read. Although our son has not been diagnosed with AS, he surely

exhibits the behaviors. I look forward to learning more.

Ruth

[Guest guest]

Welcome !!!!

What a wonderful grandma you are!!!!! Sounds like you are starting to do all the right things. Something that you can look into is the Bumbo Seat -(target, toys r us) - It supports the baby in a sitting position w/ out pressure on the head. And I know the baby hates it but Tummy Time is sooooo crucial. Get on the floor and try and distract the baby so they don't even realize it. For sleeping we used a wedge and had our dd sleep on her side. Maybe talk to the Pediatrician about that. Ours wasn't too keen on the idea until I showed hi her head and then said it was ok.

Your grandbabys 4 mo check up is coming soon? See about getting a referral to a cranio-facial team. They can make the diagnosis for Plagio - and for now start documenting her head w/ pics and your efforts to repo her.

You can also try going to a Cranial Tech or other P & O provider and see about getting her evaluated for severity.

Jen

Mommy to 4...and 1 more!!!!

LULI'S HERE!

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

for tummy time you can also try the tummy play boppy thats how i got simon to like being on his tummy more , now simon loves being on his tummy and rolled from his back to tummy first and just started rolling from tummy to back.

Aron Holwighttp://birds.lemonyfresh.com/gallery/

On 6/26/06, DVJen@... <DVJen@...> wrote:

Welcome !!!!What a wonderful grandma you are!!!!! Sounds like you are starting to do all the right things. Something that you can look into is the Bumbo Seat -(target, toys r us) - It supports the baby in a sitting position w/ out pressure on the head. And I know the baby hates it but Tummy Time is sooooo crucial. Get on the floor and try and distract the baby so they don't even realize it. For sleeping we used a wedge and had our dd sleep on her side. Maybe talk to the Pediatrician about that. Ours wasn't too keen on the idea until I showed hi her head and then said it was ok. Your grandbabys 4 mo check up is coming soon? See about getting a referral to a cranio-facial team. They can make the diagnosis for Plagio - and for now start documenting her head w/ pics and your efforts to repo her. You can also try going to a Cranial Tech or other P & O provider and see about getting her evaluated for severity.

Jen

Mommy to 4...and 1 more!!!!LULI'S HERE!

" Luli "

www.babiesonline.com/babies/j/jens5th/

--

[Guest guest]

Yes my daughter loves her Tummy time play Boppy.

It works so much better then the big Boppy I use to feed her.

Thanks and have a great day,

aleyfamily@...

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of aron holwig

Sent: Tuesday, June 27, 2006 1:15

AM

Plagiocephaly

Subject: Re: New Member

for tummy time you can also try the tummy play boppy thats how i got

simon to like being on his tummy more , now simon loves being on his tummy and

rolled from his back to tummy first and just started rolling from tummy to

back.

Aron Holwig

http://birds.lemonyfresh.com/gallery/

On 6/26/06, DVJen@... <DVJen@...> wrote:

Welcome !!!!

What a wonderful grandma you are!!!!! Sounds like you are starting to do

all the right things. Something that you can look into is the Bumbo Seat

-(target, toys r us) - It supports the baby in a sitting position w/ out

pressure on the head. And I know the baby hates it but Tummy Time is

sooooo crucial. Get on the floor and try and distract the baby so they

don't even realize it. For sleeping we used a wedge and had our dd sleep

on her side. Maybe talk to the Pediatrician about that. Ours wasn't

too keen on the idea until I showed hi her head and then said it was ok.

Your grandbabys 4 mo check up is coming soon? See about getting a

referral to a cranio-facial team. They can make the diagnosis for Plagio

- and for now start documenting her head w/ pics and your efforts to repo her.

You can also try going to a Cranial Tech or other P & O provider and see

about getting her evaluated for severity.

Jen

Mommy to 4...and 1 more!!!!

LULI'S HERE!

" Luli "

www.babiesonline.com/babies/j/jens5th/

--

[Guest guest]

Hi !

Good for you looking our for your grandchild! There is a seat

available called a Bumbo seat, helps position the baby upright, but

off her head. Use an exersaucer instead of the bouncy seat or

swing, another way to stay off the head. Only takes car trips when

the baby is going for a nap, this way she is only on her head when

she really NEEDS to be. Use a Bjorn front carrier(or other kind)

instead of a stroller for walk around the block or shopping at the

mall. For tummy time prop her chest over a boppy with her arms

hanging over so she can play with toys. most babies will take to

this because they can see better1 Good Luck to you.

Jaclin

>

> Hi,

>

> I am a new memeber and just signed up yesterday. I was doing some

> searching because my first grandbaby has a flat head in the back

and

> is slightly pointer toward the top when you look at her profile

from

> the side. Really hard to say but we think she was born like this

> seems like it has been like that since we remember and she is only

3

> months old. I kept thinking something does not seem right.

Cannot

> even find a hat to fit her right. I stumbled upon this group in

my

> searches. I told my daughter today that we need to start keeping

> her off her back as much as podsible. I probably have her just as

> much as mom does and she goes to school 4 days a week and has two

> part time jobs. So being the whole back of her head is flat

should

> she mainly be sleeping on her side? She does love her swing and I

> read that can be really bad for the flat head. I did not put her

in

> it once today. She also loves the bounce seat. Absolutely does

not

> like tummy time for more than 5-15 minutes. At this age she can

> hold her head up but not real good for long. This makes it

> difficult as to what to do with her all day. If you lean her

> sitting up against something the pressure is still on the back of

> her head. Recently when she sleeps (on her back of course) she

> does like to have her head to one side or the other so that helps

as

> the pressure is off the back of her head. So at her 4 mo. check up

I

> guess we will see what the ped. says. We have not brought it up

to

> him as of yet and he has never mentioned anything. The baby is on

> state aid insurance (medicaid)(Michigan). I have looked through

> your lists of insurance co.'s and problems and ones that pay or

> not. I have not seen any state aid ones listed that I recognize.

> If anyone has any info on whether they do or not, would be helpful

> to know. Any advice or suggestions are welcome.

>

>

>

[Guest guest]

if you are going to use a front carrier make sure it has alot of back support. i had to stop using mine it was giving me really bad back and shoulder pain, ive been trying to talk my husband into buying the bjorn active carrier since it looks like it has alot of support but it costs alot.

Aron Holwighttp://birds.lemonyfresh.com/gallery/

On 6/27/06, j2la899 <j2la899@...> wrote:

Hi !Good for you looking our for your grandchild! There is a seat available called a Bumbo seat, helps position the baby upright, but off her head. Use an exersaucer instead of the bouncy seat or swing, another way to stay off the head. Only takes car trips when the baby is going for a nap, this way she is only on her head when she really NEEDS to be. Use a Bjorn front carrier(or other kind) instead of a stroller for walk around the block or shopping at the mall. For tummy time prop her chest over a boppy with her arms hanging over so she can play with toys. most babies will take to this because they can see better1 Good Luck to you.Jaclin

>> Hi,> > I am a new memeber and just signed up yesterday. I was doing some > searching because my first grandbaby has a flat head in the back and > is slightly pointer toward the top when you look at her profile from > the side. Really hard to say but we think she was born like this > seems like it has been like that since we remember and she is only 3 > months old. I kept thinking something does not seem right. Cannot > even find a hat to fit her right. I stumbled upon this group in my > searches. I told my daughter today that we need to start keeping > her off her back as much as podsible. I probably have her just as > much as mom does and she goes to school 4 days a week and has two > part time jobs. So being the whole back of her head is flat

should > she mainly be sleeping on her side? She does love her swing and I > read that can be really bad for the flat head. I did not put her in > it once today. She also loves the bounce seat. Absolutely does not > like tummy time for more than 5-15 minutes. At this age she can > hold her head up but not real good for long. This makes it > difficult as to what to do with her all day. If you lean her

> sitting up against something the pressure is still on the back of > her head. Recently when she sleeps (on her back of course) she > does like to have her head to one side or the other so that helps

as > the pressure is off the back of her head. So at her 4 mo. check up I > guess we will see what the ped. says. We have not brought it up to > him as of yet and he has never mentioned anything. The baby is on > state aid insurance (medicaid)(Michigan). I have looked through > your lists of insurance co.'s and problems and ones that pay or > not. I have not seen any state aid ones listed that I recognize.

> If anyone has any info on whether they do or not, would be helpful > to know. Any advice or suggestions are welcome. > > >

--

[Guest guest]

Thank you all for your tips. I was going to by a bumbo seat today

but we are expecting storms. We have an exersaucer but Autumn

is sort of small for 3 mo's, we do put her in it but have to stuff a

tiny pillow into the seat as there is too much room and she flops around.

Her tummy time is getting a tiny bit better. I am telling my daughter

all the tips too so she can do the same. What a great group.

Grandma to Autumn

Michigan

Re: New Member

Hi !Good for you looking our for your grandchild! There is a seat available called a Bumbo seat, helps position the baby upright, but off her head. Use an exersaucer instead of the bouncy seat or swing, another way to stay off the head. Only takes car trips when the baby is going for a nap, this way she is only on her head when she really NEEDS to be. Use a Bjorn front carrier(or other kind) instead of a stroller for walk around the block or shopping at the mall. For tummy time prop her chest over a boppy with her arms hanging over so she can play with toys. most babies will take to this because they can see better1 Good Luck to you.Jaclin>> Hi,> > I am a new memeber and just signed up yesterday. I was doing some > searching because my first grandbaby has a flat head in the back and > is slightly pointer toward the top when you look at her profile from > the side. Really hard to say but we think she was born like this > seems like it has been like that since we remember and she is only 3 > months old. I kept thinking something does not seem right. Cannot > even find a hat to fit her right. I stumbled upon this group in my > searches. I told my daughter today that we need to start keeping > her off her back as much as podsible. I probably have her just as > much as mom does and she goes to school 4 days a week and has two > part time jobs. So being the whole back of her head is flat should > she mainly be sleeping on her side? She does love her swing and I > read that can be really bad for the flat head. I did not put her in > it once today. She also loves the bounce seat. Absolutely does not > like tummy time for more than 5-15 minutes. At this age she can > hold her head up but not real good for long. This makes it > difficult as to what to do with her all day. If you lean her > sitting up against something the pressure is still on the back of > her head. Recently when she sleeps (on her back of course) she > does like to have her head to one side or the other so that helps as > the pressure is off the back of her head. So at her 4 mo. check up I > guess we will see what the ped. says. We have not brought it up to > him as of yet and he has never mentioned anything. The baby is on > state aid insurance (medicaid)(Michigan). I have looked through > your lists of insurance co.'s and problems and ones that pay or > not. I have not seen any state aid ones listed that I recognize. > If anyone has any info on whether they do or not, would be helpful > to know. Any advice or suggestions are welcome. > > >