Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 To and Jean: What is reactive arthritis? Also, thanks /sbc for your v. encouraging message for those of us new to AP and hoping/praying/wondering, etc. whether it really works and works for the long term. Do you have any joint or cartilige damage that you know of? And, if you don't mind, at what age were you diagnosed? Thanks. Pam Re: rheumatic new member Hi, /sbc. Really glad to se your post. I have been using minocycline for 7 months for reactive arthritis. We haven't heard a lot from ReA folks in this time, and it sounds like that may have been your diagnosis. How long did the AP take to work for you? What antiobiotic(s) did you use? Did you use IV's? How long had you had arthritis before you started the AP? Thanks for any answers and specific encouragement you can pass my way. Jean > hello! > I've been reading the posts and thoght I would introduce myself. > my naame is susan and i see there are alreasy other 's here so > I'll go by sbc. I have been on the AP since '88. I first saw Dr. > Oliver, then dr. in AL., then Dr. Whitman in N.J., and now > being treated in AL again. the arthritis began with a Salmonella > infection which went untreated and caused an immune defense > response. I also forget to capitalize letters! Oh well. When I was > seen in Arlington Va. i was also found to have mycoplasma orale and > M. salivarium along with the HLA-B27 gene. My complete history was > published in the road Back Foundation's INTERRUPTED JOURNEYS vol.5. > I am glad to report that i am feeling very well despite the toll the > arthritis took. Ther is light at the end of the tunnel, so I > encourage those of you who are new to the AP to hang in there and > don't give up! When I was going trough the worst period ther was no > egroup to talk to! I think this is great! By the way, my SED rate > is now 1 compared to the98 when i began treatment. All for now,talk > later. susan/sbc > > > ------------------------------------------------------------------------ > 1.6 Million Digital Images! > Download one Today from Corbis.com > 1/3356/0/_/532797/_/955638175/ > ------------------------------------------------------------------------ > > ------------------------------------------------------------------------ Get paid for the stuff you know! Get answers for the stuff you don't. And get $10 to spend on the site! 1/2200/0/_/532797/_/955639069/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2000 Report Share Posted April 13, 2000 Hi, Pam, Reactive arthritis, sometimes called Reiter's arthritis, or Reiter's syndrome if all the signs shows up, is an inflammatory arthritis which follows an infection with any of several known triggering pathogens--mostly food- or water-borne, like salmonella, or sexually transmitted, like chlamydia. Some micoplasmas are known triggers for ReA. Often, it shows up two or three weeks after a known exposure, as in food poisoning, and the cause is clearly identifiable, but it can also appear without a recognized triggering episode. ReA is similar to Ankylosing Spondylitis, in that it tends to effect tendons and ligaments and attachments of these to the bones often more than the actual synovial joints themselves. AS tends to be more a disease of the spinal joints, whereas ReA is more a disease of the peripheral joints, but they both can and do effect both types of joint. AS and ReA are both associated with the HLA B-27 tissue type, which said she is positive for (I'm not.) This association is not as strong in women as it is in men. Since these diseases have much in common with RA, but also take a bit of their own track, I'm always a bit unsure how much of what I see discussed on the list applies to me. From what I can understand of Dr. Brown's work, he considered all the diseases to exist along a spectrum, and the particular disease an individual contracted was dependent upon what bug they came into contact with, and what their genetic predispositions might be. I read an interesting research abstract a while back from McGill University, in which they studied a number of female patients who had been diagnosed with fibromyalgia. They did more careful investigations, and found that a large percentage of them actually had ReA or AS or another similar inflammatory disease. Women often have a less distinct presentation of these diseases than men, and the doctors love to make the FM diagnosis. Since tendons, ligaments, and attachments are common targets of the inflammation, this an easy quick and sloppy mistake to make. Jean > To and Jean: > > What is reactive arthritis? > > Also, thanks /sbc for your v. encouraging message for those of us new > to AP and hoping/praying/wondering, etc. whether it really works and works > for the long term. > > Do you have any joint or cartilige damage that you know of? And, if you > don't mind, at what age were you diagnosed? Thanks. > Pam > > Re: rheumatic new member > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2000 Report Share Posted April 14, 2000 I was first diagnosed with Fibromyalgia, but my rheumy told me she thought it was AS and RS. Though the x-rays were coming out ok at the time I already have a curve in my upper back. She actually told me to go home and go to bed because I wouldn't be able to get up again anyway. I didn't listen to her.... I did get back up and have been fighting this thing. I have been bedridden for months at a time and have had to use a cane in the past. I always seem to bounce back and have done pretty good the past couple of years when looking back at where I have been.... Still have constant pain which is so HARD for other people to deal with... I don't get it so I just smile and say I am ok.... Ok= I am alive and up. Now my X-rays show damage in both my upper and lower back. Doctors are slow to change the diagnoses even though I tested +HLA-B27. The thing that made her check for this was a small remark I made about having pain in my heels. I first had that 19 years ago when my oldest daughter was born. Then it hit me again about 12 years later. I have always been what people would call " sickly " I also have a heart disease which kept me from being very active. The GP I am seeing now says this is definitely NOT Fibro. Finally... Something I have known for years!! She is also the doc that has me on the antibiodics, I asked her about it and was shocked that she said there isn't anything else we can do... Has anyone that is taking the Grapefruit seed had any stomach problems from it. It is probably just me I can take Grape seed fine and I have been taking a huge vitamin on the days that I am not on the Doxy. Also another question, what are the pro's and con's between Doxy and Mino? I am thinking of having her switch me only because of my stomach problems was hoping the other set better... Still having problems with getting back on track with the Doxy and I definitely have to take it with food usually I have oatmeal for breakfast and that tends to help keep it down. Thanks all, Sherry sometimes your the bug and sometimes you are the windshield Subject: Re: rheumatic new member >Hi, Pam, > >Reactive arthritis, sometimes called Reiter's arthritis, or Reiter's >syndrome if all the signs shows up, is an inflammatory arthritis which >follows an infection with any of several known triggering pathogens--mostly >food- or water-borne, like salmonella, or sexually transmitted, like >chlamydia. Some micoplasmas are known triggers for ReA. > >Often, it shows up two or three weeks after a known exposure, as in food >poisoning, and the cause is clearly identifiable, but it can also appear >without a recognized triggering episode. > >ReA is similar to Ankylosing Spondylitis, in that it tends to effect tendons >and ligaments and attachments of these to the bones often more than the >actual synovial joints themselves. AS tends to be more a disease of the >spinal joints, whereas ReA is more a disease of the peripheral joints, but >they both can and do effect both types of joint. > >AS and ReA are both associated with the HLA B-27 tissue type, which >said she is positive for (I'm not.) This association is not as strong in >women as it is in men. Since these diseases have much in common with RA, but >also take a bit of their own track, I'm always a bit unsure how much of what >I see discussed on the list applies to me. > >>From what I can understand of Dr. Brown's work, he considered all the >diseases to exist along a spectrum, and the particular disease an individual >contracted was dependent upon what bug they came into contact with, and what >their genetic predispositions might be. > >I read an interesting research abstract a while back from McGill University, >in which they studied a number of female patients who had been diagnosed >with fibromyalgia. They did more careful investigations, and found that a >large percentage of them actually had ReA or AS or another similar >inflammatory disease. Women often have a less distinct presentation of these >diseases than men, and the doctors love to make the FM diagnosis. Since >tendons, ligaments, and attachments are common targets of the inflammation, >this an easy quick and sloppy mistake to make. > >Jean > > >> To and Jean: >> >> What is reactive arthritis? >> >> Also, thanks /sbc for your v. encouraging message for those of us new >> to AP and hoping/praying/wondering, etc. whether it really works and works >> for the long term. >> >> Do you have any joint or cartilige damage that you know of? And, if you >> don't mind, at what age were you diagnosed? Thanks. >> Pam >> >> Re: rheumatic new member >> >> > > >------------------------------------------------------------------------ >Get paid for the stuff you know! >Get answers for the stuff you don’t. And get $10 to spend on the site! >1/2200/0/_/532797/_/955654912/ >------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2000 Report Share Posted April 14, 2000 on 4/14/00 8:22 PM, Sherry Martz at tifkas@... wrote: > Has anyone that is taking the Grapefruit seed had any stomach problems from > it. It is probably just me I can take Grape seed fine and I have been taking > a huge vitamin on the days that I am not on the Doxy. > Also another question, what are the pro's and con's between Doxy and Mino? I > am thinking of having her switch me only because of my stomach problems was > hoping the other set better... Still having problems with getting back on > track with the Doxy and I definitely have to take it with food usually I > have oatmeal for breakfast and that tends to help keep it down. Hi, Sherry, Have you read that a low starch diet might be especially helpful for AS? I know many believe this to be true for any inflammatory arthritis, but I believe the klebsiella bug (which is associated with AS) has in particular been studied for this effect. They say it doesn't have as much of its preferred nourishment if you use a low-starch diet. Funny, I used to eat oatmeal for breakfast most days, too, but am trying to avoid more starches these days. Still thinking through what an appropriate replacement might be, but am doing well with yogurt and fruit. The biggest change I have seen so far on minocycline is a significant reduction in the low-grade GI upset I used to have almost all the time. Now I can eat a variety of foods much more comfortably than before. I was 10 pounds under-weight when I started this, and have gained about 7. I don't have any experience with grapefuit seed extract. Hope you can get back on track soon. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2000 Report Share Posted April 17, 2000 Hi Sherry, Minocycline stays in the tissues longer than doxycycline - in general it's easier on the stomach for most people. Might be worth you trying and see if it suits you better. Dr. Joe Mercola has a section on minocycline in his physicians' protocol at rheumatic.org/protocol.htm. Chris. >Also another question, what are the pro's and con's between Doxy and Mino? I >am thinking of having her switch me only because of my stomach problems was >hoping the other set better... Still having problems with getting back on >track with the Doxy and I definitely have to take it with food usually I >have oatmeal for breakfast and that tends to help keep it down. > >Thanks all, >Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Greg, Thanks!! I found out the hard way that Doxy had to be taken with food. My doc didn't seem to know this. They sent an info sheet with it this time and it said to take it on a full stomach. I wanted to also thank all you who prayed for me on the trip last week. They ran a test to see if I have Lyme it came out negitive, the doc says that does not mean that I don't have it... anyway I am on two antyibiodics now and she doesnt want to switch to Mino, not sure why. My hands and right arm were feeling better by Friday morning. The swelling and purple color is completely gone, they still ache but there is no pain. I did have something strange happen on Sunday morning, I slept well (ok that is strange for me but that isn't it.) I woke up with dark circles under both eyes... the right eye was very dark and look like someone had slugged me. I hadn't brought any foundation so I couldn't cover it. No one at church mentioned it, so I hope it wasn't as noticable to them as it was to me. Of course we were new and most of them don't know that there is anything wrong with me to begin with. We are going back ONE MORE time!! Many of the families were out because they had relatives graduating from college. So they have asked us to come back up on the 21st and then they will take a vote the following Sunday. After the vote I will be needing to find a doc in MI around the Alpena or Grayling area if anyone knows of one please let me know. We are looking forward to the move just getting a little impatient. Both of our daughters are planning to move up with us. One has a job she is going to stay at through the summer and then come up and go back to college up there. The other just quit her job so she isn't concerned about staying here, she will start college next fall. I am really happy that they have decided to come with us. No matter how old they get they are still my kids. God has really blessed us. Blessings, Sherry >Sherry, > >I too have AS/RS. I've had it for approx. 10 years. I' ve used soxy and >Minocycline. Doxy must be take with food but I find it causes me less >problems overall. Minocycline made me dizzy most of the time. I've recently >added Zithromax. This is a different class of antibiotics which has the >ability to kill the mycoplasma. I currently take doxy 2x a day 100mg >tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web site >kickas.org/ This site is more focused on people with AS. > >Good Luck, > >Greg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Smart doctor, hang on to him. Most doctors won't even talk about lyme and dismiss it instantly with the lame tests that exist today. I have Lyme...since 1990. Is your doctor in Mich? I live in the Detroitish area and am always looking for good doctors... > They > ran a test to see if I have Lyme it came out negitive, the doc says that > does not mean that I don't have it... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 , We are living in In about 5 minutes south of the MI boarder right now. We will most likely be moving to MI in June sometime.... We are going to be making another trip up there on the weekend of the 21st. The town is really small it is called Comins right nect to another small town called Fairfiew. You might remember the tornado last July 3rd that came through there and wiped most of it out. The church and parsonage that were taken out have been rebuilt and they need a pastor, so that is why we have been going up there. I am still surprised how well I made the last trip. Saturday was rough starting out but I got better as the day went on.God really blessed us! Strom coming better get off!!! My doc is going to treat me for Lyme I am glad because I think the xtra antibiodic might really help. Blessings, Sherry >Smart doctor, hang on to him. Most doctors won't even talk about lyme and >dismiss it instantly with the lame tests that exist today. I have >Lyme...since 1990. Is your doctor in Mich? I live in the Detroitish area and >am always looking for good doctors... > > >> They >> ran a test to see if I have Lyme it came out negitive, the doc says that >> does not mean that I don't have it... > >------------------------------------------------------------------------ >How are you using eGroups? >Share your story with us at: >1/3933/0/_/532797/_/958001073/ >------------------------------------------------------------------------ > >To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 I have to take the doxy after I have eaten or it does not stay down when i tried taking it on an empty stomach I was up for two nights with terrible stomach pain. I was off the antibiodics for almost two weeks trying to get my stomach settled back down. My stomach does not work properly to begin with and i have to be very careful what I eat. I also found out for anyone who is taking antiacids that you should take them at least an hour away from the rest of your meds. I already space everything I take out but I have on occasion taken that with another med. I believe that if someone can take it on an empty stomach and have been that they should continue what they are doing. I just got the info again from the drug company saying to take it on a full stomach, but it also said it could be taken with a glass of milk... I don't think I wanna try that... It does say not to take any Supplaments such as Calcium two hours after taking it. It says it will not be absorbed properly. I don't have any dairy products on the same day I take my doxy. I normally have a bowl of oatmeal and then about thirty to forty min later I take the first one then I take the second one after dinner. I found that spreading them out also helps. I think you are right on the way it should be taken for the AP I just cant take it that way. It still seems to be working. My hands are so much better since last week. No swelling and very little pain and sometimes there is NO pain!! I have seen some small steps and in general feel better. I have actaully been able to sleep again!!!! One other thing that has helped a lot is taking Grape Seed extract with it. I was surprised that my doc knew what it was ans said to keep taking it that it was GREAT!! I can not keep the grapefruit seed down either. Thanks for your imput Gena!! Blessings all, Sherry >Hi Guys, >I know I had a disagreement with somone else on the list before this on this >matter and don't want to step on any toes, however, though I think it is >o.k. to eat a cracker or something small to help the doxy go down better, I >don't think it gets absorbed as well into your whole body system on a full >stomach. If you follow Dr. Garth Nicholson at all and his research and >protocol for treating mycoplasmas, he says that food reduces the absorbtion >rate of tetracyclines. For this reason, I have always taken my doxy or mino >two hours away from a full meal. Also, calcium products especially and >minerals knock out the antibiotics action (doxy included) unless at least >two hours away. My local support group leader who knows both Dr. Nicholson >and Dr. Franco stresses this fact also. If you are having stomach problems, >often, a good acidophilus product can help taken two or more hours >beforehand of your antibiotics. I know the print -out with your doxy says to >take it on a full stomach but you have to remember that it is a general >recommendation and that most pharmacists (maybe all pharmacists) no nothing >about the use of antibiotics for rheumatic illnesses. SIncerely, Gena >Castanon genaca@... > >>Greg, >> >>Thanks!! I found out the hard way that Doxy had to be taken with >>food. My doc didn't seem to know this. They sent an info sheet with it this >>time and it said to take it on a full stomach. >>I wanted to also thank all you who prayed for me on the trip last week. >They >>ran a test to see if I have Lyme it came out negitive, the doc says that >>does not mean that I don't have it... >>anyway I am on two antyibiodics now and she doesnt want to switch to Mino, >>not sure why. >>My hands and right arm were feeling better by Friday morning. The swelling >>and purple color is completely gone, they still ache but there is no pain. >>I did have something strange happen on Sunday morning, I slept well (ok >that >>is strange for me but that isn't it.) I woke up with dark circles under >both >>eyes... the right eye was very dark and look like someone had slugged me. I >>hadn't brought any foundation so I couldn't cover it. No one at church >>mentioned it, so I hope it wasn't as noticable to them as it was to me. Of >>course we were new and most of them don't know that there is anything wrong >>with me to begin with. We are going back ONE MORE time!! Many of the >>families were out because they had relatives graduating from college. So >>they have asked us to come back up on the 21st and then they will take a >>vote the following Sunday. After the vote I will be needing to find a doc >in >>MI around the Alpena or Grayling area if anyone knows of one please let me >>know. We are looking forward to the move just getting a little impatient. >>Both of our daughters are planning to move up with us. One has a job she is >>going to stay at through the summer and then come up and go back to college >>up there. The other just quit her job so she isn't concerned about staying >>here, she will start college next fall. I am really happy that they have >>decided to come with us. No matter how old they get they are still my kids. >>God has really blessed us. >> >>Blessings, >>Sherry >> >>>Sherry, >>> >>>I too have AS/RS. I've had it for approx. 10 years. I' ve used soxy and >> >>>Minocycline. Doxy must be take with food but I find it causes me less >>>problems overall. Minocycline made me dizzy most of the time. I've >>recently >>>added Zithromax. This is a different class of antibiotics which has the >>>ability to kill the mycoplasma. I currently take doxy 2x a day 100mg >>>tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web site >>>kickas.org/ This site is more focused on people with AS. >>> >>>Good Luck, >>> >>>Greg >> >> >>------------------------------------------------------------------------ >>Bids starting at $7 for thousands of products - uBid.com >>1/3027/0/_/532797/_/957985459/ >>------------------------------------------------------------------------ >> >>To unsubscribe, email: rheumatic-unsubscribeegroups >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 Hi Sherry, I also take my meds with meals - my stomach just can't handle it otherwise (I don't have them with milk or antacids however). My AP doctor is fine with that, as she thinks it is better not to irritate the stomach further and at least get some (hopefully most) of the antibiotics absorbed that continue to distress the stomach. I have to take the clindamycin capsules literally half-way through my meal in order not to have bad reflux and yucky tummy. I know that ideally they should be taken a couple of hours away from food but that just doesn't work for me. ( I also find them easier to remember this way!) However, the AP seems to be working, although it is early days. Hope you continue to improve! Lara Re: rheumatic new member > I have to take the doxy after I have eaten or it does not stay down when i > tried taking it on an empty stomach I was up for two nights with terrible > stomach pain. I was off the antibiodics for almost two weeks trying to get > my stomach settled back down. My stomach does not work properly to begin > with and i have to be very careful what I eat. I also found out for anyone > who is taking antiacids that you should take them at least an hour away from > the rest of your meds. I already space everything I take out but I have on > occasion taken that with another med. I believe that if someone can take it > on an empty stomach and have been that they should continue what they are > doing. I just got the info again from the drug company saying to take it on > a full stomach, but it also said it could be taken with a glass of milk... I > don't think I wanna try that... It does say not to take any Supplaments such > as Calcium two hours after taking it. It says it will not be absorbed > properly. I don't have any dairy products on the same day I take my doxy. I > normally have a bowl of oatmeal and then about thirty to forty min later I > take the first one then I take the second one after dinner. I found that > spreading them out also helps. I think you are right on the way it should be > taken for the AP I just cant take it that way. It still seems to be working. > My hands are so much better since last week. No swelling and very little > pain and sometimes there is NO pain!! I have seen some small steps and in > general feel better. I have actaully been able to sleep again!!!! > One other thing that has helped a lot is taking Grape Seed extract with it. > I was surprised that my doc knew what it was ans said to keep taking it that > it was GREAT!! I can not keep the grapefruit seed down either. > Thanks for your imput Gena!! > Blessings all, > Sherry > > > >Hi Guys, > >I know I had a disagreement with somone else on the list before this on > this > >matter and don't want to step on any toes, however, though I think it is > >o.k. to eat a cracker or something small to help the doxy go down better, I > >don't think it gets absorbed as well into your whole body system on a full > >stomach. If you follow Dr. Garth Nicholson at all and his research and > >protocol for treating mycoplasmas, he says that food reduces the absorbtion > >rate of tetracyclines. For this reason, I have always taken my doxy or mino > >two hours away from a full meal. Also, calcium products especially and > >minerals knock out the antibiotics action (doxy included) unless at least > >two hours away. My local support group leader who knows both Dr. Nicholson > >and Dr. Franco stresses this fact also. If you are having stomach problems, > >often, a good acidophilus product can help taken two or more hours > >beforehand of your antibiotics. I know the print -out with your doxy says > to > >take it on a full stomach but you have to remember that it is a general > >recommendation and that most pharmacists (maybe all pharmacists) no > nothing > >about the use of antibiotics for rheumatic illnesses. SIncerely, Gena > >Castanon genaca@... > > > > > >>Greg, > >> > >>Thanks!! I found out the hard way that Doxy had to be taken with > >>food. My doc didn't seem to know this. They sent an info sheet with it > this > >>time and it said to take it on a full stomach. > >>I wanted to also thank all you who prayed for me on the trip last week. > >They > >>ran a test to see if I have Lyme it came out negitive, the doc says that > >>does not mean that I don't have it... > >>anyway I am on two antyibiodics now and she doesnt want to switch to Mino, > >>not sure why. > >>My hands and right arm were feeling better by Friday morning. The swelling > >>and purple color is completely gone, they still ache but there is no pain. > >>I did have something strange happen on Sunday morning, I slept well (ok > >that > >>is strange for me but that isn't it.) I woke up with dark circles under > >both > >>eyes... the right eye was very dark and look like someone had slugged me. > I > >>hadn't brought any foundation so I couldn't cover it. No one at church > >>mentioned it, so I hope it wasn't as noticable to them as it was to me. Of > >>course we were new and most of them don't know that there is anything > wrong > >>with me to begin with. We are going back ONE MORE time!! Many of the > >>families were out because they had relatives graduating from college. So > >>they have asked us to come back up on the 21st and then they will take a > >>vote the following Sunday. After the vote I will be needing to find a doc > >in > >>MI around the Alpena or Grayling area if anyone knows of one please let me > >>know. We are looking forward to the move just getting a little impatient. > >>Both of our daughters are planning to move up with us. One has a job she > is > >>going to stay at through the summer and then come up and go back to > college > >>up there. The other just quit her job so she isn't concerned about staying > >>here, she will start college next fall. I am really happy that they have > >>decided to come with us. No matter how old they get they are still my > kids. > >>God has really blessed us. > >> > >>Blessings, > >>Sherry > >> > >>>Sherry, > >>> > >>>I too have AS/RS. I've had it for approx. 10 years. I' ve used soxy and > >> > >>>Minocycline. Doxy must be take with food but I find it causes me less > >>>problems overall. Minocycline made me dizzy most of the time. I've > >>recently > >>>added Zithromax. This is a different class of antibiotics which has the > >>>ability to kill the mycoplasma. I currently take doxy 2x a day 100mg > >>>tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web site > >>>kickas.org/ This site is more focused on people with AS. > >>> > >>>Good Luck, > >>> > >>>Greg > >> > >> > >>------------------------------------------------------------------------ > >>Bids starting at $7 for thousands of products - uBid.com > >>1/3027/0/_/532797/_/957985459/ > >>------------------------------------------------------------------------ > >> > >>To unsubscribe, email: rheumatic-unsubscribeegroups > >> > >> > >> > > > > > > > ------------------------------------------------------------------------ > @Backup- Protect and Access your data any time, any where on the net. > Try @Backup FREE and recieve 300 points from mypoints.com Install now: > 1/2345/0/_/532797/_/958067358/ > ------------------------------------------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Hi , My tummy gets very acidic, a bit like heartburn, and I " burp " a lot in an acidic way (does that make sense??). I have found this is minimised by taking my clindamycin capsule in the middle of a meal. The minocycline isn't such a problem for me. I also find that I need to have something to eat every few hours, but I have always been a bit like that (before the RA) - if I have an empty stomach for too long, I become nauseous. During my late teen and early twenties (I'm now in my early thirties) I would even get " vomiting attacks " if I went more than about three or four hours without any food or drink, where I would vomit every 20 minutes for 4 to 7 hours (my GP used to call them " abdominal migraines " - who knows what they really were). Thank goodness I don't get them any more. So I am pretty hesitant about doing anything that upsets my stomach!! Lara Re: rheumatic new member > > > > > >> I have to take the doxy after I have eaten or it does not stay down when i > >> tried taking it on an empty stomach I was up for two nights with terrible > >> stomach pain. I was off the antibiodics for almost two weeks trying to get > >> my stomach settled back down. My stomach does not work properly to begin > >> with and i have to be very careful what I eat. I also found out for anyone > >> who is taking antiacids that you should take them at least an hour away > >from > >> the rest of your meds. I already space everything I take out but I have on > >> occasion taken that with another med. I believe that if someone can take > >it > >> on an empty stomach and have been that they should continue what they are > >> doing. I just got the info again from the drug company saying to take it > >on > >> a full stomach, but it also said it could be taken with a glass of milk... > >I > >> don't think I wanna try that... It does say not to take any Supplaments > >such > >> as Calcium two hours after taking it. It says it will not be absorbed > >> properly. I don't have any dairy products on the same day I take my doxy. > >I > >> normally have a bowl of oatmeal and then about thirty to forty min later I > >> take the first one then I take the second one after dinner. I found that > >> spreading them out also helps. I think you are right on the way it should > >be > >> taken for the AP I just cant take it that way. It still seems to be > >working. > >> My hands are so much better since last week. No swelling and very little > >> pain and sometimes there is NO pain!! I have seen some small steps and in > >> general feel better. I have actaully been able to sleep again!!!! > >> One other thing that has helped a lot is taking Grape Seed extract with > >it. > >> I was surprised that my doc knew what it was ans said to keep taking it > >that > >> it was GREAT!! I can not keep the grapefruit seed down either. > >> Thanks for your imput Gena!! > >> Blessings all, > >> Sherry > >> > >> > >> >Hi Guys, > >> >I know I had a disagreement with somone else on the list before this on > >> this > >> >matter and don't want to step on any toes, however, though I think it is > >> >o.k. to eat a cracker or something small to help the doxy go down better, > >I > >> >don't think it gets absorbed as well into your whole body system on a > >full > >> >stomach. If you follow Dr. Garth Nicholson at all and his research and > >> >protocol for treating mycoplasmas, he says that food reduces the > >absorbtion > >> >rate of tetracyclines. For this reason, I have always taken my doxy or > >mino > >> >two hours away from a full meal. Also, calcium products especially and > >> >minerals knock out the antibiotics action (doxy included) unless at least > >> >two hours away. My local support group leader who knows both Dr. > >Nicholson > >> >and Dr. Franco stresses this fact also. If you are having stomach > >problems, > >> >often, a good acidophilus product can help taken two or more hours > >> >beforehand of your antibiotics. I know the print -out with your doxy says > >> to > >> >take it on a full stomach but you have to remember that it is a general > >> >recommendation and that most pharmacists (maybe all pharmacists) no > >> nothing > >> >about the use of antibiotics for rheumatic illnesses. SIncerely, Gena > >> >Castanon genaca@... > >> > >> > >> > > >> >>Greg, > >> >> > >> >>Thanks!! I found out the hard way that Doxy had to be taken with > >> >>food. My doc didn't seem to know this. They sent an info sheet with it > >> this > >> >>time and it said to take it on a full stomach. > >> >>I wanted to also thank all you who prayed for me on the trip last week. > >> >They > >> >>ran a test to see if I have Lyme it came out negitive, the doc says that > >> >>does not mean that I don't have it... > >> >>anyway I am on two antyibiodics now and she doesnt want to switch to > >Mino, > >> >>not sure why. > >> >>My hands and right arm were feeling better by Friday morning. The > >swelling > >> >>and purple color is completely gone, they still ache but there is no > >pain. > >> >>I did have something strange happen on Sunday morning, I slept well (ok > >> >that > >> >>is strange for me but that isn't it.) I woke up with dark circles under > >> >both > >> >>eyes... the right eye was very dark and look like someone had slugged > >me. > >> I > >> >>hadn't brought any foundation so I couldn't cover it. No one at church > >> >>mentioned it, so I hope it wasn't as noticable to them as it was to me. > >Of > >> >>course we were new and most of them don't know that there is anything > >> wrong > >> >>with me to begin with. We are going back ONE MORE time!! Many of the > >> >>families were out because they had relatives graduating from college. So > >> >>they have asked us to come back up on the 21st and then they will take a > >> >>vote the following Sunday. After the vote I will be needing to find a > >doc > >> >in > >> >>MI around the Alpena or Grayling area if anyone knows of one please let > >me > >> >>know. We are looking forward to the move just getting a little > >impatient. > >> >>Both of our daughters are planning to move up with us. One has a job she > >> is > >> >>going to stay at through the summer and then come up and go back to > >> college > >> >>up there. The other just quit her job so she isn't concerned about > >staying > >> >>here, she will start college next fall. I am really happy that they have > >> >>decided to come with us. No matter how old they get they are still my > >> kids. > >> >>God has really blessed us. > >> >> > >> >>Blessings, > >> >>Sherry > >> >> > >> >>>Sherry, > >> >>> > >> >>>I too have AS/RS. I've had it for approx. 10 years. I' ve used soxy > >and > >> >> > >> >>>Minocycline. Doxy must be take with food but I find it causes me less > >> >>>problems overall. Minocycline made me dizzy most of the time. I've > >> >>recently > >> >>>added Zithromax. This is a different class of antibiotics which has > >the > >> >>>ability to kill the mycoplasma. I currently take doxy 2x a day 100mg > >> >>>tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web > >site > >> >>>kickas.org/ This site is more focused on people with AS. > >> >>> > >> >>>Good Luck, > >> >>> > >> >>>Greg > >> >> > >> >> > >> >>------------------------------------------------------------------------ > >> >>Bids starting at $7 for thousands of products - uBid.com > >> >>1/3027/0/_/532797/_/957985459/ > >> >>------------------------------------------------------------------------ > >> >> > >> >>To unsubscribe, email: rheumatic-unsubscribeegroups > >> >> > >> >> > >> >> > >> > > >> > > >> > >> > >> ------------------------------------------------------------------------ > >> @Backup- Protect and Access your data any time, any where on the net. > >> Try @Backup FREE and recieve 300 points from mypoints.com Install now: > >> 1/2345/0/_/532797/_/958067358/ > >> ------------------------------------------------------------------------ > >> > >> To unsubscribe, email: rheumatic-unsubscribeegroups > >> > >> > > > > > >------------------------------------------------------------------------ > >Save 75% on Products! > >Find incredible deals on overstocked items with Free shipping! > >1/4013/0/_/532797/_/958082606/ > >------------------------------------------------------------------------ > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Hi Lara, I've never had the extreme of being sick if I didn't eat every few hours, but it sure does make me nauseous. I try to eat little amounts every 2-3 hours and thats about all my stomach can hold now. I was that way for last several years even before the RA, but it seems even more neccessary now. T. DanLara DamenFinlayson wrote: > Hi , > My tummy gets very acidic, a bit like heartburn, and I " burp " a lot in an > acidic way (does that make sense??). I have found this is minimised by > taking my clindamycin capsule in the middle of a meal. The minocycline > isn't such a problem for me. I also find that I need to have something to > eat every few hours, but I have always been a bit like that (before the > RA) - if I have an empty stomach for too long, I become nauseous. During my > late teen and early twenties (I'm now in my early thirties) I would even get > " vomiting attacks " if I went more than about three or four hours without any > food or drink, where I would vomit every 20 minutes for 4 to 7 hours (my GP > used to call them " abdominal migraines " - who knows what they really were). > Thank goodness I don't get them any more. So I am pretty hesitant about > doing anything that upsets my stomach!! > Lara > Re: rheumatic new member > > > > > > > > >> I have to take the doxy after I have eaten or it does not stay down > when i > > >> tried taking it on an empty stomach I was up for two nights with > terrible > > >> stomach pain. I was off the antibiodics for almost two weeks trying to > get > > >> my stomach settled back down. My stomach does not work properly to > begin > > >> with and i have to be very careful what I eat. I also found out for > anyone > > >> who is taking antiacids that you should take them at least an hour away > > >from > > >> the rest of your meds. I already space everything I take out but I have > on > > >> occasion taken that with another med. I believe that if someone can > take > > >it > > >> on an empty stomach and have been that they should continue what they > are > > >> doing. I just got the info again from the drug company saying to take > it > > >on > > >> a full stomach, but it also said it could be taken with a glass of > milk... > > >I > > >> don't think I wanna try that... It does say not to take any Supplaments > > >such > > >> as Calcium two hours after taking it. It says it will not be absorbed > > >> properly. I don't have any dairy products on the same day I take my > doxy. > > >I > > >> normally have a bowl of oatmeal and then about thirty to forty min > later I > > >> take the first one then I take the second one after dinner. I found > that > > >> spreading them out also helps. I think you are right on the way it > should > > >be > > >> taken for the AP I just cant take it that way. It still seems to be > > >working. > > >> My hands are so much better since last week. No swelling and very > little > > >> pain and sometimes there is NO pain!! I have seen some small steps and > in > > >> general feel better. I have actaully been able to sleep again!!!! > > >> One other thing that has helped a lot is taking Grape Seed extract with > > >it. > > >> I was surprised that my doc knew what it was ans said to keep taking it > > >that > > >> it was GREAT!! I can not keep the grapefruit seed down either. > > >> Thanks for your imput Gena!! > > >> Blessings all, > > >> Sherry > > >> > > >> > > >> >Hi Guys, > > >> >I know I had a disagreement with somone else on the list before this > on > > >> this > > >> >matter and don't want to step on any toes, however, though I think it > is > > >> >o.k. to eat a cracker or something small to help the doxy go down > better, > > >I > > >> >don't think it gets absorbed as well into your whole body system on a > > >full > > >> >stomach. If you follow Dr. Garth Nicholson at all and his research and > > >> >protocol for treating mycoplasmas, he says that food reduces the > > >absorbtion > > >> >rate of tetracyclines. For this reason, I have always taken my doxy or > > >mino > > >> >two hours away from a full meal. Also, calcium products especially and > > >> >minerals knock out the antibiotics action (doxy included) unless at > least > > >> >two hours away. My local support group leader who knows both Dr. > > >Nicholson > > >> >and Dr. Franco stresses this fact also. If you are having stomach > > >problems, > > >> >often, a good acidophilus product can help taken two or more hours > > >> >beforehand of your antibiotics. I know the print -out with your doxy > says > > >> to > > >> >take it on a full stomach but you have to remember that it is a > general > > >> >recommendation and that most pharmacists (maybe all pharmacists) no > > >> nothing > > >> >about the use of antibiotics for rheumatic illnesses. SIncerely, Gena > > >> >Castanon genaca@... > > >> > > >> > > >> > > > >> >>Greg, > > >> >> > > >> >>Thanks!! I found out the hard way that Doxy had to be taken > with > > >> >>food. My doc didn't seem to know this. They sent an info sheet with > it > > >> this > > >> >>time and it said to take it on a full stomach. > > >> >>I wanted to also thank all you who prayed for me on the trip last > week. > > >> >They > > >> >>ran a test to see if I have Lyme it came out negitive, the doc says > that > > >> >>does not mean that I don't have it... > > >> >>anyway I am on two antyibiodics now and she doesnt want to switch to > > >Mino, > > >> >>not sure why. > > >> >>My hands and right arm were feeling better by Friday morning. The > > >swelling > > >> >>and purple color is completely gone, they still ache but there is no > > >pain. > > >> >>I did have something strange happen on Sunday morning, I slept well > (ok > > >> >that > > >> >>is strange for me but that isn't it.) I woke up with dark circles > under > > >> >both > > >> >>eyes... the right eye was very dark and look like someone had slugged > > >me. > > >> I > > >> >>hadn't brought any foundation so I couldn't cover it. No one at > church > > >> >>mentioned it, so I hope it wasn't as noticable to them as it was to > me. > > >Of > > >> >>course we were new and most of them don't know that there is anything > > >> wrong > > >> >>with me to begin with. We are going back ONE MORE time!! Many of the > > >> >>families were out because they had relatives graduating from college. > So > > >> >>they have asked us to come back up on the 21st and then they will > take a > > >> >>vote the following Sunday. After the vote I will be needing to find a > > >doc > > >> >in > > >> >>MI around the Alpena or Grayling area if anyone knows of one please > let > > >me > > >> >>know. We are looking forward to the move just getting a little > > >impatient. > > >> >>Both of our daughters are planning to move up with us. One has a job > she > > >> is > > >> >>going to stay at through the summer and then come up and go back to > > >> college > > >> >>up there. The other just quit her job so she isn't concerned about > > >staying > > >> >>here, she will start college next fall. I am really happy that they > have > > >> >>decided to come with us. No matter how old they get they are still my > > >> kids. > > >> >>God has really blessed us. > > >> >> > > >> >>Blessings, > > >> >>Sherry > > >> >> > > >> >>>Sherry, > > >> >>> > > >> >>>I too have AS/RS. I've had it for approx. 10 years. I' ve used > soxy > > >and > > >> >> > > >> >>>Minocycline. Doxy must be take with food but I find it causes me > less > > >> >>>problems overall. Minocycline made me dizzy most of the time. I've > > >> >>recently > > >> >>>added Zithromax. This is a different class of antibiotics which has > > >the > > >> >>>ability to kill the mycoplasma. I currently take doxy 2x a day > 100mg > > >> >>>tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web > > >site > > >> >>>kickas.org/ This site is more focused on people with AS. > > >> >>> > > >> >>>Good Luck, > > >> >>> > > >> >>>Greg > > >> >> > > >> >> > > >> > >>------------------------------------------------------------------------ > > >> >>Bids starting at $7 for thousands of products - uBid.com > > >> >>1/3027/0/_/532797/_/957985459/ > > >> > >>------------------------------------------------------------------------ > > >> >> > > >> >>To unsubscribe, email: rheumatic-unsubscribeegroups > > >> >> > > >> >> > > >> >> > > >> > > > >> > > > >> > > >> > > > >> ------------------------------------------------------------------------ > > >> @Backup- Protect and Access your data any time, any where on the net. > > >> Try @Backup FREE and recieve 300 points from mypoints.com Install now: > > >> 1/2345/0/_/532797/_/958067358/ > > > >> ------------------------------------------------------------------------ > > >> > > >> To unsubscribe, email: rheumatic-unsubscribeegroups > > >> > > >> > > > > > > > > >------------------------------------------------------------------------ > > >Save 75% on Products! > > >Find incredible deals on overstocked items with Free shipping! > > >1/4013/0/_/532797/_/958082606/ > > >------------------------------------------------------------------------ > > > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > > > > > > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > 1/4054/0/_/532797/_/958213047/ > ------------------------------------------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 I actually bought the Grape Seed Extract for yeast infections, it has kept them under contol. I found that is also settles my stomach better than the meds do. I even took it for a migraine that was starting just to see what would happen... and my actuall stopped hurting. I was very surprised, my daughter also battles with stomach problems and she has been taking them as needed to settle her stomach too. Someone posted about some of the benifits here and that is how I found out about them. My doc said they were really good to take. I was going to try the aloe vera juice but since this works I dont need to right now. One of my biggest problems is that something like this will work for me for awhile and then stop. Mybe since it suppose to be all natural it will continue working... I also have reflux and take 3 - 200mg generic Tagament daily and that has helped reduce that acid. Somtimes I will take Maylox But I really dont like the taste!!!!!!!! I saw it is out now in chewable flavored tablets last night at Walmart. That would come in handy on the road. This week after our trip has been a little tough, one of the things that happened it that my husband orders my meds on line and there was a missunderstanding as to what I needed so.... I was taking half of my normal dose of the med I use to control the muscle spasms and then ran out on Friday. Apparently God was watching over me, cuz Thursday night I didn't get any sleep and felt pretty aweful on Friday. UPS had left the med at out nighbors house,he said he thought is was med and didnt was us to have to wait over the weekend to get it. Wow how many people think about stuff like that? Anyway the neighbor brought it over yesterday and what a relief!! I still had trouble sleeping and am in a lot of pain today, they build up in your system. Since I never completely stopped taking them, they should kick in by Monday. Blessings all. Sherry >Hi Sherry, >I am so glad to hear you are improving with taking the doxy the way you are. >Also, I am glad you didn't find my advice offensive and that I just care for >anyone trying to do this therapy. I feel that if you feel you are getting >improvement than by all means keep it up! I tried doxy for 8 months with no >herx and no improvement. Now I have been going the minocin route and have >been going through a bad herx so am looking towards good days. As far as >your bad stomach problems go, have you ever tried taking the good >acidophilus products for it? I know that I had problems with doxy until I >started one and then was able to wait two hours between food and taking it. >Also, do you take the grape seed extract because it is a strong >anti-oxidant? SIncerely, Gena Castanon genaca@... > Re: rheumatic new member > > >>I have to take the doxy after I have eaten or it does not stay down when i >>tried taking it on an empty stomach I was up for two nights with terrible >>stomach pain. I was off the antibiodics for almost two weeks trying to get >>my stomach settled back down. My stomach does not work properly to begin >>with and i have to be very careful what I eat. I also found out for anyone >>who is taking antiacids that you should take them at least an hour away >from >>the rest of your meds. I already space everything I take out but I have on >>occasion taken that with another med. I believe that if someone can take >it >>on an empty stomach and have been that they should continue what they are >>doing. I just got the info again from the drug company saying to take it on >>a full stomach, but it also said it could be taken with a glass of milk... >I >>don't think I wanna try that... It does say not to take any Supplaments >such >>as Calcium two hours after taking it. It says it will not be absorbed >>properly. I don't have any dairy products on the same day I take my doxy. I >>normally have a bowl of oatmeal and then about thirty to forty min later I >>take the first one then I take the second one after dinner. I found that >>spreading them out also helps. I think you are right on the way it should >be >>taken for the AP I just cant take it that way. It still seems to be >working. >>My hands are so much better since last week. No swelling and very little >>pain and sometimes there is NO pain!! I have seen some small steps and in >>general feel better. I have actaully been able to sleep again!!!! >>One other thing that has helped a lot is taking Grape Seed extract with it. >>I was surprised that my doc knew what it was ans said to keep taking it >that >>it was GREAT!! I can not keep the grapefruit seed down either. >>Thanks for your imput Gena!! >>Blessings all, >>Sherry >> >> >>>Hi Guys, >>>I know I had a disagreement with somone else on the list before this on >>this >>>matter and don't want to step on any toes, however, though I think it is >>>o.k. to eat a cracker or something small to help the doxy go down better, >I >>>don't think it gets absorbed as well into your whole body system on a full >>>stomach. If you follow Dr. Garth Nicholson at all and his research and >>>protocol for treating mycoplasmas, he says that food reduces the >absorbtion >>>rate of tetracyclines. For this reason, I have always taken my doxy or >mino >>>two hours away from a full meal. Also, calcium products especially and >>>minerals knock out the antibiotics action (doxy included) unless at least >>>two hours away. My local support group leader who knows both Dr. Nicholson >>>and Dr. Franco stresses this fact also. If you are having stomach >problems, >>>often, a good acidophilus product can help taken two or more hours >>>beforehand of your antibiotics. I know the print -out with your doxy says >>to >>>take it on a full stomach but you have to remember that it is a general >>>recommendation and that most pharmacists (maybe all pharmacists) no >>nothing >>>about the use of antibiotics for rheumatic illnesses. SIncerely, Gena >>>Castanon genaca@... >> >> >>> >>>>Greg, >>>> >>>>Thanks!! I found out the hard way that Doxy had to be taken with >>>>food. My doc didn't seem to know this. They sent an info sheet with it >>this >>>>time and it said to take it on a full stomach. >>>>I wanted to also thank all you who prayed for me on the trip last week. >>>They >>>>ran a test to see if I have Lyme it came out negitive, the doc says that >>>>does not mean that I don't have it... >>>>anyway I am on two antyibiodics now and she doesnt want to switch to >Mino, >>>>not sure why. >>>>My hands and right arm were feeling better by Friday morning. The >swelling >>>>and purple color is completely gone, they still ache but there is no >pain. >>>>I did have something strange happen on Sunday morning, I slept well (ok >>>that >>>>is strange for me but that isn't it.) I woke up with dark circles under >>>both >>>>eyes... the right eye was very dark and look like someone had slugged me. >>I >>>>hadn't brought any foundation so I couldn't cover it. No one at church >>>>mentioned it, so I hope it wasn't as noticable to them as it was to me. >Of >>>>course we were new and most of them don't know that there is anything >>wrong >>>>with me to begin with. We are going back ONE MORE time!! Many of the >>>>families were out because they had relatives graduating from college. So >>>>they have asked us to come back up on the 21st and then they will take a >>>>vote the following Sunday. After the vote I will be needing to find a doc >>>in >>>>MI around the Alpena or Grayling area if anyone knows of one please let >me >>>>know. We are looking forward to the move just getting a little >impatient. >>>>Both of our daughters are planning to move up with us. One has a job she >>is >>>>going to stay at through the summer and then come up and go back to >>college >>>>up there. The other just quit her job so she isn't concerned about >staying >>>>here, she will start college next fall. I am really happy that they have >>>>decided to come with us. No matter how old they get they are still my >>kids. >>>>God has really blessed us. >>>> >>>>Blessings, >>>>Sherry >>>> >>>>>Sherry, >>>>> >>>>>I too have AS/RS. I've had it for approx. 10 years. I' ve used soxy >and >>>> >>>>>Minocycline. Doxy must be take with food but I find it causes me less >>>>>problems overall. Minocycline made me dizzy most of the time. I've >>>>recently >>>>>added Zithromax. This is a different class of antibiotics which has the >>>>>ability to kill the mycoplasma. I currently take doxy 2x a day 100mg >>>>>tues,wed,thurs,sat,sun and Zithro mon and friday. Check out the web >site >>>>>kickas.org/ This site is more focused on people with AS. >>>>> >>>>>Good Luck, >>>>> >>>>>Greg >>>> >>>> >>>>------------------------------------------------------------------------ >>>>Bids starting at $7 for thousands of products - uBid.com >>>>1/3027/0/_/532797/_/957985459/ >>>>------------------------------------------------------------------------ >>>> >>>>To unsubscribe, email: rheumatic-unsubscribeegroups >>>> >>>> >>>> >>> >>> >> >> >>------------------------------------------------------------------------ >>@Backup- Protect and Access your data any time, any where on the net. >>Try @Backup FREE and recieve 300 points from mypoints.com Install now: >>1/2345/0/_/532797/_/958067358/ >>------------------------------------------------------------------------ >> >>To unsubscribe, email: rheumatic-unsubscribeegroups >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2000 Report Share Posted May 15, 2000 Gloria, I take one to two a day, I take them twice a day when taking the doxy. It has completely gotten rid of the yeast infections. I had one when I started taking them it cleared up in about two days. I have never tried the other one you mentioned. The grape seed extract is only like 5.00 at Walmart. It has been well worth it for me!! Also if you can take the grapfruit seed my husband really likes it. It didnt set well on my stomach but is clears up infections also. We did have to order that one on line though. Blessings, Sherry >Dear Sherry, > Do you take just the grape seed or do you take asodofilus, too. I know >I spelled that wrong, but... How much grape seed extract do you take? I >have been getting yeast lately but don't really feel like ordering >special asodofilus. >Thanks, >Gloria >________________________________________________________________ >YOU'RE PAYING TOO MUCH FOR THE INTERNET! >Juno now offers FREE Internet Access! >Try it today - there's no risk! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2000 Report Share Posted June 5, 2000 hi kandy my diaughter is using juice plus before she gets pregnat and will do the rest of her life prevention is the key and nothing is bettter than food. and juice plus is second best be welll jack Jack and Bullion 1405 Melba Doyle Decatur,Texas 76234 (940) 627 6584 www.juiceplus.com/+jb21754 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Hi Kandy, There is a lot of info here and I know you will find your way. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Yes, Gillian I have been reading your messages for the last couple of days going back to May actually. I had pretty much figured that you were " off the beam " but I mean that in the best possible way. Remission was heavenly. In fact I didn't appreciate it until my PA came back. At the time I was 1st dx'd my son was 2 1/2 yrs old and I was a single parent. Very hard to cope but I soldiered on. When I went into remission it was not a very gradual thing. Believe it or not it only took about a week for all of my symptoms to totally resolve. However the memories of the pain were so vivid that I knew exactly what was happening when it came back. Luckily I don't seem to have the same foot problems that I have read on some peoples' postings although I do find that any shoe or boot that laces over the top front of my foot is no good. Buying sandels for the summer was an adventure. I have found that shoes with elastic uppers are the best for me. It was GREAT to come across the PA site. I have really enjoyed reading the postings. I have to admit though I have been feeling a bit strange because my case does not seem as advanced as some of yours do. I have read about people in hospital, going to the MD every week, and having had sugery. I am still able to take Kickbox 4 times per week and have just returned from Japan where I did a fair amount of walking around viewing temples. So I have a bit of a guilt complex. Is that normal????? Question for anyone: When one of your joints is about to become affected does it itch? I mean deeply - like the bones themselves are itchy? This happens to me and I wondered if this was a typical thing or what?!?!?! Appreciate answers from anyone with an opinion. Thanks for this wonderful outlet. I read on one posting that when you have PA you have to convince people that you are falling apart while you are still looking pretty good. Have found the same to be true. Still feel bad though when I can't work outside in the yard for as long as I'd like and have to tell my husband that I'm going in the house. How do you handle this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 , I can't tell you about the deep itch, because I itch all the time. As for dealing with the lack of energy and yard work...We just have to remember there isn't much we can do about and not beat ourselves up about it. Our friends, and mates just have to learn to cope with the fact also. My husband does try to understand most of the time, but there still are times he gets frustrated with me. Also don't feel guilty because you aren't as bad as some of us on the list. Just be thankful you aren't there yet. And I pray you never get to the point of some of us. As for me...I'm not as bad as some of them but I know that it can progress. We just have to face the limitations as them come, no matter how frustrating it may get. Good luck in the acceptance of our lives as PA'ers. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Thank you for the kind words. I do consider myself lucky that I am not as advanced but do keep aware of what could be ahead. My psoriasis is not widespread at all. Only have it in fingernails and groin - not the sexiest place...........oh well. I'm more upset about the fingernails since people always see them and ask what is wring with them. They end up getting a 5 minute short version explanation of PA. It's always something that they have never even heard of. I was an activity director in a nursing home for 5yrs and I thought I had seen every form of arthritis that there was. SURPRISE. Back to the fingernail thing........any of the women - do you have any advice about wearing nail polish? Currently I only wear it for special ocassions and remove it the very next day. Any help will be appreciated. H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Did your Mom always tell you " wera clean underwear in case you're ever in an accident " ?? I think the ER staff would be happy to see clean underwear - even boxers!!!!!!! Will have to talk to my MD - internist - about some sort of cream. Thanks, H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Thanks for your reply Donna. Did you continue to take antinflammatory drugs while taking MTX? W. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 W, Welcome to the PA crowd. MTX can be used with some other drugs, but I would get the Doc's okay. I take MTX and celebrex and I am supposed to add Arava. Not sure I like all that mix, but I am doing better than ever. Could be remission, but I will take it no matter what. Folic Acid helps take care of some of the MTX side effects, I take 400 mcg every day. Also my Rheumy Doc said it was fine to take Tylenol if I had a really bad day, but not every day as it also can effect your liver. I take two 500 MG caplets of Tylenol when needed, which is about once or twice a week. It normally works for me, sort gets me over the hump. Bob in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 wrote: Thanks for your reply Donna. Did you continue to take antinflammatory drugs while taking MTX? W.,I've been sitting here trying to remember about the antinflammatory...I think I did. I think he reduced the dosage though and I'm thinking it was motrin 800mg 2x a day. Some of the members tell me that if you take a folic acid it helps with the sickness. My rheumy didnt tell me that and so I felt rotten 1/2 the time. You have to also be careful around infections of any kind. Your immune system will be low. It works for some but others it doesn't. Try it and if it doesn't do what you think it should then get off it. By the way, I didn't lose any hair either. I kept praying if I lost any it would be off my legs and I wouldn't have to shave them anymore. HA! No such luck. Keep in touch, Donna __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Rivky, Thanks for the info. I saw the Dr. yesterday. I'm having blood test and a chest and spine xray today or tomorrow. If everything is okay I'm going to try the MTX. If I have ugly side effects I will ask him about the Enbrel. I have to say the thought of injecting myself gives me goose bumps. Does the Enbrel work on both the skin and joints? --- F4s2many@... wrote: > Hi ! > > Welcome to this list. Did you start the MTX yet? If > not, you might want to > consider asking your Dr. to put you on ENBREL. It > has worked wonders for me > and for many others in this group. It is given > twice weekly by self > injections (a real pain but worth it). I personally > have found it to be the > first drug that actually worked for me with no side > effects (except some site > swelling which I found out was normal). > > The best part about the Enbrel is that it is much > less toxic then MTX. If > you have insurance, you should really pursue this > option. (the injections > cost about $125.00 per shot - over $1,000 per month) > > Let us know what your Dr. says after you ask him. > > Good Luck! > > Rivky :-) > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Donna, I'm so glad to hear that you didn't lose your hair. I actually put off trying MTX until I cut my hair last fall. Now it's to my shoulders instead of to my butt. Guess that was vain, but with all the ugliness of this disease I had to have something to be confident about. My doctor also offer me pain meds for flare ups. This was a first. I'd never had a dr. give me pain meds. In fact the last rhuem. told me I had psychological problems. Well yeah, no kidding, I've been in pain continually since I was 22. I'm so glad I found this new dr. Not that I don't need antidepressants, I take them and they do help with coping. But I think the last dr. was just very insensitive. Anyway, he perscribed vicoprophen (sp). It's vicodin and ibuprophen. Has anyone taken this? Comments? Thanks. Quote Link to comment Share on other sites More sharing options...
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