New Member

[Guest guest]

Kris,

Thanks for the suggestions. My son is not yet able to imitate

sounds. He just makes one sound. I know we are doing all the right

things to work on this, but it is so hard to be patient. I guess I'm

sliding into a valley and I just need to climb back up to the peak.

Ya know what I mean? The emotional roller coaster?

Thanks again.

Amie

[Guest guest]

I would take her to a developmental pediatrician for a complete evaluation.

Please suggest that your grandaughter get a referral for a child

development specialist.

My son was not talking at all...did not have 2 words and would say " Dee "

for everything. He never pointed either. At 2 yrs, I demanded a referral to

a speech pathologist. She immediately said he was behind a good year in

speech development. We were told about the Early Intervention program where

he qualified for at home therapy for Speech and Occupational Therapy for

his low upper truncal muscle tone. At 3 yrs old, he entered the

Develpmental Delay program run by our local public school systems...He was

also officially diagnosed by a developmental pediatrician at 3 yrs old with

Severe oral and verbal Apraxia, Sensory Integration Disorder and Hypotonia.

She recommended he be given EFA's and EPA and lots of Speech Therapy along

with OT.

I currently give him - 2 ProEFA's, 1 ProEPA and 400IU Vitamin E ..He speaks

in sentences, though behind about a year. He is 5 yrs old today and

progressing daily!

" Carolyn A Duff "

<carolynaduff@yah

oo.com> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] New Member

12/26/2006 09:03

AM

Please respond to

childrensapraxian

et@...

m

Good Morning

I am new to the group. My name is Carolyn. I joined because we have a

granddaughter that is just a little over 2 and she is not talking like

some 2 year olds I know are. My husband and I are thinking of getting

her involved with a learning daycare 2 days a week. She has no social

life with other little kids her age. I am hoping to get some ideas and

suggestions to help me help her.

Have a grand day

Carolyn

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

I would take her to a developmental pediatrician for a complete evaluation.

Please suggest that your grandaughter get a referral for a child

development specialist.

My son was not talking at all...did not have 2 words and would say " Dee "

for everything. He never pointed either. At 2 yrs, I demanded a referral to

a speech pathologist. She immediately said he was behind a good year in

speech development. We were told about the Early Intervention program where

he qualified for at home therapy for Speech and Occupational Therapy for

his low upper truncal muscle tone. At 3 yrs old, he entered the

Develpmental Delay program run by our local public school systems...He was

also officially diagnosed by a developmental pediatrician at 3 yrs old with

Severe oral and verbal Apraxia, Sensory Integration Disorder and Hypotonia.

She recommended he be given EFA's and EPA and lots of Speech Therapy along

with OT.

I currently give him - 2 ProEFA's, 1 ProEPA and 400IU Vitamin E ..He speaks

in sentences, though behind about a year. He is 5 yrs old today and

progressing daily!

" Carolyn A Duff "

<carolynaduff@yah

oo.com> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] New Member

12/26/2006 09:03

AM

Please respond to

childrensapraxian

et@...

m

Good Morning

I am new to the group. My name is Carolyn. I joined because we have a

granddaughter that is just a little over 2 and she is not talking like

some 2 year olds I know are. My husband and I are thinking of getting

her involved with a learning daycare 2 days a week. She has no social

life with other little kids her age. I am hoping to get some ideas and

suggestions to help me help her.

Have a grand day

Carolyn

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

It can't hurt to take him to a developmental pediatrician to get their

opinion. It would put your mind at ease if nothing is wrong. Don't

hesitate and don't think you are overreacting.

>

> our son is 30 months old and a few weeks ago a " birth to 3 " worker

> suggested we get him evaluated. he can say things like " let go,

thank

> you, bye " but will say " a moo " for movie and " a boo " for book. he

took

> to signing the word more ( " mo, mo " ). its obvious he's a smart kid,

> just frustrated easily. not sure what we should do- just give him a

> chance to develop at his own rate....opinions vary so widely when we

> talk to folks.

>

[Guest guest]

My opinion is this: if it doesn't hurt, and might help, then why

not? Having him eval'd won't hurt him, possibly getting speech

therapy won't hurt him, and it might help him. With any delay, the

earlier you can work on a solution the better their odds.

HTH

, mom to Nate, age 3

>

> our son is 30 months old and a few weeks ago a " birth to 3 " worker

> suggested we get him evaluated. he can say things like " let go,

thank

> you, bye " but will say " a moo " for movie and " a boo " for book. he

took

> to signing the word more ( " mo, mo " ). its obvious he's a smart kid,

> just frustrated easily. not sure what we should do- just give him

a

> chance to develop at his own rate....opinions vary so widely when

we

> talk to folks.

>

[Guest guest]

It can't hurt to take him to a developmental pediatrician to get their

opinion. It would put your mind at ease if nothing is wrong. Don't

hesitate and don't think you are overreacting.

>

> our son is 30 months old and a few weeks ago a " birth to 3 " worker

> suggested we get him evaluated. he can say things like " let go,

thank

> you, bye " but will say " a moo " for movie and " a boo " for book. he

took

> to signing the word more ( " mo, mo " ). its obvious he's a smart kid,

> just frustrated easily. not sure what we should do- just give him a

> chance to develop at his own rate....opinions vary so widely when we

> talk to folks.

>

[Guest guest]

My opinion is this: if it doesn't hurt, and might help, then why

not? Having him eval'd won't hurt him, possibly getting speech

therapy won't hurt him, and it might help him. With any delay, the

earlier you can work on a solution the better their odds.

HTH

, mom to Nate, age 3

>

> our son is 30 months old and a few weeks ago a " birth to 3 " worker

> suggested we get him evaluated. he can say things like " let go,

thank

> you, bye " but will say " a moo " for movie and " a boo " for book. he

took

> to signing the word more ( " mo, mo " ). its obvious he's a smart kid,

> just frustrated easily. not sure what we should do- just give him

a

> chance to develop at his own rate....opinions vary so widely when

we

> talk to folks.

>

[Guest guest]

Hi Dana and welcome to the group. Your optimistic outlook to life is helpful.

Keep it up.

Dana <smokymtnchik@...> wrote: Hello everyone,

My name is Dana, I'm 45 yrs old and live in TN. I was diagnosed in

August of 2006. I started on Medrol and now my rumatoligist wants to

start me on Methotrexate (sp?).

I'm fine w/ psoriatic and am grateful that is all that is wrong with

me. However, I had never heard of it before and am interested in what

everyone goes through.

I am an Eligibility Counselor.. in another words, a social worker on

the family support end. I work w/ people who need state benefit

assistance. My job is probably 80% typing. Before I began the steroids

typing had become unbearable.

I'm looking forward to getting to know everyone.

Dana

HAPPY NEW YEAR!

__________________________________________________

[Guest guest]

I'm so sorry to hear of your troubles! Welcome to our group and

hopefully you will find some encouragement here.

One encouragement I want to personally give you is this: Your worth is

not measured by your mobility nor by your freedom from pain. You can

contribute greatly to the lives of others in spite of the awful

condition you are in right now. And that is what makes life worth

living, isn't it!

One thing I think a person who can not get around at all can do would

mean so much to many people. When I was very sick with a high fever

last year, I realized that if something really bad happened to me no

one would know it since my husband was out of town. It gave me the

idea to make a list of all the women I know who live alone, widows and

divorcees and single women - whether younger or older. I checked with

each one to find out whether they have some family member that they

talk to every day. The few who don't get a call me from every

morning! I have their emergency contact info too, in case there is a

problem.

This is a pretty easy thing we all can do which brings great peace of

mind to people, plus it helps us to feel truly useful even if we are

very disabled.

Also, I've gotten a lot closer to some older women I didn't know very

well and their friendship has been a real blessing and encouragement to

me, too!

My very best regards to you,

sherry z

>

> No one understands how painful life is for me and how hard it is just

> to go to the bathroom some days. I hope to hear from others who have

> any similar problems. Thanks for listening.

>

[Guest guest]

Welcome New Member,

From your ID I take it you are a quilter. I hope you can still do it.

I have been collecting material scraps for many years because quilting

was in my future plans as it was what my Mother did and my Grand-

mothers before her. Now I'm not so sure my fingers will allow it.

I am 63, live with my daughter and I was thinking just this morning that

this is not the life I had planned for me. My brother-in-laws sister is dying

of Cancer and is not expected to last the day and while praying for her to

have a peaceful crossing to the other side could not help thinking about my

own plans and what has become of them. All are mostly on hold, I haven't

completely given up, yet, but who would have thought that going to the store

and carrying in your groceries would be a major milestone in your life?

Mention that to a family member and they would just say " Uh-huh! " and look

at me weird. I am only taking MTX for the PA. Right now I believe the fibro

is causing me more pain than the PA. It is like having the flu and your muscles

HURT, sometimes it's hard to distinquish which body part because any muscle

I move hurts. So I am glad you found us, because the one thing I have found

here that helps me when nothing else does is the humor, which keeps me from

being depressed and also the knowledge you gain from all the others whose

reactions to life and drugs is so different from mine. Also the insight to life

itself

from people like Brent and Kathy F. who are 2 of the most wise people I feel

like I know. Please post here whenever you have a question or a bad day.

Someone will have an answer for you. And trust me, we all know how hard

some things are to accomplish that others don't even give a thought to.j

God bless you and I'll add you to my prayer list.

Janet in Ca

-------------- Original message --------------

From: " bluequiltbook " <bluequiltbook@...>

I am a 60 year old female with a multitude of autoimmune diseases

including PA. I have been on all the meds, and still take

Methotrexate, Plaquenil, Feldene as well as others. I was on Enbrel

for about a year or so, it has ruined my lungs. I tried Remicade,

felt good the first time, went downhill from there and voluntarily

stopped as I could not see the sense in taking such a medication when

I was not getting much of a benefit from it. Since stopping the

Enbrel, my psoriasis has gotten much worse on my skin. I would not

consider going back on Enbrel, however. I was diagnosed with PA

about 7 years ago, but in hindsight, probably had it much, much

longer and was misdiagnosed, as many others have. I have

deteriorated to the point that I can no longer walk anywhere. In the

house, I have a Hoverround and use a quad cane on my right side and a

quad half walker on my left side. I cannot stand up for any length

of time at all. I fought all of this for as long as I could. The

deterioration in the past 2 years has even frightened me. I have no

energy left at all anymore. If I overdo, I pay for it dearly. Even

riding my Hoverround out of the house can cause me excruciating pain

in my right arm from using the control, which is extremely sensitive,

its not like its hard to do at all, its just how bad I have become.

I used to swim twice a week in a heated pool doing the Arthritis

Foundation recommended exercises. I enjoyed that immensely and felt

it helped me last longer, but sadly had to give it up as I could not

walk into the building anymore to make it to the pool. Even to use

my chair was too difficult.

No one understands how painful life is for me and how hard it is just

to go to the bathroom some days. I hope to hear from others who have

any similar problems. Thanks for listening.

[Guest guest]

Sherry,

God bless you, what a wonderful idea. I talk to my sister every day. She is 11

years

younger than me and knows I spend a lot of time alone because my daughter has to

travel with her job. It eases her mind as well as mine. God bless!!

Janet in Ca

-------------- Original message --------------

From: " S. Zorzi " <szorzi_1999@...>

> I'm so sorry to hear of your troubles! Welcome to our group and

> hopefully you will find some encouragement here.

>

> One encouragement I want to personally give you is this: Your worth is

> not measured by your mobility nor by your freedom from pain. You can

> contribute greatly to the lives of others in spite of the awful

> condition you are in right now. And that is what makes life worth

> living, isn't it!

>

> One thing I think a person who can not get around at all can do would

> mean so much to many people. When I was very sick with a high fever

> last year, I realized that if something really bad happened to me no

> one would know it since my husband was out of town. It gave me the

> idea to make a list of all the women I know who live alone, widows and

> divorcees and single women - whether younger or older. I checked with

> each one to find out whether they have some family member that they

> talk to every day. The few who don't get a call me from every

> morning! I have their emergency contact info too, in case there is a

> problem.

>

> This is a pretty easy thing we all can do which brings great peace of

> mind to people, plus it helps us to feel truly useful even if we are

> very disabled.

>

> Also, I've gotten a lot closer to some older women I didn't know very

> well and their friendship has been a real blessing and encouragement to

> me, too!

>

> My very best regards to you,

> sherry z

[Guest guest]

I am sorry for your pain... There are many in the same boat here, some worse and

some not so bad as you... We all have different limits... Lots of us here with

Psoriatic Arthritis and other, can relate I am sure...

Love always,

Scar N Barb...

[Guest guest]

Janet of CA wrote to a new member: " God bless you and I'll add you to my prayer

list. "

Can you add me to your prayer list too, please.

__________________________________________________

[Guest guest]

,

ABSOLUTELY! Consider it done. God Bless!

Janet in Ca

-------------- Original message --------------

From: wenko kadber <pastoork@...>

> Janet of CA wrote to a new member: " God bless you and I'll add you to my

prayer

> list. "

> Can you add me to your prayer list too, please.

>

>

[Guest guest]

we shall all get our prayer lists out and everyone can jumo on . cathy from

ma

[Guest guest]

Try talking to the mom about the prospect that early help is the best

for the child. If you are concerned about speech than you need to

point this out to the doctor and see about getting an evaluation

done. Difficulty eating can be a sign of other problems. I would be

sensitive in approaching this though. You want to come across

positive not negative and even though you may think his mother

doesn't care. I am betting she cares a lot. You always see your

children in the best possible light and it is very difficult to think

about anything being wrong at such a young age. Maybe suggesting she

read the book " The Late Talker " by Dr. Marilyn Age would be helpful.

Humphreys

Illinois

[Guest guest]

hi Ann, our son silas is 2 and yas 6-8 words, and he also chesw very

slowly, or he stuff his mouth with food and then ckokes and he is very

picky about what he eats, he is receiving speech therapy and OT because

he also has sensory issues. that has to be tough when the parents do not

see it......i hope you can show them they need to be lookin ginto this

further......

Dana

[Guest guest]

Try talking to the mom about the prospect that early help is the best

for the child. If you are concerned about speech than you need to

point this out to the doctor and see about getting an evaluation

done. Difficulty eating can be a sign of other problems. I would be

sensitive in approaching this though. You want to come across

positive not negative and even though you may think his mother

doesn't care. I am betting she cares a lot. You always see your

children in the best possible light and it is very difficult to think

about anything being wrong at such a young age. Maybe suggesting she

read the book " The Late Talker " by Dr. Marilyn Age would be helpful.

Humphreys

Illinois

[Guest guest]

hi Ann, our son silas is 2 and yas 6-8 words, and he also chesw very

slowly, or he stuff his mouth with food and then ckokes and he is very

picky about what he eats, he is receiving speech therapy and OT because

he also has sensory issues. that has to be tough when the parents do not

see it......i hope you can show them they need to be lookin ginto this

further......

Dana

[Guest guest]

i am not a professional but sounds like possible low muscle tone. my son had

low muscle

tone and gagged on any baby food or any food until after a year old. my son,

now almost

29 months, speaks less than 6 words and i have done everything possible for him.

he's in

speech, occupational, and physical therapy as well as social groups. still no

talking but

much improvement in his muscle tone and physical abilities. your grandson

sounds like

he needs to get evaluated by early intervention in your area. couldn't hurt.

could possibly

help a lot!

have noticed in the

> past 6 months or so that he will not chew his food. If it is mushy,

> he'll swallow just like it is but has a hard time chewing and eats very

> slowly if he has to chew.He'll also gag and choke while eating. His

> mother says he's teething and the Dr. said that was normal. I could see

> where that would make sense but am wondering is this relavent to his

> speech in some way? If this topic has been answered before and you

> don't want to go through it again please direct me to the right

> archive. Thanks so much. Very concerned Nana.

>

[Guest guest]

i am not a professional but sounds like possible low muscle tone. my son had

low muscle

tone and gagged on any baby food or any food until after a year old. my son,

now almost

29 months, speaks less than 6 words and i have done everything possible for him.

he's in

speech, occupational, and physical therapy as well as social groups. still no

talking but

much improvement in his muscle tone and physical abilities. your grandson

sounds like

he needs to get evaluated by early intervention in your area. couldn't hurt.

could possibly

help a lot!

have noticed in the

> past 6 months or so that he will not chew his food. If it is mushy,

> he'll swallow just like it is but has a hard time chewing and eats very

> slowly if he has to chew.He'll also gag and choke while eating. His

> mother says he's teething and the Dr. said that was normal. I could see

> where that would make sense but am wondering is this relavent to his

> speech in some way? If this topic has been answered before and you

> don't want to go through it again please direct me to the right

> archive. Thanks so much. Very concerned Nana.

>

[Guest guest]

Hi!

Our names are and Dynes. We live in ton, SC. We have a

13 year old son diagnosed with PDD and SID when he was 3 years old. He was

later also diagnosed with CAPD. He had PT, OT, speech therapy, and resource

assistance through the school system and MUSC Developmental Pediatrics from

age 3-7. After that he was discharged from further treatment or assistance

because for some reason he didn't qualify anymore. We withdrew him from

public schools after 4th grade because he was constantly bullied. He is now

in Catholic school and is doing great academically. In some areas (math,

science, and reading) he performs at such high levels it is astounding. He

tends to focus on math and science to such a degree that he applies all his

free time toward it (to the point of obsession) and talks of little else. In

conversation he tends to focus solely on his interests. He mainly only talks

to me and if he wants to communicate something with someone else he will

usually do it through me, not making eye contact with others, because it

seems to be uncomfortable for him. He has some difficulty reading social

cues from others, or showing interest in activities outside his own areas.

He continues to struggle socially, but at least he is no longer bullied. He

wants to have friends but other children find him " quirky " and tend to avoid

him. He seems younger and less worldly than his peer group. He has no

athletic interests which is a big deal to other children his age. His

muscles have always been underdeveloped so he never did well in sports. We

have kept him in martial arts to improve his strength and flexibility while

at the same time not placing him in a competitive environment as is common

in team sports. has always depended on me for everything from laying

out his clothes each day to fixing his snacks and keeping him organized at

home and at school. He also spends all his free time with me, telling me

about science and mathematical concepts that I don't understand but try to

take a great interest in. I have been overprotective and sheltered him

because I didn't want to see him hurt in anyway. Last summer he went to a

Christian camp in NC for 5 weeks with a friend. I worried the whole time. He

had fun and did great without me, even though he hardly used any shampoo,

toothpaste, soap, or deodorant so I'm pretty sure the counselors didn't make

sure he ever stayed clean.

We are very concerned about how the changes of adolescence will affect him

and how his needs and challenges will be changing. We want him to have a

successful high school and college experience but are worried about the

socialization aspect in these areas. We are also concerned that he needs to

become more responsible for himself and more independent from me. I am

afraid is he doesn't become more self sufficient he won't be able to handle

living away from us during college. As much as I love all the time I have

with I'm worried that I'm holding him back, or that there is

something I should be doing to help him move on socially. We are so proud of

his accomplishments. He has worked so hard to get where he is. We really

don't know what comes next or what we should be doing.

Sorry this is so long. We have never known of any support groups and are

really happy to have found one. Until I watched " The View " today on

television I really didn't know these types of groups existed. I look

forward to learning from others and sharing what we have learned with

families of younger children.

Sincerely,

Dynes

[Guest guest]

, this sounds alot like my boy, even the same age.

I also took my son out of public school because he was being bullied, but I

homeschool him now. We have ordered Abeka on DVD for his curriculm, hope it

works for us.

I have never sent him anywhere to any camps because I am so afraid. One time

he spent the night at Grandma's house and it was not a happy turn out. My Dad

don't understand my son and he separated him from the other kids and made him to

feel badly about himself. I was angry and so he never went again. I would love

for him to be able to do these things but I'm afraid and over protective.

He is small and what other kids call nerdy. He is smart in math and he likes

science. He plays piano and he is interested in guns [but he only has bb guns].

Sometimes he says things that don't make sense or he repeats himself.

It is amazing that someone who is so smart in certain areas can totally not

get it in social skills. He is not agressive usually. But he does over react if

he feel wronged.

tanna

( ) RE: New member

Hi!

Our names are and Dynes. We live in ton, SC. We have a

13 year old son diagnosed with PDD and SID when he was 3 years old. He was

later also diagnosed with CAPD. He had PT, OT, speech therapy, and resource

assistance through the school system and MUSC Developmental Pediatrics from

age 3-7. After that he was discharged from further treatment or assistance

because for some reason he didn't qualify anymore. We withdrew him from

public schools after 4th grade because he was constantly bullied. He is now

in Catholic school and is doing great academically. In some areas (math,

science, and reading) he performs at such high levels it is astounding. He

tends to focus on math and science to such a degree that he applies all his

free time toward it (to the point of obsession) and talks of little else. In

conversation he tends to focus solely on his interests. He mainly only talks

to me and if he wants to communicate something with someone else he will

usually do it through me, not making eye contact with others, because it

seems to be uncomfortable for him. He has some difficulty reading social

cues from others, or showing interest in activities outside his own areas.

He continues to struggle socially, but at least he is no longer bullied. He

wants to have friends but other children find him " quirky " and tend to avoid

him. He seems younger and less worldly than his peer group. He has no

athletic interests which is a big deal to other children his age. His

muscles have always been underdeveloped so he never did well in sports. We

have kept him in martial arts to improve his strength and flexibility while

at the same time not placing him in a competitive environment as is common

in team sports. has always depended on me for everything from laying

out his clothes each day to fixing his snacks and keeping him organized at

home and at school. He also spends all his free time with me, telling me

about science and mathematical concepts that I don't understand but try to

take a great interest in. I have been overprotective and sheltered him

because I didn't want to see him hurt in anyway. Last summer he went to a

Christian camp in NC for 5 weeks with a friend. I worried the whole time. He

had fun and did great without me, even though he hardly used any shampoo,

toothpaste, soap, or deodorant so I'm pretty sure the counselors didn't make

sure he ever stayed clean.

We are very concerned about how the changes of adolescence will affect him

and how his needs and challenges will be changing. We want him to have a

successful high school and college experience but are worried about the

socialization aspect in these areas. We are also concerned that he needs to

become more responsible for himself and more independent from me. I am

afraid is he doesn't become more self sufficient he won't be able to handle

living away from us during college. As much as I love all the time I have

with I'm worried that I'm holding him back, or that there is

something I should be doing to help him move on socially. We are so proud of

his accomplishments. He has worked so hard to get where he is. We really

don't know what comes next or what we should be doing.

Sorry this is so long. We have never known of any support groups and are

really happy to have found one. Until I watched " The View " today on

television I really didn't know these types of groups existed. I look

forward to learning from others and sharing what we have learned with

families of younger children.

Sincerely,

Dynes

[Guest guest]

Hi and , welcome. My sons (8 and 10) are going through

the evaluation process right now, although everyone involved is

pretty certain they have a spectrum disorder. They tend to have some

of the same characteristics you describe (thought of as quirky or

eccentric, very good with math and science), although their obsession

is computer/video games. They constantly come to me just to talk to

me, on and on, about the same thing. I try to keep savvy on the

subject so I can appear interested, but sometimes I think it would be

really nice if they could just call a friend. One of my sons also

does the 'laugh too loud' thing.

Anyway, something you said struck me about your son going to camp and

not using much deoderant, shampoo, etc. I have a 15-year-old son

without Asperger's, and he used to do the same thing. I've been

assured by others with teenage boys that this inattention to hygiene

is not all that uncommon at that age. I do not know if this is a

chronic problem with kids who have Asperger's (an inattention to

hygiene), but it seems to me with mine that once something becomes

indoctrinated as part of a routine, they will do it. It just takes

awhile and a lot of reminders to get to the point where it becomes

routine. I also made lists of the things we have to do, in order,

before we can leave the house for school, and for them it has to be

very detailed (or they say " When am I supposed to do this... " ) So

it's like, " Get up, turn off the alarm clock. Use the toilet if

needed, flush. Put on clean underwear. Get dressed. Go downstairs and

eat breakfast. Go upstairs and wash your face and brush your teeth.

Put shoes on. Put lunchbag in backpack. " etc.

Because they are young, we had a reward system and I made a gameboard

with prize spaces along the way and a big prize at the finish. If

they did all these things on the list in time to leave and get to

school on time, they got to move one space. It saved a lot of stress,

for us, although I'm not sure this is anything that would help you.

Eventually these things became incorporated into the routine and they

just do them and we don't need the gameboard anymore.

Cat

>

>

>

> Hi!

> Our names are and Dynes. We live in ton, SC. We

have a

> 13 year old son diagnosed with PDD and SID when he was 3 years old.

He was

> later also diagnosed with CAPD. He had PT, OT, speech therapy, and

resource

> assistance through the school system and MUSC Developmental

Pediatrics from

> age 3-7. After that he was discharged from further treatment or

assistance

> because for some reason he didn't qualify anymore. We withdrew him

from

> public schools after 4th grade because he was constantly bullied.

He is now

> in Catholic school and is doing great academically. In some areas

(math,

> science, and reading) he performs at such high levels it is

astounding. He

> tends to focus on math and science to such a degree that he applies

all his

> free time toward it (to the point of obsession) and talks of little

else. In

> conversation he tends to focus solely on his interests. He mainly

only talks

> to me and if he wants to communicate something with someone else he

will

> usually do it through me, not making eye contact with others,

because it

> seems to be uncomfortable for him. He has some difficulty reading

social

> cues from others, or showing interest in activities outside his own

areas.

> He continues to struggle socially, but at least he is no longer

bullied. He

> wants to have friends but other children find him " quirky " and tend

to avoid

> him. He seems younger and less worldly than his peer group. He has

no

> athletic interests which is a big deal to other children his age.

His

> muscles have always been underdeveloped so he never did well in

sports. We

> have kept him in martial arts to improve his strength and

flexibility while

> at the same time not placing him in a competitive environment as is

common

> in team sports. has always depended on me for everything

from laying

> out his clothes each day to fixing his snacks and keeping him

organized at

> home and at school. He also spends all his free time with me,

telling me

> about science and mathematical concepts that I don't understand but

try to

> take a great interest in. I have been overprotective and sheltered

him

> because I didn't want to see him hurt in anyway. Last summer he

went to a

> Christian camp in NC for 5 weeks with a friend. I worried the whole

time. He

> had fun and did great without me, even though he hardly used any

shampoo,

> toothpaste, soap, or deodorant so I'm pretty sure the counselors

didn't make

> sure he ever stayed clean.

> We are very concerned about how the changes of adolescence will

affect him

> and how his needs and challenges will be changing. We want him to

have a

> successful high school and college experience but are worried about

the

> socialization aspect in these areas. We are also concerned that he

needs to

> become more responsible for himself and more independent from me. I

am

> afraid is he doesn't become more self sufficient he won't be able

to handle

> living away from us during college. As much as I love all the time

I have

> with I'm worried that I'm holding him back, or that there is

> something I should be doing to help him move on socially. We are so

proud of

> his accomplishments. He has worked so hard to get where he is. We

really

> don't know what comes next or what we should be doing.

> Sorry this is so long. We have never known of any support groups

and are

> really happy to have found one. Until I watched " The View " today on

> television I really didn't know these types of groups existed. I

look

> forward to learning from others and sharing what we have learned

with

> families of younger children.

> Sincerely,

> Dynes

>

[Guest guest]

In a message dated 31/12/2006 17:26:55 GMT Standard Time,

smokymtnchik@... writes:

I am an Eligibility Counselor.. in another words, a social worker on

the family support end. I work w/ people who need state benefit

assistance. My job is probably 80% typing. Before I began the steroids

typing had become unbearable.

Hi Dana,

Have you had an influx of questions since you joined? lol

Welcome to the group. Ok ok, I know, you have been here at least a month but

on top of the PA, I suffer from a disease which has now been named itis.

The symptoms are that you fall anything between a week and several months

behind. You end up answering questions people asked six weeks before and

generally don't have a clue what is going on within the group. lol Other people

in

the group catch it occasionally too but up until now they didn't know what it

was.

I'm glad you joined us but sorry you had to. I was the same as you, having

never heard of Psoriasis until I was told I had it and I also didn't you could

get Arthritis through it. I know now! lol

Looking ahead I notice you don't seem to have posted again so I hope you are

still with us.

Take care,