Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 Hi : I will be 70 in Jan. RA reared its ugly head to me 6 1/2 years ago. I knew nothing about it. It has taken me all that time to find the right " Cocktail " of meds. for me. I take the max. dose of MTX, Sulfasalazine, and Placquenil. I have been on a daily dose of Pred. for 6 1/2 years. I have been pain free from the RA pain since last Nov. I had a very minor flare of my 2 fingers while I was decreasing my Pred. I am back on my dose of 10mg. a day now. I will in time try to decrease my Pred. and try to get off it. For me, Pred. is my wonder drug. I have a wonderful Rhuemy who takes great care of me. I have my blood tested every 2 months, and everything has been fine. The only time my numbers changed was when I was flaring. My feet and ankles were hit the worst, then my hands and writsts. The RA came on hard and fast. In 5 days I went from totally functioning woman, to a helpless cripple. I could not get out of bed by myself, could not dress myself, could not eat or hold a glass. I thought I had a brain tumor. My hands swelled so badly, and went into a bent claw like state. It was very scarey. I also had outrageous pain everywhere. It took everything in me to get to my dr. He was shocked to see me, and knew right away I had RA. The blood test confirmed it. He got me an appt. the next day to see a Rheumy. She confirmed what I had. She gave me Cort. shots in my hands, and arms. She also started me on a mega dose of Pred. I have developed Neuropathy in both feet, from the arch to the toes. This makes me very unsteady on my feet. When my feet flared, I was in agony, and I wanted to literally chop them off. I was bedridden when they flared. I have also developed RA nodules on both feet, on the outside of my arches. They can be very, very painful. My shoe inserts help so much with this. I hope you will be feeling better soon. It is awful to suffer this pain day in and day out. Wishing you pain free days ahead. Again welcome to our group. Hugs, Barbara From: rogertyndall <rogertyndall@...> Subject: [ ] New Member Date: Tuesday, September 8, 2009, 7:28 PM Hello Hello Patsy Hello Barbara, Thank you all for your sweet letters to me. I was so surprised to get them so fast. Ok I will try and answer some questions for you. Yes I have had an ex-ray. It looked a little like a small piece of bone was chipped off. My Doc gave me oral prednisone. You know 60 mgs for 3 days then you cut back, etc. Because I also have pain in my tendon he was afraid it could cause it to break if he gave me a shot there. It got a little better for a short while and now it is back where it was. There is a big knot on the rear of my heal. It is very red and it really hurts. I also got a cortisone shot in my left shoulder. I can't lift it up very much. It was only better for a few days as well. I think it could be something wrong with my tendons??? I have reflux sometimes even though I take my nexium. I always take another nexium if needed. I have not told my doc. Thanks for wishing me a pain free day. Oh that would be a treat huh. I have doc visit scheduled for the 22nd. Hope I can last that long. , Patsy, and Barbara, please tell me about your RA. How long you have had it etc. Mine started in my feet. I can remember note being able to let the bed sheets touch my toes. Oh that was terrible. Like I said I am a new member. I really have not had time to look at this group very much. I will put my pic on here later. I'm 49 years old now. Sometimes I feel 90. I hate walking in public with people and you just can't keep up with them. I guess I will close for now. I can hardly wait to hear from you all again. God Bless!! Morehead City NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 It did not take my daughter any time at all to get used to her Starband. The hardest thing was the on/off time in the beginning to get used to it. I would say after the first week, she was fine in it. We did have a period of irritation at about week 3 (I think I was dressing her too warm) and after a week or so out of it, we had no issues the rest of her 5 months in her Starband. As far as reactions in public, we never got anything negative. I'm sure people stared, but if they did, I didn't notice. The only people that talked to us just said how cute she was or said hi using her name since it was across the front of her helmet. Not a big deal in our area (Houston suburb) and I have yet to see another baby out and about with a helmet on where I live. > > Hi all. My daugher Miranda is 15 weeks old and is going to be fitted for a star-band on the 17th of this month. I want to know what your experience with a. you childs adjustment time to the helmet and b. reactions of taking your child out in public. I only want whats best for my baby and hope that strangers mind their own business about why she has it on but im a bit frightened about ignorant people. Any advise is appreciated! Thanks!, Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Look in the files section of this group or email me for a free computer lyme resource cd. msadams@... > [ ] New Member > > I am a new member. I was dx Fri with lyme. I do not know > anything more than that. > > I have a long list of disgnosed things (water on the knee, > achilles tendonitis and so much more...) without causes and I > wonder if now the cause has been found. > > I am very overwhelmed by all the info out there but I am ok > with that. I will become more familiar and I will figure it > all out. First I have to find out what I exactly have or the > blood work has showed. I am thankful for this group. > > Thanks, > > Meredith > > > > ------------------------------------ > > For free up to date information about Lyme disease and the known > co-infections delivered to your email address see: > Robynns_Lyme_List/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 Hi there Meredith. I am also new here. Did the Lyme attack only your knees? I have had pain in the knees for a year now. They just dx'd me a couple of months ago. I am also finding out a lot of info from here and other places on the Internet. Good luck in your search. n -- [ ] New Member I am a new member. I was dx Fri with lyme. I do not know anything more than that. I have a long list of disgnosed things (water on the knee, achilles tendonitis and so much more...) without causes and I wonder if now the cause has been found. I am very overwhelmed by all the info out there but I am ok with that. I will become more familiar and I will figure it all out. First I have to find out what I exactly have or the blood work has showed. I am thankful for this group. Thanks, Meredith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Yeast will always be an issue as long as there are metals in his body. You just have to treat it the best you can while you chelate. It will get better after you chelate for a while as the metals come out. If you wait to get rid of the yeast you will never start. If you don't start you will never finish. The younger the better because the brain can heal easier when a child is younger. Please do not delay. TJ ________________________________ From: <chriscw04@...> autism treatment Sent: Tuesday, October 13, 2009 2:31:28 AM Subject: [ ] New Member All I am a new member and mother of an almost 6 yo boy dx with moderate ASD. We have been doing biomedical approach for 9 months - GF/CF diet, supplements including MB12 and herbal chelators - Liver Life and NDFplus (these for the last 2 months). We have seen improvements in various areas but progress is slow and seems to come to a level after a short period. My son is functional but very delayed in all areas compared to peers who are 4 or 5 yo. We feel that our next option is to chelate him and from our brief research so far understand that Cutler protocol is the safest. I have read the FAQ but still have one question. His latest stool test showed yeast which we are going to treat with Nystatin. Our dr recommended we do this for 30 days. I believe we should wait until after treating the yeast to start chelation. Is this correct? I would like to confirm my understanding of the protocol when we are ready to chelate as well as get information on supplementation. Thank you very much Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2009 Report Share Posted October 18, 2009 Becca: To answer your first question: Taking steroids causes your body to stop making its own natural steroids for a period of time after you stop. that's why you have new and worse inflammation. I know it can have some effects as far out as a year after taking it, (because you have to inform your doctor if you took any in the past year if going for surgery). But, it wont be this bad the whole time, it is supposed to get increasingly better over six months to a year depending on the dose and length of treatment. After reading your story I think you should file an official complaint on your first rheumatologist. Who knows what damage you could have been spared if you started the Humira two years earlier. And to ignore pain and decreased use of the hands is just insane coming from a RHEUMATOLOGIST! That is unbelievable. also, think of how many other people might be going through the same thing with that doctor but actually believe they shouldn't worry about it. I doubt you were the first or last, and maybe by reporting them you could save someone else from delaying treatment. I am 28 and had a bit of trouble getting a diagnosis but I hit the jackpot with my first rheumatologist being very thorough and listening to me. My only complaint with her was her reluctance to treat my pain, and the suggestion to see a pain specialist should have come up sooner. If I was 48 not 28 they would have treated me differently. But, that is all straightened out now and I see a great pain specialist. shel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Wow. I am astonished by the number of replies I got in such a short order. Thank you so much each and every one of you! I will try to reply to it all in one post here. I DID contemplate filing a complaint.. but for one thing, I completely lack the time and energy to do so. Maybe when my disease gets better in control. For another thing, he had suggested Humira to me.. but told me it may work, it may not, and I was just reluctant to take SUCH a strong medication with sooo many side effects without knowing exactly what was being treated and if Humira was really indicated. I guess If I had just followed his advice without wanting details.. I could have ended up here sooner.. but who knows. Arthritis walk.. would LOVE To. Unfortunately, my health is in a downswing right now (sinus infection & bronchitis AGAIN).. so I don't think it will happen for me, but I will definitely keep it in mind! Thanks! (I'm near Winston-Salem, so not too far away!) Minocycline - will look into it and also ask my rheumatologist about it just to see what he says. I wish someone had told me about the arthritis flare up after coming off pred.. I would not have agreed to it so quickly. I was put on it for a combination of photo sensitivity rash & bronchitis. I did a bunch of research on the internet last night, which can be a bad thing. I learned that Humira can cause lupus like reactions in some people. Has anyone had that here?? Apparently symptoms are photo sensitivity rash, hair loss, fatigue, and joint pain. All of which I have. The only symptom I don't have for it is the butterfly rash on the face. I tried to call my rheumatologist today about it, but he is out of the office until Wed.. so I will wait until then. I have been losing hair for about six weeks now.. but I thought it was either the pred or from recent weight loss, and it never occurred to me it might be related to the Humira. This is the problem with having multiple ailments and treatments going on at the same time.. hard to sort out which is causing the bad side effects! hopefully my rheumatologist will have some answers for me. Thanks again for all the replies... Becca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Hi I had to take prednisone once for about 2 weeks I think. Like you I had a heck of a time getting off of it. The doctor started by dropping, for example, a pill every other day which turned out to be far too much for me. And again like you I had a lot of pain and discomfort. I had to go back to full strength again for a few days and drop a pill a week which for me worked out a lot better. It sounds like you are trying to get off of the med. too fast, believe me slower is better. Good luck and take care. SD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Sharon, I think my problem is that the lung doctor was treating me with prednisone for asthma, not my rheumatologist. So when I told him my arthritis was flaring up, he dismissed it, because it wasn't lung related. I have been off of it for 3-4 weeks now, and do NOT want to go back on. I gained so much weight while on it.. 12 lbs in one week which is crazy considering I had been losing 10/months thanks to lap band surgery. The anxiety, insomnia, mood swings, hot flashes AND the fluid retention really upset my life & my husband! I am going to call my rheumy tomorrow, and he will have to do some serious convincing to get me back on it. I was on 40 mg for about 6 weeks, and then tapered by 5 mg every 2 days. We'll see what the doctor says. Thanks for all the suggestions. As to 's question.. Prednisone side effects that I personally have experienced: fluid retention & weight gain increased thirst - woke up every night every hour to drink water - thus every few hours to pee anxiety & mood swings Insomnia (in part to thirst, in part anxiety) hot flashes YES it helped my pain.. was it worth it? not sure at this point. I would encourage you to stay in touch with your rheumatologist while tapering off...tell him when you flare up. I have heard of some people who didn't have the rebound pain when coming off, so I know it can happen. I also know people who take prednisone without ANY side effects. I think some people are just more sensitive to them than others. I hope it works well for you without all the side effects.. sounds like your dose is a lot lower than mine was, so maybe this will save you from all of the above! Good luck! Becca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Hi Sharon, I, too, have been diagnosed with either polymyalgia rheumatica (PMR) and PsA or both. I hoped it would be PMR, so that a remission is more likely after a few years. It's been 1 1/2 yrs since I was first diagnosed and have been on prednisone most of the time. Now my doctor wants me on MTX. Actually she's been trying for months and I've been dragging my feet. I do have a small amount of Psoriasis, in 2 places, but none of the classic sausage fingers and toes of PsA. However, lately, since I'm down to 5 mg. of prednisone, I'm having a lot of pain in my shoulders and hips. This is fairly new, although all along, my symptoms change in location and severity from day to day. I also go between both the PMR website and here. I just turned 64 and retired about 1 yr before coming down with this. I'm sorry you had to retire early. I, too was very active, before this disease and it is so frustrating to accept. But I do know that if I was still working, I would have had to retire because of it. A lot of days I couldn't get out of bed. Some days are better than others now, but I never know until I wake up what kind of day I'll have. Well, just wanted to tell you I can relate to your situation. My rheumatologist has said both disease are treated the same, so I guess it doesn't matter what the diagnosis is. My CRP is triple the normal level and hasn't gone down, so there is still inflammation and I've been told that even if I'm free of pain from the prednisone, I could still be getting joint damage, if I don't treat it medically. I can't take sulfa drugs because I'm allergic, so if MTX doesn't work, then we'll try the biologics. Take care and I hope that your new med will be of help to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I don't know what the docs say about psoriasis being hereditary, but I do have a second cousin with a bad case, I have it, and my one son has it. Looks hereditary to me...lol " missy " <babygirl9319465@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Welcome, Margaret!I have a 13 yr old son with AS. This is a great group!! Robin From: Argaret <argaretcote@...>Subject: ( ) New member Date: Friday, October 23, 2009, 12:13 PM Hi everyone;My 15 year-old son has just been dx with Aspergers Syndrome. I have seen sysptoms for a while. I am just wanting to learn more about how I can help him learn how to deal with the syndrome. My name is Margaret A. Cote.Thanks in advance for all the information you will share with me about this syndrome.Margaret A. Cote Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Welcome to the club! You've already done a good thing by finding a group like this. There are several related to AS and I recommend joining every group that seems appropriate, and then checking out the archives to see what has already been posted. These groups have been just wonderful for me because I know that the people there understand what's going on - both good or bad. What I did when we first got the diagnosis was read, read, read. It took me a long time to really absorb the diagnosis. It took me even longer to realize how many people in our family probably also had AS, but were undiagnosed. There are so many different kinds of AS. Some people have Aspergers Plus (Aspergers plus something else like Tourettes) and so you will need to figure out where your son fits on the spectrum and what advice will work for him. See if you can find a local group where you can meet people face to face. A support group can help you find out what's available locally and how to get the appropriate services in place. Once your child gets the right supports in place - you will see a tremendous, positive change in your son. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 What a dreadful story! I'm really sorry for you. Two simple suggestions from a fellow PA sufferer (and freelance writer) in the UK: 1. Campaign vigorously for health care reform in the US or 2. Move to Canada or Europe (I'm serious -- I can't fault the level of care I've received here) Best wishes and good luck Marcus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Hi janice, Sorry to hear you were diagnosed. As far as insurance, isn't there some way that you can get some type of insurance? Usually the chamber of commerce has some plan that members can join. Ultimately, I believe you need to get into some drug therapy, whether it is MTX, Enbrel, Humira, whatever. But without insurance, I am sure the costs are very high. The steroid injections are really just a stop gap measure. They relieve the pain temporarily, but do nothing to address your disease. If you can't get or afford insurance, I don't know what options are available to you. I would say you need to be contact with a doctor or some medical facility. There probably are some grants or spaces available for those who don't have or can't afford insurance, but you need an insider to know who to contact or where to look. Luckily you are near Houston, I think your options in a major city are better than those in rural areas. Stay Well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Hi , Yes, I've spent months researching all of this. I don't qualify for the indigent programs and/or medicaid. My county has a " health clinic " but getting an appointment is nearly impossible. I need a rheumatologist with a heart for people like me who are stuck in the middle. I've joined a PA group online and just got the names of two Houston-area rheumatologists who might be willing to help. I'm having trouble tracking them down, though. Can I get insurance? No. Pre-existing conditions (and I have several) have been such a huge issue that no insurance company will touch me except the Texas High Risk Pool, which is $923/month. That's simply out of my reach. That's over 1/3 of my total income. So, I'm stuck. But with God, I'm NOT stuck. I know He has a plan. I just have to figure out what it is! Janice Hanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Janice: all the major pharmaceutical companies have programs designed to help those who do not have the financial resources to pay for their meds but you really must have a doctor to prescribe them. I'm not sure what you mean by a " treatment " program but I think it's a crime that your rheumatologist didn't give you more help/advice. At the least. he/she should have told you about the financial assistance programs. (My niece gets Humira for $10/injection and it's one of the major drugs used to treat PsA.) With all the symptoms you have, you will need one or face the possibility of even greater damage to your joints. Check to see if you qualify for Medicare - if you're single and make less than $10,000/year, there's a possibility you will. Additionally, check to see if your state has a program that provides any kind of medical assistance to those in need. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Hi Janice: Sorry to here of your diagnosis and subsequent loss of insurance. I would imagine that in a large city such as Houston you would have several large teaching Hospitals, I would think that one of them would have a way of helping you. I would also look to see if their are any low cost health clinics in your area for folks with no insurance. What about checking with you local Health Dept. Also, many of the drug manufacturers have programs to help individuals who cannot afford their medications. I know you said you are taking supplements and while it can't hurt it will not be enough. I would definitely be taking an NSAID such as Motrin or Aleve to at least help with the inflammation and pain and also, Arthritis Pain formula Tylenol is very good. At least this would help you stay somewhat more comfortable while trying to get into see a Rheumy. I hope you find a Doctor/Hospital willing to treat you soon. Good Luck to you. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Hi Joanna, Regarding the treatment my doctor referred to, it was something experimental that she said was just being tried with PA patients, (something that would last about six months total). When she found out my insurance was lapsing she tore up the paperwork and gave me the steroid injections. To be fair to her, it was my first visit with that rheumatologist. She was making her diagnosis of PA based on several years worth of tests, etc. I plan to check into the medicaid option, though my income is about 2 1/2 times the amount you named. It's not that I can't pay for a doctor. It's just that living without ANY insurance is a bummer because I'm so limited to whatever treatment I can afford. That stinks. I spent the morning calling the sliding-scale clinic, sending emails to our county health services people, etc. I've got to believe there's a long-term solution to this seemingly long-term problem! Thanks for your advice/input. Janice Hanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Yes, Baylor College of medicine has clinical trials, but nothing available at this time that's a good fit for me. I've checked with my local health dept. It appears (at first glance, anyway) that I make too much money to qualify for any govt. assistance (federal or otherwise). That said, I'm going to dig deeper with the medicaid option because of the medical necessity. I am currently on 800 mg of ibuprofen during the day and Tramadol at night (along with the supplements). Didn't know Tylenol made an arthritis pain formula. I'll get it! (I've had an issue with liver counts in the past, so my doctor is very leery about Tylenol products for me.) Anyway, thanks for your input/advice. Janice Hanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Sorry, Janice: I meant to say check to see if you qualify for Medicaid. The $10,000 for a single person is something I just read within the past few days. Doesn't mean you'll automatically get it but that's one of the first basic qualifiers. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 Your rheumatologist still should have told you about the programs available from the pharmaceutical companies that require you to pay very little - particularly for the biologics, which work very well for most people. Did she even ask you to come back? Steroid injections last only just so long and - as you undoubtedly know - can cause a whole host of other problems. Anyway, you might want to check out the websites for Humira and Enbrel. They are available to anyone who is not on a government assistance program and therein likes a rub, should you go on Medicaid. I'm on Medicare and cannot get one penny of assistance with meds because of it. The first question they ask you is, " are you on Medicaid or Medicare. " But there are cheaper drugs (some, like MTX, are even generic) that work for some but with any of them, you need routine tests to ensure that the liver isn't acting up and your blood counts are OK. So, you can't win either way; but I just wanted you to warn you of that potential problem, should you be successful with Medicaid. I have no idea how they handle very expensive meds like the biologics. My Medicare Rx plan did cover Enbrel but because of the structure of the program with that crazy " donut " hole, it still cost me about $4,000 just for that one drug and my PsA is just not bad enough to warrant that much money. Good luck with whatever you do. It's really awful feeling so terrible and to have so little control, despite what are obviously your very best efforts. . . . .. .. Joanna Hoelscher \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 HI Joanna, It's totally fine! I didn't think you were being nosy or anything. I'm an open book, actually. I figure if I put myself out there and let people know what I'm up against, it will help them help me make the right decisions. I'm grateful to all of you for the input I've received over the past couple days. Janice Hanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 At school, my doctor simply wrote an order and my kids go to the office after lunch and get their enzymes. They both swallow capsules. Do you have a yeast protocol in place? Another thing to try would be a virus protocol. Doing enzymes on top of diet along with probiotics will help to heal over time. In time he may be able to tolerate all foods with enzymes with luck in time. Tammy New member Hi, I am my son is 6 with autism. I recently attended an Autism Grassroots tour with my husband and he won a basket of Enzymedica enzymes(Digest Gold, GlutenEase, Gastro, CarbGest, EFA Optimize, Candidese and Virastop), two books on enzymes and one book on the Son-rise program. My son was diagnosed at 3 years with autism and also has epilepsy. Our seizures came first at 4 1/2 months of age. I am currently reading the Enzymes for Autism and other Neurological Conditions as that was one of the books we won. We are GFCF and mostly SF but am wondering if we should do enzymes instead. I know I shouldn't do everything at once and am trying to figure out what is going to produce the best results. I emailed his neurologist who is up on dietary and DAN information to get his opinion. I am members of several other as well, GFCFkids, GFCF recipes. How do you all get the enzymes in them at school? My son is in a reg. ed. class kindergarten class and I send his breakfast and lunch everyday. I would love for him to be able to eat real food again. His eating has expanded so much in the last year since going GFCF. I think we have other issues going on as I had hoped his stimming would get better after we went GFCF and I guess it did for a while but it is really bad right now and has been since July. I know that when he stims so much he can't concentrate on what is going on in the classroom. If we can get that better controlled I know he could do so much better. He has verbal, visual and a stim dance that he does. Since July is the first time we really noticed verbal stims. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 Hi , I'm so glad you were able to win that gift basket! It has great products and 3 amazing books! You picked a perfect book to start with. Many on this group have and live by that book! It's very helpful. I think DeFelice (the author of that book) has set up a great guideline in her book. She also has a great website enzymestuff.com. It can be really helpful to just go to the website and search for a specific word in the search bar. I typed in school and came up with this link http://www.enzymestuff.com/discussionschool.htm I think the topic " Enzymes at School " will be very helpful to you. I work for Enzymedica, so please feel free to ask me any question in regards to enzymes or the specific products you received in that gift basket. I'm very glad you won that! There are some truly amazing products in it! Alessandra Enzymedica's Education Department Enzymedica.com > > Hi, > > I am my son is 6 with autism. I recently attended an Autism Grassroots tour with my husband and he won a basket of Enzymedica enzymes(Digest Gold, GlutenEase, Gastro, CarbGest, EFA Optimize, Candidese and Virastop), two books on enzymes and one book on the Son-rise program. My son was diagnosed at 3 years with autism and also has epilepsy. Our seizures came first at 4 1/2 months of age. I am currently reading the Enzymes for Autism and other Neurological Conditions as that was one of the books we won. We are GFCF and mostly SF but am wondering if we should do enzymes instead. I know I shouldn't do everything at once and am trying to figure out what is going to produce the best results. I emailed his neurologist who is up on dietary and DAN information to get his opinion. I am members of several other as well, GFCFkids, GFCF recipes. > > How do you all get the enzymes in them at school? > > My son is in a reg. ed. class kindergarten class and I send his breakfast and lunch everyday. I would love for him to be able to eat real food again. His eating has expanded so much in the last year since going GFCF. I think we have other issues going on as I had hoped his stimming would get better after we went GFCF and I guess it did for a while but it is really bad right now and has been since July. I know that when he stims so much he can't concentrate on what is going on in the classroom. If we can get that better controlled I know he could do so much better. > > He has verbal, visual and a stim dance that he does. Since July is the first time we really noticed verbal stims. > > Thank you, > > > Quote Link to comment Share on other sites More sharing options...
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