Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Dr. Burton is hopeful that my adrenals will start functioning again as I get well. I will pick up that book. What is the name of it. I'll look on Amazon. I searched out Dr. Fred burton, Philadelphia as an AP doctor to help me through this Rheumatoid Arthritis. He's hoping that we caught it in time that I might see remission. I understand it is a long road back to good health. I've read the book Arthritis Breakthrough . That was an excellent read. Did you lose the weight after you stopped the hydrocortisone? I just feel puffy along with swollen fingers and feet. When does that stop? I try to exercise but after working 10-12 hour days who has the energy. They tell me I would feel better if i did. Thank goodness for this group because sometimes you feel alone when everyone you tell about " anitbiotic protocol " they think you're duped or just being fed snake oil. Donna RE: rheumatic Re: new member Donna, Prednisone and hydrocortisone are the same thing with differences. Prednisone is manmade. They are both cortisone. Supposidly hydrocortisone is natural cortisone. I do know, like you said before, you take less of hydrocortisone to get the results. I feel the less you use of this the better. I took mine to reduce pain and swelling of the RA. Long-term cortisone use potentially has a number of severe side-effects: hyperglycemia < http://en.wikipedia.org/wiki/Hyperglycemia > , insulin resistance < http://en.wikipedia.org/wiki/Insulin_resistance > , diabetes < http://en.wikipedia.org/wiki/Diabetes_mellitus > mellitus, osteoporosis < http://en.wikipedia.org/wiki/Osteoporosis > , anxiety < http://en.wikipedia.org/wiki/Anxiety > , depression < http://en.wikipedia.org/wiki/Depression_ (mood)> , gastritis < http://en.wikipedia.org/wiki/Gastritis > , colitis < http://en.wikipedia.org/wiki/Colitis > , hypertension < http://en.wikipedia.org/wiki/Hypertension > , ictus < http://en.wikipedia.org/wiki/Ictus > , erectile dysfunction < http://en.wikipedia.org/wiki/Erectile_dysfunction > , hypogonadism < http://en.wikipedia.org/wiki/Hypogonadism > , hypothyroidism < http://en.wikipedia.org/wiki/Hypothyroidism > , amenorrhoea < http://en.wikipedia.org/wiki/Amenorrhoea > , and retinopathy < http://en.wikipedia.org/wiki/Retinopathy > , among other problems I had adrenal fatigue and took supplements instead. The best as far as I am concerned is Doctor ’s brand. He also has a book about adrenal fatigue. He does recommend hydrocortisone sometimes but look at the side effects! I think his supplements work really well and cutting out bad foods and stress (yeah rightJ ) are important. Hugs, cooky I was given hydrocortisone for adrenal fatigue (extreme weakness). This was diagnosed through a saliva test. It works like a charm I felt life again. This RA is ruthless. I was never given prednisone. I don't think there is a plan for prednisone. Is there more that I need to know? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Yes, Donna, people who don’t have our problem… and some who do… think we are crazy taking all these antibiotics. I just know where I would be if I had not started on antibiotics in 1997. I have to tell you, I went off the Minocin for a while and have had a hard time getting rid of the pain this time and the worst part is the fear it won’t work again. There is web site (I think) rheumatic/histories.com (Ethel help if you are here). My story and lots of others are there and are a good read. These are real people not a commercial for a drug that will eventually kill your immune system and you! Yes the swelling went away after I got off the cortisone. Of course I am still overweight (laughing). Puffy also comes with RA so it could be a little of both. Some probably will go away after you are off cortisone and the rest when antibiotics are working…it is different for everyone. Good luck with everything Donna and if you have any questions know we will be here. Cooky Subject: Re: rheumatic Re: new member Dr. Burton is hopeful that my adrenals will start functioning again as I get well. I will pick up that book. What is the name of it. I'll look on Amazon. I searched out Dr. Fred burton, Philadelphia as an AP doctor to help me through this Rheumatoid Arthritis. He's hoping that we caught it in time that I might see remission. I understand it is a long road back to good health. I've read the book Arthritis Breakthrough . That was an excellent read. Did you lose the weight after you stopped the hydrocortisone? I just feel puffy along with swollen fingers and feet. When does that stop? I try to exercise but after working 10-12 hour days who has the energy. They tell me I would feel better if i did. Thank goodness for this group because sometimes you feel alone when everyone you tell about " anitbiotic protocol " they think you're duped or just being fed snake oil. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 I think it is possible for adrenals to improve. There is hope. I say that as someone who's adrenals tested at 4, 3, 2, 1 using the 4x24 hr saliva test. That means I was sitting on 's threshold. The adrenals produce many hormones, and cortisol is just one of them. Additionally, adrenal function is heavily dependent on thyroid and the HPA axis. So hopefully your doctor tests other hormones, including the very important ft3. I say this because cortisol is often assumed to be THE key player, but it is not the only one. In my case, my adrenals improved with thyroid support. I was also helped with other supplements. While I am far stronger, and AM cortisol level returned to 22, I am frequently reminded that my adrenals are weak, and probably always were. Amy drleeper@... wrote: > > > Dr. Burton is hopeful that my adrenals will start functioning again as > I get well. I will pick up that book. What is the name of it. I'll > look on Amazon. I searched out Dr. Fred burton, Philadelphia as an AP > doctor to help me through this Rheumatoid Arthritis. He's hoping that > we caught it in time that I might see remission. I understand it is a > long road back to good health. I've read the book Arthritis > Breakthrough . That was an excellent read. > > Did you lose the weight after you stopped the hydrocortisone? I just > feel puffy along with swollen fingers and feet. When does that stop? I > try to exercise but after working 10-12 hour days who has the energy. > They tell me I would feel better if i did. Thank goodness for this > group because sometimes you feel alone when everyone you tell about > " anitbiotic protocol " they think you're duped or just being fed snake > oil. > > Donna > RE: rheumatic Re: new member > > Donna, > > Prednisone and hydrocortisone are the same thing with differences. > Prednisone is manmade. They are both cortisone. Supposidly > hydrocortisone is natural cortisone. I do know, like you said before, > you take less of hydrocortisone to get the results. I feel the less > you use of this the better. I took mine to reduce pain and swelling of > the RA. > > Long-term cortisone use potentially has a number of severe > side-effects: hyperglycemia < > http://en.wikipedia.org/wiki/Hyperglycemia > , insulin resistance < > http://en.wikipedia.org/wiki/Insulin_resistance > , diabetes < > http://en.wikipedia.org/wiki/Diabetes_mellitus > mellitus, > osteoporosis < http://en.wikipedia.org/wiki/Osteoporosis > , anxiety < > http://en.wikipedia.org/wiki/Anxiety > , depression < > http://en.wikipedia.org/wiki/Depression_ (mood)> , gastritis < > http://en.wikipedia.org/wiki/Gastritis > , colitis < > http://en.wikipedia.org/wiki/Colitis > , hypertension < > http://en.wikipedia.org/wiki/Hypertension > , ictus < > http://en.wikipedia.org/wiki/Ictus > , erectile dysfunction < > http://en.wikipedia.org/wiki/Erectile_dysfunction > , hypogonadism < > http://en.wikipedia.org/wiki/Hypogonadism > , hypothyroidism < > http://en.wikipedia.org/wiki/Hypothyroidism > , amenorrhoea < > http://en.wikipedia.org/wiki/Amenorrhoea > , and retinopathy < > http://en.wikipedia.org/wiki/Retinopathy > , among other problems > > I had adrenal fatigue and took supplements instead. The best as far as > I am concerned is Doctor ’s brand. He also has a book > about adrenal fatigue. He does recommend hydrocortisone sometimes but > look at the side effects! I think his supplements work really well and > cutting out bad foods and stress (yeah rightJ ) are important. > > Hugs, > > cooky > > I was given hydrocortisone for adrenal fatigue (extreme weakness). > This was diagnosed through a saliva test. It works like a charm I felt > life again. This RA is ruthless. I was never given prednisone. I don't > think there is a plan for prednisone. Is there more that I need to know? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Cooky, I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Hopefully that was the book you were referencing. Donna RE: rheumatic Re: new member Donna, Prednisone and hydrocortisone are the same thing with differences. Prednisone is manmade. They are both cortisone. Supposidly hydrocortisone is natural cortisone. I do know, like you said before, you take less of hydrocortisone to get the results. I feel the less you use of this the better. I took mine to reduce pain and swelling of the RA. Long-term cortisone use potentially has a number of severe side-effects: hyperglycemia < http://en.wikipedia.org/wiki/Hyperglycemia > , insulin resistance < http://en.wikipedia.org/wiki/Insulin_resistance > , diabetes < http://en.wikipedia.org/wiki/Diabetes_mellitus > mellitus, osteoporosis < http://en.wikipedia.org/wiki/Osteoporosis > , anxiety < http://en.wikipedia.org/wiki/Anxiety > , depression < http://en.wikipedia.org/wiki/Depression_ (mood)> , gastritis < http://en.wikipedia.org/wiki/Gastritis > , colitis < http://en.wikipedia.org/wiki/Colitis > , hypertension < http://en.wikipedia.org/wiki/Hypertension > , ictus < http://en.wikipedia.org/wiki/Ictus > , erectile dysfunction < http://en.wikipedia.org/wiki/Erectile_dysfunction > , hypogonadism < http://en.wikipedia.org/wiki/Hypogonadism > , hypothyroidism < http://en.wikipedia.org/wiki/Hypothyroidism > , amenorrhoea < http://en.wikipedia.org/wiki/Amenorrhoea > , and retinopathy < http://en.wikipedia.org/wiki/Retinopathy > , among other problems I had adrenal fatigue and took supplements instead. The best as far as I am concerned is Doctor ’s brand. He also has a book about adrenal fatigue. He does recommend hydrocortisone sometimes but look at the side effects! I think his supplements work really well and cutting out bad foods and stress (yeah rightJ ) are important. Hugs, cooky I was given hydrocortisone for adrenal fatigue (extreme weakness). This was diagnosed through a saliva test. It works like a charm I felt life again. This RA is ruthless. I was never given prednisone. I don't think there is a plan for prednisone. Is there more that I need to know? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Yes, My doctor has me taking Nature Throid 95mg( I was on Armour) and I take 1/2 tablet of DMEA daily. I guess my whole hormone foundation was shaken with this RA. I don't think I know what ft3 is? Did you use cortef to treat your adrenal fatigue or did you use Adrenal supplements from Dr. brand? Donna RE: rheumatic Re: new member > > Donna, > > Prednisone and hydrocortisone are the same thing with differences. > Prednisone is manmade. They are both cortisone. Supposidly > hydrocortisone is natural cortisone. I do know, like you said before, > you take less of hydrocortisone to get the results. I feel the less > you use of this the better. I took mine to reduce pain and swelling of > the RA. > > Long-term cortisone use potentially has a number of severe > side-effects: hyperglycemia < > http://en.wikipedia.org/wiki/Hyperglycemia > , insulin resistance < > http://en.wikipedia.org/wiki/Insulin_resistance > , diabetes < > http://en.wikipedia.org/wiki/Diabetes_mellitus > mellitus, > osteoporosis < http://en.wikipedia.org/wiki/Osteoporosis > , anxiety < > http://en.wikipedia.org/wiki/Anxiety > , depression < > http://en.wikipedia.org/wiki/Depression_ (mood)> , gastritis < > http://en.wikipedia.org/wiki/Gastritis > , colitis < > http://en.wikipedia.org/wiki/Colitis > , hypertension < > http://en.wikipedia.org/wiki/Hypertension > , ictus < > http://en.wikipedia.org/wiki/Ictus > , erectile dysfunction < > http://en.wikipedia.org/wiki/Erectile_dysfunction > , hypogonadism < > http://en.wikipedia.org/wiki/Hypogonadism > , hypothyroidism < > http://en.wikipedia.org/wiki/Hypothyroidism > , amenorrhoea < > http://en.wikipedia.org/wiki/Amenorrhoea > , and retinopathy < > http://en.wikipedia.org/wiki/Retinopathy > , among other problems > > I had adrenal fatigue and took supplements instead. The best as far as > I am concerned is Doctor ’s brand. He also has a book > about adrenal fatigue. He does recommend hydrocortisone sometimes but > look at the side effects! I think his supplements work really well and > cutting out bad foods and stress (yeah rightJ ) are important. > > Hugs, > > cooky > > I was given hydrocortisone for adrenal fatigue (extreme weakness). > This was diagnosed through a saliva test. It works like a charm I felt > life again. This RA is ruthless. I was never given prednisone. I don't > think there is a plan for prednisone. Is there more that I need to know? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 free range eggs are ok for me. maybe they are not for you but for most with RA i know they are ok. one lady said they were not. i eat a lot of free range chicken too. not sure why you say poultry is not ok? monique uys/, This diet is not hard to follow, but are eggs ok? I thought poultry and dairy products are a big NO. I am currently seeing a rheumatologist DR right now but i will try to check with the hospital if they have a antibiotic protocol doctor. kind regards, Mau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Yes it is. Go on the web site also…it is very informative. From: rheumatic [mailto:rheumatic ] On Behalf Of drleeper@... Sent: Saturday, May 22, 2010 4:32 PM rheumatic Subject: Re: rheumatic Re: new member Cooky, I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Hopefully that was the book you were referencing. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Yes, I took cortef, and I have Dr. 's book. I took it in the beginning, but when I no longer felt a benefit, I weaned off. I started weaning off after a couple of months. By then my ft3 level was higher. Ft3 stands for free thyroid 3 hormone. It is the active thyroid hormone. Only free t3 is unattached and unbound from other proteins and can get into the tissues. Your ft3 levels should be in the upper end of the lab reference range. I think you are taking DHEA? Despite low levels, I do not tolerate it, and it makes me swell. I've tried doses as low as 1mg. I take 4 grains of Erfa (equivalent of Armour). That's 240 mg. Yes, I think screwed up hormones is linked to autoimmune problems. If you are interested in this subject, here's a group dedicated to it. NaturalThyroidHormones/ Amy > > > Yes, My doctor has me taking Nature Throid 95mg( I was on Armour) and > I take 1/2 tablet of DMEA daily. I guess my whole hormone foundaion > was shaken with this RA. I don't think I know what ft3 is > > Did you use cortef to treat your adrenal fatigue or did you use > Adrenal supplements from Dr. brand? > > Donna > RE: rheumatic Re: new member > > > > Donna, > > > > Prednisone and hydrocortisone are the same thing with differences. > > Prednisone is manmade. They are both cortisone. Supposidly > > hydrocortisone is natural cortisone. I do know, like you said before, > > you take less of hydrocortisone to get the results. I feel the less > > you use of this the better. I took mine to reduce pain and swelling of > > the RA. > > > > Long-term cortisone use potentially has a number of severe > > side-effects: hyperglycemia < > > http://en.wikipedia.org/wiki/Hyperglycemia > , insulin resistance < > > http://en.wikipedia.org/wiki/Insulin_resistance > , diabetes < > > http://en.wikipedia.org/wiki/Diabetes_mellitus > mellitus, > > osteoporosis < http://en.wikipedia.org/wiki/Osteoporosis > , anxiety < > > http://en.wikipedia.org/wiki/Anxiety > , depression < > > http://en.wikipedia.org/wiki/Depression_ (mood)> , gastritis < > > http://en.wikipedia.org/wiki/Gastritis > , colitis < > > http://en.wikipedia.org/wiki/Colitis > , hypertension < > > http://en.wikipedia.org/wiki/Hypertension > , ictus < > > http://en.wikipedia.org/wiki/Ictus > , erectile dysfunction < > > http://en.wikipedia.org/wiki/Erectile_dysfunction > , hypogonadism < > > http://en.wikipedia.org/wiki/Hypogonadism > , hypothyroidism < > > http://en.wikipedia.org/wiki/Hypothyroidism > , amenorrhoea < > > http://en.wikipedia.org/wiki/Amenorrhoea > , and retinopathy < > > http://en.wikipedia.org/wiki/Retinopathy > , among other problems > > > > I had adrenal fatigue and took supplements instead. The best as far as > > I am concerned is Doctor ’s brand. He also has a book > > about adrenal fatigue. He does recommend hydrocortisone sometimes but > > look at the side effects! I think his supplements work really well and > > cutting out bad foods and stress (yeah rightJ ) are important. > > > > Hugs, > > > > cooky > > > > I was given hydrocortisone for adrenal fatigue (extreme weakness). > > This was diagnosed through a saliva test. It works like a charm I felt > > life again. This RA is ruthless. I was never given prednisone. I don't > > think there is a plan for prednisone. Is there more that I need to > know? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 Is this what you are looking for, Cooky? http://www.rheumatic.org/medhist.htm Re: rheumatic Re: new member Dr. Burton is hopeful that my adrenals will start functioning again as I get well. I will pick up that book. What is the name of it. I'll look on Amazon. I searched out Dr. Fred burton, Philadelphia as an AP doctor to help me through this Rheumatoid Arthritis. He's hoping that we caught it in time that I might see remission. I understand it is a long road back to good health. I've read the book Arthritis Breakthrough . That was an excellent read. Did you lose the weight after you stopped the hydrocortisone? I just feel puffy along with swollen fingers and feet. When does that stop? I try to exercise but after working 10-12 hour days who has the energy. They tell me I would feel better if i did. Thank goodness for this group because sometimes you feel alone when everyone you tell about " anitbiotic protocol " they think you're duped or just being fed snake oil. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 those testimonies are sooo encouraging. Thanks for sharing. Donna Re: rheumatic Re: new member Dr. Burton is hopeful that my adrenals will start functioning again as I get well. I will pick up that book. What is the name of it. I'll look on Amazon. I searched out Dr. Fred burton, Philadelphia as an AP doctor to help me through this Rheumatoid Arthritis. He's hoping that we caught it in time that I might see remission. I understand it is a long road back to good health. I've read the book Arthritis Breakthrough . That was an excellent read. Did you lose the weight after you stopped the hydrocortisone? I just feel puffy along with swollen fingers and feet. When does that stop? I try to exercise but after working 10-12 hour days who has the energy. They tell me I would feel better if i did. Thank goodness for this group because sometimes you feel alone when everyone you tell about " anitbiotic protocol " they think you're duped or just being fed snake oil. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 donna did your doc tell you about willaim jeffries book on hydrocortisone? he believes that taking physiological doses of hc are ok and necessary at times when the adrenals are unable to produce them on their own. * Jeffries. M.D. _The Safe Use of Cortisol _* *_hth _* *_monique _* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 Well, Dr. Burton recommended that I take hc (as a bio-identical) steroid until my adrenals start to function on their own. I started with 20 mg in March and when I saw him 2 weeks ago he reduced it to 10 mg. I told him that I was feeling so much better but I gained 10 pounds. That's when he reduced my dosage. What I found was the weakness and aching started back. something I haven't felt in months. I can only assume that my adrenals aren't functioning. No he never told me about william jeffries. I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Cooky recommended that book. She also recommended the supplements that he puts out instead of hc. I don't know whether to continue hc or try these suppliements (after I read about it first). How damaging can hc be on a short term basis. I read the side effects and wow they are scary but I felt so poorly. I'll google the book you recommend. Donna rheumatic Re: new member donna did your doc tell you about willaim jeffries book on hydrocortisone? he believes that taking physiological doses of hc are ok and necessary at times when the adrenals are unable to produce them on their own. * Jeffries. M.D. _The Safe Use of Cortisol _* *_hth _* *_monique _* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 No.. No Donna I don’t recommend supplements INSTEAD of hc. I just said †I†use the supplements. I have had a lot of success with them. Donna, YOU do what your doctor wants. I also read Jeffries book. It is a very good book for you to read since your doc has you on hc….I just forgot about the book since I use supplements. cooky From: rheumatic [mailto:rheumatic ] On Behalf Of drleeper@... Sent: Sunday, May 23, 2010 5:33 PM rheumatic Subject: Re: rheumatic Re: new member Well, Dr. Burton recommended that I take hc (as a bio-identical) steroid until my adrenals start to function on their own. I started with 20 mg in March and when I saw him 2 weeks ago he reduced it to 10 mg. I told him that I was feeling so much better but I gained 10 pounds. That's when he reduced my dosage. What I found was the weakness and aching started back. something I haven't felt in months. I can only assume that my adrenals aren't functioning. No he never told me about william jeffries. I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Cooky recommended that book. She also recommended the supplements that he puts out instead of hc. I don't know whether to continue hc or try these suppliements (after I read about it first). How damaging can hc be on a short term basis. I read the side effects and wow they are scary but I felt so poorly. I'll google the book you recommend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2010 Report Share Posted May 23, 2010 sorry Cooky for misunderstanding but I'm thinking supplements (if they work) would be a better way to manage adrenal fatigue. But I will have a conversation with my doctor before making that change. I'll make notes from the book and ask questions at my next appointment . Donna Re: rheumatic Re: new member Well, Dr. Burton recommended that I take hc (as a bio-identical) steroid until my adrenals start to function on their own. I started with 20 mg in March and when I saw him 2 weeks ago he reduced it to 10 mg. I told him that I was feeling so much better but I gained 10 pounds. That's when he reduced my dosage. What I found was the weakness and aching started back. something I haven't felt in months. I can only assume that my adrenals aren't functioning. No he never told me about william jeffries. I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Cooky recommended that book. She also recommended the supplements that he puts out instead of hc. I don't know whether to continue hc or try these suppliements (after I read about it first). How damaging can hc be on a short term basis. I read the side effects and wow they are scary but I felt so poorly. I'll google the book you recommend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 eggs are fine !! MazM ________________________________ From: Maureen Rigor <mau_grigor@...> rheumatic Sent: Sat, 22 May, 2010 4:50:36 PM Subject: Re: rheumatic Re:new member  Guys/, This diet is not hard to follow, but are eggs ok? I thought poultry and dairy products are a big NO. I am currently seeing a rheumatologist DR right now but i will try to check with the hospital if they have a antibiotic protocol doctor. kind regards, Mau ________________________________ From: Sauve <moniquesauve@...> rheumatic Sent: Sat, May 22, 2010 4:05:44 AM Subject: rheumatic Re:new member hi mau the paleo diet helps me greatly. basically i eat fish, meat, lots of chicken or beef broth, vegetables (loads of them), squash, eggs, good fats like coconut oil, olive oil, avocado, butter, minimal nuts/seeds, minimal fruit. i also take very good probiotics and try to eat fermented foods daily like raw sauerkraut, yogurt made with coconut milk. lmk if you need some recipes. i've got some good websites with recipes. do you have an antibiotic protocol doctor? hope you get feeling better monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Poultry is not ok if it is pumped full of growth hormone ... ie over here in Oz it goes from born to table in 6 wks !! full of growth hormones to get it that big ready to eat ...That's the only reason,, Over here we can't buy even an organic chook that hasn't taken a lot of growth hormones MazM ________________________________ From: Sauve <moniquesauve@...> rheumatic Sent: Sun, 23 May, 2010 6:55:43 AM Subject: rheumatic Re: new member  free range eggs are ok for me. maybe they are not for you but for most with RA i know they are ok. one lady said they were not. i eat a lot of free range chicken too. not sure why you say poultry is not ok? monique uys/, This diet is not hard to follow, but are eggs ok? I thought poultry and dairy products are a big NO. I am currently seeing a rheumatologist DR right now but i will try to check with the hospital if they have a antibiotic protocol doctor. kind regards, Mau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 I get free range eggs from a friend that uses only organic stuff, so I get blue, green and brown eggs every week. They have a nice dark yellow yolk and taste great. Eva From: Maz Maz <mazm_mm@...> Subject: Re: rheumatic Re: new member rheumatic Date: Monday, May 24, 2010, 6:39 PM  Poultry is not ok if it is pumped full of growth hormone ... ie over here in Oz it goes from born to table in 6 wks !! full of growth hormones to get it that big ready to eat ...That's the only reason,, Over here we can't buy even an organic chook that hasn't taken a lot of growth hormones MazM ________________________________ From: Sauve <moniquesauve@...> rheumatic Sent: Sun, 23 May, 2010 6:55:43 AM Subject: rheumatic Re: new member  free range eggs are ok for me. maybe they are not for you but for most with RA i know they are ok. one lady said they were not. i eat a lot of free range chicken too. not sure why you say poultry is not ok? monique uys/, This diet is not hard to follow, but are eggs ok? I thought poultry and dairy products are a big NO. I am currently seeing a rheumatologist DR right now but i will try to check with the hospital if they have a antibiotic protocol doctor. kind regards, Mau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Lucky you Eva .. & I bet they taste great !! We currently have 6 chickens & 4 ducks so we have our own eggs as well & I just love poached duck eggs for breaky -- am still looking for good tasting gluten free bread though ((boo hoo) MazM > > > From: Maz Maz <mazm_mm@...> > Subject: Re: rheumatic Re: new member > rheumatic > Date: Monday, May 24, 2010, 6:39 PM > > >  > > > > Poultry is not ok if it is pumped full of growth hormone ... ie over here in Oz it goes from born to table in 6 wks !! full of growth hormones to get it that big ready to eat ...That's the only reason,, Over here we can't buy even an organic chook that hasn't taken a lot of growth hormones > > MazM > > ________________________________ > From: Sauve <moniquesauve@...> > rheumatic > Sent: Sun, 23 May, 2010 6:55:43 AM > Subject: rheumatic Re: new member > >  > free range eggs are ok for me. maybe they are not for you but for most > with RA i know they are ok. one lady said they were not. i eat a lot of > free range chicken too. not sure why you say poultry is not ok? > > monique > > uys/, > > This diet is not hard to follow, but are eggs ok? I thought poultry and > dairy products are a big NO. > > I am currently seeing a rheumatologist DR right now but i will try to > check with the hospital if they have a antibiotic protocol doctor. > > kind regards, > > Mau > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 we got some new gluten-free bread called Udi's and it taste like regular bread, backed in Denver, CO. Eva From: Maz <mazm_mm@...> Subject: rheumatic Re: new member rheumatic Date: Tuesday, May 25, 2010, 3:32 AM  Lucky you Eva .. & I bet they taste great !! We currently have 6 chickens & 4 ducks so we have our own eggs as well & I just love poached duck eggs for breaky -- am still looking for good tasting gluten free bread though ((boo hoo) MazM > > > From: Maz Maz <mazm_mm@...> > Subject: Re: rheumatic Re: new member > rheumatic > Date: Monday, May 24, 2010, 6:39 PM > > >  > > > > Poultry is not ok if it is pumped full of growth hormone ... ie over here in Oz it goes from born to table in 6 wks !! full of growth hormones to get it that big ready to eat ...That's the only reason,, Over here we can't buy even an organic chook that hasn't taken a lot of growth hormones > > MazM > > ________________________________ > From: Sauve <moniquesauve@...> > rheumatic > Sent: Sun, 23 May, 2010 6:55:43 AM > Subject: rheumatic Re: new member > >  > free range eggs are ok for me. maybe they are not for you but for most > with RA i know they are ok. one lady said they were not. i eat a lot of > free range chicken too. not sure why you say poultry is not ok? > > monique > > uys/, > > This diet is not hard to follow, but are eggs ok? I thought poultry and > dairy products are a big NO. > > I am currently seeing a rheumatologist DR right now but i will try to > check with the hospital if they have a antibiotic protocol doctor. > > kind regards, > > Mau > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2010 Report Share Posted May 25, 2010 Wish I lived over there then. I have checked out lots of gluten free bread here & they all taste really heavy & yuk ... not eating bread to me is like most people not eating chocolate! > > > > > > From: Maz Maz <mazm_mm@> > > Subject: Re: rheumatic Re: new member > > rheumatic > > Date: Monday, May 24, 2010, 6:39 PM > > > > > >  > > > > > > > > Poultry is not ok if it is pumped full of growth hormone ... ie over here in Oz it goes from born to table in 6 wks !! full of growth hormones to get it that big ready to eat ...That's the only reason,, Over here we can't buy even an organic chook that hasn't taken a lot of growth hormones > > > > MazM > > > > ________________________________ > > From: Sauve <moniquesauve@> > > rheumatic > > Sent: Sun, 23 May, 2010 6:55:43 AM > > Subject: rheumatic Re: new member > > > >  > > free range eggs are ok for me. maybe they are not for you but for most > > with RA i know they are ok. one lady said they were not. i eat a lot of > > free range chicken too. not sure why you say poultry is not ok? > > > > monique > > > > uys/, > > > > This diet is not hard to follow, but are eggs ok? I thought poultry and > > dairy products are a big NO. > > > > I am currently seeing a rheumatologist DR right now but i will try to > > check with the hospital if they have a antibiotic protocol doctor. > > > > kind regards, > > > > Mau > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 Hi Tamara, Welcome to the list. Many here have elevated arsenic and antimony. Have you identified and reduced/removed sources of exposure? www/danasview.net/metals is an excellent source of info. Just so you know, ALA (alpha lipoic acid) chelates both arsenic and mercury and is available without a prescription. Do not use it if your child has ANY mercury amalgam dental fillings. Requires low, frequent dosing for safe chelation. S S New Member Posted by: " TamaraG " drsgrosz@... tamaragrosz Mon May 31, 2010 10:25 am (PDT) Hi Everyone! We are the Grosz family from Pooler Georgia near Savannah, Georgia. We have an 8 year old on the spectrum. He is not currently showing for Mercury problems right now but instead Antimony and Arsenic. I look foward to learning from the group. We also just started a new club for special needs families this week and I thought I would share it in case anyone is interested. The link is below my name and you can contact me personally if you have any questions! Have a great memorial day! Tamara Grosz www.specialneedstravelclub.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 I use to have a link that could locate an AP doctor. I am looking for a friend in Boston, MA. or somewhere nearby Donna Re: rheumatic Re: new member Well, Dr. Burton recommended that I take hc (as a bio-identical) steroid until my adrenals start to function on their own. I started with 20 mg in March and when I saw him 2 weeks ago he reduced it to 10 mg. I told him that I was feeling so much better but I gained 10 pounds. That's when he reduced my dosage. What I found was the weakness and aching started back. something I haven't felt in months. I can only assume that my adrenals aren't functioning. No he never told me about william jeffries. I just placed my order for: Adrenal Fatigue: The 21st Century Stress Syndrome - L. Cooky recommended that book. She also recommended the supplements that he puts out instead of hc. I don't know whether to continue hc or try these suppliements (after I read about it first). How damaging can hc be on a short term basis. I read the side effects and wow they are scary but I felt so poorly. I'll google the book you recommend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Hi and everybody, RA is also a new addition to my list of conditions. I was diagnosed 3 weeks ago after about 2 months of rapidly deteriorating joint pains all over. It got so bad that I can't even comb my hair at times, and would feel trapped under my duvet. My rheumatologist confirmed diagnosis after testing my CCP antibodies and it came back 468 (normal 0-7). He said that this is very sensitive in detecting RA. 3 weeks earlier I had these results: equivocal RF = 28 (normal 0-20) , weakly positive ANA, elevated ESR = 81 (normal 1-19) and CRP = 60 (normal 0-5) - these indicated inflammation going on but may not be caused by RA. I also had Graves' Disease (hyperthyroidism) since 1990 but is somewhat under control now. I also have a benign brain tumor (meningioma) diagnosed 3 years ago, and now being considered for radiation. Reading about possible links between Vit D deficiency and RA, also brain tumors, and also PCOS (polycystic ovarian syndrome) which I also have, I have just requested for a blood test to check my Vit D levels. A friend experienced having severe joint aches a few years back and suspected Lupus but doctors could not come up with a clear diagnosis. Finally one doctor suggested she have Vit D deficiency checked and it turned out she is severely deficient. High doses (toxic for normal people) of Vit D treatment started and her joint aches were relieved. She encouraged me to have the test done. Good luck! Regards, Rose From: cynsayre Sent: Saturday, June 26, 2010 5:42 PM Subject: [ ] New Member Hello Everyone, RA is something new on my medical plate and I am still not sure it's a reality. My last bloodwork (6/18) shows my C-Reactive Protein to be 85.6 with a range of 0.0-4.9 and my CCP Antibodies to be 24 with a range of 0-19. I was diagnosed with Hashimoto's Disease (thyroid) many years ago and have many questions regarding the association of RA/Lupus/Hypothyroid. How do I tell the difference... how can I be certain about an RA diagnoses? In your opinions, what is the best test to conclusively diagnose RA. All of my symptoms mimic all of the above (however, my thyroid numbers look really good right now) and I am just so confused. I have a great internists who works along with me and respects my input, but I wonder if I need to see a rhumatologists. Any information you can share will be greatly appreciated. Abundant Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Welcome, . Please do make an appointment with a rheumatologist. Although anti-CCP antibodies are very specific to RA, at this time, there is no one test that can absolutely rule RA in or out. Not an MD On Sat, Jun 26, 2010 at 11:42 AM, cynsayre <cynsayre@...> wrote: > Hello Everyone, RA is something new on my medical plate and I am still not sure it's a reality. My last bloodwork (6/18) shows my C-Reactive Protein to be 85.6 with a range of 0.0-4.9 and my CCP Antibodies to be 24 with a range of 0-19. I was diagnosed with Hashimoto's Disease (thyroid) many years ago and have many questions regarding the association of RA/Lupus/Hypothyroid. How do I tell the difference... how can I be certain about an RA diagnoses? In your opinions, what is the best test to conclusively diagnose RA. All of my symptoms mimic all of the above (however, my thyroid numbers look really good right now) and I am just so confused. I have a great internists who works along with me and respects my input, but I wonder if I need to see a rhumatologists. Any information you can share will be greatly appreciated. > > Abundant Blessings, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 HI Rose and , Thank you for your information and suggestions. I have an appt with my Internists this week to review my current labs and hopefully she will have suggestions on the next direction to take. I do currently take VD (10,000 IU) daily and monitor my levels (currently 59.8 w/range 32.0-100.00) which are also important for thyroid conditions. Because I seem to be allergic to the fillers in pain meds, this journey is very scary. Once I have a definitive diagnoses, (hopefully possible) I'll be able to zero in on the more natural supplements. I prefer holistic to allopathic treatments, since my journey in treatment of the thyroid. It's amazing how little Dr's know about so much!! I'm curious to know if anyone on the list has tried acupuncture for RA pain relief and how successful it may have been. Thank you all for your sharing of what you have learned. Abundant Blessings, Quote Link to comment Share on other sites More sharing options...
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