RE: Re: New member intro--To

[Guest guest]

Hi ,

Sorry to hear about your diagnosis. As Crystal suggested, given that you live in

Alaska, probably the first thing is to get your Vitamin D level up. When I have

my tests done regularly, the range on the scale they use is like 28-90

(approximately). There are times I come out like 38 and the doc will say that is

OK, but I understand about 75 is more optimal for MS. But this depends on what

scale is being used. I think the gold standard is the 25OH (D) test --not sure

if I have the name right. Maybe someone else can chime in.

Tom mentioned LDN. That does seem to help many to either stop progression or

even for some find improvement. For me personally it did not help. I was on it

for over 3 years (tried a couple different dose levels) and continued to develop

new symptoms. I was doing other holistic approaches as well. The last year I

went off and there has been no decline and no improvement, so for me it was not

worthwhile, but for many others it seems to be....I think you may find that many

convenional neurologists will not want to prescribe LDN and will advise against

it. Usually one has to find a doc willing to prescribe it, which is pretty easy

to find these days by joining and asking the LDN Yahoo group. However, it is

important to note that LDN is contraindicated with most of the MS drugs, with

the exception of Copaxone. So if you are going to take one of the interferons,

you may not be a candidate for LDN. Dudley on this group may be able to tell you

more about the interactions.

Other than this, I do suggest that you give a try to the Best Bet Diet

(gluten,soy, and legume free diet), which seems to help to many. As well as

exercise to the extent you are able (yoga and swimming are good ones). Some have

had benefit from really loading up on veggies and to a lesser extent fruit (and

to a lesser extent nuts and seeds) as the primary sources of their diet. The

non-gluten grains like quinoa and brown rice are OK for many. I hear there is a

new soy and gluten free substitute cheese called " Daiya " (not sure if that

spelling is correct) but that may be an option.

Others may have mentioned that the Multiple Sclerosis Resource Center website

Best Bet Diet section can really help guide you with the diet cans and can'ts.

Some people also have ELISA tests done to discover additional sensitivities.

Others have found relief/recovery from a great variety of treatments such as

CCSVI, EAP injections, fasting, organ cleansing, candida cleansing, parasite

cleansing, Klenner Protocol, Prokarin Patch, bee sting therapy, emotional

healing techniqus, and amalgam removal and chelation, but these are just options

I would hold off for now since you are just entering the holistic world, I would

suggest starting with the BBD diet, the vitamin D supplement along with some of

the other BBD supplements, and possibly LDN.

I know this is a lot to take in but you will become more familar with this stuff

in time and it will not seem like so much to take in and you will find the road

that is right for you. I have been battling MS for about 5 years and not doing

too bad but still have healing to do.

[Guest guest]

You can order the ELISA test through a couple of places in England and they can

do it mail order. If you contact MSRC, you can get a discount.

I think it a useful test to do at the outset but prefer to do my own rotation

diet thereafter to see what I may have become intolerant of since. It is

paramount to work out what allergies you have rather than just do the BBD blind

as you might still be eating or supplementing with something off-limits for you.

Everything on the BBD is again on the MSRC website. Worth joining the Yahoo MS

Diet group which is all BBD. There are no published books on it.

A while ago I put together a spreadsheet (very large - over 7,000 foods) of what

you can/can't eat on the diet. It is useful when you first start the diet as

you can look up foods you are not sure about to see if they are OK. It will

work on Excel or OpenOffice or similar. I did it to raise funds for MSRC, much

like someone able might do a sponsored walk or run and was sending it on to

people in return for a small donation ($2/3) to MSRC (details sent with it) but

of course would send it to people unable to pay too. If you are interested

e-mail me privately - it is called MealSafe - and I'll send you a copy.

Other than medical marijuana, I have found magnesium oil to be useful for

pain/tingling in my legs. You rub it in topically.

Hope that helps.

Janet

To: mscured

From: akhamlet@...

Date: Thu, 6 Jan 2011 21:43:34 +0000

Subject: Re: New member intro--To

ELISA test -- is this done at your doctor's office or through a mail order

company? Has anyone found that the results are all that useful or no?

As for the BBD is there a book about this or is it all on the internet? I could

not find one on Amazon.com so I was not sure.

Besides medical marijuana [which I don't want to take since I work full time in

a government position] have any of you found any good relief from constant

tingling/burning sensations in your feet and hands? I'm currently on Neurontin

but it doesn't seem to be that effective.

[Guest guest]

All good advice, I would add something that is very important but hasnt been

mentioned.

Artificial sweeteners, like aspartame or splenda.

Some experts think some cases of ms were caused solely by aspartame, but

even if that isnt your cause, aspartame can def aggravate ms. much like

gluten.

While other people have had all their symptoms disappear after they stopped

consuming aspartame, which makes you wonder if they had MS or it can mimic

MS ?

All in all, I just hope anyone reading this with MS isn't drinking Diet Coke

!