Re: New member intro--To

Posted January 6, 2011 · January 6, 2011

Thank you for all of the information. I am currently on Copaxone and was going

to talk to my neurologist at my next appointment about LDN. When I started

taking a lot of supplements she was okay with it -- her theory is as long as

it's not costing you a lot of money and it's safe, try what you want to.

I do have questions about the ELISA test -- is this done at your doctor's office

or through a mail order company? Has anyone found that the results are all that

useful or no?

As for the BBD is there a book about this or is it all on the internet? I could

not find one on Amazon.com so I was not sure.

Besides medical marijuana [which I don't want to take since I work full time in

a government position] have any of you found any good relief from constant

tingling/burning sensations in your feet and hands? I'm currently on Neurontin

but it doesn't seem to be that effective.

Thank you all for your support and answers -- it is much appreciated. Jen

>

> Hi ,

> Sorry to hear about your diagnosis. As Crystal suggested, given that you live

in

> Alaska, probably the first thing is to get your Vitamin D level up. When I

have

> my tests done regularly, the range on the scale they use is like 28-90

> (approximately). There are times I come out like 38 and the doc will say that

is

> OK, but I understand about 75 is more optimal for MS. But this depends on what

> scale is being used. I think the gold standard is the 25OH (D) test --not sure

> if I have the name right. Maybe someone else can chime in.

>

> Tom mentioned LDN. That does seem to help many to either stop progression or

> even for some find improvement. For me personally it did not help. I was on it

> for over 3 years (tried a couple different dose levels) and continued to

develop

> new symptoms. I was doing other holistic approaches as well. The last year I

> went off and there has been no decline and no improvement, so for me it was

not

> worthwhile, but for many others it seems to be....I think you may find that

many

> convenional neurologists will not want to prescribe LDN and will advise

against

> it. Usually one has to find a doc willing to prescribe it, which is pretty

easy

> to find these days by joining and asking the LDN Yahoo group. However, it is

> important to note that LDN is contraindicated with most of the MS drugs, with

> the exception of Copaxone. So if you are going to take one of the interferons,

> you may not be a candidate for LDN. Dudley on this group may be able to tell

you

> more about the interactions.

>

> Other than this, I do suggest that you give a try to the Best Bet Diet

> (gluten,soy, and legume free diet), which seems to help to many. As well as

> exercise to the extent you are able (yoga and swimming are good ones). Some

have

> had benefit from really loading up on veggies and to a lesser extent fruit

(and

> to a lesser extent nuts and seeds) as the primary sources of their diet. The

> non-gluten grains like quinoa and brown rice are OK for many. I hear there is

a

> new soy and gluten free substitute cheese called " Daiya " (not sure if that

> spelling is correct) but that may be an option.

>

> Others may have mentioned that the Multiple Sclerosis Resource Center website

> Best Bet Diet section can really help guide you with the diet cans and can'ts.

> Some people also have ELISA tests done to discover additional sensitivities.

>

> Others have found relief/recovery from a great variety of treatments such as

> CCSVI, EAP injections, fasting, organ cleansing, candida cleansing, parasite

> cleansing, Klenner Protocol, Prokarin Patch, bee sting therapy, emotional

> healing techniqus, and amalgam removal and chelation, but these are just

options

> I would hold off for now since you are just entering the holistic world, I

would

> suggest starting with the BBD diet, the vitamin D supplement along with some

of

> the other BBD supplements, and possibly LDN.

>

> I know this is a lot to take in but you will become more familar with this

stuff

> in time and it will not seem like so much to take in and you will find the

road

> that is right for you. I have been battling MS for about 5 years and not doing

> too bad but still have healing to do.

>

Posted January 6, 2011 · January 6, 2011

> I do have questions about the ELISA test -- is this done at your doctor's

office or through a mail order company? Has anyone found that the results are

all that useful or no?

>

I don't have health insurance and therefore, no PCP or neuro to order tests for

me. I was going to do it by mail order but then found a much cheaper option

through a local grocery chain that offered health screenings. You picked what

tests you wanted done at a discounted price. I had a 90-food panel done for

$109. I had that done last March and plan to have it yearly.

I found it very useful myself. I have kept a food diary since starting BBD 3

years ago, but about a year ago I was having symptoms and couldn't pinpoint the

source. It was because I developed allergies to salmon (was taking a daily

salmon oil supplement), carrots, and asparagus. They just weren't on my radar

as possibilities. The ELISA also confirmed that I had developed a sensitivity

to eggs, which I had determined by the food diary several months earlier and had

already taken out of my diet. Once I took out the foods that were listed as

reactive on the test, I felt better in less than a week (after having symptoms

for about 2 months!). By the way, when I had the test done I had been on BBD

for 2 years and still showed reactions to some dairy, as well as soy and other

beans. I plan to stick to BBD and stay away from them even if they show up

negative in the future.

I now rotate all my foods so that I don't eat the same things too frequently and

develop new allergies.

Crystal

Posted January 6, 2011 · January 6, 2011