Re: MS drugs

[Guest guest]

Good thread !!

LDN was my " escape " from the CRAB drugs !! Even if the LDN did NOTHING, it was

better then Rebif!

Felt the Rebif actually did harm. Was even able to measure w/ my GPS and a week

long break from the drug, that it was doing harm.

Even did a search / interview of a dozen of so WAY early members of the Yahoo

LDN board. Ended up getting about 33 % of the early timers that responded were

still taking the LDN. If we search the LDN board, it is possible to find

instances of people reporting it didn't work for them. Typically a post like

that is a single post. Why stay and keep posting on the LDN board if it did not

work? If we review the board, the majority of posts are people that are first

taking the LDN.

When I posted my data on the Patients Like Me (PLM) MS board, it was amazing how

many people threw " flames " at me ! Didn't apologize. Just brought up more

links to posts where it didn't work.

My early Lyme-contact that connected me w/ my first LLMD is taking LDN. She

brags how it gives her the strength to stand longer. Based on her review, I

restarted my LDN. So far, don't think it is helping me with my

neuro-borreliosis (aka Lyme disease) either.

to review:

my neurologist #1, a MS clinical trial physician, had about a dozen patients

that tried LDN. He told me, " it wasn't a good experience for anybody " . My

alternative physician who prescribed the LDN, reported that he felt if didn't

help any of his patients either.

Now I've been on LDN TWICE. Carefully followed the 1.5 mg/day start up, the 3.0

mg/day for a month, not 4.5 mg/day. Still not convinced it is of any benefit.

Mileage may vary

> >

> > LDN didn't work for me either. I had high hopes, and tried it for a whole

year.

>