Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Has anyone undergone IVIG treatments? Intra Venous Immune Globulin? This message is intended only for the addressee and may contain information that is confidential or privileged. Unauthorized use is strictly prohibited and may be unlawful. If you are not the intended recipient, or the person responsible for delivering to the intended recipient, you should not read, copy, disclose or otherwise use this message, except for the purpose of delivery to the addressee. If you have received this email in error, please delete and advise the IT Security department at infosec@... immediately. Please consider the environment before printing this e-mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 hi I did it for 5 consecutive months here as a trial study. it was supposed to be a 1 year program. it was not effective with me at all. it was cut short as my neurologist said he didn't see any improvements. that was in late 2008 here in Montreal at the mtl neurological. as for the whole group it wasn't very successful in our group of progressive ms. ....Love is space and time measured by the heart. Marcel Proust JOEY-DEAN To: mscured CC: mscured From: Lenora.Wilkinson@... Date: Mon, 25 Oct 2010 17:40:31 -0500 Subject: IVIG Has anyone undergone IVIG treatments? Intra Venous Immune Globulin? This message is intended only for the addressee and may contain information that is confidential or privileged. Unauthorized use is strictly prohibited and may be unlawful. If you are not the intended recipient, or the person responsible for delivering to the intended recipient, you should not read, copy, disclose or otherwise use this message, except for the purpose of delivery to the addressee. If you have received this email in error, please delete and advise the IT Security department at infosec@... immediately. Please consider the environment before printing this e-mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I have been on IVIG for about 10 months. At first a 3 day infusion and now monthly with methylprednisolone 1gram. I'm on a whole lot of stuff with it, so it's hard to say what is working and what is not, but I'm not changing a thing right now. I seem to be staying at the same level . . . There aren't any major side effects usually with IVIG - you can ask your MD about that - so you may want to give it a try . . . good luck - let us know! betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I did IVIG three times before discontinuing as it had no benefit, however I may not be a good example as my condition has eluded diagnosis at both UCSF and Stanford. The IG nurse had nothing but positive stories about other confirmed MS patients who had the treatment. > > Has anyone undergone IVIG treatments? > Intra Venous Immune Globulin? > > This message is intended only for the addressee and may contain information that is confidential or privileged. Unauthorized use is strictly prohibited and may be unlawful. If you are not the intended recipient, or the person responsible for delivering to the intended recipient, you should not read, copy, disclose or otherwise use this message, except for the purpose of delivery to the addressee. If you have received this email in error, please delete and advise the IT Security department at infosec@... immediately. > > Please consider the environment before printing this e-mail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I did IVIG three times before discontinuing as it had no benefit, however I may not be a good example as my condition has eluded diagnosis at both UCSF and Stanford. The IG nurse had nothing but positive stories about other confirmed MS patients who had the treatment. > > Has anyone undergone IVIG treatments? > Intra Venous Immune Globulin? > > This message is intended only for the addressee and may contain information that is confidential or privileged. Unauthorized use is strictly prohibited and may be unlawful. If you are not the intended recipient, or the person responsible for delivering to the intended recipient, you should not read, copy, disclose or otherwise use this message, except for the purpose of delivery to the addressee. If you have received this email in error, please delete and advise the IT Security department at infosec@... immediately. > > Please consider the environment before printing this e-mail. > > > Quote Link to comment Share on other sites More sharing options...
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